Quality of life of caregivers of patients with gastrointestinal cancer: The influence of sex, age, and stage of the cancer patients

Abstract Purpose: The caregivers of cancer patients may experience changes in their routine and environment that affect their quality of life. The aim of the study was to identify the domains that compromise the quality of life of the caregivers of patients with gastrointestinal cancer (GIC). Methods: A descriptive, observational study with caregivers of patients diagnosed with GIC during chemotherapy therapy was done. The caregivers answered 2 questionnaires, SF-36 (Short Form Health Survey 36) and CBS (Caregiver Burden Scale). Results: 100 caregivers of 100 patients with GIC were included. The mean age of the patients was 62.2±13 years. Most of them had colorectal cancer (66%), ECOG 0-1 (87%) and stage II/III (81%) disease. Among caregivers, 81% had less than 60 years old and 76% were female. According to the SF-36, lower levels were observed in the emotional, physical aspects and vitality and the best average in functional capacity. Regarding the CBS instrument, the general strain domain and disappointment was the more affected. Stage or ECOG was not associated to the caregivers QOL or burden. High schooling level of the patients was associated with a better quality of life and less burden of the caregivers. Ageing caregivers had a worst QoL and an increased burden.Conclusion: Most of caregivers were women and youngers and had a worst quality of life in emotional role, physical aspects and vitality and an increased burden in general strain and disappointment.

COMPARING QUALITY OF LIFE AMONG PEOPLE WITH DIFFERENT PATTERNS AND SEVERITIES OF KNEE OSTEOARTHRITIS

Journal of Musculoskeletal Research ◽

10.1142/s0218957706001650 ◽

2006 ◽

Vol 10 (01) ◽

pp. 47-55 ◽

Cited By ~ 2

Author(s):

Boonsin Tangtrakulwanich ◽

Virasakdi Chongsuvivatwong ◽

Alan F. Geater

Keyword(s):

Quality Of Life ◽

Knee Osteoarthritis ◽

Short Form ◽

Population Based ◽

Sf 36 ◽

Southern Thailand ◽

Skyline View ◽

Short Form Health ◽

Severe Grade

Objective: To identify what extent different patterns and severities of involvement affect quality of life of people suffering knee osteoarthritis. Methods: This population-based survey involved 288 women and 288 men aged 40 years or older from Songkhla province, southern Thailand. Quality of life was measured using the Medical Outcome Study Short Form Health sutvery (SF-36) and Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC). Radiographic investigation included antero-posterior and skyline view of both knees. Osteoarthritis was categorized into 3 patterns; isolated patellofemoral, isolated tibiofemoral and combined with diagnosis based on Kellgren & Lawrence grade 2 or higher. Results: Quality of life as measured by SF-36 and WOMAC showed poorer score in moderate or severe grade than in mild grade of severity. Isolated patellofemoral and combined patterns demonstrated showed poorer scores on both WOMAC and SF-36 than isolated tibiofemoral pattern. Body mass index, income level and pattern of involvement could independently predict total scores of WOMAC, while age, marital status and pattern of involvement affected total score of SF-36. Conclusion: Pattern of involvement is a better predictor of quality of life than disease severity in patients with knee osteoarthritis.

Evaluation of the quality of life of chronic renal patients in hemodialysis - a cross-current study / Avaliação da qualidade de vida de pacientes renais crônicos em hemodiálise – um estudo transversal

Revista de Pesquisa Cuidado é Fundamental Online ◽

10.9789/2175-5361.2019.v11i1.186-191 ◽

2019 ◽

Vol 11 (1) ◽

pp. 186-191

Author(s):

Camila Zanesco ◽

Erica De Brito Pitilin ◽

Maíra Rossetto ◽

Débora Tavares de Resende e Silva

Keyword(s):

