Public engagement in the development of the National Health Insurance: a study involving patients from a central hospital in South Africa.
Abstract Background: Public involvement of citizens in the legislative development process is a constitutional requirement in South Africa. Patient engagement refers to the active involvement of patients in the decision-making processes at multiple levels in the health system. In order for patients to be engaged, they need to be provided with relevant information and an opportunity to be involved in the policy-making process. Methods: This was cross sectional and quantitative study with descriptive and comparative analyses. Two hundred and forty-four patients from the follow-up clinics at the Internal Medicine Department of Charlotte Maxeke Johannesburg Academic Hospital in the Gauteng Province, South Africa. The patients were interviewed through a structured interview process, using a questionnaire. Descriptive statistics and logistic regression univariate and multivariate analyses were run. Results: The majority (79.51%) of the participants were not aware of the proposed National Health Insurance (NHI) in South Africa even though process commenced in 2011. Most of the participants (86%) who were aware of the NHI had not received an opportunity to be involved in the policy making process of the NHI. About ninety-one percent of the participants (91.39%) knew that they had a right to be involved in the policy making process of the NHI. The odds of awareness were higher for male (OR: 2.08, 95% CI: 1.11 – 3.9, p value: 0.02) than female participants. The odds of awareness were higher for White (OR: 2.36, 95% CI: 1.06 – 5.26, p value: 0.04) and Indian (OR: 2.76, 95% CI: 0.10 – 7.60, p value: 0.05) participants when compared to Black participants. The odds of awareness were higher for retired (OR: 3.13, 95% CI: 1.35 – 7.25, p value: 0.008) than unemployed participants. Conclusions: Without the awareness and information about the NHI, patients are not equipped to be involved in the NHI policy process in a meaningful way.