Transplante de órgãos e tecidos: aspectos históricos, ético-legais, emocionais e repercussão na qualidade de vida

2009 ◽  
Vol 3 (4) ◽  
pp. 1192
Author(s):  
Patrícia Madruga Rêgo Barros ◽  
Ednaldo Cavalcante de Araújo ◽  
Luciane Soares de Lima
Keyword(s):  
Quality Of Life ◽  
Renal Transplantation ◽  
Chronic Disease ◽  
Exploratory Study ◽  
Technological Development ◽  
Life Quality ◽  
Scientific Production ◽  
Social Aspects ◽  
Dialysis Treatment

Objective: to present the scientific production on quality of life, some historical, ethical, legal and emotional involving the transplantation of organs and tissues. Methods: this is a descriptive and exploratory study that it was sought in Medline, Scielo and Lilacs, involving adults, to search using the following descriptors depression, quality of life, transplantation of kidney and chronic disease as well as consultation on text books and articles cited in the references obtained in the review. Results: the scientific production presented had two relevant aspects: the significant technological and evolution and policies concerned with the transplantation of organs and tissues in Brazil and the evidence of an insignificant value people give to emotional and social aspects in patient’s life quality. It was also observed a disproportional between the number of viable organs and the crescent waiting list, related to the failure in the notification of cases of cerebral deaths and to the failure in approaching the families to donate the organs of their family member. Conclusion: Despite the also technological development of dialysis treatment, renal transplantation has been described as the best option in order to provide better quality of life for chronic kidney patient. But it is valid to emphasize that, like any treatment, the transplant has implications that need to be clarified in order to avoid future frustrations and complications or emotional and psychological.  Descriptors: depression; quality of life; organ transplantation; chronic disease.

Applying Social Aspects in Home Telecare Design to Improve the Safety of Users and Quality of Service

2016 ◽  
pp. 1048-1072
Author(s):  
Lawrence Chidzambwa
Keyword(s):  
Quality Of Life ◽  
Patient Safety ◽  
Life Quality ◽  
Cost Effective ◽  
Medical Intervention ◽  
Social Dimension ◽  
Social Aspects ◽  
The Social ◽  
Solution Design

Telecare enables remote and cost-effective home treatment of patients, improving the safety and quality of life of frail individuals. However, despite increased availability of telecare devices, many are not fully used and often ignored due to poor social perception and experience. The research suggests the social aspects of quality and safety related to user experience have not been considered. This can lead to misuse or non-use of telecare devices, reducing patient safety and quality of life. This chapter explores the implications for the lack of social considerations in telecare and develops a series of models and methodologies to integrate the social dimension with the traditional medical intervention focus. By applying semiotics and normative behavioural theory, the authors show how a Normative Home Telecare Framework can improve telecare solution design and ensure take up and use of the devices and increase patient safety and life quality.

scholarly journals Usage of an Exercise App in the Care for People With Osteoarthritis: User-Driven Exploratory Study (Preprint)

2017 ◽  
Author(s):  
Dorthe Boe Danbjørg ◽  
Allan Villadsen ◽  
Ester Gill ◽  
Mette Juel Rothmann ◽  
Jane Clemensen
Keyword(s):  
Quality Of Life ◽  
Focus Groups ◽  
Exploratory Study ◽  
Participatory Design ◽  
Research Process ◽  
Social Aspects ◽  
Process Data ◽  
Physical Barriers

BACKGROUND Exercise has proven to reduce pain and increase quality of life among people living with osteoarthritis (OA). However, one major challenge is adherence to exercise once supervision ends. OBJECTIVE This study aimed to identify mental and physical barriers and motivational and social aspects of training at home, and to test or further develop an exercise app. METHODS The study was inspired from participatory design, engaging users in the research process. Data were collected through focus groups and workshops, and analyzed by systematic text condensation. RESULTS Three main themes were found: competition as motivation, training together, and barriers. The results revealed that the participants wanted to do their training and had knowledge on exercise and pain but found it hard to motivate themselves. They missed the observation, comments, and encouragement by the supervising physiotherapist as well as their peers. Ways to optimize the training app were identified during the workshops as participants shared their experience. CONCLUSIONS This study concludes that the long-term continuation of exercising for patients with OA could be improved with the use of a technology tailored to users’ needs, including motivational and other behavioral factors.

