scholarly journals Measuring the quality of patient-centered care: why patient-reported measures are critical to reliable assessment

2015 ◽  
pp. 831 ◽  
Author(s):  
Flora Tzelepis ◽  
Robert Sanson-Fisher ◽  
Alison Zucca ◽  
Elizabeth Fradgley
Keyword(s):  
Patient Centered Care ◽  
Patient Centered ◽  
Reliable Assessment ◽  
Patient Reported ◽  
Centered Care ◽  
Patient Reported Measures

scholarly journals Using Patient-Reported Outcomes to Assess Healthcare Quality: Toward Better Measurement of Patient-Centered Care in Cardiovascular Disease

2021 ◽  
pp. e1-e9
Author(s):  
Raul Angel Garcia ◽  
John A Spertus
Keyword(s):  
Health Status ◽  
Patient Reported Outcomes ◽  
Health Management ◽  
Clinical Care ◽  
Healthcare Quality ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Patient Reported ◽  
Centered Care

Patient-reported outcomes (PROs) are elicited directly from patients so they can describe their overall health status, including their symptoms, function, and quality of life. While commonly used as end points in clinical trials, PROs can play an important role in routine clinical care, population health management, and as a means for quantifying the quality of patient care. In this review, we propose that PROs be used to improve patient-centered care in the treatment of cardiovascular diseases given their importance to patients and society and their ability to improve doctor- provider communication. Furthermore, given the current variability in patients’ health status across different clinics and the fact that PROs can be improved by titrating therapy, we contend that PROs have a key opportunity to serve as measures of healthcare quality.

scholarly journals Using Patient-Reported Measures to Improve Outcomes in Kidney Disease

2021 ◽  
pp. 1-6
Author(s):  
Sofia Mclaren ◽  
Manisha Jhamb ◽  
Mark Unruh
Keyword(s):  
Patient Centered Care ◽  
High Risk Population ◽  
Health Issues ◽  
Patient Centered ◽  
Patient Reported ◽  
Related Quality ◽  
Centered Care ◽  
Health Related ◽  
Poor Outcomes ◽  
Patient Reported Measures

Patients with CKD and ESRD are vulnerable to increased mortality rates and other poor outcomes. Among those with ESRD, their health-related quality of life (HRQOL) is shown little to no improvement as they undergo treatments such as dialysis and providers concurrently manage other health issues that complicate their already vulnerable state. This review synthesizes evidence demonstrating that a focus on measuring and monitoring patient-reported outcomes (PRO) such as pain and depression can improve HRQOL. Patient-centered care has the potential to create an efficient way for clinicians to address specific challenges facing patients. While there is an emerging literature assessing the use of PROs in kidney research, by examining relevant research in other disciplines it is possible to generate better ways to use PROs in this high-risk population. Electronic health records as well as various other electronic methods of communication between the clinician and patient may serve to accelerate the trajectory toward patient-centered care using PROs.

scholarly journals The GIMEMA-ALLIANCE Digital Health Platform for Patients With Hematologic Malignancies in the COVID-19 Pandemic and Postpandemic Era: Protocol for a Multicenter, Prospective, Observational Study (Preprint)

2020 ◽  
Author(s):  
Fabio Efficace ◽  
Massimo Breccia ◽  
Paola Fazi ◽  
Francesco Cottone ◽  
Bernhard Holzner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Digital Health ◽  
Hematologic Malignancies ◽  
Patient Centered Care ◽  
Patient Reported Outcome ◽  
Routine Practice ◽  
Patient Centered ◽  
Patient Reported ◽  
Centered Care

BACKGROUND The COVID-19 pandemic has raised unprecedented challenges in the management of patients with cancer and has increased the demands for digital health tools that, for example, could facilitate remote monitoring of patients. Based on this, the Gruppo Italiano Malattie Ematologiche dell’Adulto (GIMEMA) has recently developed a digital health tool dedicated to patients with hematologic malignancies: the GIMEMA-ALLIANCE platform. OBJECTIVE The main objectives of this web-based platform are to generate relevant data to better understand quality of life, symptoms, and medication adherence during the COVID-19 pandemic and postpandemic era; to develop a prospective real-life registry on outcomes of patients with hematologic cancer, with or without a diagnosis of COVID-19; and to facilitate patient-centered care in routine practice. METHODS The platform consists of physician- and patient-secure portals and enables electronic patient-reported outcome (ePRO) assessments with real-time graphical presentation to physicians of individual patient symptoms and quality-of-life outcomes. Automated alerts are sent to treating hematologists based on the following predetermined criteria: presence of clinically important problems and symptoms, problems with adherence to therapy, and risk of COVID-19 diagnosis. The platform also allows physicians to set up video consultations. Clinical information regarding disease and treatment as well as clinical and survival outcomes are also prospectively collected. RESULTS Recruitment of participants started in December 2020. As of April 2021, a total of 116 patients have been enrolled in this study. Use of this platform may help to improve patient-physician communication and help hematologists in the early recognition of clinically important problems and symptoms of their patients. More than 20 community and university-based hospitals have currently agreed to participate. In addition to patient-reported outcome data, the prospective collection of disease- and treatment-related information, as well as data on possible COVID-19 diagnosis and COVID-19 vaccination, will allow the development of a large database to also identify subgroups of patients at risk of poor outcomes. CONCLUSIONS Data generated via this platform will help to answer clinically relevant questions for patients with hematologic malignancies during the COVID-19 pandemic and postpandemic era. The use of the GIMEMA-ALLIANCE platform in routine practice may also contribute to enhancing patient-centered care. CLINICALTRIAL ClinicalTrials.gov NCT04581187; https://clinicaltrials.gov/ct2/show/NCT04581187 INTERNATIONAL REGISTERED REPORT PRR1-10.2196/25271

scholarly journals Patient-Centered Care and Patient-Reported Measures: Let’s Look Before We Leap

