Design and development of an eHealth service for collaborative self-management among older adults with chronic diseases: A theory-driven user-centered design (Preprint)

2021 ◽  
Author(s):  
Mirjam Ekstedt ◽  
Marie Kirsebom ◽  
Gunilla Lindqvist ◽  
Oscar Frykholm ◽  
Åsa Kneck ◽  
...  
Keyword(s):  
Older Adults ◽  
Feasibility Study ◽  
Healthcare Professionals ◽  
Self Management ◽  
User Needs ◽  
Management Support ◽  
User Centered Design ◽  
Design And Development ◽  
Ehealth Service ◽  
User Centered

BACKGROUND The increasing prevalence of chronic conditions and multimorbidity poses great challenges to healthcare systems. Therefore, patients’ engagement in self-managing their illness becomes increasingly important. eHealth interventions are a promising resource for the provision of adequate and timely support, but there is inconclusive evidence about how to design eHealth services to meet the complex needs of patients with multimorbidity. OBJECTIVE To apply an evidence-based and theory-informed user-centered design approach for a) identifying the needs of older adults and healthcare professionals in the collaborative management of multimorbidity, b) developing an eHealth service to address these needs, and c) testing the feasibility and acceptance of the eHealth service in a clinical setting. METHODS A theory-driven user-centered design approach was carried out in three interconnected phases: 1) exploration of user needs with patients and healthcare professionals; 2) design and development of content and software; 3) feasibility study of the software prototype and redesign. RESULTS Phase 1 resulted in the specification of twenty-two user needs, which were grouped into five themes: diagnosis-specific information, medication management support, self-management support, care coordination support, psychosocial support. A web-based application – ePATH (electronic Patient Activation in Treatment at Home) – with separate user interfaces for patients and healthcare professionals was developed to address these needs. Two nurses and five patients tested the ePATH service in clinical practice, resulting in a refined web interface and a mobile application (mPATH) to support self-tracking and make it possible to get reminders through push notifications. The feasibility study highlighted the importance of adequately addressing not only varying user needs, but also the complex nature of healthcare organizations when implementing new services and processes in chronic care management. CONCLUSIONS We conclude that user engagement in design and development should not be limited to the elicitation of user needs and creation of new services but should focus more holistically on improving current practices to shape better care, which requires adequate strategies and resources to implement changes in people’s lives and complex organizations. INTERNATIONAL REGISTERED REPORT RR2-10.2196/11625

scholarly journals Design and Development of an eHealth Service for Collaborative Self-Management among Older Adults with Chronic Diseases: A Theory-Driven User-Centered Approach

2021 ◽  
Vol 19 (1) ◽  
pp. 391
Author(s):  
Mirjam Ekstedt ◽  
Marie Kirsebom ◽  
Gunilla Lindqvist ◽  
Åsa Kneck ◽  
Oscar Frykholm ◽  
...  
Keyword(s):  
Older Adults ◽  
Chronic Conditions ◽  
Healthcare Professionals ◽  
Phase 1 ◽  
Collaborative Management ◽  
User Needs ◽  
Complex Nature ◽  
User Centered Design ◽  
Ehealth Service ◽  
User Centered

The increasing prevalence of chronic conditions and multimorbidity poses great challenges to healthcare systems. As patients’ engagement in self-managing their chronic conditions becomes increasingly important, eHealth interventions are a promising resource for the provision of adequate and timely support. However, there is inconclusive evidence about how to design eHealth services to meet the complex needs of patients. This study applied an evidence-based and theory-informed user-centered design approach in three phases to identify the needs of older adults and healthcare professionals in the collaborative management of multimorbidity (phase 1), develop an eHealth service to address these needs (phase 2), and test the feasibility and acceptance of the eHealth service in a clinical setting (phase 3). Twenty-two user needs were identified and a web-based application—ePATH (electronic Patient Activation in Treatment at Home)—with separate user interfaces for patients and healthcare professionals was developed. The feasibility study with two nurses and five patients led to a redesign and highlighted the importance of adequately addressing not only varying user needs but also the complex nature of healthcare organizations when implementing new services and processes in chronic care management.

