scholarly journals Implementation of Instrument Based on Eight Health Related Quality of Life Domains for Measuring of Willingness to Pay for Psoriasis Treatment

Folia Medica ◽  
2017 ◽  
Vol 59 (3) ◽  
pp. 326-335 ◽  
Author(s):  
Hristo P. Dobrev ◽  
Nikolay G. Atanasov ◽  
Donka D. Dimitrova
Keyword(s):  
Quality Of Life ◽  
Willingness To Pay ◽  
Emotional Health ◽  
Stated Preferences ◽  
Health Related Quality ◽  
Number Of Patients ◽  
Related Quality ◽  
Health Related ◽  
The Individual

AbstractBackground:Psoriasis vulgaris (PsV) is a chronic skin condition that has a major impact on health-related quality of life (HRQOL).Aim:To determine the individual burden of PsV on HRQOL using willingness to pay (WTP) instrument.Materials and methods:Fifty-one consecutive PsV patients were asked to evaluate their overall health and psoriasis affected health by visual analogue scale (VAS), and interviewed on 8 domains (physical, emotional, sleep, work, social, self-care, intimacy, and concentration) of HRQOL and WTP for a hypothetical cure in each domain. Two additional questions proposing 6 alternatives for therapy were also asked. The analysis is performed with descriptive and frequency statistics, Mann-Whitney and Kruskal-Wallis tests.Results:The domains ranked highly were: physical comfort (90%), social comfort (77%), emotional health (75%) and work (53%). The following tendencies concerning WTP for top four impacted domains were found: the median WTP were the highest in the top impacted domains; the younger patients were willing to pay more than the older ones; the highest median WTP amounts appear in the lowest income group; the highest median WTP is associated with smaller psoriasis affected health VAS scores. The largest proportion and number of patients (37.3%, n=19) stated preferences for the systemic therapy. The second preferred choice was the thalassotherapy (29.4%, n=15).Conclusions:The utility and reliability of the instrument based on the assessment of WTP stated preferences for 8 domains of HRQOL for evaluation the individual burden of psoriasis were strongly supported.

Willingness-to-pay stated preferences for 8 health-related quality-of-life domains in psoriasis: A pilot study

2008 ◽  
Vol 59 (3) ◽  
pp. 439-447 ◽  
Author(s):  
Matthew Delfino ◽  
Elizabeth W. Holt ◽  
Charles R. Taylor ◽  
Eve Wittenberg ◽  
Abrar A. Qureshi
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Willingness To Pay ◽  
Stated Preferences ◽  
Life Domains ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Features and methods of assessing health-related quality of life and cognitive functions in patients with glial tumors

2020 ◽  
pp. 47-56
Author(s):  
Vera Arsenyeva ◽  
Boris Martynov ◽  
Gennadiy Bulyshchenko ◽  
Dmitriy Svistov ◽  
Boris Gaydar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Functions ◽  
Well Being ◽  
Health Related Quality ◽  
Number Of Patients ◽  
Related Quality ◽  
Health Related ◽  
Eortc Qlq ◽  
Patients With Epilepsy

Gliomas make up about 8 cases per 100,000 population and the number of patients with this disease is only increasing. There can be not only various types of neurological deficits among the symptoms, but also personal and emotional changes, that seriously affects the quality of life. The modern model of health care includes not only recovery of the patient’s physical functions, but also his or her psychosocial well-being. In particular, the assessment and study of the characteristics of health-related quality of life, as well as cognitive functions in patients with gliomas, is increasingly recognized as an important criterion when considering the effectiveness of treatment. To date, the features of health related quality of life and cognitive functions of patients with epilepsy and acute cerebral circulation disorders have been studied sufficiently, and, as a result, techniques have been developed that accurately assess the QOL and CF in patients with these diseases. These are QOLIE-31 and QOLIE-AD-48 questionnaires for patients with epilepsy. This is the National Institutes of Health Stroke Scale (NIHSS), Orgogozo stroke scale (OSS), World Federation of Neurological Surgeons (WFNS) scale for the clinical assessment of subarachnoid hemorrhage (SAH) for patients with acute cerebrovascular accident. At the same time, there are no generally accepted methods for assessing quality of life and neurocognitive functions that are sensitive to changes in the condition of patients with gliomas in the early postoperative period by the time of discharge from the hospital. As a result, there is no systematic information on the dynamics of the quality of life of such patients, their neurocognitive functioning. The purpose of this article was to study the literature on QOL and CF in patients affected by neurological and neurosurgical disorders for the further selection of optimal methods for assessing dynamics of the condition of patients with glial brain tumors before and after surgery. At the moment, such requirements are only partially met by the EORTC QLQ-C30 questionnaire and its application EORTC QLQ-BN20.

