scholarly journals Usage of an Exercise App in the Care for People With Osteoarthritis: User-Driven Exploratory Study (Preprint)

2017 ◽  
Author(s):  
Dorthe Boe Danbjørg ◽  
Allan Villadsen ◽  
Ester Gill ◽  
Mette Juel Rothmann ◽  
Jane Clemensen
Keyword(s):  
Quality Of Life ◽  
Focus Groups ◽  
Exploratory Study ◽  
Participatory Design ◽  
Research Process ◽  
Social Aspects ◽  
Process Data ◽  
Physical Barriers

BACKGROUND Exercise has proven to reduce pain and increase quality of life among people living with osteoarthritis (OA). However, one major challenge is adherence to exercise once supervision ends. OBJECTIVE This study aimed to identify mental and physical barriers and motivational and social aspects of training at home, and to test or further develop an exercise app. METHODS The study was inspired from participatory design, engaging users in the research process. Data were collected through focus groups and workshops, and analyzed by systematic text condensation. RESULTS Three main themes were found: competition as motivation, training together, and barriers. The results revealed that the participants wanted to do their training and had knowledge on exercise and pain but found it hard to motivate themselves. They missed the observation, comments, and encouragement by the supervising physiotherapist as well as their peers. Ways to optimize the training app were identified during the workshops as participants shared their experience. CONCLUSIONS This study concludes that the long-term continuation of exercising for patients with OA could be improved with the use of a technology tailored to users’ needs, including motivational and other behavioral factors.

QUALITY OF LIFE PROBLEMS OF GYNECOLOGICAL CANCER PATIENTS

2017 ◽  
Vol 63 (3) ◽  
pp. 368-374
Author(s):  
Olga Churuksaeva ◽  
Larisa Kolomiets
Keyword(s):  
Quality Of Life ◽  
Gynecological Cancer ◽  
Social Aspects ◽  
Cancer Data ◽  
Life Problems ◽  
Anticancer Treatment ◽  
Short And Long Term ◽  
The Relationship

Due to improvements in short- and long-term clinical outcomes a study of quality of life is one of the most promising trends in oncology today. This review analyzes the published literature on problems dealing with quality of life of patients with gynecological cancer. Data on quality of life with respect to the extent of anticancer treatment as well as psychological and social aspects are presented. The relationship between quality of life and survival has been estimated.

Exploratory study of long-term health-related quality of life in patients with surgically treated primary parotid gland cancer

Head & Neck ◽  
2015 ◽  
Vol 38 (1) ◽  
pp. 111-117 ◽  
Author(s):  
Markus Stenner ◽  
Franziska Beenen ◽  
Moritz Hahn ◽  
Mario Koopmann ◽  
Daniel Weiss ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parotid Gland ◽  
Exploratory Study ◽  
Health Related Quality ◽  
Parotid Gland Cancer ◽  
Related Quality ◽  
Health Related

Perceptions of family and staff on the role of the environment in long-term care homes for people with dementia

2012 ◽  
Vol 24 (5) ◽  
pp. 753-765 ◽  
Author(s):  
Linda J. Garcia ◽  
Michèle Hébert ◽  
Jean Kozak ◽  
Isabelle Sénécal ◽  
Susan E. Slaughter ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Focus Groups ◽  
Long Term Care ◽  
Disruptive Behaviors ◽  
Well Being ◽  
Care Homes ◽  
Term Care ◽  
Staff Members

