Neonatal Continuing Education That Powers Family-Centered Care Like Never Before

2021 ◽  
Vol 40 (1) ◽  
pp. 46-49
Author(s):  
Deborah Discenza
Keyword(s):  
Continuing Education ◽  
Psychosocial Support ◽  
Family Care ◽  
Care Program ◽  
Daily Basis ◽  
Family Centered Care ◽  
Long Term Outcomes ◽  
Centered Care ◽  
Family Centered

Families in the NICU struggle on a daily basis and they are at high risk for mental health challenges ongoing due to the trauma inflicted at birth and during the NICU and beyond. Starting parents down a path of psychosocial support is key at bedside and can have a major impact on that infant and family's long-term outcomes. This is the most powerful family-centered care program in existence thanks to the collaboration of three well-respected organizations—National Perinatal Association, NICU Parent Network, and Patient + Family Care.

scholarly journals A qualitative study to conceptualize levels of awareness, acceptance and expectations in parents of children with cerebral palsy in Gujarat, India

2018 ◽  
Vol 5 (2) ◽  
pp. 442
Author(s):  
Vivek H. Ramanandi ◽  
Maitry D. Jayswal ◽  
Dhara N. Panchal
Keyword(s):  
Cerebral Palsy ◽  
Care Program ◽  
Family Centered Care ◽  
Structured Interviews ◽  
Rehabilitation Team ◽  
Wide Range ◽  
Children With Cerebral Palsy ◽  
Centered Care ◽  
Family Centered

Background: Caring for a child with a disability presents a multifaceted challenge for managing and coping with the child’s functional limitations and possible long term dependence to the caregiver and family. A wide range of psychosocial problems are experienced by the parents of children with CP. As an important member of the rehabilitation team, Physiotherapists comes in regular and long term contact with family and care givers of the CP child. This increase responsibilities of a physiotherapist from more than just dealing with sensory-motor rehabilitation of a CP child to understand need and expectations and guide/counsel the caregiver, parents or family as and when needed. Studies like this can provide valuable information for designing a family centered care program for children with CP. Objective of present study was to identify the main concepts which represent levels of awareness, acceptance and their expectations in parents of children with cerebral palsy in Gujarat.Methods: Qualitative research design using in-depth semi structured interviews was used for the study. Total 21 parents were selected using purposive sampling and were interviewed till data saturation was achieved. The main descriptive elements regarding their levels of awareness, acceptance and expectations were extracted using content analysis method.Results: Common themes such as disturbed social relationships, health problems, financial problems, worries about future of the child, need for more support services, and lack of adequate number of trained physiotherapists were experienced by the parents.Conclusions: A wide range of experiences were described by the parents of children with CP. Studies like this can provide valuable information for improving depth and quality of rehabilitation services by a physiotherapist through a family centered care program for children with CP. 

Influence of Religion in Promoting Familial Caregiving in Nigerian Hospital Wards

2013 ◽  
Vol 3 (3) ◽  
pp. 01-04
Author(s):  
Alkali Ibrahim Abubakar ◽  
Mohd Hamdan Hj Ahmad ◽  
Ismail Said
Keyword(s):  
Participant Observation ◽  
Family Care ◽  
Family Centered Care ◽  
Family Participation ◽  
Tertiary Institution ◽  
Religious Influence ◽  
Active Involvement ◽  
Centered Care ◽  
Hospital Wards ◽  
Family Centered

Objective- The need for patients and family centered care as promoted by patient and family centered care (PFCC) model suggests the active involvement of patients' families and friends in caring for their hospitalized patients by use of collaboration, demonstration of dignity and respect, sharing information, and encouraging participation. Even though there are literatures that investigated the nature and typologies of family care actions that revealed the reasons for family participation, little is known of the influence of religion/spiritualism on this informal caregiving. This qualitative study was set out to explore religious role in promoting family participation in caring for their hospitalised relations. Methodology/Technique Non-participant observation was employed to study the typology of family care actions in male and female surgical wards of a tertiary institution in Nigeria. Findings Findings from the study reveals the significant influence of religion in identifying what constitute family care actions in Nigerian hospitals. Novelty - The benefits of family participation in care were seen to be influenced by the psychological and emotional support a patient requires, however this study reveals the significant religious influence. Type of Paper: Review Keywords: , Patient,Family, Religion, Caregiving

Investigating the effects of a family-centered care program on stroke patients‘ adherence to their therapeutic regimens

2014 ◽  
pp. 3268-3282 ◽  
Author(s):  
Nahid Dehghan Nayeri ◽  
Sepideh Mohammadi ◽  
Shadan Pedram Razi ◽  
Anoushirvan Kazemnejad
Keyword(s):  
Care Program ◽  
Family Centered Care ◽  
Stroke Patients ◽  
Centered Care ◽  
Family Centered

scholarly journals The conceptualization of family care during critical illness in KwaZulu-Natal, South Africa

