scholarly journals A Qualitative Study of Risk and Resilience in Young Adult Women With a History of Juvenile-onset Fibromyalgia

Author(s):  
Morgan Daffin ◽  
Mary Lynch Milder ◽  
Robert C. Gibler ◽  
Caitlin Murray ◽  
Carly Green ◽  
...  

Abstract Background. Juvenile-onset Fibromyalgia (JFM) is a chronic pain condition characterized by widespread musculoskeletal pain, fatigue, sleep difficulties, mood concerns, and other associated symptoms. Although diagnosed in childhood, JFM often persists into adulthood can result in continued physical, social, and psychological impairment. The purpose of this qualitative study was to identify themes of risk and resilience for long-term outcomes among young adults diagnosed with JFM in childhood. Methods. The sample included 13 young adults (ages 26-34) who had been diagnosed with JFM in adolescence. Focus groups were used to elicit qualitative information about living with JFM and perceived challenges and buffering factors impacting their adjustment. Results. The majority of participants (80%, N=12) continued to meet criteria for fibromyalgia (FM). An iterative, thematic analysis revealed themes of resilience (e.g., greater acceptance, re-setting expectations, active coping, addressing mental health) and risk (e.g., lack of information, stigma, isolation, negative healthcare experiences). Conclusion. Results suggest the need for longer follow-up of youth with JFM as they transition to adulthood with multidisciplinary care and more attention to education about JFM and associated symptoms such as fatigue, as well as ongoing support for coping and mental health needs. A holistic approach to care during the transition years could be beneficial to minimize impact of JFM on long-term functioning.

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Morgan Daffin ◽  
Mary K. Lynch-Milder ◽  
Robert C. Gibler ◽  
Caitlin Murray ◽  
Carly M. Green ◽  
...  

Abstract Background Juvenile-onset Fibromyalgia (JFM) is a chronic pain condition characterized by widespread musculoskeletal pain, fatigue, sleep difficulties, mood concerns, and other associated symptoms. Although diagnosed in childhood, JFM often persists into adulthood can result in continued physical, social, and psychological impairment. The purpose of this qualitative study was to identify themes of risk and resilience for long-term outcomes among young adults diagnosed with JFM in childhood. Methods The sample included 13 young adults (ages 26–34) who had been diagnosed with JFM in adolescence. Focus groups were used to elicit qualitative information about living with JFM and perceived challenges and buffering factors impacting their adjustment. Results The majority of participants (80%, N = 12) continued to meet criteria for fibromyalgia (FM). An iterative, thematic analysis revealed themes of resilience (e.g., greater acceptance, re-setting expectations, active coping, addressing mental health) and risk (e.g., lack of information, stigma, isolation, negative healthcare experiences). Conclusion Results suggest the need for longer follow-up of youth with JFM as they transition to adulthood with multidisciplinary care and more attention to education about JFM and associated symptoms such as fatigue, as well as ongoing support for coping and mental health needs. A holistic approach to care during the transition years could be beneficial to minimize impact of JFM on long-term functioning.


2020 ◽  
pp. 1-7
Author(s):  
I. Mallik ◽  
T. Pasvol ◽  
G. Frize ◽  
S. Ayres ◽  
A. Barrera ◽  
...  

Abstract Background Increasing numbers of children with perinatally acquired HIV (PaHIV) are transitioning into adult care. People living with behaviourally acquired HIV are known to be at more risk of psychosis than uninfected peers. Young adults living with PaHIV face numerous risk factors; biological: lifelong exposure to a neurotrophic virus, antiretroviral medication and immune dysfunction during brain development, and environmental; social deprivation, ethnicity-related discrimination, and migration-related issues. To date, there is little published data on the prevalence of psychotic illness in young people growing up with PaHIV. Methods We conducted a retrospective case note review of all individuals with PaHIV aged over 18 years registered for follow up at a dedicated clinic in the UK (n = 184). Results In total, 12/184 (6.5%), median age 23 years (interquartile range 21–26), had experienced at least one psychotic episode. The presentation and course of the psychotic episodes experienced by our cohort varied from short-lived symptoms to long term illness and nine (75%) appear to have developed a severe and enduring mental illness requiring long term care. Conclusion The prevalence of psychosis in our cohort was clearly above the lifetime prevalence of psychosis in UK individuals aged 16–34 years, which has been reported to be 0.5–1.0%. This highlights the importance of clinical vigilance regarding the mental health of young people growing up with PaHIV and the need to integrate direct access to mental health services within the HIV centres providing medical care.


2021 ◽  
Author(s):  
Zahra Mousavi ◽  
Jocelyn Lai ◽  
Katharine Simon ◽  
Alexander P. Rivera ◽  
Asal Yunusova ◽  
...  

BACKGROUND Sleep disturbance is a transdiagnostic risk factor so prevalent among young adults it is considered a public health epidemic, exacerbated by the COVID-19 pandemic. Sleep may contribute to mental health via affect dynamics. Prior literature on contribution of sleep to affect is largely based on correlational studies or experiments that do not generalize to the daily lives of young adults. Furthermore, the literature examining the associations between sleep variability and affect dynamics remains scant. OBJECTIVE In an ecologically valid context, using an intensive longitudinal design, we aimed to assess the daily and long-term associations between sleep patterns and affect dynamics among young adults during the COVID-19 pandemic. METHODS College student participants (N=20, 65% female) wore an Oura ring continuously for 3-months to measure sleep patterns, such as average and variability in total sleep time (TST), wake after sleep onset (WASO), sleep efficiency (SE), and sleep onset latency (SOL), resulting in 1173 unique observations. We administered a daily ecological momentary assessment (EMA) using a mobile health app to evaluate positive (PA) and negative affect (NA), and COVID-worry once per day. RESULTS Participants with higher SOL and TST on the prior day had lower PA the next day. Further, higher average TST across the 3-month period predicted lower average PA. TST variability predicted higher affect variability across all affect domains. CONCLUSIONS Fluctuating sleep patterns are associated with affect dynamics at daily and long-term scales. Low PA and affect variability may be potential pathways through which sleep has implications for mental health.


