Mining Social Media Data to Study the Consequences of Dementia Diagnosis on Caregivers and Relatives (Preprint)

2018 ◽  
Author(s):  
Anika Oellrich ◽  
George Gkotsis ◽  
Richard James Butler Dobson ◽  
Tim JP Hubbard ◽  
Rina Dutta
Keyword(s):  
Social Media ◽  
Family Relationships ◽  
Text Processing ◽  
Automated Analysis ◽  
Health Concern ◽  
Dementia Diagnosis ◽  
Data Set ◽  
Social Media Data ◽  
Real Time Processing ◽  
Media Data

BACKGROUND Dementia is a growing public health concern with approximately 50 million people affected worldwide in 2017 and this number is expected to reach more than 131 million by 2050. The toll on caregivers and relatives cannot be underestimated as dementia changes family relationships, leaves people socially isolated, and affects the finances of all those involved. OBJECTIVE The aim of this study was to explore using automated analysis (i) the age and gender of people who post to the social media forum Reddit about dementia diagnoses, (ii) the affected person and their diagnosis, (iii) relevant subreddits authors are posting to, (iv) the types of messages posted and (v) the content of these posts. METHODS We analysed Reddit posts concerning dementia diagnoses. We used a previously developed text analysis pipeline to determine attributes of the posts as well as their authors to characterise online communications about dementia diagnoses. The posts were also examined by manual curation for the diagnosis provided and the person affected. Furthermore, we investigated the communities these people engage in and assessed the contents of the posts with an automated topic gathering technique. RESULTS Our results indicate that the majority of posters in our data set are women, and it is mostly close relatives such as parents and grandparents that are mentioned. Both the communities frequented and topics gathered reflect not only the sufferer's diagnosis but also potential outcomes, e.g. hardships experienced by the caregiver. The trends observed from this dataset are consistent with findings based on qualitative review, validating the robustness of social media automated text processing. CONCLUSIONS This work demonstrates the value of social media data sources as a resource for in-depth studies of those affected by a dementia diagnosis and the potential to develop novel support systems based on their real time processing in line with the increasing digitalisation of medical care.

scholarly journals Mining Social Media Data to Study the Consequences of Dementia Diagnosis on Caregivers and Relatives

2020 ◽  
Vol 49 (3) ◽  
pp. 295-302
Author(s):  
George Gkotsis ◽  
Christoph Mueller ◽  
Richard J.B. Dobson ◽  
Tim J.P. Hubbard ◽  
Rina Dutta
Keyword(s):  
Social Media ◽  
Family Relationships ◽  
Automated Analysis ◽  
Study Groups ◽  
Dementia Diagnosis ◽  
Social Media Data ◽  
People With Dementia ◽  
The Social ◽  
Close Relatives ◽  
Media Data

<b><i>Introduction:</i></b> Caregivers for people with dementia face a number of challenges such as changing family relationships, social isolation, or financial difficulties. Internet usage and social media are increasingly being recognised as resources to increase support and general public health. <b><i>Objective:</i></b> Using automated analysis, the aim of this study was to explore (i) the age and sex of people who post to the social media forum Reddit about dementia diagnoses, (ii) the affected person and their diagnosis, (iii) which subreddits authors are posting to, (iv) the types of messages posted, and (v) the content of these posts. <b><i>Methods:</i></b> We analysed Reddit posts concerning dementia diagnoses and used a previously developed text analysis pipeline to determine attributes of the posts and their authors. The posts were further examined through manual annotation of the diagnosis provided and the person affected. Lastly, we investigated the communities posters engage with and assessed the contents of the posts with an automated topic gathering/clustering technique. <b><i>Results:</i></b> Five hundred and thirty-five Reddit posts were identified as relevant and further processed. The majority of posters in our dataset are females and predominantly close relatives, such as parents and grandparents, are mentioned. The communities frequented and topics gathered reflect not only the person’s diagnosis but also potential outcomes, for example hardships experienced by the caregiver or the requirement for legal support. <b><i>Conclusions:</i></b> This work demonstrates the value of social media data as a resource for in-depth examination of caregivers’ experience after a dementia diagnosis. It is important to study groups actively posting online, both in topic-specific and general communities, as they are most likely to benefit from novel internet-based support systems or interventions.

scholarly journals Embed2Detect: temporally clustered embedded words for event detection in social media

2021 ◽  
Author(s):  
Hansi Hettiarachchi ◽  
Mariam Adedoyin-Olowe ◽  
Jagdev Bhogal ◽  
Mohamed Medhat Gaber
Keyword(s):  
Social Media ◽  
Event Detection ◽  
High Volume ◽  
Detection Methods ◽  
Word Embeddings ◽  
Agglomerative Clustering ◽  
Data Set ◽  
Social Media Data ◽  
Social Media Platforms ◽  
Media Data

