scholarly journals Assessment of Palliative Care Needs among People Living with HIV/ AIDS Attending Antiretroviral Therapy Outpatient Department in an Urban Slum of Mumbai: A Mixed Method Study

2022 ◽  
Vol 0 ◽  
pp. 1-8
Author(s):  
Sujata Ramchandra Lavangare ◽  
Prabhadevi Ravichandran
Keyword(s):  
Palliative Care ◽  
Mixed Method ◽  
Care Process ◽  
Mixed Method Study ◽  
People Living With Hiv ◽  
Care Needs ◽  
Demographic Profile ◽  
Living With Hiv ◽  
Palliative Care Needs ◽  
Hiv Aids

Objectives: According to WHO, Palliative care is an essential component of a comprehensive package of care for people living with HIV/AIDS. Lack of palliative care results in untreated symptoms that hamper an individual’s ability to perform daily activities. The study aimed to explore the perceived Palliative care needs of People Living With HIV/AIDS and the association between socio- demographic profile with Palliative care needs. Materials and Methods: It was a mixed method study conducted over 2 months in November and December 2020 at Link ART OPD of Urban Health Training Centre in Mumbai. Out of 120 registered patients,15 patients were selected for in-depth interview by purposive sampling. The remaining 105 patients were selected for quantitative part of the study by complete enumeration method. For Qualitative part, Thematic analysis of the transcripts was done. Data were coded using Microsoft word comment feature. Themes and categories were drawn from it. For Quantitative part, Data analysis was done using SPSS version 22. Chi- square test was applied to find out the association between socio- demographic profile & palliative care needs. P value < 0.05 was considered statistically significant. Results: The major themes identified were poor attitude towards the disease, lack of support and role of counselling. The common palliative care needs identified were need for financial assistance, family support and psychological support. Conclusions: Palliative care should be introduced early in the care process by a team of providers who is aware of the patient’s history and requirements.

Palliative Care for People Living with HIV

2019 ◽  
pp. 513-520
Author(s):  
Jacquelyn Slomka
Keyword(s):  
Palliative Care ◽  
Chronic Condition ◽  
Social Stigma ◽  
Healthcare Team ◽  
People Living With Hiv ◽  
Care Needs ◽  
Team Members ◽  
Disease Trajectory ◽  
The Social ◽  
Living With Hiv

This chapter discusses the palliative care needs of people living with HIV (PLWH). Now considered a chronic condition, HIV presents specific challenges both for individuals who are long-term survivors and for those adults who are recently diagnosed. The initial diagnosis of a chronic condition can be devastating for anyone, but a diagnosis of HIV may be especially stressful and challenging due to the social stigma and history associated with it. For PLWH whose condition is well-controlled, the development of comorbidities associated with disease characteristics, medication, or the aging process speaks to the need for palliative care throughout the disease trajectory. This chapter focuses on the social context impinging on those needs. It provides palliative care content that can facilitate nurses’ collaborations with patients, as well as with physicians and other healthcare team members who care for adults with HIV.

scholarly journals Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: A systematic review

2020 ◽  
pp. 026921632096394 ◽  
Author(s):  
Stephanie MC Ament ◽  
Inge ME Couwenberg ◽  
Josiane JJ Boyne ◽  
Jos Kleijnen ◽  
Henri EJH Stoffers ◽  
...  
Keyword(s):  
Heart Failure ◽  
Systematic Review ◽  
Palliative Care ◽  
Chronic Heart Failure ◽  
Health Care Professionals ◽  
Healthcare Professionals ◽  
Care Process ◽  
Care Needs ◽  
Process Guidance ◽  
Palliative Care Needs