2017 ◽  
Vol 22 ◽  
Author(s):  
J. De Beer ◽  
P. Brysiewicz
Keyword(s):  
Critical Illness ◽  
Family Members ◽  
Family Care ◽  
Family Centered Care ◽  
Loved One ◽  
Individual Interviews ◽  
Grounded Theory Research ◽  
Centered Care ◽  
Analyse Data ◽  
Family Centered

Introduction: In recent years there has been a movement to promote patients as partners in their care; however this may not always be possible as in the case of critically ill patients, who are often sedated and mechanically ventilated. This results in family members being involved in the care of the patient. To date, this type of care has been represented by three dominant theoretical conceptualizations and frameworks one of which is family centered care; however there is a lack of consensus on the definition of family centered care. Hence the objective of this study was to explore the meaning of family care within a South African context.Methodology: This study adopted a qualitative approach and a grounded theory research design by Strauss and Corbin (1990). Participants from two hospitals: one private and one public were selected to participate in the study. There was a total of 31 participants (family members, intensive care nurses and doctors) who volunteered to participate in the study.Data collection included in-depth individual interviews. Open, axial and selective coding was conducted to analyse data. Nvivo data analysis software was used to assist with the data analysis.Findings: The findings of this study revealed that family care is conceptualized as togetherness, partnership, respect and dignity.Conclusion: During a critical illness, patients' families fulfil an additional essential role for patients who may be unconscious or unable to communicate or make decisions. FMs not only provide vital support to their loved one, but also become the “voice” of the patient.

Investigating the effects of a family-centered care program on stroke patients’ adherence to their therapeutic regimens

2014 ◽  
Vol 47 (1-2) ◽  
pp. 88-96 ◽  
Author(s):  
Nahid Dehghan Nayeri ◽  
Sepideh Mohammadi ◽  
Shadan Pedram Razi ◽  
Anoushirvan Kazemnejad
Keyword(s):  
Care Program ◽  
Family Centered Care ◽  
Stroke Patients ◽  
Centered Care ◽  
Family Centered

Relationships among Climate of Care, Nursing Family Care and Family Well-being in ICUs

2019 ◽  
Vol 26 (7-8) ◽  
pp. 2494-2510 ◽  
Author(s):  
Natalie S McAndrew ◽  
Rachel Schiffman ◽  
Jane Leske
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Family Care ◽  
Family Centered Care ◽  
Organizational Resources ◽  
Ethical Conflict ◽  
Centered Care ◽  
Family Centered ◽  
Family Wellbeing

Background: Frequent exposure to ethical conflict and a perceived lack of organizational support to address ethical conflict may negatively influence nursing family care in the intensive care unit. Research aims: The specific aims of this study were to determine: (1) if intensive care unit climate of care variables (ethical conflict, organizational resources for ethical conflict, and nurse burnout) were predictive of nursing family care and family wellbeing and (2) direct and indirect effects of the climate of care on the quality of nursing family care and family wellbeing. Research design: A cross-sectional, correlational design was used. Participants and research context: Convenience sample of 111 nurses and 44 family members from five intensive care units at a Midwest hospital in the United States. Instruments: The Ethical Conflict Questionnaire-Critical Care Version, Maslach Burnout Inventory-Human Services Survey and Hospital Ethical Climate Scale were used to measure climate of care. The Family-Centered Care-Adult Version and Nurse Provided Family Social Support Scale were family measures of the quality of nursing family care. The Family Wellbeing Index was used to measure family wellbeing. Data analysis: Hierarchical regression and mediation analysis were used to answer the study aims. Ethical considerations: The study was approved by the Institutional Review Board at the study site. Findings: In separate regression models, organizational resources for ethical conflict (β = .401, p = .006) and depersonalization (β = −.511, p = .006), a component of burnout, were significant predictors of family-centered care. In simple mediation analysis the relationship between organizational resources for ethical conflict and family-centered care was mediated by depersonalization (β = .341, 95% confidence interval (.015, .707)). Discussion: Inadequate organizational resources and depersonalization may be related to family care delivery, and present obstacles to family-centered care in the intensive care unit. Conclusion: Further research to explicate the relationships among organizational resources, ethical conflict, burnout, and family-centered care is needed to guide the development of effective interventions that enhance the quality of nursing family care in the intensive care unit.

scholarly journals Family care map: Sustaining family-centered care in Polytrauma Rehabilitation Centers

2014 ◽  
Vol 51 (8) ◽  
pp. 1311-1324 ◽  
Author(s):  
James H. Ford ◽  
Meg Wise ◽  
Dean Krahn ◽  
Karen Anderson Oliver ◽  
Carmen Hall ◽  
...  
Keyword(s):  
Family Care ◽  
Family Centered Care ◽  
Rehabilitation Centers ◽  
Centered Care ◽  
Family Centered
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