Quality Of Life ◽

Short Form ◽

Medical Outcomes ◽

Form Health ◽

Sf 36 ◽

Outcomes Study ◽

Cross Current ◽

Objetivo: Caracterizar os pacientes com DRC em tratamento de hemodiálise (HD) de uma clínica do oeste catarinense, suas relações e variáveis sociodemográficas, e, a sua QV. Metodologia: Estudo transversal descritivo, com 116 pacientes com DRC em HD. Para coleta dos dados usou-se questionário sociodemográfico e o intrumento Medical Outcomes Study 36 – Item Short – Form Health Survey (SF-36). Resultados: Houve prevalência da população com idade igual ou > 60 anos, caucasianos (74,77%), do sexo masculino (54,31%), destaca-se a presença de profissões relacionadas a classe média ebaixa e quantidade de anos de estudo reduzidos. Em relação a comorbidades, prevaleceu a Hipertensão Arterial Sistêmica(38,79%). Quanto a QV as limitações por aspectos físicos tiveram menores médias (29,09) e limitações em atividades sociais maior média (73,71). Conclusão: A QV negativa têm repercussões pessoais, familiares e sociais devido ao impacto da doença na rotina de atividades de vida diária dos doentes renais.

A comparison of quality of life in adolescents with epilepsy or asthma using the Short-Form Health Survey (SF-36)

Epilepsy Research ◽

10.1016/j.eplepsyres.2012.03.017 ◽

2012 ◽

Vol 101 (1-2) ◽

pp. 157-165 ◽

Cited By ~ 25

Author(s):

Ji Wang ◽

Yi Wang ◽

Li Bo Wang ◽

Hui Xu ◽

Xiao-lei Zhang

Keyword(s):

Quality Of Life ◽

Health Survey ◽

Short Form ◽

Form Health ◽

Sf 36 ◽

Quality of life of primary caregivers of spinal cord injury survivors

Revista Brasileira de Enfermagem ◽

10.1590/s0034-71672013000100012 ◽

2013 ◽

Vol 66 (1) ◽

pp. 79-84 ◽

Cited By ~ 9

Author(s):

Ágatha Graça ◽

Matheus Amarante do Nascimento ◽

Edson Lopes Lavado ◽

Márcia Regina Garanhani

Keyword(s):

Quality Of Life ◽

Negative Impact ◽

Short Form ◽

Testing Procedure ◽

Medical Outcomes ◽

Percentage Difference ◽

Sf 36 ◽

Cord Injury ◽

Burden Scale

The aim of this study was to analyze quality of life of caregivers who are relatives of patients with spine cord injury (SCI). Fourteen women (seven caregivers and seven controls) were evaluated by the Medical Outcomes Study 36 - Item Short-Form Health Survey (SF-36) and the Caregiver Burden Scale (CBS) Questionnaires. The data from both questionnaires were compared using the Mann-Whitney U testing procedure for differences between caregivers and controls (p<0.05). The results from SF-36 were not statistically significant between groups, however, for the CBS data, there were significant differences between groups (p>0.05), characterized by the percentage difference of 62%, 66.7%, 55%, 50%, 57% and 63% for tension, isolation, disappointment, emotional involvement, environment and overall score, respectively. The CBS questionnaire was more adequate for verifying quality of life of caregivers of SCI patients, and caregiving may have a negative impact on their quality of life.

Quality of life in elderly people assisted by a family health unit / Qualidade de vida em idosos assistidos por uma unidade de saúde da família

Revista de Pesquisa Cuidado é Fundamental Online ◽

10.9789/2175-5361.rpcfo.v13.10093 ◽

2021 ◽

Vol 13 ◽

pp. 1453-1459

Author(s):

Gracielle Pampolim ◽

Alaércia De Melo Recla ◽

Rafaela Guio Suzana ◽

Isabelle Gadiolli Verzola ◽

Luciana Carrupt Machado Sogame

Keyword(s):

