Psychosocial Functioning Among Children With and Without Differences of Sex Development

Author(s):  
Jennifer A Hansen-Moore ◽  
Hillary M Kapa ◽  
Jennifer L Litteral ◽  
Leena Nahata ◽  
Justin A Indyk ◽  
...  

Abstract Objective To assess health-related quality of life (HRQoL), psychosocial adjustment, and family functioning of children with differences of sex development (DSD) or cleft lip and/or palate (CL/P). Methods In this cross-sectional study, parents of children with DSD (n = 67), CL/P (n = 121), and a comparison group of unaffected youth (n = 126) completed standardized measures assessing family functioning and their children’s HRQoL and psychosocial adjustment. Medical charts were abstracted for youth with either congenital condition. Results Children with DSD were rated as having significantly lower HRQoL and greater internalizing problems compared to youth with CL/P and unaffected youth. Children in the DSD group were also significantly more likely to fall into the clinical risk categories for total and internalizing problems relative to the CL/P and unaffected groups. Caregivers of children with DSD were significantly more likely to endorse items about child suicidality compared with caregivers in the CL/P and unaffected groups. No significant differences were found between groups for externalizing problems or the expressiveness domain of family functioning; parents of children with DSD reported significantly less family conflict relative to the other groups and greater cohesion relative to the unaffected group. Conclusions Youth with DSD appear to be at greater risk for psychosocial problems relative to children with CL/P and unaffected peers. Results underscore the need for integrated interdisciplinary care and ongoing psychosocial risk monitoring in youth with DSD.

2007 ◽  
Vol 44 (3) ◽  
pp. 304-311 ◽  
Author(s):  
Orlagh Hunt ◽  
Donald Burden ◽  
Peter Hepper ◽  
Mike Stevenson ◽  
Chris Johnston

Objectives: (1) to determine the opinion of parents regarding the psychosocial functioning of their child with cleft lip and/or palate (CLP); (2) to identify predictors of psychosocial functioning; and (3) to determine the level of agreement between children with CLP and their parents. Participants: One hundred twenty-nine parents of children with CLP and 96 parents of children without CLP participated in this cross-sectional study. Outcome measures: Parental opinion of the child's self-esteem, anxiety, happiness, and problems caused by facial appearance were assessed using visual analogue scales. Parents completed the Child Behavior Checklist and were interviewed. Results: Children with CLP were more anxious (p < 0.05), less happy with their appearance (p < 0.001), and in general (p < 0.05) had lower self-esteem (p < 0.05) and greater behavioral problems (p < 0.001) compared with non-CLP children. Parents reported that their child with CLP was teased more often (p < 0.001) and was less satisfied with his/her speech (p < 0.01) compared with reports of parents in the control group. A number of factors affected parents’ ratings of their child's psychosocial functioning (presence of CLP, appearance happiness, previous history of CLP, and visibility of scar). Children who had been teased were more anxious (p ≤ 0.01), less happy with their appearance (p < 0.001) and had greater behavioral problems (p < 0.001). Conclusions: Parents of children with CLP reported various psychosocial problems among their children. Parents considered children who had been teased to have greater psychosocial problems.


2009 ◽  
Vol 46 (1) ◽  
pp. 65-74 ◽  
Author(s):  
Kristin Billaud Feragen ◽  
Anne I. H. Borge ◽  
Nichola Rumsey

Objective: The purposes of this study were to investigate self-reported social experience in 10-year-old children born with a cleft lip and/or palate and to gain a better understanding of variables implicated in psychosocial resilience. Design: Cross-sectional study of 10-year-old children from five consecutive birth cohorts, born from 1992 to 1997. Participants: A total of 268 children treated by the Oslo cleft team (Norway) participated in the study. The children's cleft conditions included cleft lip and palate, cleft lip alveolus, cleft palate, and submucous cleft palate. Outcome Measures: Psychosocial resilience was measured with the Child Experience Questionnaire (CEQ). Other variables were obtained during a clinical interview with the child. Cognitive, emotional, and psychosocial functioning was measured with the Personality Inventory for Children (PIC). Satisfaction with appearance was assessed through the use of the Satisfaction with Appearance Scales (SWA). Informants were both children and parents. Results: Cleft types differed significantly with respect to subtype and frequency of additional difficulties. Psychosocial resilience was associated with adequate emotional functioning, high satisfaction with appearance, and a lower frequency of reported teasing. Child characteristics such as visibility of cleft, gender, and additional diagnosis did not contribute to explain psychosocial resilience. Conclusions: Results reported here emphasise the importance of assessing the child's subjective report of satisfaction with appearance and psychosocial experience.


2014 ◽  
Vol 48 (3) ◽  
pp. 469-476 ◽  
Author(s):  
Rosely Almeida Souza ◽  
Gislaine Desani da Costa ◽  
Cintia Hitomi Yamashita ◽  
Fernanda Amendola ◽  
Jaqueline Correa Gaspar ◽  
...  

