scholarly journals Experiences of families with children and adolescents after completing a cancer treatment: support for the nursing care

2007 ◽  
Vol 15 (3) ◽  
pp. 411-417 ◽  
Author(s):  
Maria Carolina Alves Ortiz ◽  
Regina Aparecida Garcia de Lima

The survival of children and adolescents with cancer has increased in recent years. Researchers and professionals in the health area have prioritized studies on the delayed effects of the treatment and quality of life of the survivors. This study aims to understand how parents and other family members of children and adolescents with cancer, experience the completion of the treatment. This descriptive and exploratory study adopted a qualitative methodological approach. A total of ten families whose children had completed the cancer treatment and were in follow-up in a hospital-school were selected for the study. The data were organized in two thematic axes: the memory % what was experienced and the present % what is being experienced. The study evidenced the participants' vitality to survive the treatment and fragility to live after it. The results allowed identifying aspects that need intervention, aiming at the improvement of quality of life of children, adolescents and the whole family after the end of the treatment.

Psychology ◽  
2017 ◽  
Vol 08 (04) ◽  
pp. 563-575 ◽  
Author(s):  
Leivy Patricia González-Ramírez ◽  
Ricardo Gómez-Martínez ◽  
Cintia Livier Luna-Flores ◽  
Cecilia Colunga-Rodríguez ◽  
Mercedes Gabriela Orozco-Solis ◽  
...  

2022 ◽  
Vol 40 ◽  
Author(s):  
Bruna Kuhn ◽  
Luciane Dalcanale Moussalle ◽  
Janice Luisa Lukrafka ◽  
Giana Berleze Penna ◽  
Abelardo de Oliveira Soares Júnior

ABSTRACT Objective: To evaluate the functional capacity and quality of life of children and adolescents during cancer treatment and post-treatment. Methods: Cross-sectional study of patients during cancer treatment and post-treatment, assessed by the 6-minute walk test (6MWT) and the Pediatric Quality of Life ™ questionnaire (cancer module). Results: Sixty-five patients, aged 11.2±3.5 years, mostly males (50.8%) and white (90.8%), with high incidence of hematological cancers (81.5%) participated in the study. The performance in the 6MWT was 23.1% inferior comparing the mean predicted and achieved (584.3±5 and 447.7±78.6 m, respectively). The percentage difference between the predicted and achieved 6MWT, and the different phases of cancer treatment were significantly different between patients in treatment (73.7±12.8) and post-treatment (84.5±9.1). When grouped by the different diagnoses, it was possible to observe that the distance covered by the patients with leukemia showed results closer to that predicted (80.7±11.7). Regarding the health-related quality of life questionnaire (HRQL), the child’s perception (78.0±14.56) was better than that reported by their parents (72.4±17.74). However, when we compared HRQL with the 6MWT, there was no association between them (p=0.597). Conclusions: Children and adolescents undergoing cancer treatment or post-treatment showed a 23% deficit in functional capacity. In relation to HRQL results, children’s perception was higher than that of their parents.


ORL ro ◽  
2016 ◽  
Vol 4 (1) ◽  
pp. 40-42
Author(s):  
Alexandra Boloș ◽  
Sebastian Cozma ◽  
Andreea Silvana Szalontay

Tinnitus is a common otologic symptom and probably the most troublesome. Tinnitus causes a number of physical and psychological consequences, that interfere with the quality of life of the patient. Many authors believe that the presence of tinnitus in children is a matter of lesser importance than in adults because it is met less frequently and would be a fleeting symptom, inoffensive for them (Graham, 1981). In addition, the prevalence of tinnitus during adolescence and even in young adults is increasing, possibly as a consequence of the increased ambient noise (Bulbul SF, Shargorodsky J). Various therapeutic approaches have generated different results, which led us to consider the role of psychological factors, hence the need to underline the particularities of this symptom in childhood.  


2020 ◽  
Author(s):  
Ulrike Ravens-Sieberer ◽  
Anne Wüstner ◽  
Christiane Otto ◽  
Michael Erhart ◽  
Janine Devine ◽  
...  

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