scholarly journals The spasticity-related quality of life 6-dimensions instrument in upper-limb spasticity: A first psychometric evaluation

2021 ◽  
Author(s):  
Lynne Turner-Stokes ◽  
Klemens Fheodoroff ◽  
Jorge Jacinto ◽  
Jeremy Lambert ◽  
Christine De La Loge ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Upper Limb ◽  
Psychometric Evaluation ◽  
Clinical Severity ◽  
Retest Reliability ◽  
Related Quality ◽  
Limb Spasticity ◽  
Test Retest Reliability ◽  
Prospective Longitudinal

Objective: Psychometric evaluation of the Spasticity-related Quality of Life 6-Dimensions instrument (SQoL-6D). Design: A clinimetric evaluation conducted in a multicentre, prospective, longitudinal cohort study at 8 UK sites. Patients: Adult patients (n=104) undergoing focal treatment of upper-limb spasticity. Methods: The SQoL-6D was administered in the clinic at enrolment and at 8 weeks, then 1–4 days later at home to assess test-retest reliability. Results: The SQoL-6D demonstrated adequate construct validity and unidimensionality of the scale, allowing the calculation of a Total score. Cronbach’s alpha (0.74) supported the internal consistency reliability, while the intraclass correlation coefficient supported test-retest reliability (0.82). Correlation coefficients with established instruments supported convergent validity, while significant differences between known-groups (of differing clinical severity) in SQoL-6D Total score confirmed its sensitivity to both cross-sectional and longitudinal differences. Conclusion: The SQoL-6D is a promising new measure to assess health status for patients with upper-limb spasticity of any aetiology. Further investigation and exploration of the allocation of weights to convert the SQoL-6D to a health-related quality of life utility index, are required.

scholarly journals The spasticity-related quality of life 6-dimensions instrument in upper-limb spasticity: Development and responsiveness

2021 ◽  
Author(s):  
Lynne Turner-Stokes ◽  
Klemens Fheodoroff ◽  
Jorge Jacinto ◽  
Jeremy Lambert ◽  
Christine De La Loge ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Upper Limb ◽  
Goal Attainment ◽  
Psychometric Evaluation ◽  
Related Quality ◽  
Limb Spasticity ◽  
Prospective Longitudinal ◽  
The Impact

Objective: To describe the development of the Spasticity-related Quality of Life 6-Dimensions instrument (SQoL-6D) and its sensitivity to clinical change (responsiveness). Design: Multicentre, prospective, longitudinal cohort study at 8 UK sites (NCT03442660). Patients: Adults (n = 104) undergoing focal treatment of upper limb spasticity. Methods: No condition-specific health-related quality of life tool is available for upper-limb spasticity of any aetiology. The SQoL-6D was developed to fulfil this need, designed to complement the Upper Limb Spasticity Index (which incorporates the Goal Attainment Scaling evaluation of upper limb spasticity [GASeous] tool) with targeted standardized measures. The 6 dimensions of the SQoL-6D (score range 0–4) map onto common treatment goal areas identified in upper-limb spasticity studies. A Total score (0–100) provides overall spasticity-related health status. To assess responsiveness, the SQoL-6D, Global Assessment of Benefit scale and ”GASeous” were administered at enrolment and 8 weeks. Results: Significant differences in mean SQoL-6D Total score change and effect sizes across patients rating ”some benefit” (0.51) and ”great benefit” (0.88) supported responsiveness. Conclusion: The SQoL-6D is a promising new measure of health status in upper limb spasticity, that enables systematic assessment of the impact of this condition in relation to patients’ priority treatment goals. A psychometric evaluation of SQoL-6D is presented separately.