Patients, Caregivers, and Healthcare Professionals’ Needs When Designing the Content of a Mobile Application for the Clinical Monitoring of Patients with Chronic Obstructive Pulmonary Disease and Home Oxygen Therapy: A User-Centered Design (Preprint)

2021 ◽  
Author(s):  
Anisbed Naranjo Rojas ◽  
Guillermo Molina-Recio ◽  
Luis Angel Perula-de-torres
Keyword(s):  
Focus Groups ◽  
Mobile Application ◽  
Oxygen Therapy ◽  
Healthcare Professionals ◽  
The Self ◽  
Clinical Monitoring ◽  
Self Management ◽  
User Centered Design ◽  
Home Oxygen Therapy ◽  
User Centered

BACKGROUND Patients with chronic respiratory diseases require oxygen supply in a considerable amount to reduce their symptoms and increase their survival. The development of abilities for the self-management of chronic diseases has been shown to be essential to decrease exacerbation of symptoms. Therefore, the design and development of health mobile applications (apps) that aid in educating and training for disease self-management are cost-effective strategies. OBJECTIVE The purpose of this research was to describe the main characteristics that, according to final users, should be included in a mobile application for monitoring patients prescribed home oxygen therapy. METHODS A participative-qualitative design was used, involving direct participation of patients, caregivers, and healthcare professionals. Focus groups were conducted to identify the needs and perspectives related to the app. A card sorting method was used to determine the contents and basic architecture of the app. RESULTS By means of the focus groups, we could identify nine basic functions of the app for the clinical monitoring of patients under home oxygen therapy. For both profiles, the app structure was determined by identifying the most frequent contents among participants. CONCLUSIONS The implementation of a user-centered design allowed for the detection of the functions, contents, and basic architecture of the app by identifying healthcare professionals and patients’ needs and preferences regarding the self-management and monitoring of home oxygen prescriptions. CLINICALTRIAL Trial Registration: The study is registered in ClinicalTrials.gov: NCT04820790

Getting better my way: Feasibility study of a self-management support tool for people with mood and anxiety disorders.

2019 ◽  
Vol 42 (2) ◽  
pp. 158-168
Author(s):  
Janie Houle ◽  
Stephanie Radziszewski ◽  
Préscilla Labelle ◽  
Simon Coulombe ◽  
Matthew Menear ◽  
...  
Keyword(s):  
Anxiety Disorders ◽  
Feasibility Study ◽  
Self Management ◽  
Management Support ◽  
Support Tool ◽  
Mood And Anxiety Disorders

User-Centered Design Enhances Usability of an mHealth System for Users with Dexterity Impairments (Preprint)

2020 ◽  
Author(s):  
Kuntal Chowdhary ◽  
Daihua Xie Yu ◽  
Gede Pramana ◽  
Andrea Fairman ◽  
Brad Edward Dicianno ◽  
...  
Keyword(s):  
User Interface ◽  
Mobile Health ◽  
Chronic Conditions ◽  
Independent Living ◽  
Health Interventions ◽  
Self Management ◽  
User Centered Design ◽  
Entire Study ◽  
Efficiency And Effectiveness ◽  
User Centered

BACKGROUND Mobile health (mHealth) systems have been shown to be useful in supporting self-management by promoting adherence to schedules and longitudinal health interventions, especially in people with disabilities (PwD). The Interactive Mobile Health and Rehabilitation (iMHere) System was developed to empower PwD and those with chronic conditions with supports needed for self-management and independent living. Since the first iteration of the iMHere 1.0 app, several studies have evaluated accessibility and usability of the system. Potential opportunities to improve and simplify the user interface (UI) were identified, and the iMHere modules were redesigned accordingly. OBJECTIVE The aim of this study was to evaluate the usability of the redesigned modules within iMHere 1.0. METHODS This study evaluated the original and redesigned MyMeds and SkinCare modules. To assess the participants’ dexterity levels, the Purdue Pegboard Test (PPBT) was administered. Participants were then asked to perform a set of tasks using both the original and redesigned MyMeds and SkinCare modules to assess efficiency and effectiveness. Usability was measured using the Telehealth Usability Questionnaire (TUQ) to evaluate 10 new accessibility features that were added to the redesigned app. Participants were also asked which version they preferred. RESULTS Twenty-four participants with disabilities and varied degrees of dexterity impairments completed the entire study protocol. Participants displayed improved efficiency and effectiveness of use when using the redesigned modules, as compared to the original modules. Participants also reported improved usability and preferred the redesigned modules. CONCLUSIONS This study demonstrated that the iMHere System became more efficient, effective, and usable for individuals with dexterity impairments after redesigning it according to user-centered principles.

scholarly journals Digital Person-Centered Self-Management Support for People With Type 2 Diabetes: Qualitative Study Exploring Design Challenges

