scholarly journals Patients� Participation in Health Research: A Classification of Cooperation Schemes (Preprint)

2017 ◽  
Author(s):  
Olivier Las Vergnas
Keyword(s):  
Patient Involvement ◽  
Community Based Participatory Research ◽  
Chronic Fatigue ◽  
Experimental Medicine ◽  
Evidence Based ◽  
Community Based ◽  
Fatigue Syndrome ◽  
High Level ◽  
Based Medicine

BACKGROUND The number of academic papers referring to patient engagement or to related terms has been rising sharply for at least 20 years; several review articles have recently been published enumerating a wide variety of situations of patient involvement in research and partnership with health professionals. OBJECTIVE As no standardized keywords and no shared classifications exist to facilitate comparative studies of situations where patients and their organizations are recognized as coresearchers, this paper purports to create a typology to analyze those situations. METHODS Based on 8 already existing meta-reviews or related studies, this work is achieved using a template based on Claude Bernard’s conceptualization about experimental medicine. RESULTS This typology allows differentiating between modes of involvement and levels of patients reflexivity mobilized in evidence-based medicine (EBM) trials. Screening through a first set of various meta-reviews using this typology shows that a high level of reflexivity is seldom observed and seen only when a patient organization (PO) is involved in the process. This suggests that such an organization can play several roles essential to high reflexivity trials; the PO is capable not only of grouping singular approaches but also of synchronizing and correlating them. However, as nowadays health researchers and POs give more attention to syndromes or troubles for which EBM clinical trials are not relevant due to lack of biomedical indicators (eg, fibromyalgia, chronic fatigue syndrome, or psychiatric disorders), a supplementary mediation category is added to take into account action-research, community-based participatory research, and grounded theories. CONCLUSIONS With this new category, this typology should be able to classify most of the cooperation schemes and thus be a useful tool for the next systematic reviews.

scholarly journals Management of chronic fatigue syndrome in children

2000 ◽  
Vol 6 (2) ◽  
pp. 145-152 ◽  
Author(s):  
Barry Wright ◽  
Ian Partridge ◽  
Christine Williams
Keyword(s):  
Mental Health ◽  
Chronic Fatigue Syndrome ◽  
Evidence Based Medicine ◽  
Chronic Fatigue ◽  
The Internet ◽  
Evidence Based ◽  
Fatigue Syndrome ◽  
Self Help ◽  
Self Help Groups ◽  
Based Medicine

Certain areas of child and adolescent mental health generate a degree of polarised debate, both within and outside the profession. Media attention, the development of self-help groups and the Internet lead to the publishing of papers and opinion, which exist alongside peer-reviewed research and evidence-based medicine. Parents reading such material may find it hard to know what advice is best. One area that falls into this category is chronic fatigue syndrome (CFS).

Prevalence of Pediatric Chronic Fatigue Syndrome in a Community-Based Sample

2006 ◽  
Vol 13 (2-3) ◽  
pp. 75-78 ◽  
Author(s):  
Karen M. Jordan ◽  
Cheng-Fang Huang ◽  
Leonard A. Jason ◽  
Judith Richman ◽  
Cynthia J. Mears ◽  
...  
Keyword(s):  
Chronic Fatigue Syndrome ◽  
Chronic Fatigue ◽  
Community Based ◽  
Fatigue Syndrome

scholarly journals Introduction to the History and Current Status of Evidence-Based Korean Medicine: A Unique Integrated System of Allopathic and Holistic Medicine

2014 ◽  
Vol 2014 ◽  
pp. 1-6 ◽  
Author(s):  
Chang Shik Yin ◽  
Seong-Gyu Ko
Keyword(s):  
Evidence Based Medicine ◽  
Holistic Medicine ◽  
National Standard ◽  
Evidence Based ◽  
Korean Medicine ◽  
Classification Of Diseases ◽  
Recent Developments ◽  
Standard Classification ◽  
Based Medicine

Objectives. Korean medicine, an integrated allopathic and traditional medicine, has developed unique characteristics and has been active in contributing to evidence-based medicine. Recent developments in Korean medicine have not been as well disseminated as traditional Chinese medicine. This introduction to recent developments in Korean medicine will draw attention to, and facilitate, the advancement of evidence-based complementary alternative medicine (CAM).Methods and Results. The history of and recent developments in Korean medicine as evidence-based medicine are explored through discussions on the development of a national standard classification of diseases and study reports, ranging from basic research to newly developed clinical therapies. A national standard classification of diseases has been developed and revised serially into an integrated classification of Western allopathic and traditional holistic medicine disease entities. Standard disease classifications offer a starting point for the reliable gathering of evidence and provide a representative example of the unique status of evidence-based Korean medicine as an integration of Western allopathic medicine and traditional holistic medicine.Conclusions. Recent developments in evidence-based Korean medicine show a unique development in evidence-based medicine, adopting both Western allopathic and holistic traditional medicine. It is expected that Korean medicine will continue to be an important contributor to evidence-based medicine, encompassing conventional and complementary approaches.

scholarly journals Chronic Fatigue Syndrome & Other Difficulties: Introducing a Modern Scientific Controversy to a Biology Classroom

2019 ◽  
Vol 81 (6) ◽  
pp. 387-394
Author(s):  
Jun Liang ◽  
Igor V. Zaitsev
Keyword(s):  
Chronic Fatigue Syndrome ◽  
Modern Science ◽  
Chronic Fatigue ◽  
Thinking Skills ◽  
Critical Thinking Skills ◽  
Scientific Controversy ◽  
Fatigue Syndrome ◽  
High Level ◽  
Applied Knowledge