Quality Of Life ◽

Elderly People ◽

Short Form ◽

Family Health ◽

Health Unit ◽

Form Health ◽

Sf 36 ◽

Objetivo: verificar os fatores associados a percepção regular/negativa da qualidade de vida entre idosos. Métodos: estudo observacional transversal realizado com 171 idosos de uma Unidade de Saúde da Família. A variável desfecho foi a qualidade de vida, avaliada através do Short Form Health Survey – SF-36, as variáveis independentes foram características sociodemográficas, de moradia, hábitos de vida e condições de saúde. Os dados foram analisados através do teste Chi-Quadrado de Pearson. Resultados: dos idosos entrevistados, 98 (57,3%) perceberam sua qualidade de vida como regular/negativa. Ser do sexo feminino, restrito ao lar, não praticar atividade física, de lazer ou atividades ofertadas pela Unidade de Saúde; auto-avaliar negativamente sua saúde, apresentar multimorbidade, polifarmacia, sintomas depressivos, risco de quedas e funcionalidade comprometida, estiveram associadas com o desfecho. Conclusão: incentivar o idoso a participar de atividades que promovam sociabilização e manutenção da funcionalidade é fundamental para preservação ou recuperação de sua qualidade de vida.

Body mass index and quality of life among students aged nineteen to twenty two years

Timisoara Physical Education and Rehabilitation Journal ◽

10.2478/tperj-2019-0002 ◽

2019 ◽

Vol 12 (22) ◽

pp. 13-17

Author(s):

Nada Arseni ◽

Hans-Eric Reitmayer

Keyword(s):

Quality Of Life ◽

Body Mass Index ◽

Physical Education ◽

Body Mass ◽

Short Form ◽

The Body ◽

Male Students ◽

Sf 36 ◽

AbstractAim: The purpose of this research is to identify and analyze the association of the Body Mass Index (BMI) and quality of life (QoL) components in students aged 19 to 22 that attended physical education classes once a week during a whole semester. The students come from different faculties of the West University of Timişoara.Methods: The research was conducted during the physical education classes to which they participated during one semester. The research has begun in October 2018 and ended in January 2019. A total of 400 students were asked to participate in this study, 200 female and 200 male students. As research methods, we used the RAND 36 Item Short Form Health Survey SF-36 questionnaire to assess the quality of life, as well as the statistical-mathematical method.Results: Our results showed that 66% of the students had a normal BMI, 12% are underweight, 17% are overweight and 12% are obese. It has been found that the quality of life score does not depend on the body mass index. No correlation has been found between the QOL total score and BMI in neither male students r=0.035, R²=0.0012, p=0.62, nor female students r=-0.01, R²<0.001, p=0.88.

Calidad de vida de los cuidadores de las personas adultas en ingreso domiciliario: revisión sistemática

Hospital a Domicilio ◽

10.22585/hospdomic.v5i2.129 ◽

2021 ◽

Vol 5 (2) ◽

pp. 89

Author(s):

Salima Alouat-Chentouf ◽

Javier Sanz-Valero

Keyword(s):

Quality Of Life ◽

Short Form ◽

Home Care Services ◽

Cochrane Library ◽

Care Services ◽

Calidad De Vida ◽

Revisión Sistemática ◽

Sf 36 ◽

Objetivo: Revisar la documentación científica relacionada con la calidad de vida (CV) de los cuidadores de las personas adultas en ingreso domiciliario.Método: Revisión crítica y sistemática. Los datos se obtuvieron de la consulta a las bases de datos bibliográficas: MEDLINE (vía PubMed), Cochrane Library y Embase. Los términos utilizados, como descriptores y como texto en los campos de registro del título y el resumen, fueron «Quality of Life», «Caregivers» y «Home Care Services», utilizando los filtros «Humans», «Adult: 19+ years» y «Clinical Trial». Fecha de la última actualización de la búsqueda octubre de 2020. La calidad documental de los artículos se evaluó mediante el cuestionario CONSORT.Resultados: De las 217 referencias recuperadas, tras aplicar los criterios de inclusión y exclusión, se seleccionaron 29 ensayos clínicos. Las puntuaciones CONSORT oscilaron entre mínimo de 9,5 y máximo de 20,5 con mediana de 16 (puntuación máxima posible de 21). Según los criterios SIGN esta revisión presentó evidencia «1+» (revisiones sistemáticas de ensayos clínicos aleatorizados con bajo riesgo de sesgos) con un grado de recomendación A. Los cuestionarios más utilizados para valorar la CV fueron los genéricos European Quality of Life-5 Dimensions (EQ-5D) y el Short Form Health Survey 36 items (SF-36), en 4 ocasiones. La intervención que se realizó con una mayor frecuencia fue la formación de los cuidadores, en 10 ensayos.Conclusiones: Formar y ayudar al cuidador/a supuso una mejoría en su la calidad de vida y en la mejoría de los niveles de ansiedad. Aunque, en algunos ensayos no se encontraron diferencias entre el grupo de la intervención y el grupo control. El hecho de intervenir (preocuparse del cuidador/a) motivó una menor carga en el estado anímico del mismo, aunque sin resultados claramente significativos.

