scholarly journals Family experience living with advanced neoplasm: a glance at the rural population

2020 ◽  
Vol 73 (4) ◽  
Author(s):  
Danusa Begnini ◽  
Nara Marilene Oliveira Giradon-Perlini ◽  
Mardrig Beuter ◽  
Lucía Silva ◽  
Isabel Cristina Pacheco Van Der Sand ◽  
...  

ABSTRACT Objectives: to understand the experience of rural families living with advanced cancer, from Family Management Style Framework’s perspective. Methods: a qualitative research conducted in seven cities of the northern of state of Rio Grande do Sul in homes of 11 families (27 people). Data collection took place in 2014, using the genogram and narrative interview. Analysis followed Family Management Style Framework’s theoretical model. Results: the results were organized into three categories based on conceptual components of the referred model: no more normal life: situation definition; attempt to reconcile care and work: management behavior; imminence of the finitude of life: perception of consequences. Final Considerations: living in rural context gives families specific ways of dealing with advanced cancer. Understanding the movements undertaken by rural families throughout the experience can guide nursing professionals in planning interventions collaborating with this population’s health.

2018 ◽  
Vol 38 (3) ◽  
pp. 18-26 ◽  
Author(s):  
Shawn E. Cody ◽  
Susan Sullivan-Bolyai ◽  
Patricia Reid-Ponte

Background The hospitalization of a family member in an intensive care unit can be stressful for the family. Family bedside rounds is a way for the care team to inform family members, answer questions, and involve them in care decisions. The experiences of family members with intensive care unit bedside rounds have been examined in few studies. Objectives To describe (1) the experiences of family members of patients in the intensive care unit who participated in family bedside rounds (ie, view of the illness, role in future management, and long-term consequences on individual and family functioning) and (2) the experiences of families who chose not to participate in family bedside rounds and their perspectives regarding its value, their illness view, and future involvement in care. Methods A qualitative descriptive study was done, undergirded by the Family Management Style Framework, examining families that participated and those that did not. Results Most families that participated (80%) found the process helpful. One overarching theme, Making a Connection: Comfort and Confidence, emerged from participating families. Two major factors influenced how that connection was made: consistency and preparing families for the future. Three types of consistency were identified: consistency in information being shared, in when rounds were being held, and in informing families of rounding delays. In terms of preparing families for the future, families appeared to feel comfortable with the situation when a connection was present. When any of the factors were missing, families described feelings of anger, frustration, and fear. Family members who did not participate described similar feelings and fear of the unknown because of not having participated. Conclusion What health care providers say to patients’ families matters. Families may need to be included in decision-making with honest, consistent, easy-to-understand information.


2006 ◽  
Vol 23 (1) ◽  
pp. 36-37 ◽  
Author(s):  
Audrey E. Nelson ◽  
Janet A. Deatrick ◽  
Kathleen A. Knafl ◽  
Melissa A. Alderfer ◽  
Susan K. Ogle

2016 ◽  
Vol 8 (1) ◽  
Author(s):  
Rolando C. Entoma

One success indicator of any educational institution depends on the type of management and its capabilities to drive the preplanned goals within the framework of time set forth. The study utilized the descriptive-correlational research design which aimed to determine the work management styles of the college deans of State Universities and Colleges (SUCs) in Region 8, Philippines. Using validated questionnaires, data were statistically treated using weighted mean, percentage and chi-square test of independence. Findings showed that female college deans who are doctorate degree holders, with higher number of years of experience and training attended were the perfectionist in managing their works. It also showed that the college deans’ profile has no significant relationship with their work management style. The college deans with the higher number of programs offered were cliff hangers. If given the opportunity to experience more and attend training on leadership and management, perceived control of time, and stress responses, the college deans can play better in their role, functions, and responsibilities. The study contributes to the field of educational administration to create useful solutions in terms of leadership and management styles of college deans for them to be aware and become more productive and efficient leaders.


2012 ◽  
Vol 25 (6) ◽  
pp. 867-872 ◽  
Author(s):  
Ana Márcia Chiaradia Mendes-Castillo ◽  
Regina Szylit Bousso ◽  
Maiara Rodrigues dos Santos ◽  
Elaine Buchhorn Cintra Damião

OBJETIVO: Identificar os estilos de manejo familiar durante a experiência do transplante hepático da criança, de acordo com o Family Management Style Framework. MÉTODOS: Estudo descritivo, com abordagem qualitativa, realizado mediante uma análise secundária de nove entrevistas semiestruturadas, previamente coletadas com oito famílias que tiveram uma criança que atravessava a experiência de transplante hepático. RESULTADOS: Pela análise, foi possível identificar cinco estilos de manejo: família ajustada, família em adaptação, família lutando, família em conflito e família em espera. CONCLUSÃO: O modelo mostrou-se útil na avaliação de famílias no contexto do transplante pediátrico e seu uso é encorajado neste e em outros cenários de doença crônica.


2007 ◽  
Vol 15 (1) ◽  
pp. 48-54 ◽  
Author(s):  
Maira Deguer Misko ◽  
Regina Szylit Bousso

This study aimed to understand how the family of a child with cancer manages the illness and its intercurrences at home, and how it makes the decision of taking the child to an emergency care service. Oral History was used as the methodological strategy and data analysis was based on the "Family Management Style Framework". Participants were six mothers between 28 and 47 years old, who were experiencing their child's cancer treatment. The possible need for emergency care is incorporated into the family routine as a resource to manage the illness whenever it goes beyond the mother's capacity to keep control over the symptoms, which is permeated by suffering, derived from the uncertainties this creates. Helping the mother to develop skills to get stronger and reduce the suffering resulting from the situations that generate uncertainties and insecurities in her daily life with the child with cancer is a challenge.


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