Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials: a Study Within A Trial (SWAT-55)

Background: Family members, or others, often assume the role of informal (unpaid) carers of people with chronic illnesses. Care-giving, however, can impact profoundly on the quality of life of carers and can cause carer worry, stress and guilt. Implementing interventions that positively affect the lives of carers is important; however, carers as a group are often difficult to reach. We embedded a study within a pilot-feasibility trial of a mindfulness based intervention to determine and prioritise the key motivators and challenges influencing informal carers’ decisions for participating in a trial. Methods: We used a multi-method approach involving interviews with participants from a ‘host trial’ and data from systematic reviews to develop a survey that was distributed to informal carers in Ireland. The survey consisted of 28 motivator and 17 challenge statements. Participants rated how important they thought each statement was when deciding to take part in a trial on a 5-point Likert Scale. Mean scores and standard deviations were calculated for each statement and arranged in descending order to provide the priority lists. Results: Thirty-six carers responded to the survey. Helping to create awareness about carers was the top ranked motivator, followed by four study design statements related to the time at which the study occurs, the study location, format of delivery and venue. The least important motivator related to how carers were invited to take part in a study. Difficulties in planning due to the caring role emerged as the most important challenge, followed by being unable to leave the care recipient on his/her own. Conclusions: Insight into decision-making for research participation will assist trial developers tailor trial processes for informal carer populations. We recommend that trialists should consider these motivators and challenges when designing future trials involving informal carers so as to enhance trial feasibility and success.

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Prioritising key motivators and challenges influencing informal carers’ decisions for participating in randomised trials: An embedded Study Within A before and after Trial (SWAT 55)

HRB Open Research ◽

10.12688/hrbopenres.13125.2 ◽

2021 ◽

Vol 3 ◽

pp. 71

Author(s):

Valerie Smith ◽

Margarita Corry ◽

Declan Devane ◽

Shaun Treweek ◽

Andrew Hunter ◽

...

Keyword(s):

Research Participation ◽

Chronic Illnesses ◽

Care Recipient ◽

Feasibility Trial ◽

Informal Carer ◽

Care Giving ◽

Before And After ◽

Important Challenge ◽

Multi Method Approach ◽

Informal Carers

Background: Family members, or others, often assume the role of informal (unpaid) carers of people with chronic illnesses. Care-giving, however, can impact profoundly on the quality of life of carers and can cause carer worry, stress and guilt. Implementing interventions that positively affect the lives of carers is important; however, carers as a group are often difficult to reach. We embedded a study within a pilot-feasibility trial of a mindfulness based intervention to determine and prioritise the key motivators and challenges influencing informal carers’ decisions for participating in a trial. Methods: We used a multi-method approach involving interviews with participants from a ‘host trial’ and data from systematic reviews to develop a survey that was distributed to informal carers in Ireland. The survey consisted of 28 motivator and 17 challenge statements. Participants rated how important they thought each statement was when deciding to take part in a trial on a 5-point Likert Scale. Mean scores and standard deviations were calculated for each statement and arranged in descending order to provide the priority lists. Results: Thirty-six carers responded to the survey. Helping to create awareness about carers was the top ranked motivator, followed by four study design statements related to the time at which the study occurs, the study location, format of delivery and venue. The least important motivator related to how carers were invited to take part in a study. Difficulties in planning due to the caring role emerged as the most important challenge, followed by being unable to leave the care recipient on his/her own. Conclusions: Insight into decision-making for research participation will assist trial developers tailor trial processes for informal carer populations. We recommend that trialists should consider these motivators and challenges when designing future trials involving informal carers so as to enhance trial feasibility and success.

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Do patients value a hospital’s innovativeness reputation? A multi-method approach to assess the relative importance of innovativeness reputation in patients’ hospital choice

Health Services Management Research ◽

10.1177/0951484817748157 ◽

2017 ◽

Vol 31 (3) ◽

pp. 138-153 ◽

Cited By ~ 1

Author(s):

Sebastian Gurtner ◽

Nadine Hietschold ◽

María Vaquero Martín

Keyword(s):

Value Added ◽

Patient Choice ◽

Relative Importance ◽

Hospital Choice ◽

Patient Decision ◽

Technical Innovations ◽

Multi Method Approach ◽

Method Approach

Innovations in health care are costly and risky, but they also provide the opportunity for hospitals to increase quality of care, to distinguish themselves from competitors and to attract patients. While numerous hospitals strive to increase their innovativeness by adopting a costly innovation leader strategy, the question of whether this actually influences the patient’s choice remains unanswered. To understand the role of innovativeness from the patient perspective, this study conceptualizes the construct of innovativeness reputation of hospitals and determines its relevance in patients’ hospital choice decisions. In the pretest, we identified six dimensions of innovativeness reputation such as progressive work procedures and value added services. We then used three different quantitative multi-criteria decision-making methods to evaluate the relative importance of innovativeness reputation in patient choice. We collected data from 355 former German patients who had undergone elective non-emergency surgery. Overall, innovativeness reputation accounts for 11.6%–16.8% of the patient decision. Innovativeness reputation has a moderate influence on hospital choice and should be taken into account by managers. Since technical innovations are costly, hospitals should use other means to enhance their innovative image. Strategies such as emphasizing value added services can enable hospitals to increase their innovativeness reputation efficiently.