ABSTRACTBackground: Disruptive behaviors are frequent and often the first predictor of institutionalization. The goal of this multi-center study was to explore the perceptions of family and staff members on the potential contribution of environmental factors that influence disruptive behaviors and quality of life of residents with dementia living in long-term care homes.Methods: Data were collected using 15 nominal focus groups with 45 family and 59 staff members from eight care units. Groups discussed and created lists of factors that could either reduce disruptive behaviors and facilitate quality of life or encourage disruptive behaviors and impede the quality of life of residents. Then each participant individually selected the nine most important facilitators and obstacles. Themes were identified from the lists of data and operational categories and definitions were developed for independent coding by four researchers.Results: Participants from both family and staff nominal focus groups highlighted facility, staffing, and resident factors to consider when creating optimal environments. Human environments were perceived to be more important than physical environments and flexibility was judged to be essential. Noise was identified as one of the most important factors influencing behavior and quality of life of residents.Conclusion: Specialized physical design features can be useful for maintaining quality of life and reducing disruptive behaviors, but they are not sufficient. Although they can ease some of the anxieties and set the stage for social interactions, individuals who make up the human environment are just as important in promoting well-being among residents.

Transplante de órgãos e tecidos: aspectos históricos, ético-legais, emocionais e repercussão na qualidade de vida

2009 ◽  
Vol 3 (4) ◽  
pp. 1192
Author(s):  
Patrícia Madruga Rêgo Barros ◽  
Ednaldo Cavalcante de Araújo ◽  
Luciane Soares de Lima
Keyword(s):  
Quality Of Life ◽  
Renal Transplantation ◽  
Chronic Disease ◽  
Exploratory Study ◽  
Technological Development ◽  
Life Quality ◽  
Scientific Production ◽  
Social Aspects ◽  
Dialysis Treatment

Objective: to present the scientific production on quality of life, some historical, ethical, legal and emotional involving the transplantation of organs and tissues. Methods: this is a descriptive and exploratory study that it was sought in Medline, Scielo and Lilacs, involving adults, to search using the following descriptors depression, quality of life, transplantation of kidney and chronic disease as well as consultation on text books and articles cited in the references obtained in the review. Results: the scientific production presented had two relevant aspects: the significant technological and evolution and policies concerned with the transplantation of organs and tissues in Brazil and the evidence of an insignificant value people give to emotional and social aspects in patient’s life quality. It was also observed a disproportional between the number of viable organs and the crescent waiting list, related to the failure in the notification of cases of cerebral deaths and to the failure in approaching the families to donate the organs of their family member. Conclusion: Despite the also technological development of dialysis treatment, renal transplantation has been described as the best option in order to provide better quality of life for chronic kidney patient. But it is valid to emphasize that, like any treatment, the transplant has implications that need to be clarified in order to avoid future frustrations and complications or emotional and psychological.  Descriptors: depression; quality of life; organ transplantation; chronic disease.

scholarly journals Social work support and unmet social needs in life after stroke: a cross-sectional exploratory study

2019 ◽  
Author(s):  
Sophie Mirabell Lehnerer ◽  
Benjamin Hotter ◽  
Inken Padberg ◽  
Petra Knispel ◽  
Dike Remstedt ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Caregiver Burden ◽  
Exploratory Study ◽  
Unmet Needs ◽  
Social Needs ◽  
Stroke Patients ◽  
Cross Sectional ◽  
Degree Of Disability

Abstract Background: Stroke patients are often affected by long-term disabilities with needs concerning social issues. There is relatively little consideration of social recovery of patients and the support required to return to work, receive social benefits, participate in daily life activities, maintain contact with family and friends and to organize financial affairs. In our study we aimed to investigate if existing tools record social needs adequately. We analyzed the current provision of social support provided in long-term care after stroke and whether unmet social needs were associated with quality of life, caregiver burden, overall function and degree of disability. Methods: Our analysis is part of the Managing Aftercare of Stroke study (MAS-I), a cross-sectional exploratory study of patient needs 2-3 years after initial stroke. Assessment tools included the Nikolaus-score (social situation), the EuroQoL (quality of life), the German Burden Scale for Family Caregivers (caregiver burden), the modified Rankin Scale (disability / dependence), Stroke Impact Scale (function and degree of disability) and the Stroke Survivor Needs Questionnaire (unmet needs). Results: Overall 57 patients were included in MAS-I, with ten patients classified in urgent need of socio-economic support according to the Nikolaus-score. Patients with lower than normal Nikolaus-score had a higher degree of disability. Thirty percent of all patients had never received professional social support. Social worker contact happened mostly during the stay in acute hospital or rehabilitation institution. Only four patients (11%) reported long-term support after discharge. Apart from social worker contact during acute care, 43% of patients had unmet needs in the long-term aftercare. Forty percent of all patients included in MAS-I were recommended for social work intervention after an in-depth analysis of their situation. Finally, we saw that unmet social needs were associated with lower quality of life and higher caregiver burden. Conclusions: Our data suggest significant unmet needs in social care in long-term stroke patients. Screening tools for unmet social needs such as the Nikolaus-score do not holistically report patients’ needs.