AbstractSocial media is becoming a primary medium to discuss what is happening around the world. Therefore, the data generated by social media platforms contain rich information which describes the ongoing events. Further, the timeliness associated with these data is capable of facilitating immediate insights. However, considering the dynamic nature and high volume of data production in social media data streams, it is impractical to filter the events manually and therefore, automated event detection mechanisms are invaluable to the community. Apart from a few notable exceptions, most previous research on automated event detection have focused only on statistical and syntactical features in data and lacked the involvement of underlying semantics which are important for effective information retrieval from text since they represent the connections between words and their meanings. In this paper, we propose a novel method termed Embed2Detect for event detection in social media by combining the characteristics in word embeddings and hierarchical agglomerative clustering. The adoption of word embeddings gives Embed2Detect the capability to incorporate powerful semantical features into event detection and overcome a major limitation inherent in previous approaches. We experimented our method on two recent real social media data sets which represent the sports and political domain and also compared the results to several state-of-the-art methods. The obtained results show that Embed2Detect is capable of effective and efficient event detection and it outperforms the recent event detection methods. For the sports data set, Embed2Detect achieved 27% higher F-measure than the best-performed baseline and for the political data set, it was an increase of 29%.

scholarly journals What Your Tweets Tell Us About You: Identity, Ownership and Privacy of Twitter Data

2012 ◽  
Vol 7 (1) ◽  
pp. 174-197 ◽  
Author(s):  
Heather Small ◽  
Kristine Kasianovitz ◽  
Ronald Blanford ◽  
Ina Celaya
Keyword(s):  
Social Media ◽  
Social Networking Sites ◽  
Data Sets ◽  
Data Set ◽  
Social Media Data ◽  
Twitter Data ◽  
Other Information ◽  
Rich Data ◽  
Additional Value ◽  
Media Data

Social networking sites and other social media have enabled new forms of collaborative communication and participation for users, and created additional value as rich data sets for research. Research based on accessing, mining, and analyzing social media data has risen steadily over the last several years and is increasingly multidisciplinary; researchers from the social sciences, humanities, computer science and other domains have used social media data as the basis of their studies. The broad use of this form of data has implications for how curators address preservation, access and reuse for an audience with divergent disciplinary norms related to privacy, ownership, authenticity and reliability.In this paper, we explore how the characteristics of the Twitter platform, coupled with an ambiguous and evolving understanding of privacy in networked communication, and divergent disciplinary understandings of the resulting data, combine to create complex issues for curators trying to ensure broad-based and ethical reuse of Twitter data. We provide a case study of a specific data set to illustrate how data curators can engage with the topics and questions raised in the paper. While some initial suggestions are offered to librarians and other information professionals who are beginning to receive social media data from researchers, our larger goal is to stimulate discussion and prompt additional research on the curation and preservation of social media data.

scholarly journals A Big Data Platform for Real Time Analysis of Signs of Depression in Social Media

2020 ◽  
Vol 17 (13) ◽  
pp. 4752 ◽  
Author(s):  
Rodrigo Martínez-Castaño ◽  
Juan C. Pichel ◽  
David E. Losada 
Keyword(s):  
Social Media ◽  
Real Time ◽  
Public Health Surveillance ◽  
Time Analysis ◽  
Social Media Data ◽  
Real Time Processing ◽  
Processing Elements ◽  
Real Time Analysis ◽  
Data Platform ◽  
Media Data

In this paper we propose a scalable platform for real-time processing of Social Media data. The platform ingests huge amounts of contents, such as Social Media posts or comments, and can support Public Health surveillance tasks. The processing and analytical needs of multiple screening tasks can easily be handled by incorporating user-defined execution graphs. The design is modular and supports different processing elements, such as crawlers to extract relevant contents or classifiers to categorise Social Media. We describe here an implementation of a use case built on the platform that monitors Social Media users and detects early signs of depression.

scholarly journals EXTRACTING AND COMPARING PLACES USING GEO-SOCIAL MEDIA

2015 ◽  
Vol II-3/W5 ◽  
pp. 311-316
Author(s):  
F. O. Ostermann ◽  
H. Huang ◽  
G. Andrienko ◽  
N. Andrienko ◽  
C. Capineri ◽  
...  
Keyword(s):  
Social Media ◽  
Semantic Similarity ◽  
Data Set ◽  
Social Media Data ◽  
Temporal Clustering ◽  
Depth Study ◽  
Data Source ◽  
Spatio Temporal ◽  
Media Data

Increasing availability of Geo-Social Media (e.g. Facebook, Foursquare and Flickr) has led to the accumulation of large volumes of social media data. These data, especially geotagged ones, contain information about perception of and experiences in various environments. Harnessing these data can be used to provide a better understanding of the semantics of places. We are interested in the similarities or differences between different Geo-Social Media in the description of places. This extended abstract presents the results of a first step towards a more in-depth study of semantic similarity of places. Particularly, we took places extracted through spatio-temporal clustering from one data source (Twitter) and examined whether their structure is reflected semantically in another data set (Flickr). Based on that, we analyse how the semantic similarity between places varies over space and scale, and how Tobler's first law of geography holds with regards to scale and places.