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The Role of Knowledge Management (KM) in Aged Care Informatics

Big Data ◽

10.4018/978-1-4666-9840-6.ch076 ◽

2016 ◽

pp. 1668-1686

Author(s):

Margee Hume ◽

Craig Hume ◽

Paul Johnston ◽

Jeffrey Soar ◽

Jon Whitty

Keyword(s):

Knowledge Management ◽

Management Practice ◽

Aged Care ◽

Social Infrastructure ◽

Care Giving ◽

Aged Care Facilities ◽

Definition Of

Aged care is projected to be the fastest-growing sector within the health and community care industries (Reynolds, 2009). Strengthening the care-giving workforce, compliance, delivery, and technology is not only vital to our social infrastructure and improving the quality of care, but also has the potential to drive long-term economic growth and contribute to the Gross Domestic Product (GDP). This chapter examines the role of Knowledge Management (KM) in aged care organizations to assist in the delivery of aged care. With limited research related to KM in aged care, this chapter advances knowledge and offers a unique view of KM from the perspective of 22 aged care stakeholders. Using in-depth interviewing, this chapter explores the definition of knowledge in aged care facilities, the importance of knowledge planning, capture, and diffusion for accreditation purposes, and offers recommendations for the development of sustainable knowledge management practice and development.

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Attitudes Toward Intelligent Technologies

Intelligent Technologies for Bridging the Grey Digital Divide ◽

10.4018/978-1-61520-825-8.ch015 ◽

2011 ◽

pp. 231-252

Author(s):

Lorenza Tiberio ◽

Massimiliano Scopelliti ◽

Maria Vittoria Giuliani

Keyword(s):

Quality Of Life ◽

Nursing Homes ◽

Elderly People ◽

Term Care ◽

Care Services ◽

Care Giving ◽

Human Care

Nursing homes provide long-term care services and can help preserve the quality of life of elderly people subject to physical and cognitive impairments. In this chapter, we explore the role of intelligent technologies as a supplement to human care-giving and the potential to improve quality of life for both older adults and their caregivers in nursing homes. A study was conducted on elderly people’s and caregivers’ attitudes toward the use of intelligent technologies in nursing homes, with the aim of understanding in which domains of everyday activities the application of intelligent technologies can be more suitable. Results showed that attitude toward the application of intelligent technologies in nursing homes is positive, although multifaceted. Elderly people and caregivers considered intelligent technologies as relevant devices for the improvement of quality of life in different domains. Nonetheless, differences related to the role that technologies played in nursing homes clearly emerged.

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Attitudes Toward Intelligent Technologies

Regional Development ◽

10.4018/978-1-4666-0882-5.ch508 ◽

2012 ◽

pp. 970-991

Author(s):

Lorenza Tiberio ◽

Massimiliano Scopelliti ◽

Maria Vittoria Giuliani

Keyword(s):

Quality Of Life ◽

Nursing Homes ◽

Elderly People ◽

Term Care ◽

Care Services ◽

Care Giving ◽

Human Care

Nursing homes provide long-term care services and can help preserve the quality of life of elderly people subject to physical and cognitive impairments. In this chapter, we explore the role of intelligent technologies as a supplement to human care-giving and the potential to improve quality of life for both older adults and their caregivers in nursing homes. A study was conducted on elderly people’s and caregivers’ attitudes toward the use of intelligent technologies in nursing homes, with the aim of understanding in which domains of everyday activities the application of intelligent technologies can be more suitable. Results showed that attitude toward the application of intelligent technologies in nursing homes is positive, although multifaceted. Elderly people and caregivers considered intelligent technologies as relevant devices for the improvement of quality of life in different domains. Nonetheless, differences related to the role that technologies played in nursing homes clearly emerged.

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National policies in ensuring access to quality and safety of drugs: A challenge or a prerequisite

Thalassemia Reports ◽

10.4081/thal.2018.7483 ◽

2018 ◽

Vol 8 (1) ◽

Author(s):

M. Hadipour Dehshal ◽

M. Tabrizi Namini

Keyword(s):

Developing Countries ◽

International Organizations ◽

Decision Makers ◽

Essential Medicines ◽

Pharmaceutical Companies ◽

Patient Status ◽

Important Challenge ◽

Medical Delivery

Access to the essential medicines is an important challenge in the developing countries. To have access to the quality and affordable medicines, the pharmaceutical decision makers try different strategies. The production of generic and copy medicines is one of the strategies that if adopted based on the recognized standards and norms can be effective in raising the health status in the developing countries. However, the regulation enfeeblement has somewhat impaired the quality of generic and copy medicines and harmed the health life of consumers. Here we aim to reflect over the role of different beneficiaries including international organizations, governments, pharmaceutical companies, and NGOs in ensuring the feasible and sustainable access of citizens to the essential medicines. We also aim to highlight the importance of the patient status in the enhancement of the medical delivery.