The spasticity-related quality of life 6-dimensions tool (SQoL-6D) in upper limb spasticity: A first psychometric evaluation

Toxicon ◽  
2021 ◽  
Vol 190 ◽  
pp. S73-S74
Author(s):  
Lynne Turner-Stokes ◽  
Klemens Fheodoroff ◽  
Jorge Jacinto ◽  
Jeremy Lambert ◽  
Christine de la Loge ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Upper Limb ◽  
Psychometric Evaluation ◽  
Related Quality ◽  
Limb Spasticity

Test–retest reliability of the Swedish version of the Orthotics and Prosthetics Users’ Survey

2013 ◽  
Vol 38 (1) ◽  
pp. 21-26 ◽  
Author(s):  
Gustav Jarl ◽  
Marie Holmefur ◽  
Liselotte MN Hermansson
Keyword(s):  
Quality Of Life ◽  
Functional Status ◽  
Client Satisfaction ◽  
Correlation Coefficients ◽  
Health Related Quality ◽  
Retest Reliability ◽  
Related Quality ◽  
Health Related ◽  
Test Retest Reliability

Background:The Orthotics and Prosthetics Users’ Survey consists of five modules to assess outcomes of orthotic and prosthetic interventions: lower extremity functional status, upper extremity functional status, client satisfaction with device, client satisfaction with services and health-related quality of life.Objectives:To investigate the test–retest reliability and calculate the smallest detectable difference for all modules of the Swedish Orthotics and Prosthetics Users’ Survey.Study design:Test–retest reliability study design.Methods:A total of 69 patients at a Department of Prosthetics and Orthotics completed Orthotics and Prosthetics Users’ Survey on two occasions separated by a 2-week interval, giving 18 answers on lower extremity functional status, 41 on upper extremity functional status, 53 on client satisfaction with device, 12 on client satisfaction with services and 67 answers on health-related quality of life. Raw scores were converted into Orthotics and Prosthetics Users’ Survey units on a 0–100 scale. Intra-class correlation coefficients, Bland–Altman plots, common person linking plots and t-tests of person mean measures were used to investigate the reliability. The 95% confidence level smallest detectable differences were calculated.Results:The intra-class correlation coefficients ranged from 0.77 to 0.96 for the modules, and no systematic differences were detected between the response occasions. The smallest detectable differences ranged from 7.4 to 16.6 units.Conclusions:The test–retest reliability was satisfactory for all Orthotics and Prosthetics Users’ Survey modules. The smallest detectable difference was large on all modules except the health-related quality of life module.Clinical relevanceThe Orthotics and Prosthetics Users’ Survey modules are reliable and, thus, can be recommended for repeated measurements of patients over time. Relatively large changes are needed to achieve statistical significance when assessing individual patients.

Measuring Patient-Reported Health-Related Quality of Life in Velopharyngeal Insufficiency: Reliability and Validity of the Brazilian Portuguese Version of the VELO Instrument

2019 ◽  
Vol 56 (9) ◽  
pp. 1195-1205 ◽  
Author(s):  
Rafael Denadai ◽  
Cassio Eduardo Raposo-Amaral ◽  
Anelise Sabbag ◽  
Rafael Andrade Ribeiro ◽  
Celso Luiz Buzzo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Construct Validity ◽  
Internal Consistency ◽  
Reliability And Validity ◽  
Brazilian Portuguese ◽  
Velopharyngeal Insufficiency ◽  
Retest Reliability ◽  
Related Quality ◽  
Test Retest Reliability

Objective: To test the Brazilian Portuguese velopharyngeal insufficiency (VPI) Effects on Life Outcome (VELO) instrument for reliability and validity. Design: Cross-sectional methodological study. Setting: Tertiary craniofacial medical center. Participants: Participants with VPI (VPI group, n = 60), with cleft and without VPI (no VPI/cleft group, n = 60), and with no cleft nor VPI (no VPI/no cleft group, n = 60) and their parents (n = 180). Interventions: All patients with VPI 8+ years old and their parents completed the Brazilian–Portuguese VELO instrument and other questionnaires (Pediatric Quality of Life Inventory4.0, PedsQL4.0; Pediatric Voice-Related Quality of Life, PVRQOL; and Intelligibility in Context Scale, ICS) at baseline; patients with VPI and their parents completed the VELO instrument again 2 weeks later. Main Outcome Measures: The VELO instrument was tested for internal consistency, test–retest reliability, discriminant validity (participants with VPI against participants with no VPI), concurrent validity against other questionnaires, criterion validity against hypernasality severity, and construct validity against nasal air emission and overall velopharyngeal competence (speech construct) and velopharyngeal gap (anatomic construct). Results: The VELO had excellent internal consistency (Cronbach α 0.99 for parents and 0.98 for participants with VPI) and test–retest reliability (all intraclass correlation coefficient > 0.87). The VELO discriminated well between VPI group and unaffected groups (all P < .05). The VELO was significantly correlated with the PedsQL4.0, PVRQOL, and ICS (– r > 0.75; P < .001). The VELO met criterion validity, speech construct validity, and anatomic construct validity ( r > 0.7; P < .001). Conclusions: The Brazilian-Portuguese VELO instrument demonstrated reliability (internal consistency and test–retest) and validity (discriminant, concurrent, criterion, and construct).

