scholarly journals Cross-cultural adaptation of the Activities of Daily Living Questionnaire-Brazil in Parkinson’s disease

2021 ◽  
Author(s):  
Walter Luis Teixeira ALVES ◽  
Iza de FARIA-FORTINI ◽  
Ana Carolina Daher Ribas GALVÃO ◽  
Francisco Eduardo Costa CARDOSO ◽  
Paula Luciana SCALZO
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Intraclass Correlation ◽  
Altman Plot ◽  
Retest Reliability ◽  
Bland Altman Plot ◽  
Culturally Adapted ◽  
Test Retest Reliability

ABSTRACT Background: Culturally adapted measures to assess the performance of activities of daily living (ADL) in individuals with Parkinson’s disease (PD) are limited in Brazil. Objective: To adapt the ADL Questionnaire to the Brazilian culture and to analyze its reproducibility in individuals with PD. Methods: The ADL Questionnaire was translated and cross-culturally adapted to Brazilian Portuguese language. Reproducibility was analyzed using test-retest reliability and agreement values. The test-retest reliability of the individual items and total scores were calculated. The limits of agreement were verified using the Bland-Altman plot. The standard error of measurement (SEM) and the minimum detectable change (MDC) were calculated. Patients who were classified on a score of 1–4 on the modified Hoehn and Yahr scale were eligible. Results: No divergence was identified between the original and the adapted version, which demonstrated adequate semantic and conceptual equivalence. The Bland-Altman plot showed no systematic changes in the mean test-retest scores. The intraclass correlation coefficient (ICC) was 0.98 (95% confidence interval [95%CI] 0.93–0.99), and all individual items showed good levels of reliability (>0.60). The SEM (SEM%) and MDC (MDC%) values were 3.0 (6.75%) and 8.2 (18.7%), respectively. These values are within the recommended values. Conclusions: The ADL-Brazil Questionnaire is a reliable instrument to be used for clinical and research purposes to assess self-perceptions of ADL performance in individuals with PD.

Reliability and Validity of Turkish Myasthenia Gravis-Activities of Daily Living Scale

2020 ◽  
pp. 153944922096107
Author(s):  
Ecem Karanfil ◽  
Yeliz Salcı ◽  
Ayla Fil-Balkan ◽  
Can Ebru Bekircan-Kurt ◽  
Sevim Erdem Özdamar ◽  
...  
Keyword(s):  
Construct Validity ◽  
Myasthenia Gravis ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Intraclass Correlation ◽  
Reliability And Validity ◽  
Life Questionnaire ◽  
Good Test ◽  
Retest Reliability ◽  
Test Retest Reliability

Linguistic, reliable, and valid secondary efficacy measures are important in clinical settings and studies. The aim of the study is to report test–retest reliability and construct validity of Turkish version of Myasthenia Gravis-Activities of Daily Living Scale (MG-ADL-T) in Myasthenia Gravis (MG) patients. Fifty-two ocular and generalized individuals with MG, applying to rehabilitation center, were included in the study. MG-ADL-T, MG quality-of-life questionnaire (MG-QoL), MG composite (MGC), quantitative MG score (QMGS), and pulmonary function test were administered. Reliability was assessed with intraclass correlation coefficient (ICC) and Cronbach’s alpha. Spearman correlation test and receiver operating characteristic (ROC) analysis were performed for construct validity. MG-ADL-T had fair internal consistency (Cronbach’s α = .67), excellent test–retest reliability (ICC = 0.96) and moderate construct validity (MG-QoL, r = 0.59; QMGS, r = .58; MGC, r = .68). MG-ADL, a unique scale that evaluates activities of daily living (ADL), has good test–retest reliability and construct validity in Turkish MG patients.

scholarly journals Translation, adaptation and validation of the Bulgarian version of the King’s Parkinson’s Disease Pain Scale

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Galina Stoyanova-Piroth ◽  
Ivan Milanov ◽  
Katerina Stambolieva
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Rating Scale ◽  
Intraclass Correlation ◽  
Pain Scale ◽  
Radicular Pain ◽  
Good Reliability ◽  
Retest Reliability ◽  
Nocturnal Pain ◽  
Test Retest Reliability

