scholarly journals Creating genetic reports that are understood by nonspecialists: a case study

2019 ◽  
Vol 22 (2) ◽  
pp. 353-361 ◽  
Author(s):  
Gabriel Recchia ◽  
Antonia Chiappi ◽  
Gemma Chandratillake ◽  
Lucy Raymond ◽  
Alexandra L. J. Freeman

Abstract Purpose Guidelines recommend that genetic reports should be clear to nonspecialists, including patients. We investigated the feasibility of creating reports for cystic fibrosis carrier testing through a rapid user-centered design process that built on a previously developed generic template. We evaluated the new reports’ communication efficacy and effects on comprehension against comparable reports used in current clinical practice. Methods Thirty participants took part in three rounds of interviews. Usability problems were identified and rectified in each round. One hundred ninety-three participants took part in an evaluation of the resulting reports measuring subjective comprehension, risk probability comprehension, perceived communication efficacy, and other factors, as compared with standard reports. Results Participants viewing the user-centered reports rated them as clearer, easier to understand, and more effective at communicating key information than standard reports. Both groups ended up with equivalent knowledge of risk probabilities, although we observed differences in how those probabilities were perceived. Conclusion Our findings demonstrate that by starting with a patient-friendly generic report template and modifying it for specific scenarios with a rapid user-centered design process, reports can be produced that are more effective at communicating key information. The resulting reports are now being implemented into clinical care.

2018 ◽  
Author(s):  
Meghan Longacre ◽  
Stuart Grande ◽  
Andreas Hager ◽  
Meera Montan ◽  
Rikard Palmer Bergquist ◽  
...  

BACKGROUND Mobile health (mHealth) technologies have potential to improve self-management and care co-ordination of pediatric chronic diseases requiring complex care, such as cystic fibrosis (CF). Barriers to implementation include the lack of support and infrastructure to use mHealth in the clinical microsystem. Coproducing mHealth technology with patients, clinicians, and designers may increase the likelihood of successful integration into the clinical setting. OBJECTIVE This study explored the development, adoption, and integration of a new, co-produced mHealth platform (Genia) for the management of pediatric CF in Sweden. METHODS A retrospective, qualitative case study approach was used. The case was defined as the process of introducing and using Genia at the Pediatric Cystic Fibrosis Center at Skåne University Hospital in Lund, Sweden. Data sources included interviews, presentations, meeting notes, and other archival documents created between 2014 and 2017. To be included, data sources must have described or reflected upon the Genia adoption process. Iterative content analysis of data source materials was conducted by 2 qualitatively trained researchers to derive themes characterizing the mHealth clinical adoption process. RESULTS In total, 4 core themes characterized successful clinical integration of Genia in Lund: cultural readiness to use mHealth; use of weekly huddles to foster momentum and rapid iteration; engagement in incremental “Genia Talk” to motivate patient adoption; and co-design approach toward pediatric chronic care. CONCLUSIONS Principles of quality improvement, relational co-ordination, user-centered design, and coproduction can facilitate the integration of mHealth technology into clinical care systems for pediatric CF care.


10.2196/18079 ◽  
2020 ◽  
Author(s):  
Amarasinghe Arachchige Don Nalin Samandi Saparamadu ◽  
Piyum Fernando ◽  
Peizi Zeng ◽  
Wee Meng Henry Teo ◽  
Xi Tian Andrew Goh ◽  
...  

Sensors ◽  
2021 ◽  
Vol 21 (8) ◽  
pp. 2804
Author(s):  
Silvia Imbesi ◽  
Sofia Scataglini

Smart clothing plays a big role to foster innovation and to. boost health and well-being, improving the quality of the life of people, especially when addressed to niche users with particular needs related to their health. Designing smart apparel, in order to monitor physical and physiological functions in older users, is a crucial asset that user centered design is exploring, balancing needs expressed by the users with technological requirements related to the design process. In this paper, the authors describe a user centered methodology for the design of smart garments based on the evaluation of users’ acceptance of smart clothing. This comparison method can be considered as similar to a simplified version of the quality function deployment tool, and is used to evaluate the general response of each garment typology to different categories of requirements, determining the propensity of the older user to the utilization of the developed product. The suggested methodology aims at introducing in the design process a tool to evaluate and compare developed solutions, reducing complexity in design processes by providing a tool for the comparison of significant solutions, correlating quantitative and qualitative factors.


2021 ◽  
Vol 13 (14) ◽  
pp. 7543
Author(s):  
Carla Pestana ◽  
Luísa Barros ◽  
Sabrina Scuri ◽  
Mary Barreto

The adoption of energy efficiency practices and increased penetration of renewable energy sources in the power system are estimated to play a key role in the decarbonization of the energy sector, helping reduce greenhouse gas emissions and ultimately fight climate change. To foster energy transition, energy education initiatives should primarily target the citizens and be designed adopting a User-Centered Design (UCD) approach and HCI methodologies. This paper describes how UCD/HCI can inform the design of citizens’ energy education initiatives by presenting a case study—the development of an information platform targeting Madeiran citizens. The article describes the design process, from ideation to prototype and validation. Methods used in each phase (card sorting, semi-structured interviews, brainstorming sessions, think-aloud protocol and surveys) are described. Results of each phase and how they have informed the following steps are presented, together with a detailed description of the resulting information platform and initial results in terms of acceptance and interaction with the system. Our initial results support the hypothesis that adopting an HCI perspective can nurture the development of energy education initiatives targeting citizens, bringing a user-centered approach to the design of such initiatives.