Dimensions of the quality of life negatively affected in people living with / Diabetes Mellitus Dimensões da qualidade de vida afetadas negativamente em pessoas vivendo com Diabetes Mellitus

Revista de Pesquisa Cuidado é Fundamental Online ◽

10.9789/2175-5361.2019.v11i1.199-204 ◽

2019 ◽

Vol 11 (1) ◽

pp. 199-204

Author(s):

Delmo de Carvalho Alencar ◽

Patriotino Fontinele Lages Filho ◽

Maria de Jesus Lopes Mousinho Neiva ◽

Ana Maria Parente Garcia Alencar ◽

Wanderson Carneiro Moreira ◽

...

Keyword(s):

Quality Of Life ◽

Diabetes Mellitus ◽

Short Form ◽

Medical Outcomes ◽

Form Health ◽

Sf 36 ◽

Outcomes Study ◽

Objetivo: Avaliar a qualidade de vida relacionada à saúde de pessoas com diabetes mellitus tipo 2 atendidas pela Atenção Primária à Saúde. Métodos: Estudo descritivo, transversal realizado com 50 pacientes diabéticos. Os dados foram coletados por meio da aplicação de um formulário para informações socioeconômicas e clínicas e do Medical Outcomes Study 36-item Short Form Health Survey (SF-36). Os dados foram expressos como frequências absolutas e relativas e medidas de tendência central e dispersão. Resultados: As maiores médias dos escores do SF-36 foram verificadas nos domínios "Capacidade Funcional, Vitalidade e Aspectos Sociais", enquanto as menores concentraram-se nos domínios "Estado Geral da Saúde e Aspecto Físico". Conclusão: A funcionalidade das atividades diárias e a percepção sobre a saúde foram os principais aspectos comprometidos pelo diabetes mellitus tipo 2.

Quality of life measurements for patients with chronic suppurative otitis media: Italian adaptation of Chronic Ear Survey

Acta Otorhinolaryngologica Italica ◽

10.14639/0392-100x-1041 ◽

2017 ◽

Vol 37 (1) ◽

pp. 51-57

Author(s):

G. Ralli ◽

C. Milella ◽

R. Ralli ◽

M. Fusconi ◽

G. La Torre

Keyword(s):

