scholarly journals Changes in quality of life in adolescents as an indicator of treatment efficiency

2014 ◽  
Vol 95 (6) ◽  
pp. 866-869
Author(s):  
D N Adzhablaeva

Aim. The research is targeted for estimating quality of life in adolescents with different types of tuberculosis. Methods. Quality of life in 30 adolescents aged 13-17 years was evaluated using Pediatric Quality of Life Inventory - PedsQL questionnaire. Parents were evaluated separately. An initial level of a quality of life before the treatment initiation and quality of life right after in-patient treatment completion (56 days) were compared. Results. Adolescents had pessimistic and emotionally limited subjective estimations of their clinical condition and its influences on all types of activities. The change in Pediatric Quality of Life Inventory scores (49.4±2.1 before treatment, compared to 51.9±2.0 after treatment) confirmed that recreation and treatment of tuberculosis significantly raised the subjective scores for all aspects of patient’s quality of life. Quality of life indicators by different functional scales were higher if assessed by parents compared to patients themselves (p 0.001). Parents were sure in positive influence of the prolonged course of the specific treatment on «school life» scale parameters. Comparative assessment of quality of life trend showed that improvement after treatment was observed according to assessment both by parents and patients themselves. All quality of life indicators were higher in female patients (score of all types of activities - 55.7±2.7 points) compared to males (48.3±2.8 points). Conclusion. Revealed trends confirm the need for performing recreational, medical, social, rehabilitative actions and psychosocial correction considering the age features of adolescents, their subjective estimations and functioning in a hospital.

2021 ◽  
pp. 104345422199232
Author(s):  
Piera C. Robson ◽  
Mary S. Dietrich ◽  
Terrah Foster Akard

Background: Children with cancer often experience decreased quality of life (QOL) throughout the illness trajectory. The purpose of this study was to explore the associations of demographic characteristics with QOL in children with advanced cancer. Methods: This secondary analysis was part of a larger randomized clinical trial that evaluated the efficacy of a legacy intervention for children (7–17 years) with relapsed/refractory cancer and their primary parent caregivers. Assessments included child self-reports on the Pediatric Quality of Life Inventory (PedsQL) Cancer Module. Researchers used descriptive and linear regression statistical methods. Results: Children ( n = 128) averaged 10.9 years (SD = 3.0). The majority were female ( n = 68, 53%), white ( n = 107, 84%), had a hematologic malignancy ( n = 67, 52%), with family incomes of $50,000 or less ( n = 81, 63.3%). Statistically significant positive associations of both age and income level with PedsQL scores were observed ( p < .05) but not gender ( p > .05). The strongest correlations for age were with the procedural anxiety ( beta = 0.42), treatment anxiety ( beta = 0.26), and total ( beta = 0.28) scores (all p < .01). In general, there was a positive correlation between family income levels and PedsQL scores ( p < .05). The strongest correlations for income were with nausea ( R = 0.49), appearance ( R = 0.44), pain, and treatment anxiety (both R = 0.42) (all p < .01). Associations adjusted for age remained essentially the same (all p < .01). Discussion: Children with advanced cancer with lower family income and younger age are at high risk for poorer QOL. Oncology nurses should seek to identify families who may benefit from additional resources to promote QOL.


Author(s):  
Maxime Caru ◽  
Sébastien Perreault ◽  
Ariane Levesque ◽  
Serge Sultan ◽  
Leandra Desjardins ◽  
...  

2012 ◽  
Vol 76 (6) ◽  
pp. 861-867 ◽  
Author(s):  
Monika Milian ◽  
Philipp Teufel ◽  
Juergen Honegger ◽  
Baptist Gallwitz ◽  
Guenter Schnauder ◽  
...  

2014 ◽  
Vol 32 (2) ◽  
pp. 272-278 ◽  
Author(s):  
João Gabriel S. Souza ◽  
Marcela Antunes Pamponet ◽  
Tamirys Caroline S. Souza ◽  
Alessandra Ribeiro Pereira ◽  
Andrey George S. Souza ◽  
...  

OBJECTIVE:To review the available tools to evaluate children's quality of life validated for Brazilian language and culture.DATA SOURCES: Search of scientific articles in Medline, Lilacs and SciELO databases using the combination of descriptors "quality of life", "child" and "questionnaires" in Portuguese and English.DATA SYNTHESIS: Among the tools designed to assess children's quality of life validated for the Brazilian language and culture, the Auto questionnaire Qualité de Vie Enfant Imagé (AUQEI), the Child Health Questionnaire - Parent Form 50 (CHQ-PF50), the Pediatric Quality of Life Inventory (PedsQL(tm))version 4.0 and the Kidscreen-52 are highlighted. Some tools do not include all range of ages and some lack domains that are currently considered relevant in the context of childhood, such as bullying. Moreover, due to the cultural diversity of Brazil, it may be necessary to adapt some instruments or to validate other tools.CONCLUSIONS: There are validated instruments to evaluate children's quality of life in Brazil. However, the validation or the adaptation of other international tools have to be considered in order to overcome current deficiencies


2021 ◽  
Vol 24 (10) ◽  
pp. 1490-1498
Author(s):  
Erik Landfeldt ◽  
Joel Iff ◽  
Erik Henricson ◽  
V. Vishwanathan ◽  
S. Chidambaranathan ◽  
...  

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