scholarly journals Management of chronic fatigue syndrome in children

2000 ◽  
Vol 6 (2) ◽  
pp. 145-152 ◽  
Author(s):  
Barry Wright ◽  
Ian Partridge ◽  
Christine Williams

Certain areas of child and adolescent mental health generate a degree of polarised debate, both within and outside the profession. Media attention, the development of self-help groups and the Internet lead to the publishing of papers and opinion, which exist alongside peer-reviewed research and evidence-based medicine. Parents reading such material may find it hard to know what advice is best. One area that falls into this category is chronic fatigue syndrome (CFS).

2002 ◽  
Vol 36 (2) ◽  
pp. 240-245 ◽  
Author(s):  
Stephen R Kisely

Objective: To evaluate the type, quality, and focus of patient information on the treatment of chronic fatigue syndrome on the Internet using simple search techniques. Design: The search phrase ‘chronic fatigue syndrome’ was entered into nine common Internet search engines. The 25 most highly ranked pages identified by each of the nine search engines were analysed using a standardized pro forma. The following outcome measures were used: balance of content, consistency of content with evidence-based practice, declared authorship with credentials, information sources including the presence of references, the declaration of any potential conflict of interest, and the need to clarify information with an appropriate health professional. Results: Two hundred and twenty-five websites were reviewed during a 2-week period in September 2000. A further 15 sites (6.3%) were inaccessible. Agreement between websites and systematic reviews of treatment for chronic fatigue syndrome ranged from 4 to 68%, the greatest agreement being for recommendations for graded exercise and the avoidance of prolonged rest. Most sites (64%) had a named author. Only a quarter to a third contained a declaration of interest, advised readers to clarify information with an appropriate health professional, or avoided inaccurate statements. Conclusions: The Internet contains a great deal of information on chronic fatigue syndrome that is neither balanced nor consistent with evidence-based practice. Doctors individually, and as a profession, should provide guidance on which Internet sites to trust.


Trials ◽  
2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Emma Anderson ◽  
Daisy Gaunt ◽  
Chris Metcalfe ◽  
Manmita Rai ◽  
William Hollingworth ◽  
...  

Abstract The FITNET-NHS Trial is a UK, national, trial investigating whether an online cognitive behavioural therapy program (FITNET-NHS) for treating chronic fatigue syndrome/ME in adolescents is clinically effective and cost-effective in the NHS. At the time of writing (September 2019), the trial was recruiting participants. This article presents an update to the planned sample size and data collection duration previously published within the trial protocol. Trial registration ISRCTN, ID: 18020851. Registered 8 April 2016.


2004 ◽  
Vol 28 (8) ◽  
pp. 277-278
Author(s):  
Frank Holloway

In an era of evidence-based medicine, policy-makers and researchers are preoccupied by the task of ensuring that advances in research are implemented in routine clinical practice. This preoccupation has spawned a small but growing research industry of its own, with the development of resources such as the Cochrane Collaboration database and journals such as Evidence-Based Mental Health. In this paper, I adopt a philosophically quite unfashionable methodology – introspection – to address the question: how has research affected my practice?


2001 ◽  
Vol 6 (1) ◽  
pp. 54-55
Author(s):  
U. Andrich

2011 ◽  
pp. 404-413
Author(s):  
Jane Moon

There has been an explosion in the number of different types of portals in the last decade, and at the same time there has been a lot of confusion with them, especially in relation to the enormous number of portals and their differences from Web sites or Web-pages. This coincides with increased use by consumers seeking medical information on the Internet, and with the important role played by medical portals for evidence based medicine. This article explores current portal technology available from an evaluation of market leaders in the industry and identifies important functional components that are necessary in building an intelligent portal to assist users seeking information on the Internet. The emphasis will be on government to consumer portals (G2C) and uses two reputable government portals Betterhealth and Healthinsite as examples to discuss issues involved with those.


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