2014 ◽  
Vol 8 (4) ◽  
pp. 293-299 ◽  
Author(s):  
Daniel Miller ◽  
Carolyn Steele Gray ◽  
Kerry Kuluski ◽  
Cheryl Cott
Keyword(s):  
Patient Centered Care ◽  
Patient Centered ◽  
Patient Reported ◽  
Centered Care ◽  
Patient Reported Measures

scholarly journals Patient-Centered Care: An Examination of Provider–Patient Communication Over Time

2019 ◽  
Vol 6 ◽  
pp. 233339281988287
Author(s):  
Leslie Riggle Miller ◽  
B. Mitchell Peck
Keyword(s):  
Positive Impact ◽  
Patient Centered Care ◽  
Patient Communication ◽  
Self Report ◽  
Primary Data ◽  
Provider Communication ◽  
Patient Centered ◽  
Centered Care ◽  
Over Time

Objective: To examine the quality of provider communication over time considering the increasing emphasis on patient-centered care (PCC). Patient-centered care has been shown to have a positive impact on health outcomes, care experiences, quality-of-life, as well as decreased costs. Given this emphasis, we expect that provider–patient communication has improved over time. Data Source: We collected primary data by self-report surveys between summer 2017 and fall 2018. Study Design: We use a quantitative retrospective cohort study of a national sample of 353 patients who had an ostomy surgery. Data Extraction Method: We measure provider communication from open-ended self-reports from patients of the number of stated inadequacies in their care. Principal Findings: Results show that the time since patients had their surgery is related to higher quality provider communication. That is, patients who had their surgery further back in time reported higher quality provider communication compared with patients who had their surgery performed more recently. Conclusion: Results suggest that the quality of provider communication has not improved even with an emphasis on PCC.

scholarly journals The evolution of quality improvement in healthcare: Patient-centered care and health information technology applications

2016 ◽  
Vol 5 (2) ◽  
pp. 62 ◽  
Author(s):  
John Cantiello ◽  
Panagiota Kitsantas ◽  
Shirley Moncada ◽  
Sabiheen Abdul
Keyword(s):  
Information Technology ◽  
Quality Improvement ◽  
Health Information Technology ◽  
Health Information ◽  
Patient Centered Care ◽  
Healthcare Industry ◽  
Patient Centered ◽  
Technology Applications ◽  
Centered Care

Objective: Quality improvement in the healthcare industry has evolved over the past few decades. In recent years, an increased focus on coordination of care efforts and the introduction of health information technology has been of high importance in improving the quality of patient care.Methods: In this review, we present a history of quality improvement efforts, discuss quality improvement in the healthcare industry, and examine quality improvement strategies with a focus on patient-centered care and information technology applications via patient registries.Results: Evidence shows that the key to quality improvement efforts in the healthcare industry is the coordination of patient care efforts through better data evaluation processes. By utilizing patient registries that can be linked to electronic health records (EHRs) and the Patient-Centered Medical Home (PCMH) framework, the quality of care provided to patients can be improved.Conclusions: While many healthcare organizations have quality improvement departments or teams in place that may be able to handle these types of efforts, it is important for organizations to be familiar with processes and frameworks that employees at different levels of the organization can be involved in. In order to ensure successful outcomes from quality improvement initiatives, managers and clinicians should work together in identifying problems and developing solutions.

scholarly journals The association of cumulative discrimination on quality of care, patient-centered care, and dissatisfaction with care in adults with type 2 diabetes

2017 ◽  
Vol 31 (1) ◽  
pp. 175-179 ◽  
Author(s):  
David M. Cykert ◽  
Joni S. Williams ◽  
Rebekah J. Walker ◽  
Kimberly S. Davis ◽  
Leonard E. Egede
Keyword(s):  
Type 2 Diabetes ◽  
Quality Of Care ◽  
Patient Centered Care ◽  
Care Patient ◽  
Patient Centered ◽  
Centered Care

scholarly journals Relationship Between Adolescent Report of Patient-Centered Care and of Quality of Primary Care

2016 ◽  
Vol 16 (8) ◽  
pp. 770-776 ◽  
Author(s):  
Sara L. Toomey ◽  
Marc N. Elliott ◽  
David C. Schwebel ◽  
Susan R. Tortolero ◽  
Paula M. Cuccaro ◽  
...  
Keyword(s):  
Primary Care ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Adolescent Report ◽  
Quality Of Primary Care ◽  
Centered Care

scholarly journals Patient-Centered Care, Glycemic Control, Diabetes Self-Care, and Quality of Life in Adults with Type 2 Diabetes

2016 ◽  
Vol 18 (10) ◽  
pp. 644-649 ◽  
Author(s):  
Joni S. Williams ◽  
Rebekah J. Walker ◽  
Brittany L. Smalls ◽  
Rachel Hill ◽  
Leonard E. Egede
Keyword(s):  
Quality Of Life ◽  
Type 2 Diabetes ◽  
Glycemic Control ◽  
Self Care ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Centered Care ◽  
Control Diabetes

scholarly journals Quality of life in adult patients with systemic autoimmune myopathies: towards the patient-centered care

2021 ◽  
Author(s):  
Rafael Alves Cordeiro ◽  
Dechristian França Barbieri ◽  
Frida Marina Fischer ◽  
Samuel Katsuyuki Shinjo
Keyword(s):  
Quality Of Life ◽  
Patient Centered Care ◽  
Adult Patients ◽  
Patient Centered ◽  
Centered Care
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