Applying Social Aspects in Home Telecare Design to Improve the Safety of Users and Quality of Service

2014 ◽  
pp. 250-274
Author(s):  
Lawrence Chidzambwa
Keyword(s):  
Quality Of Life ◽  
Patient Safety ◽  
Life Quality ◽  
Cost Effective ◽  
Medical Intervention ◽  
Social Dimension ◽  
Social Aspects ◽  
The Social ◽  
Solution Design

Telecare enables remote and cost-effective home treatment of patients, improving the safety and quality of life of frail individuals. However, despite increased availability of telecare devices, many are not fully used and often ignored due to poor social perception and experience. The research suggests the social aspects of quality and safety related to user experience have not been considered. This can lead to misuse or non-use of telecare devices, reducing patient safety and quality of life. This chapter explores the implications for the lack of social considerations in telecare and develops a series of models and methodologies to integrate the social dimension with the traditional medical intervention focus. By applying semiotics and normative behavioural theory, the authors show how a Normative Home Telecare Framework can improve telecare solution design and ensure take up and use of the devices and increase patient safety and life quality.

Quality of life of patients with Sjogren’s disease with ongoing therapy with diseasemodifying antirheumatic drugs

2020 ◽  
pp. 33-38
Author(s):  
E. Yu. Gan ◽  
L. P. Evstigneeva
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Life Quality ◽  
Well Being ◽  
Disease Modifying Antirheumatic Drugs ◽  
Antirheumatic Drugs ◽  
Sf 36 ◽  
Disease Modifying ◽  
Sjögren’S Disease

Purpose of the study. Assessing the association between the life quality of patients with Sjogren’s Disease and ongoing therapy with various disease-modifying antirheumatic drugs.Material and methods. The study was conducted on the basis of the regional rheumatology center of the consultative diagnostic clinic of the Sverdlovsk Regional Clinical Hospital No. 1. This work is based on the results of a simultaneous study of 74 patients with primary Sjogren’s Disease (SD), distributed in three comparison groups receiving various disease-modifying antirheumatic drugs chlorambucil, methotrexate and hydroxychloroquine. The diagnosis of SD was carried out according to European-American criteria AECGC (2002) [18]. In order to analyze the quality of life of patients with SD, the 36-Item Short Form Health Survey (SF‑36) was used. Statistical data processing was carried out using Statistica 7.0 program.Results. Assessment of the quality of life of patients with SD, which is an integrative criterion of human health and well-being, revealed the absence of statistically significant differences (p > 0.05) on eight scales and two health components of the SF‑36 questionnaire in the analyzed groups that differ in the treatment of disease-modifying antirheumatic drugs chlorambucil, methotrexate and hydroxychloroquine.Conclusions. The obtained data indicate an equivalent quality of life in SD patients treated with different disease-modifying antirheumatic drugs methotrexate, chlorambucil and hydroxychloroquine, and therefore hydroxychloroquine can be considered as an alternative basic therapy in patients with SD with certain limitations and contraindications methotrexate and chlorambucil.

QUALITY OF LIFE PROBLEMS OF GYNECOLOGICAL CANCER PATIENTS

2017 ◽  
Vol 63 (3) ◽  
pp. 368-374
Author(s):  
Olga Churuksaeva ◽  
Larisa Kolomiets
Keyword(s):  
Quality Of Life ◽  
Gynecological Cancer ◽  
Social Aspects ◽  
Cancer Data ◽  
Life Problems ◽  
Anticancer Treatment ◽  
Short And Long Term ◽  
The Relationship

Due to improvements in short- and long-term clinical outcomes a study of quality of life is one of the most promising trends in oncology today. This review analyzes the published literature on problems dealing with quality of life of patients with gynecological cancer. Data on quality of life with respect to the extent of anticancer treatment as well as psychological and social aspects are presented. The relationship between quality of life and survival has been estimated.

Health related quality of life of rosacea patients in China assessed by DLQI and willingness to pay: Cross-Sectional Questionnaire Study (Preprint)

2020 ◽  
Author(s):  
Yaqun Huang ◽  
Sha Yan ◽  
Hongfu Xie ◽  
Ben Wang ◽  
Zhixiang Zhao ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Willingness To Pay ◽  
Disease Duration ◽  
Life Quality ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

