scholarly journals Quality Improvement in Juvenile Idiopathic Arthritis: a Mixed-methods Implementation Pilot of the CAPTURE-JIA Dataset

2022 ◽  
Author(s):  
Flora Mcerlane ◽  
Chris Anderson ◽  
Saskia Lawson-Tovey ◽  
Barbara Lee ◽  
Chris Lee ◽  
...  
Keyword(s):  
Juvenile Idiopathic Arthritis ◽  
Quality Improvement ◽  
Mixed Methods ◽  
Data Collection ◽  
Clinical Care ◽  
Data Collection Tool ◽  
Collection System ◽  
Electronic Data ◽  
Data Collection System ◽  
Electronic Data Collection

Abstract BackgroundA significant proportion of children and young people with juvenile idiopathic arthritis (JIA) do not achieve inactive disease during the first two years following diagnosis. Refinements to clinical care pathways have the potential to improve clinical outcomes but a lack of consistent and contemporaneous clinical data presently precludes standard setting and implementation of meaningful quality improvement programmes. This study was the first to pilot clinical data collection and analysis using the CAPTURE-JIA dataset, and to explore patient and clinician-reported feasibility and acceptability data.MethodsA multiphase mixed-methods approach enabled prospective collection of quantitative data to examine the feasibility and efficacy of dataset collection and of qualitative data informing the context and processes of implementation. An initial paper pilot informed the design of a bespoke electronic data collection system (the Agileware system), with a subsequent electronic pilot informing the final CAPTURE-JIA data collection tool. ResultsPaper collection of patient data was feasible but time-consuming in the clinical setting. Phase 1 paper pilot data (121 patients) identified three themes: problematic data items (14/62 data items received >40% missing data), formatting of data collection forms and a clinician-highlighted need for digital data collection, informing Phase 2 electronic data collection tool development. Patients and families were universally supportive of the collection and analysis of anonymised patient data to inform clinical care. No apparent preference for paper / electronic data collection was reported by families. Phase 3 electronic pilot data (38 patients) appeared complete and the system reported to be easy to use. Analysis of the study dataset and a dummy longitudinal dataset confirmed that all eleven JIA national audit questions can be answered using the electronic system. ConclusionsMulticentre CAPTURE-JIA data collection is feasible and acceptable, with a bespoke data collection system highlighted as the most satisfactory solution. The study is informing ongoing work towards a streamlined and flexible national paediatric data collection system to drive quality improvement in clinical care.

scholarly journals Data quality and cost-effectiveness analyses of electronic and paper-based interviewer-administered public health surveys: a systematic review (Preprint)

2020 ◽  
Author(s):  
Atinkut Alamirrew Zeleke ◽  
Tolga Naziyok ◽  
Fleur Fritz ◽  
Lara Christianson ◽  
Rainer Röhrig
Keyword(s):  
Public Health ◽  
Cost Effectiveness ◽  
Data Collection ◽  
Data Quality ◽  
Cost Reduction ◽  
Health Surveys ◽  
Collection System ◽  
Electronic Data ◽  
Data Collection System ◽  
Electronic Data Collection

BACKGROUND Population-level survey (PLS) is an essential standard method used in public health research. It supports to quantify sociodemographic events and support public health policy development and intervention designs with evidence. During survey, data collection mechanisms seem the most determinant to avoid mistakes before they happen. The use of electronic devices such as smartphones and tablet computers improve the quality and cost-effectiveness of public health surveys. However, there is a lack of systematically analyzed evidence to show the potential impact of electronic-based data collection tools on data quality and cost reduction in interviewer-administered surveys compared to the standard paper-based data collection system OBJECTIVE This systematic review aims to evaluate the impact of interviewer-administered electronic device data collection methods concerning data quality and cost reduction in PLS compared to the traditional paper-based methods. METHODS A systematic search was conducted in MEDLINE, CINAHL, PsycINFO, the Web of Science, EconLit and Cochrane CENTRAL, and CDSR to identify relevant studies from 2008 to 2018. We included randomized and non-randomized studies that examine data quality and cost reduction outcomes. Moreover, usability, user experience, and usage parameters from the same studies were included. Two independent authors screened the title, abstract, and finally extracted data from the included papers. A third author mediated in case of disagreement. The review authors used EndNote for de-duplication and Rayyan for screening RESULTS The search strategy from the electronic databases found 3,817 articles. After de-duplication, 2,533 articles were screened, and 14 articles fulfilled the inclusion criteria. None of the studies was designed as a randomized control trial. Most of the studies have a quasi-experimental design, like comparative experimental evaluation studies nested on the other ongoing cross-sectional surveys. 4 comparative evaluations, 2 pre-post intervention comparative evaluation, 2 retrospectives comparative evaluation, and 4 one arm non-comparative studies were included in our review. Meta-analysis was not possible because of the heterogeneity in study design, the type, and level of outcome measurements and the study settings. Individual article synthesis showed that data from electronic data collection systems possessed good quality data and delivered faster when compared to the paper-based data collection system. Only two studies linked the cost and data quality outcomes to describe the cost-effectiveness of electronic-based data collection systems. Despite the poor economic evaluation qualities, most of the reported results were in favor of EDC for the large-scale surveys. The field data collectors reported that an electronic data collection system was a feasible, acceptable and preferable tool for their work. Onsite data error prevention, fast data submission, and easy to handle devices were the comparative advantages of electronic data collection systems. Technical difficulties, accidental data loss, device theft, security concerns, power surges, and internet connection problems were reported as challenges during the implementation. CONCLUSIONS Though positive evidence existed about the comparative advantage of electronic data capture over paper-based tools, the included studies were not methodologically rigorous enough to combine. We need more rigorous studies that demonstrate the comparative evidence of paper and electronic-based data collection systems in public health surveys on data quality, work efficiency, and cost reduction CLINICALTRIAL The review protocol is registered in the International Prospective Register for Systematic Reviews (PROSPERO) CRD42018092259. The protocol of this article was also pre-published (JMIR Res Protoc 2019;8(1): e10678 doi:10.2196/10678).