Author(s):  
T. Gagné ◽  
I. Schoon ◽  
A. McMunn ◽  
A. Sacker

Abstract Purpose In Great Britain, few studies documented mental health trends in young adults in the years preceding 2020, the mental health dimensions affected, and how these compare with changes observed during the COVID-19 pandemic. Methods Long-term trends in mental health among 16–34 year old men and women between 1991 and 2018, and changes between 2018–19 and July–September 2020 were examined using all waves from the British Household Panel Study (1991–2008), the UK Household Longitudinal Study (2009–20), and the first five UKHLS COVID-19 waves administered in April, May, June, July, and September 2020. Findings are based on the GHQ-12 continuous score (0–36), clinically significant cases (4 + /12) and severe cases (7 + /12) for mental distress, and item endorsements. Results Between 1991 and 2018, the prevalence of cases (4 + /12) increased from 14–22% to 19–32% across groups. Increases were largest in women aged 16–24. In April 2020, the risk of caseness (4 + /12) increased across groups by 55% to 80% compared to the 2018–19 baseline. This increase, however, rapidly diminished over time: in July–September 2020, there was only a higher risk of caseness (4 + /12) in men aged 25–34 (prevalence ratio = 1.29, 95% CI 1.01–1.65) compared to the 2018–19 baseline. Conclusion Whereas distress surged in April 2020, its return to pre-pandemic levels by September 2020 highlights the nuanced impact that the pandemic may have over time. Given the magnitude of the decline in mental health over the past decade, attention must be given to young adults once the pandemic ends.


Author(s):  
L. DE COSTER ◽  
L. VAN BOUWEL ◽  
C. STRUYVEN

VRINT has been offering outpatient multidisciplinary care for early psychosis to young adults in the East of Flemish Brabant since 2009 VRINT (Early psychosis intervention team) was founded within the University psychiatric center (UPC) of the Catholic university of Leuven (KU Leuven), on their site in Kortenberg. The intervention team was created in collaboration with various partners in regional healthcare, based on international clinical and scientific developments in the specific field of early psychosis, as well as their own clinical experience in psychosis care. During the last 10 years of VRINT intervention, there has been a significant amount of case studies , with an average of 100 cases, 2 to 3 new patients every week with an average age of 22 years. To ensure a rapid intervention without a waiting list and a guaranteed continuity of care over a sufficiently long period VRINT collaborates closely with various partners in the mental health care landscape and offers specialized, accessible care based on a dimensional, integrative, phase-specific and psychotherapeutic, destigmatizing approach for early psychosis.


2008 ◽  
Vol 30 (1) ◽  
pp. 49-68 ◽  
Author(s):  
John McCarthy ◽  
Edward Downes ◽  
Christine Sherman

Adolescent depression is a serious disorder marked by a prevalence rate of approximately 5% along with significant rates of relapse and mortality (Brent & Birmaher, 2002). This qualitative study involved semistructured interviews of nine young adults who were diagnosed with and treated for major depressive disorder between the ages of 15 and 18. Five themes emerged from the interviews: (a) talking to a counselor about their depression was helpful; (b) participants obtained relief in their counseling and expressed respect for their professional helpers; (c) parental (and adult) partnerships are important; (d) friends of the adolescent clients were usually helpful to them; and (e) the adolescents possessed a realistic optimism concerning a possible subsequent depressive episode. Implications for mental health counselors are also discussed.


2011 ◽  
Vol 26 (6) ◽  
pp. 438-448 ◽  
Author(s):  
Lisa Marie Knowlton ◽  
James E Gosney ◽  
Smita Chackungal ◽  
Eric Altschuler ◽  
Lynn Black ◽  
...  

AbstractLimb amputations are frequently performed as a result of trauma inflicted during conflict or disasters. As demonstrated during the 2010 earthquake in Haiti, coordinating care of these patients in austere settings is complex. During the 2011 Humanitarian Action Summit, consensus statements were developed for international organizations providing care to limb amputation patients during disasters or humanitarian emergencies. Expanded planning is needed for a multidisciplinary surgical care team, inclusive of surgeons, anesthesiologists, rehabilitation specialists and mental health professionals. Surgical providers should approach amputation using an operative technique that optimizes limb length and prosthetic fitting. Appropriate anesthesia care involves both peri-operative and long-term pain control. Rehabilitation specialists must be involved early in treatment, ideally before amputation, and should educate the surgical team in prosthetic considerations. Mental health specialists must be included to help the patient with community reintegration. A key step in developing local health systemsis the establishment of surgical outcomes monitoring. Such monitoring can optimizepatient follow-up and foster professional accountability for the treatment of amputation patients in disaster settings and humanitarian emergencies.


Sign in / Sign up

Export Citation Format

Share Document