scholarly journals The spasticity-related quality of life 6-dimensions instrument in upper-limb spasticity: Development and responsiveness

2021 ◽  
Author(s):  
Lynne Turner-Stokes ◽  
Klemens Fheodoroff ◽  
Jorge Jacinto ◽  
Jeremy Lambert ◽  
Christine De La Loge ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Upper Limb ◽  
Goal Attainment ◽  
Psychometric Evaluation ◽  
Related Quality ◽  
Limb Spasticity ◽  
Prospective Longitudinal ◽  
The Impact

Objective: To describe the development of the Spasticity-related Quality of Life 6-Dimensions instrument (SQoL-6D) and its sensitivity to clinical change (responsiveness). Design: Multicentre, prospective, longitudinal cohort study at 8 UK sites (NCT03442660). Patients: Adults (n = 104) undergoing focal treatment of upper limb spasticity. Methods: No condition-specific health-related quality of life tool is available for upper-limb spasticity of any aetiology. The SQoL-6D was developed to fulfil this need, designed to complement the Upper Limb Spasticity Index (which incorporates the Goal Attainment Scaling evaluation of upper limb spasticity [GASeous] tool) with targeted standardized measures. The 6 dimensions of the SQoL-6D (score range 0–4) map onto common treatment goal areas identified in upper-limb spasticity studies. A Total score (0–100) provides overall spasticity-related health status. To assess responsiveness, the SQoL-6D, Global Assessment of Benefit scale and ”GASeous” were administered at enrolment and 8 weeks. Results: Significant differences in mean SQoL-6D Total score change and effect sizes across patients rating ”some benefit” (0.51) and ”great benefit” (0.88) supported responsiveness. Conclusion: The SQoL-6D is a promising new measure of health status in upper limb spasticity, that enables systematic assessment of the impact of this condition in relation to patients’ priority treatment goals. A psychometric evaluation of SQoL-6D is presented separately.

scholarly journals The spasticity-related quality of life 6-dimensions instrument in upper-limb spasticity: A first psychometric evaluation

2021 ◽  
Author(s):  
Lynne Turner-Stokes ◽  
Klemens Fheodoroff ◽  
Jorge Jacinto ◽  
Jeremy Lambert ◽  
Christine De La Loge ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Upper Limb ◽  
Psychometric Evaluation ◽  
Clinical Severity ◽  
Retest Reliability ◽  
Related Quality ◽  
Limb Spasticity ◽  
Test Retest Reliability ◽  
Prospective Longitudinal

Objective: Psychometric evaluation of the Spasticity-related Quality of Life 6-Dimensions instrument (SQoL-6D). Design: A clinimetric evaluation conducted in a multicentre, prospective, longitudinal cohort study at 8 UK sites. Patients: Adult patients (n=104) undergoing focal treatment of upper-limb spasticity. Methods: The SQoL-6D was administered in the clinic at enrolment and at 8 weeks, then 1–4 days later at home to assess test-retest reliability. Results: The SQoL-6D demonstrated adequate construct validity and unidimensionality of the scale, allowing the calculation of a Total score. Cronbach’s alpha (0.74) supported the internal consistency reliability, while the intraclass correlation coefficient supported test-retest reliability (0.82). Correlation coefficients with established instruments supported convergent validity, while significant differences between known-groups (of differing clinical severity) in SQoL-6D Total score confirmed its sensitivity to both cross-sectional and longitudinal differences. Conclusion: The SQoL-6D is a promising new measure to assess health status for patients with upper-limb spasticity of any aetiology. Further investigation and exploration of the allocation of weights to convert the SQoL-6D to a health-related quality of life utility index, are required.

The spasticity-related quality of life 6-dimensions tool (SQoL-6D) in upper limb spasticity: A first psychometric evaluation

Toxicon ◽  
2021 ◽  
Vol 190 ◽  
pp. S73-S74
Author(s):  
Lynne Turner-Stokes ◽  
Klemens Fheodoroff ◽  
Jorge Jacinto ◽  
Jeremy Lambert ◽  
Christine de la Loge ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Upper Limb ◽  
Psychometric Evaluation ◽  
Related Quality ◽  
Limb Spasticity

scholarly journals Meeting Psychosocial Needs to Improve Health: A Prospective Cohort Study

2019 ◽  
Author(s):  
Austyn Snowden ◽  
Jenny Young ◽  
Jan Savinc
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Health Status ◽  
Cancer Type ◽  
Cancer Stage ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Abstract Background Cancer impacts on patients and their families across a range of different domains. For that reason, optimal cancer care has moved away from a disease-centric focus to a more holistic approach in order to proactively support people with their individual needs and concerns. While international policy clearly advocates this agenda, implementation into routine care is limited. Therefore, relevant interventions that measurably improve patient outcomes are essential to understand if this ideal is to become routine multidisciplinary practice. The aim of this study was to analyse the impact of a proactive, holistic, community-based intervention on health-related quality of life in a cohort of people diagnosed with cancer. Secondary aim was to explore the relationship between changes in health status and: cancer type, cancer stage, number of concerns expressed and change in severity of concerns pre and post intervention. Method Prospective observational cohort study. A convenience sample of 437 individuals were referred to the service ‘Improving the Cancer Journey (ICJ) in the UK. Each completed the Euroqol EQ-5D-3L and visual analogue scale (VAS) and a Holistic Needs Assessment (HNA) during initial visit to the service and again at follow-up review, approximately 4 months later. Change between scores was tested with paired t-tests and relationships between variables with multiple regression models. Results Participants were White British with median age between 50-64 years. Cancer type and stage were varied. There was a statistically significant improvement in EQ-5D scores over time (t(330)=7.48, p<.001). The strongest predictor of change was a decrease in severity of concerns. Cancer stage ‘palliative care’ contributed to a reduction in health status. Conclusion This study is the first to show that a holistic community intervention dedicated to supporting the individual concerns of participants has a statistically and meaningful impact on participants’ health-related quality of life. The mean change in EQ-5D scores was more than the ‘minimally important clinical difference’ described in the literature. This is important because while quality of life has multiple determinants this study has reported that it is possible to capture a meaningful improvement as a function of reducing someone’s personally identified concerns.