2021 ◽  
Author(s):  
Jeonghwan Hwang ◽  
Taeheon Lee ◽  
Honggu Lee ◽  
Seonjeong Byun

BACKGROUND Despite the unprecedented performances of deep learning algorithms in clinical domains, full reviews of algorithmic predictions by human experts remain mandatory. Under these circumstances, artificial intelligence (AI) models are primarily designed as clinical decision support systems (CDSSs). However, from the perspective of clinical practitioners, the lack of clinical interpretability and user-centered interfaces block the adoption of these AI systems in practice. OBJECTIVE The aim of this study was to develop an AI-based CDSS for assisting polysomnographic technicians in reviewing AI-predicted sleep staging results. This study proposed and evaluated a CDSS that provides clinically sound explanations for AI predictions in a user-centered fashion. METHODS User needs for the system were identified during interviews with polysomnographic technicians. User observation sessions were conducted to understand the workflow of the practitioners during sleep scoring. Iterative design process was performed to ensure easy integration of the tool into clinical workflows. Then, we evaluated the system with polysomnographic technicians. We measured the improvements in sleep staging accuracies after adopting our tool and assessed qualitatively how the participants perceived and used the tool. RESULTS The user study revealed that technicians desire explanations relevant to key electroencephalogram (EEG) patterns for sleep staging when assessing the correctness of the AI predictions. Here, technicians could evaluate whether AI models properly locate and use those patterns during prediction. Based on this, information in AI models that is closely related to sleep EEG patterns was formulated and visualized during the iterative design process. Furthermore, we developed a different visualization strategy for each pattern based on the way the technicians interpreted the EEG recordings with these patterns during their workflows. Generally, the tool evaluation results from the nine polysomnographic technicians were positive. Quantitatively, technicians achieved better classification performances after reviewing the AI-generated predictions with the proposed system; classification accuracies measured with Macro-F1 scores improved from 60.20 to 62.71. Qualitatively, participants reported that the provided information from the tool effectively supported them, and they were able to develop notable adoption strategies for the tool. CONCLUSIONS Our findings indicate that formulating clinical explanations for automated predictions using the information in the AI with a user-centered design process is an effective strategy for developing a CDSS for sleep staging.


2017 ◽  
Vol 3 (1) ◽  
pp. 39-43 ◽  
Author(s):  
Ekaterina Ivanova ◽  
Michael Minge ◽  
Henning Schmidt ◽  
Manfred Thüring ◽  
Jörg Krüger

Abstract:Robotic therapy devices have been an important part of clinical neurological rehabilitation for several years. Until now such devices are only available for patients receiving therapy inside rehabilitation hospitals. Since patients should continue rehabilitation training after hospital discharge at home, intelligent robotic rehab devices could help to achieve this goal. This paper presents therapeutic requirements and early phases of the user-centered design process of the patient’s work station as part of a novel robot-based system for motor telerehabilitation.


Author(s):  
Susan M. Dray

Major changes in the design process are required for Information Systems departments to make the shift from a traditional development life cycle to the user-centered methods required for the development of Client/Server systems. This type of change can be very difficult to accomplish. “Global Enterprises,” a large commodities company, headquartered in the US, is in the early phases of this shift. Their strategy has been to form a cross-functional User Interface team. The efforts underway at Global are presented to illustrate many of the typical technical and organizational issues companies face early in the process of introducing new design methods. The paper concludes by summarizing on key lessons learned.


Author(s):  
Jayde King ◽  
John Kleber ◽  
Ashlee Harris ◽  
Barbara Chaparro ◽  
Beth Blickensderfer

General Aviation flight operations have been negatively affected by the slow decreasing weather related accident rate for the last 20 years. Upon further investigation, research suggests, that poor preflight planning and a lack of aviation weather experience and knowledge may be contributing factors to the stagnant weather related accident rate. Our team developed a Preflight Weather Decision Support Tool (PWDST) to help novice pilots access, interpret, and apply weather information. We used a user-centered design process which involved an initial task analysis, low-fidelity prototyping, low-fidelity usability testing, user interviews and expert review. This study assessed and compared the perceived usability, difficulty, and the system assistance satisfaction of the PWDST. Participants (n=9) completed a usability study and a series of surveys during, as well as, after the completion of the preflight planning scenario. A series of Mann-Whitney U Tests were conducted to compare the difference between Private Pilot and Certified Flight Instructors (CFI) perceived usability, difficulty, and system assistance satisfaction ratings. Results indicated, there were no significant differences between group ratings. Overall, both groups reported above average usability, system assistance and low difficulty rating for the PWDST. Future research and possible implications are discussed.


Sign in / Sign up

Export Citation Format

Share Document