Abstract Background The purpose of the present study was to translate and cross-culturally adapt the King’s Parkinson’s Disease Pain Scale (KPPS) into Bulgarian and to investigate its psychometric properties in order to provide a validated Parkinson’s disease-specific pain instrument in Bulgarian language (KPPS-BG). Methods Translation into Bulgarian and a cultural adaptation were performed to obtain KPPS-BG. A total of 162 patients with idiopathic Parkinson’s disease were screened for pain using the complementary to the KPPS questionnaire – King’s Parkinson’s Disease Pain Questionnaire (KPPQ). KPPS-BG domain and total scores were calculated and internal consistency, construct validity and test-retest reliability were examined for 129 patients having one or more positive items in the KPPQ-BG. Results 79.6 % of the patients reported one or more types of pain. The most common type was musculoskeletal pain (83.7 %), followed by nocturnal pain (55.0 %), fluctuation-related pain (50.1 %), radicular pain (43.4 %), chronic pain (31.0 %), discoloration, edema/swelling (27.1 %) and, oro-facial pain (14.3 %). Mean KPPS-BG total score was 21.1 ± 17.3 SD. KPPS-BG showed a good reliability (Cronbach’s alpha 0.75). The test-retest reliability of the KPPS-BG was high and the intraclass correlation coefficient was 0.92, demonstrating а good repeatability. KPPS-BG total score was higher in patients with postural instability gait difficulty motor subtype, compared to tremor-dominant or indeterminate subtype. Significant positive correlations were found between KPPS-BG total score and modified H&Y, Movement Disorders Society Unified Parkinson’s Disease Rating Scale part III. Conclusions The KPPS-BG constitutes a reliable, comprehensive and useful tool for pain assessment in native Bulgarian patients with Parkinson’s disease.

Exploring test retest reliability and longitudinal stability of digital biomarkers for Parkinson’s disease in the m-Power dataset (Preprint)

2020 ◽  
Author(s):  
Mehran Sahandi Far ◽  
Simon B. Eickhoff ◽  
Maria Goni ◽  
Juergen Dukart
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Healthy Volunteers ◽  
Intraclass Correlation ◽  
Smart Devices ◽  
Longitudinal Stability ◽  
Retest Reliability ◽  
Medication Effects ◽  
Test Retest Reliability ◽  
Digital Biomarkers

BACKGROUND Digital biomarkers (DB) as captured using sensors embedded in modern smart devices are a promising technology for home-based symptom monitoring in Parkinson’s disease (PD). Despite extensive application in recent studies test-retest reliability and longitudinal stability of DB has not been well addressed in this context. OBJECTIVE We utilized the large-scale m-Power dataset to establish the test-retest reliability and longitudinal stability of gait, balance, voice and tapping tasks in an unsupervised and self-administered daily life setting in PD patients and healthy volunteers. METHODS Intraclass Correlation Coefficients (ICC) were computed to estimate the test-retest reliability of features that also differentiate between PD and healthy volunteers. In addition, we tested for longitudinal stability of DB measures in PD and HC as well as for their sensitivity to PD medication effects. RESULTS Among the features differing between PD and HC, only few tapping and voice features had good to excellent test-retest reliabilities and medium to large effect sizes. All other features performed poorly in this respect. Only few features were sensitive to medication effects. The longitudinal analyses revealed significant alterations over time across a variety of features and in particular for the tapping task. CONCLUSIONS These results indicate the need for further development of more standardized, sensitive and reliable DB for application in self-administered remote studies in PD patients. Motivational, learning and other confounds may cause a variation in performance that needs to be considered in DB longitudinal applications. CLINICALTRIAL Not applicable

scholarly journals Exploring test retest reliability and longitudinal stability of digital biomarkers for Parkinson’s disease in the m-Power dataset

2020 ◽  
Author(s):  
Mehran Sahandi Far ◽  
Simon B. Eickhoff ◽  
María Goñi ◽  
Juergen Dukart
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Healthy Volunteers ◽  
Intraclass Correlation ◽  
Smart Devices ◽  
Longitudinal Stability ◽  
Retest Reliability ◽  
Medication Effects ◽  
Test Retest Reliability ◽  
Digital Biomarkers

AbstractBackgroundDigital biomarkers (DB) as captured using sensors embedded in modern smart devices are a promising technology for home-based symptom monitoring in Parkinson’s disease (PD).ObjectiveDespite extensive application in recent studies test-retest reliability and longitudinal stability of DB has not been well addressed in this context. We utilized the large-scale m-Power dataset to establish the test-retest reliability and longitudinal stability of gait, balance, voice and tapping tasks in an unsupervised and self-administered daily life setting in PD patients and healthy volunteers.MethodsIntraclass Correlation Coefficients (ICC) were computed to estimate the test-retest reliability of features that also differentiate between PD and healthy volunteers. In addition, we tested for longitudinal stability of DB measures in PD and HC as well as for their sensitivity to PD medication effects.ResultsAmong the features differing between PD and HC, only few tapping and voice features had good to excellent test-retest reliabilities and medium to large effect sizes. All other features performed poorly in this respect. Only few features were sensitive to medication effects. The longitudinal analyses revealed significant alterations over time across a variety of features and in particular for the tapping task.ConclusionsThese results indicate the need for further development of more standardized, sensitive and reliable DB for application in self-administered remote studies in PD patients. Motivational, learning and other confounds may cause a variation in performance that needs to be considered in DB longitudinal applications.

