scholarly journals Meaning in Life of Terminally Ill Parent with Young Children – A Quantitative Evaluation with SMiLE

2021 ◽  
Author(s):  
Henning Cuhls ◽  
Gülay Ateş ◽  
Gregory Heuser ◽  
Lukas Radbruch ◽  
Michaela Hesse
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Young Children ◽  
Social Relations ◽  
Meaning In Life ◽  
Home Garden ◽  
Post Intervention ◽  
Perceived Quality Of Life ◽  
Young Parent

Abstract Background Increasing the quality of life is one of the objectives of palliative care. Meaning in life has a significant influence on the perceived quality of life. We found no studies focusing on patients with young children.Methods Young parents diagnosed with life-limiting disease could participate and create an audiobook. Patients were assessed using Schedule for Meaning in Life Evaluaton (SMiLE) pre and post intervention. The SMiLE is a validated instrument to assess meaning in life. Patients list their individual items that provide meaning in life. In a second step they are requested to rate their current level of satisfaction and in a last step they are asked to rank the importance of each item. Overall indices of weighting, satisfaction and importance are calculated. In addition, participants were interviewed twice over the course regarding expectations, concerns, motivation, and experiences.ResultsThe data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of seven years could be included. The involvement with the SMiLE made patients think about their resources. Most important items were in decreasing order family (100%), social relations (79.6%), leisure time (61.1%), nature/animals (38.9%), and home/garden (29.6%). Index of weighting (IOW) was 81.5, index of satisfaction (IOS) was 71.4, and a total SMiLE Index (IOWS) was 72.4. Parent felt limited by their illness in being a mother or father, as they wanted to be.ConclusionItems relevant for young parent showed differences to evaluations of cancer patients and palliative care patients. Most important item for meaning in life is the family numerated by all participants. The results indicate that evaluation of meaning in life is a coping strategy and helps young parent with young children.

Meaning in life and quality of life: comparison between palliative care patients and a representative sample of the Swiss population

2019 ◽  
Author(s):  
Mathieu Bernard ◽  
André Berchtold ◽  
Florian Strasser ◽  
Claudia Gamondi ◽  
Gian Domenico Borasio
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Social Relations ◽  
Meaning In Life ◽  
Representative Sample ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Social Commitment ◽  
Swiss Population

Abstract Background and objectives Existential areas, and in particular the concept of meaning in life, represent a key topic in palliative care. The aims of this study are to explore (i) the differences in perceived meaning in life (MIL) and in the meaning-relevant life areas between a representative sample of the Swiss population and palliative care patients, and (ii) to what extent MIL can be considered as a significant predictor of quality of life (QOL) in the two populations. Methods A cross sectional study was conducted separately for the patients (face-to-face interviews) and the representative sample of the Swiss population (telephone survey). MIL was measured with the Schedule for Meaning in Life Evaluation (SMILE) and QOL with a with a single item visual analogue scale (0-10). Socio-demographic variables were controlled for in the analyses. Results 206 palliative care patients and 1015 participants from the Swiss population completed the protocol. Results indicated high MIL scores in both population even if the difference was significant (patients 81.9 vs general population 87, p<.001). Compared to the Swiss population, patients were more likely to cite “family” (OR=1.78), “social relations” (OR=1.9), “spirituality and religion” (OR=3.93), “social commitment” (OR=1.94), and “growth” (OR=2.07), and less likely to cite “finances” (OR=0.15) and “health” (OR=0.21) as MIL-relevant areas. The SMILE scores and MIL areas explained 21.8% of the QOL variance for the palliative care patients and 15.1% for the representative sample. Conclusions Our data emphasize the importance of MIL as a contributor to QOL in both clinical and non-clinical settings. From a clinical perspective, it highlights the importance of the life areas contributing to MIL, in particular the social interactions, since they play a significant role for the patients’ QOL.

scholarly journals Meaning in life and quality of life: palliative care patients versus the general population