Quality Of Life ◽

Short Form ◽

Sulla Base ◽

Suppurative Otitis Media ◽

Form Health ◽

Sf 36 ◽

Short Form Health ◽

Quality Of Life Measurements

Il Chronic Ear Survey (CES) è una misura specifica della Qualità della Vita (QoL) nei pazienti affetti da Otite Media Suppurativa Cronica (CSOM). È un questionario composto da 13 domande che indagano frequenza, durata e severità dei sintomi associati a questa malattia. Il CES genera tre sottoscale con rispettivo punteggio che riguardano limitazioni nelle attività fisiche e sociali, sintomi e trattamento medico. Attraverso le risposte ottenute dai pazienti è possibile ricavare un punteggio che va da 0 a 100; il punteggio più alto indica una QoL migliore, mentre quello più basso indica una QoL peggiore. Il questionario è stato creato in lingua inglese. Lo scopo del lavoro è di validare in lingua italiana il CES. La traduzione è stata condotta seguendo le linee guida internazionali. La versione italiana del CES (CES-I) è stata proposta a 54 pazienti con CSOM. Nello stesso tempo, è stato somministrato a tutti i pazienti anche il questionario SF-36. Un modello trasversale è stato usato per esaminare la consistenza interna (Cronbach alpha) e la validità esterna (coefficiente di Pearson). Per confermare la validità esterna del CES-I è stato poi analizzato il test di correlazione di Pearson considerando il punteggio totale, le singole sottoscale del CES e le 8 scale dello Short Form Health Survey (SF-36). Il coefficiente di Cronbach è stato pari a 0.737. Il coefficiente di correlazione interno ha dato un risultato pari a 0.737 (95% CI: 0.600-0.835, p < 0.001) di media e 0.412 (95% CI: 0.237-0.559, p < 0.001) per le singole misure. Sulla base dei nostri risultati il questionario CES-I è risultato essere concorde con loriginale in lingua inglese e può essere considerato uno strumento adeguato per valutare la Qualità della Vita nei pazienti con CSOM di lingua italiana.

Quality of life assessment after central corpectomy for cervical spondylotic myelopathy: comparative evaluation of the 36-Item Short Form Health Survey and the World Health Organization Quality of Life–Bref

Journal of Neurosurgery Spine ◽

10.3171/2009.4.spine08749 ◽

2009 ◽

Vol 11 (4) ◽

pp. 402-412 ◽

Cited By ~ 17

Author(s):

Sumit Thakar ◽

Solomon Christopher ◽

Vedantam Rajshekhar

Keyword(s):

Quality Of Life ◽

Short Form ◽

World Health ◽

World Health Organization Quality ◽

Sf 36 ◽

Organization Quality ◽

Health Organization ◽

Object In this study, the authors assessed the construct validity and the reliability of the World Health Organization Quality of Life–Bref (WHOQOL-Bref) questionnaire in patients with cervical spondylotic myelopathy (CSM) and compared the performance of the WHOQOL-Bref and the 36-Item Short Form Health Survey (SF-36) in assessing quality of life (QOL) in patients with CSM. Methods In this prospective study, 70 patients with CSM were assessed preoperatively and again 1 year after central corpectomy using the Nurick scale, the SF-36, and the WHOQOL-Bref. Construct validity and reliability of the WHOQOL-Bref, its responsiveness compared with that of the SF-36, and the correlations between the 2 scales were studied. Results The WHOQOL-Bref was found to be valid (p < 0.001, Cuzick test for trend between the physical domain of the WHOQOL-Bref and Nurick grade) and reliable (Cronbach α > 0.7). It had smaller floor and ceiling effects (ranges 1.4–7.1% and 0–7.1%, respectively) than the SF-36 (ranges 2.9–71.4% and 0–14.1%, respectively). There was significant postoperative improvement in patient scores on all the SF-36 scales (p < 0.001) and the physical, psychological, and environment domains of the WHOQOL-Bref (p < 0.001). The SF-36 scales were more responsive to change (relative efficiency range 0.24–1) than the WHOQOL-Bref domains (relative efficiency range 0.002–0.73). Among scales measuring similar concepts, only the physical functioning and bodily pain scales of the SF-36 had a moderate correlation (r = 0.57 and 0.53, respectively; p < 0.001) with the physical domain of WHOQOL-Bref. Many of the scales of these 2 QOL instruments unexpectedly had a fair correlation with one another (r range = 0.2–0.4). Conclusions The WHOQOL-Bref, like the SF-36, is valid and reliable in assessing outcome in patients with CSM. It measures impairment in CSM in a more uniform manner than the SF-36, but its domains are less responsive to postoperative changes. Because the WHOQOL-Bref measures different constructs and has additive value, it should be used along with the SF-36 for QOL assessment in patients with CSM.