(Health-related) quality of life and psychosocial factors in adolescents with chronic disease: a systematic literature review

2017 ◽  
Vol 31 (4) ◽  
Author(s):  
Teresa Santos ◽  
Margarida Gaspar de Matos ◽  
Celeste Simões ◽  
Isabel Leal ◽  
Maria do Céu Machado
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Literature Review ◽  
Protective Factors ◽  
Psychosocial Factors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Abstract Background Research on living with a chronic disease (CD) in adolescence is increasing. However, studies on the relevance of psychosocial factors are still needed. The present review, focuses on the impact of living with a CD in adolescence on on quality of life (QoL), health-related quality of life (HRQoL) and psychosocial factors. Methods A literature review of articles identified through PubMed, PsycINFO and PsycARTICLES (these last two ones comprise the Ebsco Host platform) and original peer-reviewed research papers, published between 2010 and 2015, with no restrictions regarding the format/source of interventions, randomized controlled trials (RCTs) or types of comparisons were included. Results Eighteen papers met the inclusion criteria and contradictory results were found: the majority showed a significantly higher risk of impairment on QoL/HRQoL and psychosocial factors, whereas others reported a significantly lower risk of impairment (highlighting possible protective factors), or no significant differences. Heterogeneity in the assessment procedures and substantial difficulties in considering adolescence as a single and independent age group, were also noted. Conclusion The higher risk of impairment and the heterogeneity observed between cohorts, reinforce the need to work towards consensual procedures, which allow for more accurate comparisons among studies. Additionally, it conveys the challenge to find more effective interventions. Furthermore, it is highly suggested to routinely assess HRQoL/psychosocial factors within an individualized framework, to considerer adolescents as a single/independent group, to emphasize potential protective factors, and, to increase youth’s participation in their own adaptation process and in health promotion in general. These are possible future directions that could enable multidisciplinary responses to improve HRQoL and psychosocial care in adolescents with a CD.

scholarly journals Health Related Quality of Life in Patients with Chronic Disease in Lebanese Community Setting

2020 ◽  
Author(s):  
Hani Dimassi ◽  
Soumana C Nasser ◽  
Aline Issa ◽  
Sandrine Sarine Adrian ◽  
Bassima Hazimeh
Keyword(s):  
Quality Of Life ◽  
Socioeconomic Status ◽  
Chronic Disease ◽  
Utility Score ◽  
Health Related Quality ◽  
Significant Difference ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Abstract Background: The impact of chronic diseases on patient quality of life are becoming of high priority in healthcare system. There is an increased need of such data in Middle Eastern countries. Objective: To measure health related quality of life (HRQOL) in patients with chronic disease to associate this information with demographic data, socioeconomic status, and health satisfaction.Setting: Six community pharmacies in Beirut region.Method: A prospective cross-sectional study was conducted to gather information on socioeconomic status, health condition and quality of life of participants during their visit to their local pharmacy. Main outcome measure: Health related quality of life using the EQ5D instrumentResults: Participants (n=103) gave an average of 6.8, and 7.4 over ten for their current health and for their satisfaction with their treatment, respectively. The mean utility score was 0.762 (SD 0.202). The number of prescribed medications per respondent indicated a significant impact on HRQOL (p = 0.002); with diuretic agents having a significant difference in utility scores (p<0.001). On average, participants 75 years or older, hospitalized in the past 12 months, diagnosed with hypertension, had a lower utility score of 0.15 (p<0.001), 0.111 (p=0.001), and 0.065 (p=0.035), respectively. For every unit increase in treatment satisfaction, the quality of life score increased by 0.036 unit (p= 0.001)Conclusion: HRQOL as measured by the EQ5D in this study was affected in patients with cardiac disease or diabetes. Male gender, advanced age, low socioeconomic status, frequent hospital and doctor visits were important risk factors for a poor HRQOL.

ACCESSIBLE HOUSING AND HEALTH-RELATED QUALITY OF LIFE: MEASUREMENTS OF WELLBEING OUTCOMES FOLLOWING HOME MODIFICATIONS

2016 ◽  
Vol 10 (2) ◽  
pp. 38 ◽  
Author(s):  
Phillippa Carnemolla ◽  
Catherine Bridge
Keyword(s):  
Quality Of Life ◽  
Mixed Method ◽  
Exploratory Research ◽  
Health Related Quality ◽  
Care Giving ◽  
Home Modifications ◽  
Related Quality ◽  
Health Related ◽  
The Impact

The multi-dimensional relationship between housing and population health is now well recognised internationally, across both developing and developed nations. This paper examines a dimension within the housing and health relationship – accessibility – that to date has been considered difficult to measure. This paper reports on the mixed method results of larger mixed-method, exploratory study designed to measure the impact of home modifications on Health-Related Quality of Life, supported by qualitative data of recipients’ experiences of home modifications. Data was gathered from 157 Australian HACC clients, who had received home modifications. Measurements were taken for both before and after home modifications and reveal that home modifications were associated with an average 40% increase in Health-Related Quality of Life levels. The qualitative results revealed that participants positively associated home modifications across six effect themes: increased safety and confidence, improved mobility at home, increased independence, supported care-giving role, increased social participation, and ability to return home from hospital. This exploratory research gives an insight into the potential for accessible architecture to impact improvements in community health and wellbeing.

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