2020 ◽  
pp. bmjspcare-2020-002211
Author(s):  
Mathieu Bernard ◽  
André Berchtold ◽  
Florian Strasser ◽  
Claudia Gamondi ◽  
Gian Domenico Borasio
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
General Population ◽  
Social Relations ◽  
Meaning In Life ◽  
Representative Sample ◽  
Cross Sectional ◽  
Social Commitment ◽  
Swiss Population

Background and objectivesMeaning in life (MIL) represent a key topic in palliative care. The aims of this study were to explore (1) the differences in perceived MIL and in the meaning-relevant life areas between a representative sample of the Swiss population and palliative care patients, and (2) to what extent MIL can be considered as a significant predictor of quality of life (QOL).MethodsA cross-sectional study was conducted separately for the patients (face-to-face interviews) and the general population (telephone survey). MIL was measured with the Schedule for Meaning in Life Evaluation (SMILE) and QOL with a single-item visual analogue scale (0–10). Sociodemographic variables were controlled for in the analyses.Results206 patients and 1015 participants from the Swiss population completed the protocol. Results indicated high MIL scores in both populations even if the difference was significant (patients 81.9 vs general population 87, p<0.001). Patients were more likely to cite ‘family’ (OR=1.78), ‘social relations’ (OR=1.9), ‘spirituality and religion’ (OR=3.93), ‘social commitment’ (OR=1.94) and ‘growth’ (OR=2.07), and less likely to cite ‘finances’ (OR=0.15) and ‘health’ (OR=0.21) as MIL-relevant areas. The SMILE scores and MIL areas explained 21.8% of the QOL variance for the patients and 15.1% for the representative sample.ConclusionsOur data emphasise the importance of MIL as a contributor to QOL in both populations. It highlights the importance of the life areas contributing to MIL, especially social interactions for both populations, and spirituality and areas related to growth in palliative care patients.

scholarly journals Occupational Performance Coaching with Parents to Promote Community Participation and Quality of Life of Young Children with Developmental Disabilities: A Feasibility Evaluation in Hong Kong

2020 ◽  
Vol 17 (21) ◽  
pp. 7993
Author(s):  
Chi-Wen Chien ◽  
Yuen Yi Cynthia Lai ◽  
Chung-Ying Lin ◽  
Fiona Graham
Keyword(s):  
Quality Of Life ◽  
Hong Kong ◽  
Developmental Disabilities ◽  
Young Children ◽  
Community Participation ◽  
Occupational Performance ◽  
Post Intervention ◽  
Community Activities ◽  
Performance Coaching

Participation in community activities contributes to child development and health-related quality of life (HRQOL), but restricted participation has been reported in children with disabilities. Occupational performance coaching (OPC) is an intervention that targets participatory goals in child performance through coaching parents, with evidence of effectiveness for pediatric populations. Little is known about the feasibility of OPC in Hong Kong, or its effect on children’s community participation and HRQOL. A mixed-methods case study design was applied to explore Hong Kong parents’ experience of OPC in relation to goal achievement, community participation, and HRQOL change in children. Four parents of young children with developmental disabilities (aged five to six years) received OPC for three to eight sessions within one to three months. Quantitative pre- and post-intervention data were analyzed descriptively. Semi-structured interviews with parents were conducted at post-intervention, and analyzed using content analysis. Results showed a trend of improvement in goal performance, child involvement in community activities, and specific aspects of HRQOL among most participants. Parents perceived undertaking OPC positively, described gaining insights and skills, and felt supported. The findings suggest that OPC warrants further investigation for use in Hong Kong, to promote children’s community participation and quality of life.

scholarly journals Effects of clown activities on patients eligible for palliative care in primary health care

2021 ◽  
Vol 74 (5) ◽  
Author(s):  
Fernando Ribeiro dos Santos ◽  
Sandra Pinto ◽  
Juliana Dias Reis Pessalacia ◽  
Bruna Moretti Luchesi ◽  
Lucimeire Aparecida da Silva ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Health Care ◽  
Palliative Care ◽  
Primary Health Care ◽  
Post Intervention ◽  
Primary Health ◽  
Home Based ◽  
Quasi Experimental

