scholarly journals Evaluation of the functional capacity and quality of life of children and adolescents during and after cancer treatment

2022 ◽  
Vol 40 ◽  
Author(s):  
Bruna Kuhn ◽  
Luciane Dalcanale Moussalle ◽  
Janice Luisa Lukrafka ◽  
Giana Berleze Penna ◽  
Abelardo de Oliveira Soares Júnior

ABSTRACT Objective: To evaluate the functional capacity and quality of life of children and adolescents during cancer treatment and post-treatment. Methods: Cross-sectional study of patients during cancer treatment and post-treatment, assessed by the 6-minute walk test (6MWT) and the Pediatric Quality of Life ™ questionnaire (cancer module). Results: Sixty-five patients, aged 11.2±3.5 years, mostly males (50.8%) and white (90.8%), with high incidence of hematological cancers (81.5%) participated in the study. The performance in the 6MWT was 23.1% inferior comparing the mean predicted and achieved (584.3±5 and 447.7±78.6 m, respectively). The percentage difference between the predicted and achieved 6MWT, and the different phases of cancer treatment were significantly different between patients in treatment (73.7±12.8) and post-treatment (84.5±9.1). When grouped by the different diagnoses, it was possible to observe that the distance covered by the patients with leukemia showed results closer to that predicted (80.7±11.7). Regarding the health-related quality of life questionnaire (HRQL), the child’s perception (78.0±14.56) was better than that reported by their parents (72.4±17.74). However, when we compared HRQL with the 6MWT, there was no association between them (p=0.597). Conclusions: Children and adolescents undergoing cancer treatment or post-treatment showed a 23% deficit in functional capacity. In relation to HRQL results, children’s perception was higher than that of their parents.

2020 ◽  
Vol 38 ◽  
Author(s):  
Nelbe Nesi Santana ◽  
Célia Regina Moutinho de Miranda Chaves ◽  
Christine Pereira Gonçalves ◽  
Saint Clair dos Santos Gomes Junior

ABSTRACT Objective: To verify the association between quality of life, functional capacity and clinical and nutritional status in children and adolescents with cystic fibrosis (CF). Methods: Cross-sectional study, including patients from eight to 18 years old with CF. Quality of life, functional capacity, nutritional status and clinical status were evaluated with the Cystic Fibrosis Questionnaire; the 6-minute walk test (6MWT) and manual gripping force (MGF); the height percentiles for age and body mass index for age and respiratory function test, respectively. Pearson and Spearman correlation tests and logistic regression were used to analyze the data. Results: A total of 45 patients, 13.4±0.5 years old, 60% female, 60% colonized by Pseudomonas aeruginosa and 57.8% with at least one F508del mutation participated in the study. When assessing the perception of quality of life, the weight domain reached the lowest values, and the digestive domain, the highest. In the pulmonary function test, the forced expiratory volume of the first second was 77.3±3.3% and the 6MWT and MGF presented values within the normal range. There was an association between quality of life and functional capacity, nutritional status and clinical status of CF patients. Conclusions: The study participants had good clinical conditions and satisfactory values of functional capacity and quality of life. The findings reinforce that the assessment of quality of life may be important for clinical practice in the management of treatment.


2019 ◽  
Vol 4 (1) ◽  
pp. 44
Author(s):  
Bruno Nascimento da Silva ◽  
Emerson de Oliveira Ferreira ◽  
Lilian Cortez Sombra Vandesmet ◽  
Lara da Silva Nogueira ◽  
Sabrina Kécia de Freitas Almeida ◽  
...  

