Clinical Adoption of mHealth Technology to Support Pediatric Cystic Fibrosis Care in Sweden: Qualitative Case Study (Preprint)

BACKGROUND Mobile health (mHealth) technologies have potential to improve self-management and care co-ordination of pediatric chronic diseases requiring complex care, such as cystic fibrosis (CF). Barriers to implementation include the lack of support and infrastructure to use mHealth in the clinical microsystem. Coproducing mHealth technology with patients, clinicians, and designers may increase the likelihood of successful integration into the clinical setting. OBJECTIVE This study explored the development, adoption, and integration of a new, co-produced mHealth platform (Genia) for the management of pediatric CF in Sweden. METHODS A retrospective, qualitative case study approach was used. The case was defined as the process of introducing and using Genia at the Pediatric Cystic Fibrosis Center at Skåne University Hospital in Lund, Sweden. Data sources included interviews, presentations, meeting notes, and other archival documents created between 2014 and 2017. To be included, data sources must have described or reflected upon the Genia adoption process. Iterative content analysis of data source materials was conducted by 2 qualitatively trained researchers to derive themes characterizing the mHealth clinical adoption process. RESULTS In total, 4 core themes characterized successful clinical integration of Genia in Lund: cultural readiness to use mHealth; use of weekly huddles to foster momentum and rapid iteration; engagement in incremental “Genia Talk” to motivate patient adoption; and co-design approach toward pediatric chronic care. CONCLUSIONS Principles of quality improvement, relational co-ordination, user-centered design, and coproduction can facilitate the integration of mHealth technology into clinical care systems for pediatric CF care.

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Clinical Adoption of mHealth Technology to Support Pediatric Cystic Fibrosis Care in Sweden: Qualitative Case Study

JMIR Pediatrics and Parenting ◽

10.2196/11080 ◽

2018 ◽

Vol 1 (2) ◽

pp. e11080 ◽

Cited By ~ 10

Author(s):

Meghan Longacre ◽

Stuart Grande ◽

Andreas Hager ◽

Meera Montan ◽

Rikard Palmer Bergquist ◽

...

Keyword(s):

Cystic Fibrosis ◽

Qualitative Case Study ◽

Mhealth Technology ◽

Clinical Adoption

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Creating genetic reports that are understood by nonspecialists: a case study

Genetics in Medicine ◽

10.1038/s41436-019-0649-0 ◽

2019 ◽

Vol 22 (2) ◽

pp. 353-361 ◽

Cited By ~ 4

Author(s):

Gabriel Recchia ◽

Antonia Chiappi ◽

Gemma Chandratillake ◽

Lucy Raymond ◽

Alexandra L. J. Freeman

Keyword(s):

Cystic Fibrosis ◽

Design Process ◽

Clinical Care ◽

Current Clinical Practice ◽

User Centered Design ◽

Cystic Fibrosis Carrier ◽

Usability Problems ◽

Risk Probability ◽

User Centered

Abstract Purpose Guidelines recommend that genetic reports should be clear to nonspecialists, including patients. We investigated the feasibility of creating reports for cystic fibrosis carrier testing through a rapid user-centered design process that built on a previously developed generic template. We evaluated the new reports’ communication efficacy and effects on comprehension against comparable reports used in current clinical practice. Methods Thirty participants took part in three rounds of interviews. Usability problems were identified and rectified in each round. One hundred ninety-three participants took part in an evaluation of the resulting reports measuring subjective comprehension, risk probability comprehension, perceived communication efficacy, and other factors, as compared with standard reports. Results Participants viewing the user-centered reports rated them as clearer, easier to understand, and more effective at communicating key information than standard reports. Both groups ended up with equivalent knowledge of risk probabilities, although we observed differences in how those probabilities were perceived. Conclusion Our findings demonstrate that by starting with a patient-friendly generic report template and modifying it for specific scenarios with a rapid user-centered design process, reports can be produced that are more effective at communicating key information. The resulting reports are now being implemented into clinical care.