ABSTRACT Objective: Evaluate the effects of clown activities on quality of life, depression, stress, anxiety, aid, and social support in patients eligible for palliative care (PC) attended in Primary Health Care (PHC). Method: A quasi-experimental study, with pre-intervention and post-intervention evaluation, carried out with 16 patients eligible for early PC in PHC in a Midwestern city. Patients received 24 visits with home-based clown activities. Results: The interventions evidenced improved quality of life and social support, with significant results for the Social Activities dimension (p = 0.023). Increased scores for Anxiety (p = 0.007) and Depression (p = 0.023) were also observed. Conclusion: Clown activities can bring positive results for the quality of life and social support of patients eligible for PC at home. They should be encouraged to interact with family knowledge and enhance humanized care, integral and centered on human relationships in PHC.

scholarly journals Relationship Between Spirituality, Meaning in Life, Psychological Distress, Wish for Hastened Death, and Their Influence on Quality of Life in Palliative Care Patients

2017 ◽  
Vol 54 (4) ◽  
pp. 514-522 ◽  
Author(s):  
Mathieu Bernard ◽  
Florian Strasser ◽  
Claudia Gamondi ◽  
Giliane Braunschweig ◽  
Michaela Forster ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Psychological Distress ◽  
Meaning In Life ◽  
Hastened Death

scholarly journals Feasibility and preliminary efficacy of a multimodal exercise, nutrition, and palliative care intervention in advanced lung cancer

2020 ◽  
Author(s):  
Manuel Ester ◽  
S. Nicole Culos-Reed ◽  
Amane Abdul-Razzak ◽  
Julia Daun ◽  
Delaney Duchek ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Lung Cancer ◽  
Palliative Care ◽  
Symptom Burden ◽  
Advanced Lung Cancer ◽  
Post Intervention ◽  
Management Intervention ◽  
Exercise Classes

Introduction: Advanced lung cancer patients face significant physical and psychological burden leading to reduced quality of life. Physical activity, nutrition, and palliative care interventions may enhance quality of life, however no study has combined these modalities in a multimodal intervention. Therefore, we assessed the feasibility and preliminary efficacy of an exercise, nutrition, and palliative symptom management intervention to improve quality of life in advanced lung cancer. Methods: Participants received an individually-tailored 12-week intervention featuring in-person group-based exercise classes, at-home physical activity prescription, and nutritional and palliative care consults. Patients reported symptom burden and quality of life pre-/post-class, as well as pre-/post-intervention, along with self-reported physical activity and a physical function assessment. Post-intervention interviews examined participant perspectives. Results: The multimodal program was feasible, with 44% recruitment, 75% class attendance, 89% nutrition and palliative consult attendance, and 85% assessment completion. Participants perceived the intervention as feasible and valuable. Physical activity, symptom burden, and quality of life were maintained, while tiredness decreased significantly. Exercise classes prompted acute clinically meaningful reductions in fatigue, tiredness, depression, pain, and increases in energy and well-being. Conclusion: A multimodal exercise, nutrition, and palliative symptom management intervention is feasible and shows potential benefits on quality of life that warrant further investigation.

Social Psychological Dimensions of Community Satisfaction and Quality of Life: Some Obtained Relations

1987 ◽  
Vol 61 (1) ◽  
pp. 239-246 ◽  
Author(s):  
Joseph B. Hughey ◽  
John W. Bardo
Keyword(s):  
Quality Of Life ◽  
Social Relations ◽  
Life Quality ◽  
Community Change ◽  
Community Satisfaction ◽  
Social Psychological ◽  
Satisfaction Scale ◽  
Perceived Quality Of Life ◽  
Two Factors

This study examined relations between dimensions of community satisfaction and perceived quality of life among residents of a southeastern United States (US) community. A random sample of 250 persons was interviewed using the Community Satisfaction Scale and a measure of over-all life quality. Two factors representing domains of community satisfaction. relevant to participants were positively and significantly related to perceptions of quality of life. Perceptions of care for community by others/institutions and belongingness/quality of community life were the best predictors. Results suggest the importance of social relations in community satisfaction and quality of life relationships. Implications for generalization of community satisfaction constructs across settings and to studies of planning and community change are discussed.

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