scholarly journals ANÁLISE DOS BENEFÍCIOS DA DANÇA PARA A QUALIDADE DE VIDA DE IDOSOS MORADORES DE UMA INSTITUIÇÃO DE LONGA PERMANÊNCIA

2018 ◽  
Vol 10 (Especial 5) ◽  
pp. 125-134
Author(s):  
Camila Rodrigues Costa ◽  
Ana Paula Leite de Souza ◽  
Matheus Augusto Mendes Amparo
Keyword(s):  
Quality Of Life ◽  
Action Research ◽  
Elderly People ◽  
General Health ◽  
Social Aspects ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Sf 36

The objective of this study was to analyze the influence of a dance program on the quality of life of elderly people living in a long-stay institution located in the interior of the State of São Paulo. This is an action research. Nine elderly, aged between 63 and 93 years, of both sexes, participated in the study. The Quality of Life Questionnaire - SF-36 was applied. Subsequently, the interventions were initiated, through the dance (zumba) from the rhythms: Salsa, Cumbia, Merengue, Reggaeton, twice a week. After two months of intervention, the questionnaire was reapplied. The data were analyzed from the parameters for quality of life classification in which zero corresponds to a poor rating and 100 to an excellent rating. There was an improvement in general health and social aspects. It is concluded that a dance program can contribute to the improvement in the quality of life of elderly people living in a long-term institution.

scholarly journals Confirmatory analysis of a health state classification system for people living with dementia: a qualitative approach

2019 ◽  
Vol 24 (4) ◽  
pp. 256-265 ◽  
Author(s):  
Alyssa Welch ◽  
Nguyen Kim-Huong ◽  
John Quinn ◽  
Caroline Gregory ◽  
Wendy Moyle ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Focus Groups ◽  
Content Validity ◽  
Long Term Care ◽  
Community Members ◽  
Term Care ◽  
People With Dementia

Objectives This paper aims to confirm the content validity of the domains identified during the development of the Alzheimer’s disease – five dimensions (AD-5D) algorithm for the quality of life – Alzheimer’s disease (QOL-AD) and to identify the rationale for stated quality of life preferences. Methods Focus groups were conducted to elicit the priorities for quality of life in dementia from three perspectives: the person with dementia; family caregivers; and the community. Participants were recruited through industry research partners (long-term care providers) based on knowledge of their experience with dementia. Three focus groups were conducted – one each in Brisbane, Sydney and Adelaide, Australia – between November 2016 and February 2017. Each focus group included participants providing a different perspective on dementia – people with dementia ( n = 3), caregivers ( n = 9) and general community members or relatives of residents of a long-term care facility ( n = 10), although some groups contained one participant with a different perspective. The focus groups were used to validate the AD-5D domains and examine quality of life preferences across the three perspectives. Thematic analysis was used to identify the priorities underlying preference selection. Results All activities affecting the quality of life for people with dementia could be mapped to one of the five AD-5D domains: memory, mood, physical health, living situation and ability to do things for fun. The domains considered most important for quality of life differed between people with dementia, their caregivers and members of the community, with memory the least important domain for all three groups. The rationale for priorities also varied between groups. Conclusions This study confirmed the content validity of the selection of the AD-5D domains and identified multiple differences in the reasons behind stated priorities for quality of life for people with dementia, their caregivers and community members.

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