Health related quality of life of rosacea patients in China assessed by DLQI and willingness to pay: Cross-Sectional Questionnaire Study (Preprint)

2020 ◽  
Author(s):  
Yaqun Huang ◽  
Sha Yan ◽  
Hongfu Xie ◽  
Ben Wang ◽  
Zhixiang Zhao ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Willingness To Pay ◽  
Disease Duration ◽  
Life Quality ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

BACKGROUND Rosacea is a chronic inflammatory dermatosis with facial skin involved, leading to physical and emotional problems, which greatly affected quality of life (QoL) of patients. Dermatology Life Quality Index (DLQI) and willingness to pay (WTP) are well-established instruments assessing the health-related quality of life (HRQoL), while very few studies have been focused on this topic about rosacea in China. OBJECTIVE To investigate HRQoL in Chinese rosacea patients assessed by DLQI and WTP and investigate potential predictors for patients with HRQoL severely affected. METHODS This cross-sectional study was conducted on 973 patients with rosacea. Sociodemographic data, clinical features and DLQI were collected, and WTP was assessed by three standardized items. Multivariable logistic analysis was performed to investigate independent factors influencing QoL. RESULTS 921 questionnaires were accomplished by participants. The mean DLQI score was 11.6 (median 11). Patients were willing to pay an average of $1050.2 or € 896.2 (median $431.4 or € 368.1) for complete cure. 33.3% would like to pay more than 20% of their monthly income to achieve sustainable control. There were positive correlations between WTP with DLQI (P < .05). DLQI could be independently impacted by age (21-30 and 31-40, OR = 3.242 and 3.617, respectively), the occupational requirement of appearance (high, OR = 4.410), disease duration (< 2 years, OR = 1.582), oedema (OR = 1.844) and severity of flushing, burning, stinging and pruritus (severe, OR = 2.003, 1.981, 2.491, 2.249, respectively). There were no significant associations between WTP and most of the clinical factors. CONCLUSIONS The QoL was negatively affected and should not be ignored among rosacea patients in China. Patients aged 21-40y, having occupational requirement of appearance, with the disease duration less than 2 years, and suffering severe flushing and related symptoms were more likely to have severe or very severe limitation of QoL.

scholarly journals Quality of Life in Hidradenitis Suppurativa: An Update

2021 ◽  
Vol 18 (11) ◽  
pp. 6131
Author(s):  
Pavel V. Chernyshov ◽  
Andrew Y. Finlay ◽  
Lucia Tomas-Aragones ◽  
Francoise Poot ◽  
Francesca Sampogna ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hidradenitis Suppurativa ◽  
Acne Inversa ◽  
Health Related Quality ◽  
Number Of Patients ◽  
Related Quality ◽  
Health Related ◽  
Positive Effect ◽  
Specific Health

Knowledge on hidradenitis suppurativa/acne inversa (HS) is rapidly increasing. HS has a profound impact on patients and their family life. Several factors, such as comorbidities, unemployment and HS severity, make this impact even more severe. The most widely used instrument to measure this impact is the dermatology-specific DLQI. We also identified six HS-specific health-related quality of life (HRQoL) instruments. Of them, HIDRAdisk, HSIA, HiSQOL and HSQoL-24 are better validated but there is still lack of experience of its use. Several treatment methods showed positive effect on patients’ HRQoL. Surgery remains a method with a substantial positive effect on HRQoL. Several studies confirming a positive effect of adalimumab on the HRQoL of patients with HS were published during the last three years. Data on the influence of several other biologics on HRQoL of HS patients are controversial or based on studies with a small number of patients.

scholarly journals HG2 Characterizing The Individual Course of Health-Related Quality of Life After Subarachnoid Hemorrhage

2011 ◽  
Vol 14 (7) ◽  
pp. A240
Author(s):  
Y. Winter ◽  
J. Klotsche ◽  
F. Ringel ◽  
A. Spottke ◽  
N. Gharevi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Subarachnoid Hemorrhage ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Individual

scholarly journals Health-Related Quality of Life of Nurses Working Night Shifts

2019 ◽  
Vol 1 (20) ◽  
Author(s):  
Laura Dyglytė ◽  
Laimutė Kazlauskienė ◽  
Geriuldas Žiliukas
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Emotional Health ◽  
Night Shift ◽  
Social Function ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Night Shifts

Research justifcation. Physical and mental fatigue and emotional exhaustion experienced by night nurses are key factors affecting their health and quality of life. Sleeplessness not only increases the risk of various diseases, but also leads to an exacerbation of chronic diseases. The goal of research was to analyse the health-related quality of life of nurses working night shifts. The methods of research. Sixty night shift nurses were investigated. The 36-item Short Form Survey (SF-36) was used in the work. Statistical data was processed by using Microsoft Excel 2007 Spreadsheet and SPSS 17 for Windows. The survey was done in accordance with ethical principles. The results of research. Night nurses who used sleeping pills had low physical activity level; their duties were seriously restricted due to physical and emotional problems or physical pain. Moreover, they performed a lower social function and had worse health assessment in comparison with nurses who never or hardly ever took sedatives. The quality of life of night shift nurses was directly related to physical and psycho-emotional health. Physical activity was much better assessed by younger nurses than older ones, especially when comparing the 50–59-year-old nurses with other age groups; 30–39-year-old nurses were less restricted by pain; general health was evaluated better by 30–39-year-old nurses than the older ones. While evaluating the quality of life related to mental health, the radical difference was noticed in social function assessment based on the age of nurses, i.e. 30–39-year-old nurses assessed the social function better than the older ones. Conclusion. Physical and psycho-emotional health influences the quality of life of night shift nurses.Keywords: the quality of life, psycho-emotional health, physical health, sleep disorders, nursing.

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