Awareness of Preconception Care for Women with Type 1 Diabetes—From Family Members' Perspective

Diabetes ◽  
2018 ◽  
Vol 67 (Supplement 1) ◽  
pp. 1301-P
Author(s):  
CHAOFAN WANG ◽  
SIHUI LUO ◽  
XUEYING ZHENG ◽  
XILING HU ◽  
JINHUA YAN ◽  
...  
2012 ◽  
Vol 28 (12) ◽  
pp. 1006-1009 ◽  
Author(s):  
K. Sapiano ◽  
C. Savona-Ventura ◽  
J. Calleja-Agius ◽  
A. Serracino-Inglott ◽  
Lilian M. Azzopardi

2016 ◽  
Vol 13 (1-3) ◽  
pp. 43-48 ◽  
Author(s):  
Ana Cristina Paiva ◽  
João Raposo ◽  
Angus Forbes

2020 ◽  
Vol 46 (6) ◽  
pp. 552-558
Author(s):  
Jodi Krall ◽  
Vicki S. Helgeson ◽  
Eunjin Lee Tracy ◽  
MaryJane S. Campbell ◽  
Mary Korytkowski ◽  
...  

Purpose The purpose of this study was to examine parents’ perceptions of the role children play in their type 1 diabetes (T1DM) care. Family members are a resource to support T1DM self-management, but how children are involved in their parents’ diabetes has not been well explored. Methods Parents with T1DM (n = 85) and a subset of their romantic partners (n = 55) participated in interviews during which they described their children’s knowledge of and involvement in diabetes care. Interviews were transcribed, responses coded/tallied, and themes identified. Results All parents reported that children knew of their diabetes, which they learned about progressively from a young age. Most parents reported children to be accepting and understanding of the ways that diabetes affected their family experiences (eg, pause to treat low blood glucose). When asked about specific support, parents rated “making parent feel better about diabetes” as the most frequently occurring behavior. Some parents felt that children, particularly younger ones, occasionally detracted from T1DM management, but this was usually expected and considered transient. Regardless of child age, many parents did not want diabetes to burden children and limited their involvement. Both parents with T1DM and partners requested resources to enhance child awareness and preparedness to support diabetes. Respondents, particularly partners, were also interested in learning how to communicate better as a family and share perspectives on how diabetes affects individual family members. Conclusions Diabetes care and education specialists should consider developmentally and relationally appropriate ways to engage children of parents with T1DM in education and self-management.


2016 ◽  
Vol 10 (4) ◽  
pp. 824-830 ◽  
Author(s):  
Katharine Barnard ◽  
Vincent Crabtree ◽  
Peter Adolfsson ◽  
Melanie Davies ◽  
David Kerr ◽  
...  

2012 ◽  
Vol 36 (4) ◽  
pp. 170-174 ◽  
Author(s):  
Melissa Kallas-Koeman ◽  
Farah Khandwala ◽  
Lois E. Donovan

2013 ◽  
Vol 2013 ◽  
pp. 1-8 ◽  
Author(s):  
Tuula-Maria Rintala ◽  
Eija Paavilainen ◽  
Päivi Åstedt-Kurki

The aim of this study was to explore family members’ experiences of everyday life in families with adult people living with type 1 diabetes. The grounded theory method was used to gather and analyse data from the interviews of nineteen family members. Six concepts describing the family members’ views on everyday living with diabetes were generated on the basis of the data. Everyday life with diabetes is described as being intertwined with hypoglycemia. Becoming acquainted with diabetes takes place little by little. Being involved in the management and watching self-management from the sidelines are concepts describing family members’ participation in the daily management of diabetes. The family members are also integrating diabetes into everyday life. Living on an emotional roller-coaster tells about the thoughts and feelings that family members experience. Family members of adult people with diabetes are involved in the management of the diabetes in many ways and experience many concerns. The family members’ point of view is important to take into consideration when developing education for adults with diabetes.


2017 ◽  
Vol 19 (2) ◽  
pp. 305-313 ◽  
Author(s):  
Anna Parkkola ◽  
Taina Härkönen ◽  
Samppa J Ryhänen ◽  
Raivo Uibo ◽  
Jorma Ilonen ◽  
...  

2012 ◽  
Vol 3 (4) ◽  
pp. 239-246
Author(s):  
Catherine Aquino-Russell ◽  
Roger Russell ◽  
Allison Russell ◽  
Catrina Russell

“This is a life-changing experience for all of us. You have one child with diabetes and your whole family has diabetes” (Isenberger, 2009, p. 134). More than two million Canadians have diabetes; 10% live with type 1 diabetes, involving the pancreas not being able to produce insulin (Canadian Diabetes Association, 2009). The incidence of type 1 diabetes is greater than has previously been described (Karvonen et al, 2000). One longitudinal phenomenological study used interviews for data collection to uncover family members’ lived experiences when their children (aged 9-14) were diagnosed with type 1 diabetes (Wennick & Hallstrom, 2006, 2007; Wennick, Lundqvist, & Hallström, 2009). Interestingly, Balfe (2009) wrote, “young adults with type 1 diabetes are a “forgotten group” (p. 128). The purpose of our ongoing phenomenological research is to explore the experiences of young adults and their family members. We are having challenges recruiting potential participants (individuals and their family members) to write about and email their experiences living with or having a young adult member who lives with type 1 diabetes; however, we have one description of a lived experience written by a young adult which is so eloquent, that we wanted to share it with others. We have completed a Giorgi (2009; Giorgi & Giorgi, 2003) descriptive phenomenological analysis guided by the humanbecoming theory for nurses (Parse, 1998) and have related the findings to the literature. This paper includes a moving metaphorical illustration about what it is like for one young adult to live with type 1 diabetes. 


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