BACKGROUND Rosacea is a chronic inflammatory dermatosis with facial skin involved, leading to physical and emotional problems, which greatly affected quality of life (QoL) of patients. Dermatology Life Quality Index (DLQI) and willingness to pay (WTP) are well-established instruments assessing the health-related quality of life (HRQoL), while very few studies have been focused on this topic about rosacea in China. OBJECTIVE To investigate HRQoL in Chinese rosacea patients assessed by DLQI and WTP and investigate potential predictors for patients with HRQoL severely affected. METHODS This cross-sectional study was conducted on 973 patients with rosacea. Sociodemographic data, clinical features and DLQI were collected, and WTP was assessed by three standardized items. Multivariable logistic analysis was performed to investigate independent factors influencing QoL. RESULTS 921 questionnaires were accomplished by participants. The mean DLQI score was 11.6 (median 11). Patients were willing to pay an average of $1050.2 or € 896.2 (median $431.4 or € 368.1) for complete cure. 33.3% would like to pay more than 20% of their monthly income to achieve sustainable control. There were positive correlations between WTP with DLQI (P < .05). DLQI could be independently impacted by age (21-30 and 31-40, OR = 3.242 and 3.617, respectively), the occupational requirement of appearance (high, OR = 4.410), disease duration (< 2 years, OR = 1.582), oedema (OR = 1.844) and severity of flushing, burning, stinging and pruritus (severe, OR = 2.003, 1.981, 2.491, 2.249, respectively). There were no significant associations between WTP and most of the clinical factors. CONCLUSIONS The QoL was negatively affected and should not be ignored among rosacea patients in China. Patients aged 21-40y, having occupational requirement of appearance, with the disease duration less than 2 years, and suffering severe flushing and related symptoms were more likely to have severe or very severe limitation of QoL.

scholarly journals Economic assessment of a community-based care package for people with lower limb disorder caused by lymphatic filariasis, podoconiosis and leprosy in Ethiopia

2020 ◽  
Vol 114 (12) ◽  
pp. 1021-1034
Author(s):  
Natalia Hounsome ◽  
Mersha Kinfe ◽  
Maya Semrau ◽  
Oumer Ali ◽  
Abraham Tesfaye ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lymphatic Filariasis ◽  
Lower Limb ◽  
Life Quality ◽  
Psychosocial Care ◽  
Northwest Ethiopia ◽  
World Health ◽  
Care Package ◽  
The Cost

Abstract We conducted an implementation research study to integrate a holistic package of physical health, mental health and psychosocial care for podoconiosis, lymphatic filariasis and leprosy into routine healthcare in Gusha cluster, Guagusa Shikudad district, northwest Ethiopia. The healthcare package included training patients in lower limb hygiene and skin care and provision of shoes, hygiene supplies and medication. The implementation activities included training events, workshops, awareness raising, self-help groups, supportive supervision, staff secondments and advisory board meetings. The cost of implementing the care package in Gusha cluster, with a population of 30 558 people, was 802 655 Ethiopian birr (ETB) (£48 159) and the cost of delivering care to 235 participants was 204 388 ETB (£12 263), or 870 ETB (£52) per person. There was a 35% decrease in the mean disability scores (measured using the World Health Organization Disability Assessment Schedule 2.0) and a 45% improvement in the dermatology-specific quality of life (measured using the Dermatology Life Quality Index) at the 3-month follow-up compared with baseline. There were reductions in the number of days with symptoms, days off usual activities/work and days with reduced activity due to illness, all of which were statistically significant. Our pilot suggests that integration of the care package into routine healthcare in Ethiopia may be effective in improving health-related quality of life and disability and reducing time out of economic activity due to illness.

scholarly journals Pain Assessment: Benefits of Using Pain Scales for Surgical Patients in South Bohemian Hospitals

Healthcare ◽  
2021 ◽  
Vol 9 (2) ◽  
pp. 171
Author(s):  
Vera Olisarova ◽  
Valerie Tothova ◽  
Martin Cerveny ◽  
Vendula Dvorakova ◽  
Petr Sadilek
Keyword(s):  
Quality Of Life ◽  
Pain Management ◽  
Pain Assessment ◽  
Exploratory Study ◽  
Surgical Patients ◽  
The South ◽  
Pain Scales ◽  
Emotional Component ◽  
Attention To Pain

Pain is a medical and nursing problem that is common in surgical departments. Inadequate pain management can lead to patient distress, as well as extending the period in which the patient’s quality of life is reduced. The standardized SF-MPQ-2 questionnaire provides nurses with the opportunity to assess pain within a broader context. The aim of this descriptive and exploratory study was to describe the state of pain assessment in surgical patients in the South Bohemian Region and to highlight the benefits of using a standardized tool for proper pain assessment. The research was carried out using a quantitative survey within the South Bohemian Region (Czech Republic). The participants in the study were nurses working in surgical departments in hospitals in the region as well as hospitalized patients. The results show that nurses pay slightly more attention to pain assessments than doctors. We know that, generally, pain decreases with time after surgery. Nonetheless, returning pain, as well as continuous pain, can occur, both of which have an emotional component. The results of this study are directed at nurses and include a call for more effective pain management through improved assessment.

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