Acceptability and Feasibility of Patient Portal As A Tool To Promote Adolescent And Young Adult Self-Management Skills Towards Transition Of Care

2021 ◽  
Author(s):  
Sophie H. Allende-Richter ◽  
Ashley Benitez ◽  
Melanie Ramirez ◽  
William Rivera ◽  
Shanshan Liu ◽  
...  
Keyword(s):  
Young Adult ◽  
Adolescent And Young Adult ◽  
Self Management ◽  
Patient Portal ◽  
Transition Of Care ◽  
Management Skills

scholarly journals Assessment of: self-management skills towards transition readiness and patient portal use among Hispanic adolescent and young adult patients

2020 ◽  
Vol 4 (1) ◽  
pp. e000658
Author(s):  
Sophie Allende-Richter ◽  
Melanie Ramirez ◽  
Zana Khoury ◽  
Fabienne Bourgeois ◽  
Alexandra Epee-Bounya ◽  
...  
Keyword(s):  
Personal Health Information ◽  
Adolescent And Young Adult ◽  
Self Management ◽  
Patient Portal ◽  
Management Skills ◽  
Online Application ◽  
Transition Readiness ◽  
Know How ◽  
Publicly Insured ◽  
Study Participants

We conducted a 15-item self-answered survey to assess self-management skills and explore interest in a patient portal among publicly insured Hispanic youths ages 12–25. Out of 61 participants, 33% did not know how to schedule an appointment, 50% how to refill prescriptions, 58% how to access their personal health information, 84% were unaware of the portal and 92% never used it. Referring to the portal as an online application increased participants interest by 39%. Although study participants exhibit low self-management skills and awareness of a patient portal, most welcome using it to manage their health. Further research is needed to validate whether a patient portal can promote self-management skills towards transition readiness among Hispanic youths.

scholarly journals Nurse-led video-coaching interventions in childhood, adolescent and young adult cancer survivors (REVIVER): a protocol for mixed methods feasibility research

2019 ◽  
Vol 5 (1) ◽  
Author(s):  
Eline Bouwman ◽  
Rosella P. M. G. Hermens ◽  
Nicole M. A. Blijlevens ◽  
Judith B. Prins ◽  
Jacqueline J. Loonen
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Behavioural Therapy ◽  
Adolescent And Young Adult ◽  
Self Management ◽  
Adult Onset ◽  
Survivorship Care ◽  
Potential Effectiveness ◽  
Cognitive Behavioural ◽  
Interviewing Techniques

Abstract Background Successful cancer treatment can lead to cancer survivors being predisposed to an increased lifelong risk of adverse late health effects. Therefore, high-quality cancer survivorship care to earlier detect and treat late effects or to preserve survivor’s health is essential. Nevertheless, this care needs to be sustainable and cost-effective as well. We developed three different screen-to-screen nurse-led eHealth interventions for survivors of childhood, adolescent and young adult-onset cancer, collectively called the REVIVER interventions. Elaborating on person-centred care principles with content based on cognitive behavioural therapy modules and/or motivational interviewing techniques, these interventions aim to empower and coach survivors to improve (1) symptoms of cancer-related fatigue, (2) self-efficacy and self-management or (3) lifestyle. With the REVIVER study, we aim to evaluate the interventions’ feasibility and gain insights into the potential effectiveness. Methods The REVIVER study involves a mixed methods design, including (1) interviews till data saturation with cancer survivors who completed the interventions as well as with all involved medical professionals, (2) reviews of nurses reports and (3) a single-group, pre-post evaluation among cancer survivors. Eligible survivors are survivors of childhood, adolescent and young adult-onset cancer who are referred to one of the interventions, in complete remission of cancer, 16–44 years old at enrolment, completed treatment at least 5 years ago and have access to a device with Internet options. We will assess feasibility in terms of demand, adherence, acceptability, practicality and integration/implementation. Health-related quality of life, as primary outcome of the potential effectiveness evaluation, will be assessed at three different time points: prior to the intervention; immediately following the intervention and 6 months post-intervention. Secondary outcome measures include changes in level of fatigue, self-efficacy, self-management and lifestyle. Discussion This is the first study to evaluate the feasibility and potential effectiveness of eHealth nurse-led interventions elaborating on person-centred care, using cognitive behavioural therapy and/or motivational interviewing techniques as an innovative and promising approach for providing CAYA cancer survivorship care. If the interventions prove to be feasible and potential effective, a randomized controlled trial will be conducted to test the (cost)-effectiveness.

Adolescent and Young Adult (AYA) Cancer Survivorship Curriculum In a University Setting

Blood ◽  
2010 ◽  
Vol 116 (21) ◽  
pp. 4749-4749
Author(s):  
William Wood ◽  
Sarah Wright ◽  
Anne Stephens ◽  
Sheila Santacroce ◽  
Julie Blatt ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adult ◽  
Focus Groups ◽  
Cancer Survivors ◽  
Cancer Survivorship ◽  
Late Effects ◽  
Adolescent And Young Adult ◽  
Self Management ◽  
Teaching Modules ◽  
University Setting

