scholarly journals The conceptualization of family care during critical illness in KwaZulu-Natal, South Africa

2017 ◽  
Vol 22 ◽  
Author(s):  
J. De Beer ◽  
P. Brysiewicz

Introduction: In recent years there has been a movement to promote patients as partners in their care; however this may not always be possible as in the case of critically ill patients, who are often sedated and mechanically ventilated. This results in family members being involved in the care of the patient. To date, this type of care has been represented by three dominant theoretical conceptualizations and frameworks one of which is family centered care; however there is a lack of consensus on the definition of family centered care. Hence the objective of this study was to explore the meaning of family care within a South African context.Methodology: This study adopted a qualitative approach and a grounded theory research design by Strauss and Corbin (1990). Participants from two hospitals: one private and one public were selected to participate in the study. There was a total of 31 participants (family members, intensive care nurses and doctors) who volunteered to participate in the study.Data collection included in-depth individual interviews. Open, axial and selective coding was conducted to analyse data. Nvivo data analysis software was used to assist with the data analysis.Findings: The findings of this study revealed that family care is conceptualized as togetherness, partnership, respect and dignity.Conclusion: During a critical illness, patients' families fulfil an additional essential role for patients who may be unconscious or unable to communicate or make decisions. FMs not only provide vital support to their loved one, but also become the “voice” of the patient.

Author(s):  
Alkali Ibrahim Abubakar ◽  
Mohd Hamdan Hj Ahmad ◽  
Ismail Said

Objective- The need for patients and family centered care as promoted by patient and family centered care (PFCC) model suggests the active involvement of patients' families and friends in caring for their hospitalized patients by use of collaboration, demonstration of dignity and respect, sharing information, and encouraging participation. Even though there are literatures that investigated the nature and typologies of family care actions that revealed the reasons for family participation, little is known of the influence of religion/spiritualism on this informal caregiving. This qualitative study was set out to explore religious role in promoting family participation in caring for their hospitalised relations. Methodology/Technique Non-participant observation was employed to study the typology of family care actions in male and female surgical wards of a tertiary institution in Nigeria. Findings Findings from the study reveals the significant influence of religion in identifying what constitute family care actions in Nigerian hospitals. Novelty - The benefits of family participation in care were seen to be influenced by the psychological and emotional support a patient requires, however this study reveals the significant religious influence. Type of Paper: Review Keywords: , Patient,Family, Religion, Caregiving


Author(s):  
Ari Damayanti Wahyuningrum

Collaborative action between families and health professionals, in this case nurses, doctors, nutritionists, pharmacies in forming harmonious support is the philosophy of family centered nursing care which aims to involve families as the main focus in care. The aim of this literature review is to identify family-centered family member care: a literatu review. This language method uses literature reviews which are summaries of 10 articles in the publication years of 2020-2021 on search 4 databased electronic searches containing namely Scopus, ProQuest, Pubmed, and Scient Direct. This review used prisms. The eligibility of these studies were from its title, abstract, research methodology, results and discussion. The results of the review were presented in narrative form. The results of a review of 10 articles found that the form family centered care Conclusion: The family is considered a partner in the care of other family members. The concept of family centered care is a philosophy in nursing where the role of the family is very important in caring for family members who are sick.


2021 ◽  
Vol 40 (1) ◽  
pp. 46-49
Author(s):  
Deborah Discenza

Families in the NICU struggle on a daily basis and they are at high risk for mental health challenges ongoing due to the trauma inflicted at birth and during the NICU and beyond. Starting parents down a path of psychosocial support is key at bedside and can have a major impact on that infant and family's long-term outcomes. This is the most powerful family-centered care program in existence thanks to the collaboration of three well-respected organizations—National Perinatal Association, NICU Parent Network, and Patient + Family Care.


2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Clarissa Hsu ◽  
Marlaine Figueroa Gray ◽  
Lauren Murray ◽  
Marie Abraham ◽  
Wendy Nickel ◽  
...  