Combining Adobe Forms and Dropbox to Obtain a Low-Cost Electronic Data Collection System

2019 ◽  
Vol 25 (3) ◽  
pp. 250-256 ◽  
Author(s):  
María Yoldi-Negrete ◽  
Ingrid Pamela Morales-Cedillo ◽  
Iñaki Navarro-Castellanos ◽  
Ana Fresán-Orellana ◽  
Rubén Panduro-Flores ◽  
...  
Keyword(s):  
Data Collection ◽  
Low Cost ◽  
Collection System ◽  
Electronic Data ◽  
Data Collection System ◽  
Electronic Data Collection

scholarly journals A Novel Electronic Data Collection System for Large-Scale Surveys of Neglected Tropical Diseases

PLoS ONE ◽  
2013 ◽  
Vol 8 (9) ◽  
pp. e74570 ◽  
Author(s):  
Jonathan D. King ◽  
Joy Buolamwini ◽  
Elizabeth A. Cromwell ◽  
Andrew Panfel ◽  
Tesfaye Teferi ◽  
...  
Keyword(s):  
Data Collection ◽  
Large Scale ◽  
Neglected Tropical Diseases ◽  
Tropical Diseases ◽  
Collection System ◽  
Electronic Data ◽  
Data Collection System ◽  
Electronic Data Collection

Electronic data capture on athletes’ pre-participation health and in-competition injury and illness at major sports championships: An extended usability study in Athletics

2016 ◽  
Vol 24 (2) ◽  
pp. 136-145 ◽  
Author(s):  
David Karlsson ◽  
Toomas Timpka ◽  
Jenny Jacobsson ◽  
Juan-Manuel Alonso ◽  
Jan Kowalski ◽  
...  
Keyword(s):  
Data Collection ◽  
Self Report ◽  
Usability Study ◽  
Medical Terminology ◽  
Collection System ◽  
Electronic Data ◽  
Data Collection System ◽  
Electronic Data Collection ◽  
Key Issues ◽  
Individual Sports

This study set out to identify factors critical for the usability of electronic data collection in association with championships in individual sports. A qualitative analysis of electronic data collection system usability for collection of data on pre-participation health from athletes and in-competition injury and illness from team physicians was performed during the 2013 European Athletics Indoor Championships. A total of 15 athletes and team physicians participated. Athletes were found to experience few problems interacting with the electronic data collection system, but reported concerns about having to reflect on injury and illness before competitions and the medical terminology used. Team physicians encountered problems when first navigating through the module for clinical reporting, but they were not subjected to motivational problems. We conclude that athletes’ motivation to self-report health data and the design of the human–computer interface for team physicians are key issues for the usability of electronic data collection systems in association with championships in individual sports.

A Design of Pulse-Wave Data Collection System

2011 ◽  
Vol 127 ◽  
pp. 48-52
Author(s):  
Xiao Hui Zhang ◽  
Xi Ling Zhao
Keyword(s):  
Blood Flow ◽  
Data Collection ◽  
Oxygen Sensor ◽  
Pulse Wave ◽  
Clinical Care ◽  
Collection System ◽  
Data Collection System ◽  
Wave Signal ◽  
Flow Monitoring ◽  
Wave Data

In this paper, a newly design of pulse-wave data collection system continuously and non-invasion by using the means of clip-on transmission oxygen sensor for getting information of pulse-wave, using the wave can calculate a number of important parameters of blood, it may solve the problem of real-time, continuous and dynamic blood flow monitoring in clinic, This design use sensor to get photoelectric volume pulse wave then the signal through amplification and filter circuit ,after then it is sent to A / D converter and DSP. The powerful instruction functions and fast processing speed DSP makes this design can quickly and easily detect the pulse wave signal. This design not only used for clinical care, but also can be used for community or family health care on detection of cardiovascular blood flow. This design can make the telemedicine care ture by DSP and the PC communication, It provides a simple and easy method to monitor the pulse-wave signal .

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