JMIR Diabetes ◽  
10.2196/10702 ◽  
2019 ◽  
Vol 4 (3) ◽  
pp. e10702
Author(s):  
Robyn Schimmer ◽  
Carljohan Orre ◽  
Ulrika Öberg ◽  
Karin Danielsson ◽  
Åsa Hörnsten
Keyword(s):  
Type 2 Diabetes ◽  
Digital Health ◽  
Work Practice ◽  
Current Work ◽  
Self Management ◽  
Substantial Part ◽  
Management Support ◽  
Design Decisions ◽  
Ehealth Service

Background Self-management is a substantial part of treatment for patients with type 2 diabetes (T2D). Modern digital technology, being small, available, and ubiquitous, might work well in supporting self-management. This study follows the process of developing a pilot implementation of an electronic health (eHealth) service for T2D self-management support in primary health care. The use of digital health, or eHealth, solutions for supporting self-management for patients with T2D is increasing. There are good examples of successful implementations that can serve as guides in the development of new solutions. However, when adding person-centered principles as a requirement, the examples are scarce. Objective The objective of this study was to explore challenges that could impact the design of a person-centered eHealth service for T2D self-management support. The study included data collection from multiple sources, that is, interviews, observations, focus groups, and a Mentimeter (interactive presentation with polling) survey among stakeholders, representing various perspectives of T2D. Methods A user-centered design approach was used to exploratively collect data from different sources. Data were collected from a workshop, interviews, and observations. The different data sources enabled a triangulation of data. Results Results show that user needs related to an eHealth service for person-centered T2D self-management support are multifaceted and situated in a complex context. The two main user groups, patients and diabetes specialist nurses, express needs that both diverge and converge, which indicates that critical design decisions have to be made. There is also a discrepancy between the needs expressed by the potential users and the current work practice, suggesting more attention toward changing the organization of work to fully support a new eHealth service. Conclusions A total of three overarching challenges—flexible access, reducing administrative tasks, and patient empowerment—each having a significant impact on design, are discussed. These challenges need to be considered and resolved through careful design decisions. Special attention has to be given to the patient user group that could greatly impact current work practice and power structures at the primary care unit. A need for further studies investigating patient needs in everyday life is identified to better support the implementation of technology that does not give specific attention to organizational perspectives but instead approach design with the patient perspective in focus.

scholarly journals Goal setting in group programmes for long-term condition self-management support: experiences of patients and healthcare professionals

2019 ◽  
Vol 35 (1) ◽  
pp. 70-86 ◽  
Author(s):  
Stephen Hughes ◽  
Sophie Lewis ◽  
Karen Willis ◽  
Anne Rogers ◽  
Sally Wyke ◽  
...  
Keyword(s):  
Goal Setting ◽  
Healthcare Professionals ◽  
Self Management ◽  
Management Support ◽  
Term Condition

Self-management support preferences of people with asthma or chronic obstructive pulmonary disease: A systematic review and meta-synthesis of qualitative studies

2019 ◽  
pp. 174239531986944 ◽  
Author(s):  
Selena O’Connell ◽  
Vera JC McCarthy ◽  
Eileen Savage
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Pulmonary Disease ◽  
Healthcare Professionals ◽  
Qualitative Studies ◽  
Self Management ◽  
Chronic Obstructive ◽  
Management Support ◽  
Obstructive Pulmonary Disease ◽  
The Individual ◽  
Behavioural Sciences

Objectives To synthesise findings from qualitative studies on the preferences of people with asthma or chronic obstructive pulmonary disease (COPD) for self-management support. Methods A thematic synthesis of literature was carried out. Six databases (ASSIA, CINAHL, MEDLINE, PsycINFO, Psychology and the Behavioural Sciences and SSCI) were used to search for qualitative studies eliciting perspectives of adults with asthma and/or COPD on self-management support, published between May 2008 and April 2018. Results A total of 968 articles were retrieved across databases, with 15 articles included in the synthesis. Three themes were identified: Types of Support described the range of supports valued by participants in the studies, particularly education provided by competent healthcare professionals; The Support Relationship highlighted the importance of a collaborative relationship with one’s healthcare professional which was characterised by communication, trust and continuity over time and Accessibility identified the considerations of participants relating to physically accessible, prompt support which is provided in a format preferred by the individual. Discussion Increased understanding of patients’ preferences may provide insight which can be used to enhance engagement with self-management support. Further research needs to examine self-management support preferences outside the context of evaluating interventions for people with asthma/COPD and needs to address the optimal means of enhancing accessibility.

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