scholarly journals Cultural adaptation of the Polish version of the PAH-SYMPACT questionnaire (PL)

2021 ◽  
Author(s):  
Kathie Sarzyńska ◽  
Jacek Polański ◽  
Grzegorz Kopeć ◽  
Ewa Mroczek ◽  
Beata Jankowska-Polańska
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Clinical Status ◽  
Psychometric Evaluation ◽  
Well Being ◽  
World Health ◽  
Retest Reliability ◽  
Polish Version ◽  
Test Retest Reliability

Abstract Background: Pulmonary arterial hypertension (PAH) is a rare chronic disease that significantly affects patients' ability to perform daily activities, decreasing physical and mental well-being and social functioning. Symptoms of the disease increase as it progresses, leading to disability and death. In addition, the quality of life of patients deteriorates as the disease progresses and may reflect the effectiveness of the therapy used. Most questionnaires used in PAH clinical trials are generic quality-of-life (QoL) measures that may do not adequately reflect the clinical status and symptoms, changes in health status, or prognosis of patients with PAH. The purpose of this study was to translate and culturally adapt the Polish version of the PAH-SYMPACT questionnaire to reflect the severity of symptoms and their effects on patients’ daily functioning. Material and methods: The study included 55 patients with PAH treated, as part of a pulmonary hypertension treatment program in Poland. Validation of this questionnaire met the guidelines for translation and validation of questionnaires, which are set out in the document on the process of translation and adaptation of World Health Organization tools. Reliability was tested using a measure of internal consistency (Cronbach's α) and test-retest reliability. Correctness was confirmed using known group validity.Results: Moderate internal consistency (Cronbach's) was found for all questionnaire domains (cardiopulmonary symptoms α=0.706; cardiovascular symptoms α=0.806, physical effects α=0.904, psychological effects α=0.817) and test-retest reliability was satisfactory. The PAH-SYMPACT questionnaire (PL) met all validation criteria and can be used to assess quality of life in patients with PAH.Conclusion: Psychometric evaluation of the Polish version of the PAH-SYMPACT (PL) indicates that it is a reliable and valid measure tool to detect quality of life patients with PAH.

The Hearing Impairment Impact–Significant Other Profile (HII-SOP): A Tool to Measure Hearing Loss-Related Quality of Life in Spouses of People with Hearing Loss

2012 ◽  
Vol 23 (10) ◽  
pp. 807-823 ◽  
Author(s):  
Jill E. Preminger ◽  
Suzanne Meeks
Keyword(s):  
Quality Of Life ◽  
Hearing Loss ◽  
Internal Consistency ◽  
Internal Consistency Reliability ◽  
Third Party ◽  
Retest Reliability ◽  
Related Quality ◽  
Test Retest Reliability ◽  
The Impact