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Care-giver wellbeing: exploring gender, relationship-to-care-recipient and care-giving demands in the Canadian Longitudinal Study on Aging

Ageing and Society ◽

10.1017/s0144686x21001823 ◽

2021 ◽

pp. 1-37

Author(s):

Neena L. Chappell ◽

Margaret Penning ◽

Helena Kadlec ◽

Sean D. Browning

Keyword(s):

Life Satisfaction ◽

Intensive Care ◽

Depressive Symptoms ◽

Longitudinal Study ◽

Policy Implications ◽

Care Recipient ◽

Mediating Role ◽

Care Givers ◽

Care Giving

Abstract The three-way intersection of gender, relationship-to-care-recipient and care-giving demands has not, to our knowledge, been examined in relation to the wellbeing of family care-givers. We explore inequalities in depressive symptoms and life satisfaction, comparing wives, husbands, daughters and sons providing very-intensive care (36+ hours/week) with those providing less care and disparities between these groups in the factors related to disadvantage. Data from the Canadian Longitudinal Study on Aging (N = 5,994) support the existence of differences between the groups. Very-intensive care-giving wives report the most depressive symptoms and lowest life satisfaction; less-intensive care-giving sons report the fewest depressive symptoms, and less-intensive care-giving daughters report the highest life satisfaction. However, group differences in life satisfaction disappear among very-intensive care-givers. Drawing on Intersectionality and Stress Process theories, data from regression analyses reveal a non-significant gender–relationship–demand interaction term, but, health, socio-economic and social support resources play a strong mediating role between care demand and wellbeing. Analyses of the eight groups separately reveal diversity in the care-giving experience. Among less-intensive care-givers, the mediating role of resources remains strong even as differences are evident. Among very-intensive care-givers, the role of resources is less and differences in wellbeing between the groups are magnified. Policy implications emphasise the imperative to personalise services to meet the varied needs of care-givers.

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Incivility towards nurses: A Systematic Review and Meta-analysis

10.21203/rs.3.rs-35232/v1 ◽

2020 ◽

Author(s):

Foroozan Atashzadeh-Shoorideh ◽

Soolmaz Moosavi ◽

Abbas Balouchi ◽

Georgina Riley

Keyword(s):

Systematic Review ◽

Meta Analysis ◽

Working Environment ◽

Negative Behaviors ◽

Factors Affecting ◽

Care Giving ◽

Healthy Work ◽

Safe Working

Abstract Background Creation and maintenance of a safe healthy work environment is one part of a nurse’s role. Evidence shows there is a presence of negative behaviors like incivility and violence in the nursing profession. This systematic review and meta-analysis determined the rate of incivility towards nurses and the factors affecting it. Methods All observational studies that primarily investigated the rate of incivility towards nurses were selected regardless of sampling method. The electronic databases “PubMed, Embase, Web of Sciences, Magiran, IranDoc, and Scopus” were searched for studies published during the period of January 1, 1996 to December 31, 2019. The quality of the selected studies was assessed with Hoy’s Critical Assessment Checklist. The study was undertaken using the random effects model. Data were analyzed with STATA14. Results Data on 61 articles, including data on 30801 individuals that were published during 1997–2019, entered the study. Prevalence of incivility was 50.10% (95%, CI: 48.05, 62.06). Conclusion Given the highly important role of nurses in care-giving, they deserve to have a safe working environment similar to other work milieus.

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The Role of Knowledge Management (KM) in Aged Care Informatics

Healthcare Informatics and Analytics - Advances in Healthcare Information Systems and Administration ◽

10.4018/978-1-4666-6316-9.ch015 ◽

2015 ◽

pp. 284-302

Author(s):

Margee Hume ◽

Craig Hume ◽

Paul Johnston ◽

Jeffrey Soar ◽

Jon Whitty

Keyword(s):

Knowledge Management ◽

Management Practice ◽

Aged Care ◽

Social Infrastructure ◽

Care Giving ◽

Aged Care Facilities ◽

Definition Of

Aged care is projected to be the fastest-growing sector within the health and community care industries (Reynolds, 2009). Strengthening the care-giving workforce, compliance, delivery, and technology is not only vital to our social infrastructure and improving the quality of care, but also has the potential to drive long-term economic growth and contribute to the Gross Domestic Product (GDP). This chapter examines the role of Knowledge Management (KM) in aged care organizations to assist in the delivery of aged care. With limited research related to KM in aged care, this chapter advances knowledge and offers a unique view of KM from the perspective of 22 aged care stakeholders. Using in-depth interviewing, this chapter explores the definition of knowledge in aged care facilities, the importance of knowledge planning, capture, and diffusion for accreditation purposes, and offers recommendations for the development of sustainable knowledge management practice and development.

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