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Identifying the barriers and facilitators to transforming a university hospital into a Major Trauma Centre: a qualitative case study using the Theoretical Domains Framework

Scandinavian Journal of Trauma Resuscitation and Emergency Medicine ◽

10.1186/1757-7241-23-s2-a10 ◽

2015 ◽

Vol 23 (S2) ◽

Author(s):

Neil Roberts ◽

Fabiana Lorencatto ◽

Joanna Manson ◽

Jan Jansen

Keyword(s):

Major Trauma ◽

Qualitative Case Study ◽

Theoretical Domains Framework ◽

Trauma Centre ◽

Barriers And Facilitators ◽

University Hospital ◽

Major Trauma Centre

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STRATEGI PEMBERDAYAAN MASYARAKAT OLEH BADAN PENANGGULANGAN BENCANA DAERAH KABUPATEN KUTAI KERTANEGARA DALAM MEWUJUDKAN DESA TANGGUH BENCANA (STUDI PADA DESA LOA IPUH DAN DESA PURWAJAWA KABUPATEN KUTAI KERTANEGARA)

Jurnal Tatapamong ◽

10.33701/jurnaltatapamong.v2i1.1233 ◽

2020 ◽

pp. 17-34

Author(s):

Arwanto Harimas Ginting ◽

Tri Dewi

Keyword(s):

Community Participation ◽

Community Involvement ◽

Qualitative Case Study ◽

Secondary Data ◽

Disaster Mitigation ◽

Data Sources ◽

Primary Data ◽

And Training ◽

Descriptive Qualitative

The purpose of this research is to find out the strategy of BPBD Kutai Kertanegara Regency in disaster mitigation efforts to support an independent society so that later the performance program can be sustainable. In addition, it is also to determine the level of community participation in disaster mitigation efforts, whether the community can participate optimally with the existence of Destana. The method used is descriptive qualitative case study, where the researcher uses two data sources, namely primary and secondary. Primary data is obtained directly from the field while secondary data is not obtained directly in the field, through observation and documentation. The results of this study are that there are several strategies of BPBD Kutai Kertanegara Regency in maximizing community participation, including socialization and training carried out in stages, Destana development involving the community. In addition, community participation is high even though it is hindered by community professions. Community involvement in these areas cannot be separated from people's awareness of their disaster-prone areas so that awareness has opened their minds to participate and participate in disaster resilient village programs. Keywords: Strategy, Empowerment and Resilient Village Disaster

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The emergence of sensemaking through socio-material practices

Journal of Organizational Change Management ◽

10.1108/jocm-10-2018-0280 ◽

2019 ◽

Vol 33 (4) ◽

pp. 597-607

Author(s):

Noora Jansson ◽

Nina Lunkka ◽

Marjo Suhonen ◽

Merja Meriläinen ◽

Heikki Wiik

Keyword(s):

Video Analysis ◽

Design Methodology ◽

Qualitative Case Study ◽

Organisational Change ◽

University Hospital ◽

Discursive Practices ◽

Content Type ◽

Holistic Process ◽

Dynamic Agency

Purpose The purpose of this paper is to increase understanding of how sensemaking occurs as a holistic, processual phenomenon during an organisational change. Design/methodology/approach A longitudinal, qualitative case study was conducted by analysing video-recorded meetings among the staff of two recently merged surgical departments in a university hospital. Sensemaking was approached through the lens of socio-material practices. Findings The analysis revealed that material-discursive practices produce sensemaking in various ways, creating a holistic process and a dynamic agency. Four sensemaking practices were identified through which personnel made sense of the development of ward inpatient rounding: facilitated meetings, a status board, video analysis and humour. Originality/value This paper identifies diverse sensemaking practices, each of which increases understanding of sensemaking as a holistic, processual phenomenon that emerges through socio-material practices. The paper also enhances practical understanding of how sense is made of a working practice, as well as how a working practice is developed and improved during an organisational change.

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Qualitative Case Study Research Design

Perspectives on Fluency and Fluency Disorders ◽

10.1044/ffd25.1.39 ◽

2015 ◽

Vol 25 (1) ◽

pp. 39-45 ◽

Cited By ~ 5

Author(s):

Jennifer Tetnowski

Keyword(s):

Research Design ◽

Real World ◽

Qualitative Case Study ◽

Case Study Research ◽

Study Research

Qualitative case study research can be a valuable tool for answering complex, real-world questions. This method is often misunderstood or neglected due to a lack of understanding by researchers and reviewers. This tutorial defines the characteristics of qualitative case study research and its application to a broader understanding of stuttering that cannot be defined through other methodologies. This article will describe ways that data can be collected and analyzed.

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