scholarly journals Artisanal fisherwomen/shellfish gatherers: analyzing the impact of upper limb functioning and disability on health-related quality of life

2017 ◽  
Vol 22 (11) ◽  
pp. 3635-3644 ◽  
Author(s):  
Juliana dos Santos Müller ◽  
Ila Rocha Falcão ◽  
Maria Carolina Barreto Moreira Couto ◽  
Wendel da Silva Viana ◽  
Ivone Batista Alves ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Upper Limb ◽  
Short Form ◽  
Upper Limbs ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Abstract The aim is to analyze upper limb functioning and disability, and its association with health-related quality of life among artisanal fisherwomen from Bahia, Brazil. Cross-sectional epidemiological study was conducted with a sample of 209 fisherwomen. Structured questionnaires were used for socio-demographic and comorbidity information, as well as the instruments Disabilities of the Arm, Shoulder and Hand (DASH) and Short-Form Healthy Survey (SF-36) respectively, to evaluate the upper limbs and health-related quality of life. The results demonstrated that the presence of musculoskeletal disorders in the upper limbs directly affects the values of the DASH instrument and the SF-36v01 questionnaire scores, while also generating a negative correlation between the DASH and SF-36v01. The varying functioning abilities, pain and social aspects negatively affect upper limb function, and the daily activities and work of fisherwomen. The presence of chronic disease and the absence of intervention and rehabilitation for these professionals, that could produces, in a long-term, cases of disability.

The impact of social isolation on the health status and health-related quality of life of older people

2010 ◽  
Vol 20 (1) ◽  
pp. 57-67 ◽  
Author(s):  
Annie Hawton ◽  
Colin Green ◽  
Andy P. Dickens ◽  
Suzanne H. Richards ◽  
Rod S. Taylor ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Older People ◽  
Social Isolation ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Improvement in Quality of Life and Activity Limitations in Migraine Patients after Prophylaxis. A Prospective Longitudinal Multicentre Study

Cephalalgia ◽  
2006 ◽  
Vol 26 (6) ◽  
pp. 691-696 ◽  
Author(s):  
D D'Amico ◽  
A Solari ◽  
S Usai ◽  
P Santoro ◽  
P Bernardoni ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Activity Limitations ◽  
Sf 36 ◽  
Scale Scores ◽  
Related Quality ◽  
Health Related ◽  
Prospective Longitudinal ◽  
The Impact

Improved health-related quality of life (HRQOL) and reduced activity limitations are prime objectives of migraine therapy, but no data on the effect of preventive treatments on these outcomes are available. We monitored changes in HRQOL using the Short Form 36 (SF-36) and headache-related activity limitations using the Migraine Disability Assessment Score (MIDAS) in 141 consecutive migraine without aura patients on prophylaxis. A total of 102 patients completed the 3-month study. Mean (SD) number of headache days/month dropped from 8.0 (3.7) to 5.0 (2.3) ( P <0.001). Mean monthly consumption of acute drugs reduced from 7.4 (3.5) to 4.4 (3.1) ( P <0.001). MIDAS total score reduced (improved) significantly. All SF-36 scale scores increased (improved), most significantly. This first study to assess prospectively the impact of prophylaxis on HRQOL and daily activities in a large series indicates that migraine prophylaxis has the potential to reduce the global burden of migraine on individuals and society.

scholarly journals Trajectories of Health-Related Quality of Life, Health Literacy, and Self-Efficacy in Curatively-Treated Patients with Esophageal Cancer: A Longitudinal Single-Center Study in Italy

2021 ◽  
Vol 8 ◽  
pp. 237437352110607
Author(s):  
Arianna Magon ◽  
Rosario Caruso ◽  
Andrea Sironi ◽  
Sabrina Mirabella ◽  
Federica Dellafiore ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Esophageal Cancer ◽  
Health Status ◽  
Health Literacy ◽  
Self Efficacy ◽  
Prospective Longitudinal Study ◽  
Related Quality ◽  
Prospective Longitudinal ◽  
Over Time

This prospective longitudinal study aimed to describe the trajectories of HRQoL, health literacy, and self-efficacy in patients with esophageal cancer, which have been thus far poorly described. Data were collected at baseline (preoperative phase) and in the postoperative period (two weeks, and one, two, and three months after esophagectomy). The study hypothesis was that health literacy and self-efficacy might predict better health status and quality of life over time. Forty-five patients were enrolled between 2018 and 2019. HRQoL, health literacy, and self-efficacy were assessed using validated scales. The ability to analyze information to exert greater control over life events critically (critical health literacy) (η2 p = 0.660) and the individual's confidence in dealing with challenging tasks (self-efficacy) (η2 p = 0.501) strongly predicted the scores of general health status over time. Overall, the functional status improved at 3 months after surgery, and this trend paralleled the decline of cancer-specific and surgery-related symptoms. In conclusion, researchers and clinicians should pay greater attention to optimizing baseline health literacy and self-efficacy levels. Future educational and motivational interventions should be further tested and possibly integrated into the prehabilitation programs.

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