A New Measurement of Activities of Daily Living for Thai Elderly With Dementia

2003 ◽  
Vol 15 (2) ◽  
pp. 135-148 ◽  
Author(s):  
Vorapun Senanarong ◽  
Kamolthip Harnphadungkit ◽  
Naraporn Prayoonwiwat ◽  
Niphon Poungvarin ◽  
Nopwan Sivasariyanonds ◽  
...  
Keyword(s):  
Activities Of Daily Living ◽  
Barthel Index ◽  
Concurrent Validity ◽  
Daily Living ◽  
Discriminant Validity ◽  
High Reliability ◽  
Intraclass Correlation ◽  
Retest Reliability ◽  
Medicine Physician ◽  
Test Retest Reliability

Background: Activities of daily living (ADL) vary across cultures, and measure of ADL needs to be specific to the population under study. We developed an ADL measure for Thai elderly with dementia and investigated the reliability and validity of this instrument. Materials and Methods: Item construction was accomplished with a panel of neurologists and a rehabilitation medicine physician. One hundred eighty-one subjects were interviewed using the Thai ADL measure. Of this sample, one hundred fifty-nine had dementia according to the Diagnosic and Statistical Manual of Mental Disorders, fourth edition criteria. These data were analyzed for internal consistency; concurrent validity was determined by comparison with the Barthel Index, Functional Assessment Questionnaire (FAQ), Thai Mental State Exam (TMSE), and Clinical Dementia Rating (CDR) scale; and discriminant validity was determined by comparison with the Neuropsychiatric Inventory (NPI). Thirty subjects were tested to determine interrater and test-retest reliability. Results: Thai ADL measure was composed of six basic ADL and seven instrumental ADL. It had high correlation with TMSE scores (r = −.69), CDR scores (r = .81), Barthel Index scores (r = −.08), and FAQ scores (r = .88), and moderate correlation with NPI scores (r = .46). The instrument had high test-retest reliability (intraclass correlation coefficient [ICC] = .92, .89) and high interrater reliability (ICC = .96, .93). Conclusion: The Thai ADL scale is easy to use and it has high reliability. It had high concurrent validity with previously published ADL scales. The methodology used to develop the Thai ADL scale can provide a model for creating culturally competent ADL scales.

scholarly journals Translation, adaptation and validation of the Bulgarian version of the King’s Parkinson’s Disease Pain Scale

2021 ◽  
Author(s):  
Galina Stoyanova-Piroth ◽  
Ivan Milanov ◽  
Katerina Stambolieva
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Rating Scale ◽  
Intraclass Correlation ◽  
Pain Scale ◽  
Radicular Pain ◽  
Good Reliability ◽  
Retest Reliability ◽  
Nocturnal Pain ◽  
Test Retest Reliability

Abstract Introduction:The purpose of the present study was to translate and cross-culturally adapt the King's Parkinson's Disease Pain Scale (KPPS) into Bulgarian and to investigate its psychometric properties in order to provide a validated Parkinson’s disease-specific pain instrument in Bulgarian language (KPPS-BG).Methods:Translation into Bulgarian and a cultural adaptation were performed to obtain KPPS-BG. A total of 162 patients with idiopathic Parkinson’s disease were screened for pain using the complementary to the KPPS questionnaire-King’s Parkinson's Disease Pain Questionnaire (KPPQ). KPPS-BG domain and total scores were calculated and internal consistency, construct validity and test-retest reliability were examined for 129 patients having one or more positive items in the KPPQ-BG.Results:79.6% of the patients reported one or more types of pain. The most common type was musculoskeletal pain (83.7%), followed by nocturnal pain (55.0%), fluctuation-related pain (50.1%), radicular pain (43.4%), chronic pain (31.0%), discoloration, edema/swelling (27.1%) and, oro-facial pain (14.3%). Mean KPPS-BG total score was 21.1±17.3 SD. KPPS-BG showed a good reliability (Cronbach's alpha 0.75). The test-retest reliability of the KPPS-BG was high and the intraclass correlation coefficient was 0.92, demonstrating а good repeatability. KPPS-BG total score was higher in patients with postural instability gait difficulty motor subtype, compared to tremor-dominant or indeterminate subtype. Significant positive correlations were found between KPPS-BG total score and modified H&Y, Movement Disorders Society Unified Parkinson’s Disease Rating Scale part III.Conclusion:The KPPS-BG constitutes a reliable, comprehensive and useful tool for pain assessment in native Bulgarian patients with Parkinson’s disease.