2013 ◽  
Vol 20 (3) ◽  
pp. 83-90 ◽  
Author(s):  
Nerina Scarinci ◽  
Carly Meyer ◽  
Katie Ekberg ◽  
Louise Hickson

Hearing problems are the most common communication disability in older people. The wide-ranging impact of hearing impairment means that not only does the person with hearing impairment experience the consequences, but also his or her family members. This impact on family members is referred to as a “third-party disability” (World Health Organization, 2001). Health professionals and researchers worldwide suggest that professionals can increase effectiveness of health care if they take into account the needs of the person with hearing impairment and the needs of family members (Dunst, 2002). This article discusses the important role of family-centered care in audiologic rehabilitation for adults with hearing impairment. Strategies for increased inclusion of family members in the rehabilitation process are proposed, with concepts from the field of psychology applied to audiologic rehabilitation.


2019 ◽  
Vol 26 (7-8) ◽  
pp. 2494-2510 ◽  
Author(s):  
Natalie S McAndrew ◽  
Rachel Schiffman ◽  
Jane Leske

Background: Frequent exposure to ethical conflict and a perceived lack of organizational support to address ethical conflict may negatively influence nursing family care in the intensive care unit. Research aims: The specific aims of this study were to determine: (1) if intensive care unit climate of care variables (ethical conflict, organizational resources for ethical conflict, and nurse burnout) were predictive of nursing family care and family wellbeing and (2) direct and indirect effects of the climate of care on the quality of nursing family care and family wellbeing. Research design: A cross-sectional, correlational design was used. Participants and research context: Convenience sample of 111 nurses and 44 family members from five intensive care units at a Midwest hospital in the United States. Instruments: The Ethical Conflict Questionnaire-Critical Care Version, Maslach Burnout Inventory-Human Services Survey and Hospital Ethical Climate Scale were used to measure climate of care. The Family-Centered Care-Adult Version and Nurse Provided Family Social Support Scale were family measures of the quality of nursing family care. The Family Wellbeing Index was used to measure family wellbeing. Data analysis: Hierarchical regression and mediation analysis were used to answer the study aims. Ethical considerations: The study was approved by the Institutional Review Board at the study site. Findings: In separate regression models, organizational resources for ethical conflict (β = .401, p = .006) and depersonalization (β = −.511, p = .006), a component of burnout, were significant predictors of family-centered care. In simple mediation analysis the relationship between organizational resources for ethical conflict and family-centered care was mediated by depersonalization (β = .341, 95% confidence interval (.015, .707)). Discussion: Inadequate organizational resources and depersonalization may be related to family care delivery, and present obstacles to family-centered care in the intensive care unit. Conclusion: Further research to explicate the relationships among organizational resources, ethical conflict, burnout, and family-centered care is needed to guide the development of effective interventions that enhance the quality of nursing family care in the intensive care unit.


2017 ◽  
Vol 28 (2) ◽  
pp. 171-178 ◽  
Author(s):  
Robert L. Owens ◽  
Truong-Giang Huynh ◽  
Giora Netzer

The desire for families to be physically present to support their loved ones in the intensive care unit, and guidelines in favor of this open visitation approach, require that clinicians consider both patient and family sleep. This article reviews the causes of poor sleep for patients and their family members in the intensive care unit as well as the expected changes in cognition and emotion that can result from sleep deprivation. Measures are proposed to improve the intensive care unit environment to promote family sleep. A framework to educate family members and engage them in preservation of their and their loved one’s circadian rhythm is also presented. Although further research is needed, the proposed framework has the potential to improve outcomes for patients and their families in the intensive care unit.


2014 ◽  
Vol 51 (8) ◽  
pp. 1311-1324 ◽  
Author(s):  
James H. Ford ◽  
Meg Wise ◽  
Dean Krahn ◽  
Karen Anderson Oliver ◽  
Carmen Hall ◽  
...  

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