O Acidente Vascular encefálico (AVE) é determinado como uma afecção clínica que acontece de forma rápida e progressiva, causado pela interrupção súbita do fluxo sanguíneo ao encéfalo. Distingue-se em AVE Isquêmico e AVE Hemorrágico. Costuma-se dizer que os sobreviventes de AVE iniciam uma nova jornada na vida. Por essa razão, é fundamental a realização de estudos que abordem a qualidade de vida desses pacientes. Este trabalho teve como objetivo avaliar a qualidade de vida de acometidos por acidente vascular encefálico, atendidos na Unidade Básica de Saúde do Município de Capistrano-CE. É um estudo do tipo observacional e transversal, de caráter quantitativo e qualitativo. A coleta de dados foi de Janeiro a Maio de 2018. O instrumento utilizado foi o Questionário de Qualidade de Vida – SF-36. Os dados foram idade, acima de 60 anos (91%), sexo, os homens mais acometidos (55%), escolaridade, Ensino Fundamental Incompleto (50%), renda, salário mínimo 63,6%, AVEi com 72,7% e AVEh 27,3%. Foram avaliados os 8 domínios do questionário e calculada a média por domínio: CP = 16,8 LAF = 5,1 D = 57,6 EGS = 52,2 V = 42,5 AS = 48,8 LAE = 53,1 e SM = 64,1. Em relação ao questionário foi observado que os domínios com menor média foram Capacidade Funcional e Limitação por aspectos físicos isso devido as sequelas provenientes do AVE. Conclui-se que devido as várias limitações destes indivíduos é de suma importância o desenvolvimento de estratégias que visem minimizar as sequelas advindas da doença. EVALUATION OF QUALITY OF LIFE OF INDIVIDUALS SUFFERING FROM CEREBRAL VASCULAR ACCIDENTS ASSISTED BY A BASIC HEALTH UNIT ABSTRACT Cerebral Vascular Accident is determined as a clinical condition that occurs rapidly and progressively, caused by sudden interruption of blood flow to the brain. It distinguishes itself in Ischemic CVA and Hemorrhagic CVA. The objective of this study was to evaluate the quality of life of stroke survivors, assisted at a Basic Health Unit of the city of Capistrano-CE. It is a cross-sectional, observational, quantitative and qualitative study. Data collection was from January to May 2018. The instrument used was the Quality of Life Questionnaire - SF-36, in which each patient signed the Free and Informed Consent Term, as this work was approved by the ethics committee with the number: 2.698.166. The data were analyzed through the very method that the Questionnaire requires. The data took into account: age, over 60 years old (91%); sex, men most affected (55%); schooling, Incomplete Elementary School (50%); income, minimum wage of 63.6%, Ischemic CVA with 72.7% and Hemorrhagic CVA 27.3%. The 8 domains of the questionnaire were assessed and the average per domain was calculated: Functional Capacity = 16.8; Physical Limitation= 5.1; Pain = 57.6; General Health Status = 52.2; Vitality = 42.5; Social Aspects = 48.8; Emotional Limitation= 53.1; and Mental Health = 64.1. Regarding the questionnaire, it was observed that the domains with lower average were Functional Capacity and Limitation due to physical aspects resulting from the sequelae of CVA. It is concluded that due to the various limitations of these individuals, it is of utmost importance to develop strategies which aim at minimize the sequelae resulting from the disease.


Author(s):  
Sandra Tapiņa ◽  
Kristīne Vasīte ◽  
Valda Bebre-Putka ◽  
Elza Gārša ◽  
Ingrīda Rumba-Rozenfelde

Abstract In Latvia, no studies on the quality of life (QoL) of healthy children have been conducted. Determining the quality of life of children is an essential part of evaluating the health status of children. The subjective assessment of the individuals about their quality of life provides an opportunity to evaluate the quality of life of the population in the public health sector. The aim of this cross-sectional study was to evaluate the quality of life of healthy children and adolescents in Latvia in the age group from 8 to 18, as well as to compare the answers between children and their parents living in Latvia. This study also gave an opportunity to compare the results of children and their parents living in Europe. Quality of life measurements were obtained using the KIDSCREEN-52 questionnaire, which was filled out by 100 healthy children/adolescents and 100 of their parents/guardians. The quality-of-life questionnaire consisted of ten dimensions. When evaluating the quality of life of children and adolescents by gender, no statistically significant difference was found in Latvia (p > 0.05). There was no statistically significant difference (p > 0.05) between children of 8 to 11 years of age and children of 12 to 18 years of age. A statistically significant difference was found between the 8 to 11 and 12 to 18-year-old groups of young healthy children in some dimensions. In the response dimensions, self-perception (“SEL”) and emotions (“EMO”), their QoL was significantly higher (p < 0.05) in the age group from 12 to 18 years healthy children than in the age group of 8 to 11 years. Differences in child/adolescent quality of life results between Latvia and Europe were not statistically significantly different in all 10 HRQoL dimensions (p > 0.05).


2018 ◽  
Vol 31 (0) ◽  
Author(s):  
Monique Vanderlinde de Souza ◽  
Marina Christofoletti ◽  
Anne Ribeiro Streb ◽  
Giovani Firpo Del Duca

Abstract Introduction: Cancer is a serious pathology with a high incidence and complex diagnoses. Emotional and environmental factors, the deleterious effects of these, and lifestyle affect different outcomes. Objective: Investigate the association between quality of life and functional capacity during treatment for hematologic cancer. Methods: A cross-sectional study with intentional sampling of patients of both sexes with hematologic neoplasms, interviewed in 2016. Quality of life (QF) was measured by the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire. For the definition of functional capacity in basic and instrumental activities of daily life, the Katz Index and the Lawton Scale, respectively, were used. Data were analyzed by correlations and comparisons of means tests. Results: The 52 participants presented an average QF score of approximately 60.6. Among the functional scales, the worst result was in role functioning (46.8), while for symptoms, it was fatigue (48.1). The results of more expressive QF indicators were the strong correlation between role functioning and fatigue (r = -0.60), and a moderate correlation between social functioning and financial difficulties (r = -0.45). There was still an association between role functioning and functional incapacity in daily activities (p = 0.017). Fatigue was associated with incapacity for basic activities (p = 0.018), while insomnia was correlated with instrumental activities (p = 0.032). Conclusion: The association between lower QF scores and functional incapacity reflects the damaging effect of hematologic neoplasms on daily activities.