One of the most perplexing dilemmas in modern science is chronic fatigue syndrome (CFS). Even though the illness was recognized at the beginning of the 20th century, the pathogenicity and etiology of the disease remain unknown. We describe an open-inquiry case study on CFS that we have used in our biology classrooms to increase students' critical-thinking skills and understanding of scientific method. Three general categories of potential pathogens – virus, vaccine, and microbiome – are discussed during multiple classroom sessions. We found that our students were more proactive than expected. They researched credible references from the most recent publications and formulated arguments on the medical issue. They applied knowledge of human body systems to explain the complexity of the disease. Students were capable of distinguishing “correlation” and “cause” relations between the disease and pathogens. We observed a high level of student participation and involvement, which not only increased their knowledge of scientific approaches but also strengthened their interaction and communication skills. The case study is suitable for biology courses in both high school and college.

scholarly journals Implementation of stepped care for patients with chronic fatigue syndrome in community-based mental health care: outcomes at post-treatment and long-term follow-up

2019 ◽  
Vol 47 (5) ◽  
pp. 548-558 ◽  
Author(s):  
Anthonie Janse ◽  
Arno van Dam ◽  
Coby Pijpers ◽  
Jan F. Wiborg ◽  
Gijs Bleijenberg ◽  
...  
Keyword(s):  
Mental Health ◽  
Chronic Fatigue ◽  
Post Treatment ◽  
Stepped Care ◽  
Community Based ◽  
Fatigue Syndrome ◽  
Specialist Centre ◽  
Long Term Follow Up

AbstractBackground:Cognitive behavioural therapy (CBT) is an evidence-based treatment for chronic fatigue syndrome (CFS). Stepped care for CFS, consisting of a minimal intervention followed by face-to-face CBT, was found efficacious when tested in a CFS specialist centre. Stepped care implemented in a community-based mental health centre (MHC) has not yet been evaluated.Aims:(1) To test the effectiveness of stepped care for CFS implemented in a MHC at post-treatment and at long-term follow-up; and (2) compare post-treatment outcomes of implemented stepped care with treatment outcomes of a CFS specialist centre.Method:An uncontrolled study was used to test effectiveness of stepped care implemented in a MHC (n = 123). The outcomes of implemented care were compared with the outcomes of specialist care reported in previous studies (n = 583). Data on outcomes from implemented stepped care were gathered at post-treatment and at long-term follow-up. Mixed models were used as method of analysis.Results:Fatigue decreased and physical functioning increased significantly following implemented stepped care (both p < .001). The follow-up was completed by 94 patients (78%) within 1–6 years after treatment. Treatment effects were sustained to follow-up. Patients in the MHC showed less improvement directly following stepped care compared with patients in a CFS specialist centre (p < .01).Conclusion:Implemented stepped care for CFS is effective with sustained treatment gains at long-term follow-up. There is room for improvement when compared with outcomes of a CFS specialist centre. Some suggestions are made on how to improve stepped care.

scholarly journals Structural brain changes versus self-report: machine-learning classification of chronic fatigue syndrome patients

2018 ◽  
Vol 236 (8) ◽  
pp. 2245-2253 ◽  
Author(s):  
Landrew S. Sevel ◽  
Jeff Boissoneault ◽  
Janelle E. Letzen ◽  
Michael E. Robinson ◽  
Roland Staud
Keyword(s):  
Machine Learning ◽  
Chronic Fatigue Syndrome ◽  
Chronic Fatigue ◽  
Self Report ◽  
Machine Learning Classification ◽  
Fatigue Syndrome ◽  
Brain Changes ◽  
Structural Brain

Communities that Care

2018 ◽  
Author(s):  
Abigail A. Fagan ◽  
J. David Hawkins ◽  
David P. Farrington ◽  
Richard F. Catalano
Keyword(s):  
Behavior Problems ◽  
Youth Development ◽  
Community Based Participatory Research ◽  
Positive Interactions ◽  
Evidence Based ◽  
Community Based ◽  
Youth Behavior ◽  
Communities That Care ◽  
Prevention System ◽  
Effective Community

Evidence-based, prevention-oriented, and community-driven approaches are advocated to improve public health and reduce youth behavior problems, but there are few effective models for doing so. This book advances knowledge about this topic by describing the conditions and actions necessary for effective community-based prevention. The chapters review the ways in which communities can promote readiness to engage in prevention among local stakeholders; build and maintain diverse, well-functioning prevention coalitions; conduct local needs and resource assessments; collectively decide on prevention priorities; select evidence-based interventions that are a good fit with prioritized community needs, resources, and context; and implement evidence-based interventions (EBIs) with fidelity and sustain them over time. The Communities That Care (CTC) prevention system is described in detail to illustrate effective community-based prevention. CTC is a coalition-based prevention system shown to promote healthy youth development and reduce youth behavior problems community wide. It does so by assisting communities to: (1) increase awareness of and support for EBIs; (2) encourage positive interactions between community residents and youth; (3) conduct local needs assessments and collectively decide on priorities to target with EBIs; (4) implement EBIs that are matched to prioritized needs; and (5) ensure that EBIs are coordinated across community organizations, implemented with fidelity, widely disseminated, and evaluated. The book describes the development and evaluation of the CTC system, including how its developers used community-based participatory research to ensure that CTC could be feasibly implemented and employed rigorous research methods to assess the degree to which use of the system reduced adolescent behavior problems.

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