scholarly journals Validity and Reliability of the Persian Version of Parkinson’s Disease Sleep Scale-2

2021 ◽  
Vol 2021 ◽  
pp. 1-5
Author(s):  
Mohammad Taghi Joghataei ◽  
Seyed-Mohammad Fereshtehnejad ◽  
Maryam Mehdizadeh ◽  
Sepideh Goudarzi ◽  
Sayed Amir Hasan Habibi ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Internal Consistency ◽  
Convergent Validity ◽  
Intraclass Correlation ◽  
Depression Scale ◽  
Validity And Reliability ◽  
Retest Reliability ◽  
Persian Version ◽  
Test Retest Reliability

Objective. Sleep problems are nonmotor symptoms in Parkinson’s disease that should be carefully evaluated for better management and treatment. Parkinson’s Disease Sleep Scale (PDSS-2) is one of the most reliable tools for measuring sleep difficulties in people with Parkinson’s disease. This study investigated the psychometric properties of the Persian version of PDSS-2. Methods. Four hundred and fifty-six people with Parkinson’s disease with a mean age ±standard deviation of 60.7 ± 11.3 years were engaged in this study. Acceptability was assessed by floor and ceiling effects. Dimensionality was measured by exploratory factor analysis. The convergent validity of PDSS-2 with the Hospital Anxiety and Depression Scale (HADS) was assessed. Internal consistency and test-retest reliability were assessed with Cronbach’s alpha and intraclass correlation coefficient (ICC), respectively. Results. No noticeable ceiling and floor effect was detected. The dimensionality analysis showed three factors. A high correlation was obtained between PDSS-2 and HADS (anxiety subscale). Excellent internal consistency with α = 0.94, and good test-retest reliability with ICC = 0.89 were obtained. Conclusion. This study showed that the Persian version of Parkinson’s Disease Sleep Scale has acceptable validity and reliability for measuring sleep disturbances in people with Parkinson’s disease.

Analysis of Functional and Cognitive Impairment in Institutionalized Individuals with Movement Disorders

2019 ◽  
Vol 19 (7) ◽  
pp. 1022-1031 ◽  
Author(s):  
Paula D. Cebrián ◽  
Omar Cauli
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Cognitive Impairment ◽  
Activities Of Daily Living ◽  
Cognitive Performance ◽  
Functional Impairment ◽  
Movement Disorders ◽  
Neurological Disorders ◽  
Daily Living ◽  
Severe Cognitive Impairment

Background: Many neurological disorders lead to institutionalization and can be accompanied in their advanced stages by functional impairment, and progressive loss of mobility, and cognitive alterations. Objective: We analyzed the relationship between functional impairment and cognitive performance and its related subdomains in individuals with Parkinson’s disease, Alzheimer’s disease accompanied by motor dysfunction, and with other neurological disorders characterized by both motor and cognitive problems. Methods: All participants lived in nursing homes (Valencia, Spain) and underwent cognitive evaluation with the Mini-Mental State Examination; functional assessment of independence in activities of daily living using the Barthel score and Katz index; and assessment of mobility with the elderly mobility scale. Results: The mean age of the subjects was 82.8 ± 0.6 years, 47% of the sample included individuals with Parkinson’s disease, and 48 % of the sample presented severe cognitive impairment. Direct significant relationships were found between the level of cognitive impairment and functional capacity (p < 0.01) and mobility (p < 0.05). Among the different domains, memory impairment was not associated with altered activities of daily living or mobility. The functional impairment and the risk of severe cognitive impairment were significantly (p<0.05) higher in female compared to male patients. Among comorbidities, overweight/obesity and diabetes were significantly (p < 0.05) associated with poor cognitive performance in those individuals with mild/moderate cognitive impairment. Conclusion: In institutionalized individuals with movement disorders there is an association between functional and cognitive impairment. Reduction of over-weight and proper control of diabetes may represent novel targets for improving cognitive function at such early stages.

Using the Internet to assess activities of daily living and hand function in people with Parkinson's disease

2008 ◽  
Vol 23 (3) ◽  
pp. 253-261 ◽  
Author(s):  
Tammy Hoffmann ◽  
Trevor Russell ◽  
Leah Thompson ◽  
Amy Vincent ◽  
Mark Nelson
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Hand Function ◽  
The Internet
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