2018 ◽  
Vol 52 (2) ◽  
pp. 81-89
Author(s):  
Duška Jovič ◽  
Snežana Petrović-Tepić ◽  
Darija Kneževic

Introduction: Asthma is a global health problem that negatively affects various aspects of the quality of a person's life. The aim of the study was to examine the quality of life in children and adolescents with asthma and the correlation between the degree of asthma control and the quality of life.Methods: The cross-sectional study included 100 children and adolescents with asthma over a six-month period in 2015. The study used: Standardized Pediatric Asthma Quality of Life Questionnaire (PAQLQ(S)) for the assessment quality of life and the questionnaires for the assessment of asthma control for two age groups: Asthma Control Test (ACT) for adolescents and Childhood Asthma Control Test (C-ACT).Results: 62 boys and 38 girls aged 7−17, whose average age was 11.2 (s = 2.7) years were included in the study. The overall PAQLQ(S) score ranged between 3.30 and 7.00 with an average mean value of 5.95. The findings have showed that most children with asthma estimated their overall PAQLQ(S) on the positive end of the scale. The children reported more impairment in the domain of 'Emotion' ( = 5.84) than in 'Activities' and 'Symptoms'. The percentage of adolescents in the category of poor control (12.5 %) was significantly lower than in the group of children (25.0 %). In both groups of children, the sub-scale 'Symptoms' was in highest correlation with the degree of asthma control (r = 0.915, p < 0.01).Discussion and conclusion: In this study the children and adolescents with asthma showed an overall good quality of life. Control of asthma symptoms in children and adolescents positively influenced their quality of life.


2020 ◽  
Vol 38 ◽  
Author(s):  
Fernanda Chedid de Souza Fontan ◽  
Sérgio Wilson Duwe ◽  
Karoliny dos Santos ◽  
Jane da Silva

ABSTRACT Objective: To evaluate the quality of life and its association with disease control, severity, allergic comorbidities and adherence to treatment in children and adolescents with asthma. Methods: A cross-sectional study that included children and adolescents aged seven to 17. The Paediatric Asthma Quality of Life Questionnaire (PAQLQ) was used to assess their quality of life. Sociodemographic and clinical data were obtained from the chart and from a questionnaire. Descriptive statistics were performed and chi-square or Fisher’s exact tests were used to verify the existence of associations between quality of life and disease control, severity, comorbidities and adherence to treatment. The level of statistical significance was set at p<0.05. Results: 101 children/adolescents were evaluated (62.4% boys), with a mean age of 10.1 years. On average, the PAQLQ score was ≤5.9 points, indicating moderate / severe quality of life impairment. Higher levels of control, as well as higher disease severity, were associated with higher quality of life impairment, both in total PAQLQ score and domains (p<0.05). The presence of comorbidities was also associated with higher quality of life impairment (p=0.01), except in the emotional function domain. Adherence to treatment showed no association with quality of life. Conclusions: Children and adolescents with asthma present impairment in their quality of life, and this is related to poorer control and severity of the disease, as well as to the presence of allergic comorbidities.


2020 ◽  
Vol 21 (1) ◽  
pp. 49
Author(s):  
Augusto Baumhardt Guidoti ◽  
Ângelo Pereira Cattani ◽  
Cintia Laura De Araujo ◽  
Fernanda Beatriz Costa Delacoste ◽  
Guilherme Scotta Hentschke ◽  
...  

The Glittre ADL-test (TGlittre) has been designed and validated to measure functional capacity during daily living activities in patients with chronic obstructive pulmonary disease (COPD) but is now used in several other situations. The aim of this study was to evaluate the applicability of TGlittre in a sample of overweight and obese eutrophic elderly. This was an experimental and cross-sectional study, which included 21 elderly women, allocated by BMI, in eutrophic (n = 8), overweight (n = 6) and obese (n = 7) groups. They were assessed for functional capacity (TGlittre and 6MWT), quality of life (QOL) with the questionnaire World Health Organization Quality of Life for Older People (WHOQOL-OLD) and handgrip strength (HGS). TGlittre correlated with age (p = 0.0040) and with 6MWT (p = 0.0086), but no statistical difference was found in TGlittre's performance time and the distance covered in 6MWT between groups. TGlittre did not correlate with HGS (p = 0.1493) and WHOQOL-Old (p = 0.0905). The data obtained in the present study corroborate that TGlittre is used as a functional measurement variable in the elderly population.Keywords: aged, obesity, exercise intolerance.­­­


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