Objective: To classify families of elderly with depressive symptoms regarding their functioning and to ascertain the presence of an association between these symptoms, family functioning and the characteristics of the elderly. Method: This was an observational, analytical, cross-sectional study performed with 33 teams of the Family Health Strategy in Dourados, MS. The sample consisted of 374 elderly divided into two groups (with and without depressive symptoms). The instruments for data collection were a sociodemographic instrument, the GeriatricDepression Scale (15 items) and the Family Apgar. Results: An association was observed between depressive symptoms and family dysfunction, female gender, four or more people living together, and physical inactivity. Conclusion: The functional family may represent effective support for the elderly with depressive symptoms, because it offers a comfortable environment that ensures the well-being of its members. The dysfunctional family can barely provide necessary care for the elderly, which can exacerbate depressive symptoms.



Author(s):  
Vidya V. Patil ◽  
Rekha Udgiri

Background: Aging is a universal process. In India, the elderly account for 7.7% of the total population and the United Nations defines a country as “ageing” where the proportion of people over 60 years reaches 7.7%. Morbidity among elderly has an important influence on their physical functioning and psychological well-being. The objectives of the study were to assess the psychosocial problems associated with the elderly and to describe the chronic illness and utilization of welfare services among elderly.Methods: A cross sectional study was conducted in the urban field practice area of Shri B M Patil Medical College, Vijayapur. House to house survey was conducted for a period of 3 months from September to November 2014.Results: Total of 372 elders were interviewed, 54.5% were males, 45.4% were females. Majority were Hindus 78.8%. 46% were illiterate. Majority 79% were financially dependent. 53% were working. Around 32% were feeling lonely Most common chronic illness is joint pain (66.66%), visual problem (50%), dental and chewing problem (48%).Conclusions: Financial dependence was high among the participants and majorities were suffering from one or the other chronic illness which needs attention and knowledge about geriatric welfare services should be given. 


Cureus ◽  
2021 ◽  
Author(s):  
Sravya Turlapati ◽  
Sai Krishna ◽  
Korutla U Deepak ◽  
Baggialaxmi Kanagaraja ◽  
Kanaparthi A Gayathri ◽  
...  

Revista CEFAC ◽  
2021 ◽  
Vol 23 (4) ◽  
Author(s):  
Gabriela Ribeiro Schilling ◽  
Maria Cristina de Almeida Freitas Cardoso ◽  
Paulo Sérgio Gonçalves da Silva ◽  
Marcia Angélica Peter Maahs

ABSTRACT Purpose: to describe the changes in speech and dental occlusion in children with cleft lip and palate and verify their association with each other and with the time of primary plastic surgeries. Methods: a cross-sectional study with collected data on the subjects’ identification, age at the time of primary surgeries, and clinical assessment of speech and dental occlusion. The chi-square test, Fisher's exact test, and t-test were used to verify the associations between the variables at the 5% significance level (p < 0.05). Results: the sample comprised 11 children aged 6 to 10 years, most of whom were males, self-reported white, with trans-incisive foramen cleft, predominantly on the left side. The mean age at lip repair surgery was 6 months, and 13 months at palatoplasty. Among the main dental occlusion changes, posterior and anterior crossbite stood out. All the subjects presented changed speech, with a prevalence of cases with dentoalveolar and palatine deformities, followed by passive and active changes. Subjects with anterior crossbite tended to have undergone primary lip repair surgery at a mean of four months earlier than the subjects without anterior crossbite. Conclusions: the associations between speech and dental occlusion changes, and between these and the time of primary plastic surgeries were not statistically significant. Even though it is known that early lip repair surgery is ideal to favor oral functions and aesthetics, the results revealed a tendency towards anterior crossbite, in these subjects.


2020 ◽  
Vol 7 (2) ◽  
pp. 230
Author(s):  
Enagandula Rupesh ◽  
Shipra Singh ◽  
Alka A. Subramanyam ◽  
Ravindra M. Kamath

Background: Families of children with disabilities otherwise experience higher stress; and relation between parenting styles and coping of children is well known. Parental factors and family functioning may play a role in shaping the child, especially having issues like SLD. The objective is to study was coping strategies of children with SLD, parenting styles of their parents, their family functioning and relation of these with each other.Methods: It is a cross-sectional study undertaken after Institutional Ethics Committee approval, parent’s consent and child’s assent. Participants were 100 consecutive children, diagnosed with SLD, 9-13 years of age. Tools used were: Semi-structured proforma, Parenting Practices Questionnaire, Family Assessment Device and Children’s Coping Strategies Checklist Revision 1.Results: Authoritarian parenting style was significantly was associated with less use of ‘active’ and ‘support seeking’; and increased use of ‘distraction’ and ‘avoidance’ strategies. High scores on Authoritative style was associated with ‘active’ and ‘support seeking’ strategies. Avoidance coping strategy was associated with poor (high scores) and active coping strategies with higher (low scores) on problem solving, communication, and general family functioning.Conclusions: Parenting practices and family functioning can be pivotal in determining child’s attitude and coping. Assessment of this can be routinely included in child evaluation.


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