scholarly journals Analysis and Visualization Considerations for Quantitative Social Science Research Using Social Media Data

2021 ◽  
Author(s):  
J. Bradford Jensen ◽  
Lisa Singh ◽  
Pamela Davis-Kean ◽  
Katharine Abraham ◽  
Paul Beatty ◽  
...  
Keyword(s):  
Social Media ◽  
Visual Analytics ◽  
Social Science Research ◽  
Science Research ◽  
Data Set ◽  
Future Directions ◽  
Social Media Data ◽  
Analysis Techniques ◽  
Media Data ◽  
Different Levels

This is the fifth in a series of white papers providing a summary of the discussions and future directions that are derived from these topical meetings. This paper focuses on issues related to analysis and visual analytics. While these two topics are distinct, there are clear overlaps between the two. It is common to use different visualizations during analysis and given the sheer volume of social media data, visual analytic tools can be important during analysis, as well as during other parts of the research lifecycle. Choices about analysis may be informed by visualization plans and vice versa - both are key in communicating about a data set and what it means. We also recognized that each field of research has different analysis techniques and different levels of familiarity with visual analytics. Putting these two topics into the same meeting provided us with the opportunity to think about analysis and visual analytics/visualization in new, synergistic ways.

scholarly journals Twitter Analyzer—How to Use Semantic Analysis to Retrieve an Atmospheric Image around Political Topics in Twitter

2019 ◽  
Vol 3 (3) ◽  
pp. 38 ◽  
Author(s):  
Stefan Spettel ◽  
Dimitrios Vagianos
Keyword(s):  
Social Media ◽  
Sentiment Analysis ◽  
Open Source ◽  
Semantic Analysis ◽  
Time Window ◽  
Data Set ◽  
Social Media Data ◽  
Open Source Tool ◽  
Implementation Model ◽  
Media Data

Social media are heavily used to shape political discussions. Thus, it is valuable for corporations and political parties to be able to analyze the content of those discussions. This is exemplified by the work of Cambridge Analytica, in support of the 2016 presidential campaign of Donald Trump. One of the most straightforward metrics is the sentiment of a message, whether it is considered as positive or negative. There are many commercial and/or closed-source tools available which make it possible to analyze social media data, including sentiment analysis (SA). However, to our knowledge, not many publicly available tools have been developed that allow for analyzing social media data and help researchers around the world to enter this quickly expanding field of study. In this paper, we provide a thorough description of implementing a tool that can be used for performing sentiment analysis on tweets. In an effort to underline the necessity for open tools and additional monitoring on the Twittersphere, we propose an implementation model based exclusively on publicly available open-source software. The resulting tool is capable of downloading Tweets in real-time based on hashtags or account names and stores the sentiment for replies to specific tweets. It is therefore capable of measuring the average reaction to one tweet by a person or a hashtag, which can be represented with graphs. Finally, we tested our open-source tool within a case study based on a data set of Twitter accounts and hashtags referring to the Syrian war, covering a short time window of one week in the spring of 2018. The results show that while high accuracy of commercial or other complicated tools may not be achieved, our proposed open source tool makes it possible to get a good overview of the overall replies to specific tweets, as well as a practical perception of tweets, related to specific hashtags, identifying them as positive or negative.

scholarly journals Analyzing social media data: A mixed-methods framework combining computational and qualitative text analysis

2019 ◽  
Author(s):  
Matthew Andreotta ◽  
Robertus Nugroho ◽  
Mark Hurlstone ◽  
Fabio Boschetti ◽  
Simon Farrell ◽  
...  
Keyword(s):  
Social Media ◽  
Qualitative Analysis ◽  
Data Science ◽  
Large Data ◽  
Extraction Process ◽  
Data Set ◽  
Diverse Range ◽  
Social Media Data ◽  
Qualitative Thematic Analysis ◽  
Media Data

To qualitative researchers, social media offers a novel opportunity to harvest a massive and diverse range of content, without the need for intrusive or intensive data collection procedures. However, performing a qualitative analysis across a massive social media data set is cumbersome and impractical. Instead, researchers often extract a subset of content to analyze, but a framework to facilitate this process is currently lacking. We present a four-phased framework for improving this extraction process, which blends the capacities of data science techniques to compress large data sets into smaller spaces, with the capabilities of qualitative analysis to address research questions. We demonstrate this framework by investigating the topics of Australian Twitter commentary on climate change, using quantitative (Non-Negative Matrix inter-joint Factorization; Topic Alignment) and qualitative (Thematic Analysis) techniques. Our approach is useful for researchers seeking to perform qualitative analyses of social media, or researchers wanting to supplement their quantitative work with a qualitative analysis of broader social context and meaning.

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