Abstract Abstract 4749 Background: That pediatric, adolescent and young adult cancers have become compatible with long term survivorship in the majority of cases has meant a growing emphasis on an understanding of the late effects of treatment. Among the barriers to successful health self-management in the context of transition of care from pediatricians to internists is the challenge of finding adult health care providers in the community who are comfortable caring for patients in this age group. We have developed a curriculum relating to different aspects of AYA survivorship for oncology and primary health care trainees who may come across AYA cancer survivors in the course of usual practice. Focus groups were used to refine the modules before the current application. Aim: To improve provider knowledge of AYA survivorship issues and management in a university setting. Methods: Using a combination of review articles, original research, and published guidelines for cancer survivorship, 8 teaching modules (power point presentations of 8–15 slides each) were developed: health care self-management; bone health; cardiac late effects; fertility late effects; neurocognitive late effects; psychosocial late effects; pulmonary late effects; and second malignancies. Modules were refined with the use of provider focus groups. These recently have been made available to trainees at UNC: (pediatrics [P], medicine-pediatrics [MP], medicine [M], medical hematology oncology [MHO], pediatric hematology oncology [PHO], and nurse practitioner students [NP]) in hard copy and on departmental websites. Computerized pre- and post-tests were developed for each module to assess content acquisition and will be required of the ~6 trainees/month rotating through the Survivors Clinics or on inpatient or outpatient services. At the end of each module, participants also are being asked, using a 3 point scale (agree [3], neutral [2], disagree [1]) if they feel the sessions gave them increased confidence in following AYA survivors. Participants also will be given the opportunity to critique the modules. Results: Preliminary results will not be available until December. However, enthusiasm among the target audience during the first 2 months of this program has been strong. Conclusion: Short teaching modules can be developed to engage trainees in AYA late effects issues. Ongoing work is being done to assess the effectiveness and usefulness of the modules for providers at UNC who care for adolescent and young adult cancer survivors. We anticipate that this approach will be expanded to our outreach practices. Parallel modules are in development for AYA survivors and their families. *With support from a 2009 ASH Alternative Training Pathway Grant, T. Shea, PI. Disclosures: No relevant conflicts of interest to declare.

Adolescent Transitions in Self-Management Strategies and Young Adult Alcohol Use

2021 ◽  
Vol 44 (1) ◽  
pp. 25-41 ◽  
Author(s):  
Kenneth W. Griffin ◽  
Lawrence M. Scheier ◽  
Martin Komarc ◽  
Gilbert J. Botvin
Keyword(s):  
Young Adult ◽  
Alcohol Use ◽  
Latent Class ◽  
Self Regulation ◽  
Management Strategies ◽  
Drug Prevention ◽  
Self Management ◽  
Control Group ◽  
Management Skills ◽  
Class Membership

Individuals use a variety of strategies to manage their thoughts, emotions, and behaviors across the lifespan. In this study, we used latent class analysis to derive distinct subtypes of self-management skills in early adolescence and latent transition analysis to examine whether movement between different classes was associated with later young adult alcohol use. Assessments of behavioral self-control, affective self-regulation, and cognitive self-reinforcement were obtained in the seventh and 10th grades from students participating in two independent drug prevention trials (control group participants only, N = 3,939). Assessment of alcohol use was obtained when participants were young adults (23–26). A model distinguishing four subtypes of self-management skills fit best for both the seventh and 10th grades. While findings indicated modest stability in class structure over time, maintaining class membership characterized by high cognitive self-reinforcement and high affective self-regulation was consistently protective in terms of young adult alcohol use relative to movement from this to other classes. Transitions in class membership involving an expansion of self-management strategies were protective and associated with lower levels of young adult alcohol use and transitions involving a contraction of self-management strategies associated with higher young adult alcohol use. This study illustrates the important use of person-centered techniques to exemplify how typologies of self-management during adolescence can play a protective role in young adult alcohol use.

Transition of Care for Adolescent and Young Adult Patients on Dietary Therapy for Epilepsy

2020 ◽  
Vol 09 (04) ◽  
pp. 114-118
Author(s):  
Kristin Seaborg ◽  
Kelly Faltersack ◽  
Elizabeth A. Felton
Keyword(s):  
Young Adult ◽  
Adult Patients ◽  
Adolescent And Young Adult ◽  
Dietary Therapy ◽  
Transition Of Care ◽  
The Past ◽  
Ketogenic Diets ◽  
Transition Care ◽  
Low Carbohydrate ◽  
Patients With Epilepsy

AbstractKetogenic diets are high-fat, low-carbohydrate diets designed to alter metabolism, induce nutritional ketosis, and reduce seizures in patients with epilepsy. In the past 15 to 20 years, the diets have been refined, gaining momentum in the treatment of resistant epilepsy. As ketogenic diets have gained popularity for treatment of pediatric epilepsies, an increasing number of adolescents treated with dietary therapy are approaching the age of transitioning their care to adult providers. Transition of care for this vulnerable population brings unique challenges posed by a paucity of adult providers who prescribe ketogenic diets, a lack of adult nutritionists trained in dietary therapy for epilepsy, and reluctance of pediatric patients to transition care. In this article, we will discuss the rationale for establishing transition protocols for young adult patients with epilepsy and present guidelines for transition of care for patients treated with dietary therapy for epilepsy.

Adolescent and young adult oncology: Transition of care

2008 ◽  
Vol 50 (S5) ◽  
pp. 1116-1119 ◽  
Author(s):  
David R. Freyer ◽  
Laurence Brugieres
Keyword(s):  
Young Adult ◽  
Adolescent And Young Adult ◽  
Transition Of Care ◽  
Young Adult Oncology
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