scholarly journals QUALITY OF LIFE OF MOTHERS OF CHILDREN WITH DOWN SYNDROME

2017 ◽  
Vol 6 (36) ◽  
pp. 2939-2942 ◽  
Author(s):  
Suresh Vadakedom S ◽  
Jiji Mary Antony ◽  
Bindhu Krishnan Padma ◽  
Darly Saramma Mammen ◽  
Baburaj Palamkunnil Thankappan
Author(s):  
Anna Lee ◽  
Kathleen Knafl ◽  
Marcia Van Riper

The purpose of this scoping review was to identify the family and child quality of life variables that have been studied in relation to one another in children with Down syndrome, the frequency with which different relationships have been studied, and the extent to which family variables were the focus of the research aims. A literature search was conducted to find studies published between January 2007 and June 2018. The initial search yielded 2314 studies; of these, 43 were selected for a final review. Researchers most often addressed family resources and family problem-solving and coping concerning child personal development and physical well-being. Little attention to child emotional well-being was observed, with none considering family appraisal of child emotional well-being. The relationship between family variables and child QoL rarely was the primary focus of the study. Methodologically, most reviewed studies used cross-sectional designs, were conducted in North America and based on maternal report. From future research considering the issues found in this review, healthcare providers can obtain an in-depth understanding of relationships between children and family variables.


2021 ◽  
pp. 135910452110617
Author(s):  
Evanilza T. Adorno ◽  
Daiany C de J. Dos Santos ◽  
Beatriz M. DeJesus ◽  
Adrielle A. Passos ◽  
Lavínia Teixeira-Machado

This study investigated dance practice in psychosocial and functional aspects, and quality of life in children with Down syndrome and autism spectrum disorder. Children with DS and ASD, between 3 and 12 years old, attended a dance program during 16 sessions/lessons, lasting 60 min, twice a week, in suitable place. Functional Independence Measure (FIM), Childhood Autism Rating Scale SF-36 quality of life survey, and Knowledge, Attitude and Practice Inquiry (KAP Inquiry) were applied before and after dance classes. Eleven participants concluded the study. Functional independence changes were observed in relation to self-care, sphincter control, locomotion, and communication domains. Children’ “quality of life” reported by parents showed changes in functional capacity, vitality, mental health, physical and social aspects, and general state of health domains. These findings suggest that regular dance practice can underlie psychosocial adjustments in children with DS and ASD.


2022 ◽  
Author(s):  
Caroline Dias ◽  
Carolina Schwertner ◽  
Débora Grando ◽  
Augusto Bacelo Bidinotto ◽  
Juliana Balbinot Hilgert ◽  
...  

PLoS ONE ◽  
2011 ◽  
Vol 6 (7) ◽  
pp. e21879 ◽  
Author(s):  
Helma B. M. van Gameren-Oosterom ◽  
Minne Fekkes ◽  
Simone E. Buitendijk ◽  
Ashna D. Mohangoo ◽  
Jeanet Bruil ◽  
...  

2020 ◽  
Vol 32 (2) ◽  
pp. 93
Author(s):  
Aikaterini Katsiana ◽  
Nikolaos Strimpakos ◽  
Ventoulis Ioannis ◽  
Eleni Sofologi ◽  
Eleni Bonti ◽  
...  

2016 ◽  
Vol 4 (2) ◽  
Author(s):  
S. Abbasi ◽  
F. Sajedi ◽  
S. Hemmati ◽  
T. Najafi Fard ◽  
Mj. Azadchehr ◽  
...  

2018 ◽  
Vol 60 (4) ◽  
pp. 402-408 ◽  
Author(s):  
Nora Shields ◽  
Helen Leonard ◽  
Shannon Munteanu ◽  
Jennifer Bourke ◽  
Polly Lim ◽  
...  

2016 ◽  
Vol 4 (2) ◽  
pp. 1-11 ◽  
Author(s):  
Luciana Rezende ◽  
Fátima Caromano ◽  
Sueli Carvalho ◽  
Selma Sá ◽  
Luiz Barca ◽  
...  

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