Background: Third-party hearing loss-related quality of life (HLQoL) reports measure the third-party disability as a result of communicating regularly with someone with hearing loss. Scales with known psychometric characteristics validated on a diverse subject population are needed in order to describe the activity limitations and participation restrictions experienced by spouses as a result of living with an individual with hearing loss. Purpose: The purpose of the present study was to develop a scale to measure third-party HLQoL in spouses of people with hearing loss with acceptable psychometric characteristics. This scale is known as the Hearing Impairment Impact–Significant Other Profile (HII-SOP). Research Design: In Study 1, the initial test items were developed and evaluated with a factor analysis for adequate construct validity. In Study 2, the internal consistency reliability, the validity, and the test-retest reliability of the revised test were evaluated. Study Sample: In Study 1, 120 people between 34 and 87 yr of age participated and in Study 2, 164 people between 23 and 88 yr of age participated. Data Collection and Analysis: In Study 1, a 41-item questionnaire was developed based on five content areas: physical adjustment, social activities, emotional reaction, intimate relationship, and change in roles. The scale was submitted to a factor analysis to analyze interrelationships among items, determine the underlying dimensions, and select items for the final scale. In Study 2, the internal consistency reliability, construct validity, and test-retest reliability were evaluated in the revised 20-item questionnaire. The internal-consistency reliability was measured using Cronbach's alpha. Validity was assessed by observing the correlations of the new scale with well-established scales measuring related constructs: overall health-related quality of life, marital communication, HLQoL, and negative affect, in both the person with hearing loss and the spouse. Test-retest reliability was measured in a subset of the spouses who completed the HII-SOP between 2 and 4 wk after the initial scale was completed. Results: The HII-SOP is a 20-item scale with three subscales which measure: (1) the emotions that arise when having a spouse with hearing loss as well as the impact of the hearing loss on the marital relationship, (2) the impact of the hearing loss on the social life of the spouse, and (3) the communication strategies used by the spouse. The scale and its subscales have adequate internal-consistency reliability suggesting that the 20 items do measure a single construct and the subscales do measure distinct subconstructs. The HII-SOP scale was significantly correlated with measures expected to relate to the construct of third-party disability associated with hearing loss. Finally, the HII-SOP scale has adequate test-retest reliability (r = 0.90) and the 95% critical differences is 19.7 points. Conclusions: The HII-SOP is a scale to measure third-party HLQoL in spouses of individuals with hearing loss. Scores of 20–39 reflect mild third-party disability, scores of 40–59 reflect moderate third-party disability, and scores >60 reflect severe third-party disability associated with hearing loss.

scholarly journals Cultural adaptation of the Polish version of the PAH-SYMPACT questionnaire (PL)

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
K Sarzynska ◽  
J Polanski ◽  
G Kopec ◽  
E Mroczek ◽  
B Jankowska-Polanska
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Clinical Status ◽  
Psychometric Evaluation ◽  
Well Being ◽  
World Health ◽  
Retest Reliability ◽  
Polish Version ◽  
Test Retest Reliability

Abstract Funding Acknowledgements Type of funding sources: None. Background Pulmonary arterial hypertension (PAH) is a rare chronic disease that significantly affects patients" ability to perform daily activities, decreasing physical and mental well-being and social functioning. Symptoms of the disease increase as it progresses, leading to disability and death. In addition, the quality of life of patients deteriorates as the disease progresses and may reflect the effectiveness of the therapy used. Most questionnaires used in PAH clinical trials are generic quality-of-life (QoL) measures that may do not adequately reflect the clinical status and symptoms, changes in health status, or prognosis of patients with PAH. Purpose The purpose of this study was to translate and culturally adapt the Polish version of the PAH-SYMPACT questionnaire to reflect the severity of symptoms and their effects on daily functioning. Material and methods The study included 55 patients with PAH treated, as part of a pulmonary hypertension treatment program in Poland. Patients were asked to complete the PAH-SYMPACT questionnaire. After about 2 weeks, a follow-up was carried out. Validation of this questionnaire met the guidelines for translation and validation of questionnaires, which are set out in the document on the process of translation and adaptation of World Health Organization tools.  Reliability was tested using a measure of internal consistency (Cronbach"s α) and test-retest reliability. Correctness was confirmed using known group validity. Results Moderate internal consistency (Cronbach"s) was found for all questionnaire domains (cardiopulmonary symptoms α=0.706; cardiovascular symptoms α=0.806, physical effects α=0.904, psychological effects α=0.817) and test-retest reliability was satisfactory. The PAH-SYMPACT questionnaire (PL) met all validation criteria and can be used to assess quality of life in patients with PAH. Conclusion Psychometric evaluation of the Polish version of the PAH-SYMPACT (PL) indicates that it is a reliable and valid measure tool to detect quality of life patients with PAH.

Sign in / Sign up

Export Citation Format

Share Document