Perinatal Regoaling in the Face of Serious Illness: Hopeful Thinking, Good-Parent Beliefs, and Uncertainty

2019 ◽  
Author(s):  
DOUGLAS L. HILL ◽  
JACKELYN Y. BOYDEN ◽  
CHRIS FEUDTNER ◽  
DAVID A. MUNSON
Keyword(s):  
Parent Beliefs ◽  
Serious Illness ◽  
Good Parent ◽  
The Face

scholarly journals Changes Over Time in Good-Parent Beliefs Among Parents of Children with Serious Illness: Two Year Cohort Study (TH320B)

2018 ◽  
Vol 55 (2) ◽  
pp. 570
Author(s):  
Douglas Hill ◽  
Jennifer Faerber ◽  
Karen Carroll ◽  
Victoria Miller ◽  
Wynne Morrison ◽  
...  
Keyword(s):  
Cohort Study ◽  
Parent Beliefs ◽  
Serious Illness ◽  
Good Parent ◽  
Changes Over Time ◽  
Over Time

scholarly journals Changes Over Time in Good-Parent Beliefs Among Parents of Children With Serious Illness: A Two-Year Cohort Study

2019 ◽  
Vol 58 (2) ◽  
pp. 190-197 ◽  
Author(s):  
Douglas L. Hill ◽  
Jennifer A. Faerber ◽  
Yimei Li ◽  
Victoria A. Miller ◽  
Karen W. Carroll ◽  
...  
Keyword(s):  
Cohort Study ◽  
Parent Beliefs ◽  
Serious Illness ◽  
Good Parent ◽  
Changes Over Time ◽  
Over Time

R—Relating

2019 ◽  
pp. 214-245
Author(s):  
Elaine Wittenberg ◽  
Joy V. Goldsmith ◽  
Sandra L. Ragan ◽  
Terri Ann Parnell
Keyword(s):  
Decision Making ◽  
Opportunity To Learn ◽  
Serious Illness ◽  
New Information ◽  
Family Perspectives ◽  
Family Acceptance ◽  
The Face ◽  
Complex Architecture ◽  
The Relationship

Relating is a chapter that unpacks the complex architecture of goals always at play for each of us. Because the true motives and goals of a patient are rarely fully understood or realized, the recommendation in this chapter is to attend to the relationship to facilitate the instrumental goals of palliative nursing. Throughout this chapter, authors examine the phenomenon of the patient/family acceptance of an illness status, as well as understanding patient/family perspectives on adjusting to new information. The authors examine the role of uncertainty and how it can impact goals of care discussions and, ultimately, decision-making. Relating to a patient/family creates the opportunity to learn about acceptability of a diagnosis/prognosis, fears associated with uncertainty, and the inevitable dissonance among personal goals in the face of serious illness. Multiple, conflicted, and unrealized goals are a reality that clinicians must navigate and that patients and families must face as they work together to acknowledge a changing life and identity.

Parenting in the face of serious illness: Childhood cancer survivors remember different rearing behavior than the general population

2019 ◽  
Vol 28 (8) ◽  
pp. 1663-1670 ◽  
Author(s):  
Mareike Ernst ◽  
Elmar Brähler ◽  
Eva M. Klein ◽  
Claus Jünger ◽  
Philipp S. Wild ◽  
...  
Keyword(s):  
General Population ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Childhood Cancer Survivors ◽  
Serious Illness ◽  
The Face
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