Background: The delivery of palliative care interventions is not widely integrated in chronic heart failure care as the recognition of palliative care needs is perceived as difficult. Tools may facilitate healthcare professionals to identify patients with palliative care needs in advanced chronic heart failure. Aim: To identify tools to help healthcare professionals recognize palliative care needs in patients with advanced chronic heart failure. Design: This systematic review was registered in the PROSPERO database (CRD42019131896). Evidence of tools’ development, evaluation, feasibility, and implementation was sought and described. Data sources: Electronic searches to identify references of tools published until June 2019 were conducted in MEDLINE, CINAHL, and EMBASE. Hand-searching of references and citations was undertaken. Based on the identified tools, a second electronic search until September 2019 was performed to check whether all evidence about these tools in the context of chronic heart failure was included. Results: Nineteen studies described a total of seven tools. The tools varied in purpose, intended user and properties. The tools have been validated to a limited extent in the context of chronic heart failure and palliative care. Different health care professionals applied the tools in various settings at different moments of the care process. Guidance and instruction about how to apply the tool revealed to be relevant but may be not enough for uptake. Spiritual care needs were perceived as difficult to assess. Conclusion: Seven tools were identified which showed different and limited levels of validity in the context of palliative care and chronic heart failure.

scholarly journals Palliative care needs in Malawi: Care received by people living with HIV

Curationis ◽  
2016 ◽  
Vol 39 (1) ◽  
Author(s):  
Esmie Mkwinda ◽  
Eucebious Lekalakala-Mokgele
Keyword(s):  
Palliative Care ◽  
Highly Active Antiretroviral Therapy ◽  
Primary Caregivers ◽  
Healthcare Services ◽  
Structured Interview ◽  
Hiv And Aids ◽  
People Living With Hiv ◽  
Care Needs ◽  
Caregiver Support ◽  
Living With Hiv

Background: Infection with human immunodeficiency virus (HIV) has changed from an acute to a chronic illness in the past decade, because of highly active antiretroviral therapy (ART). Malawi’s response to the HIV challenge included provision of ART for people living with HIV or AIDS (PLWHA), which significantly reduced HIV- and AIDS-related mortality. In addition, palliative care for PLWHA was introduced as a strategy that improves the success of ART.Objective: The purpose of the study was to explore the needs of PLWHA concerning care received from primary caregivers and palliative care nurses in Malawi.Methods: A qualitative, explorative design was used and 18 participants were selected purposefully and interviewed individually using a semi-structured interview guide. Data were analysed using NVivo software package version 10.Results: Results revealed that PLWHA needed physical care from the primary caregivers due to severity of illness, integration of healthcare services, and continuity of care and proper care from nurses. They also needed knowledge from nurses in several areas which affected decision-making and needed financial and nutritional support.Conclusion: More could be done in meeting needs of PLWHA to improve their health and survival and assist them to achieve a better quality of life.Keywords: people living with HIV/AIDS, palliative care, palliative care nurse, primary caregiver, support

scholarly journals Quality of life factors affecting quality of life in people living with HIV/AIDS in an urban area

2017 ◽  
Vol 4 (8) ◽  
pp. 3031 ◽  
Author(s):  
Pradnya S. Jadhav ◽  
Payal S. Laad ◽  
R. M. Chaturvedi
Keyword(s):  
Quality Of Life ◽  
Cd4 Count ◽  
People Living With Hiv ◽  
Age Group ◽  
Factors Affecting ◽  
Demographic Profile ◽  
Study Population ◽  
Living With Hiv ◽  
Hiv Aids

Background: The aims and objectives were to study socio-demographic profile of people living with HIV/ AIDS; to assess quality of life of people living with HIV/AIDS (PLHA); to study factors affecting Quality of life (QOL) in people living with HIV/AIDS. Methods: A cross-sectional study was conducted which included 319 study subjects. Data on socio-demographic profile was collected using questionnaire and quality of life was assessed using WHO - brief questionnaire. Data was analysed using SPSS software and MS–Excel. Results: Majority of study population 52% were female & 40.8%belonged to 35-45 yrs age group. Out of 319 study subjects, 80.88% were literate and 19.1% were illiterates, 75.9% were married. 65.83% of the study subjects belonged to socio-economic class- II, 27.9% of the study subjects belong to class–I. Majority 52.98% study population had CD4 less than 300 and 47.02% had CD4 count more than 300 cells/mm3. Female have better QOl in comparison to male. Subjects >55 age group, illiterate, unemployed and CD4 count <300cells/mm3 have lower QOL (p<0.05) in comparison to their respective group. Conclusions: The most factors significantly associated with decreased quality of life of people living with HIV/AIDS in the present study include gender, literacy status, age group, employment status and CD4 count (p<0.05).

A Qualitative Approach to the Mental Health Care Needs of People Living with HIV/AIDS in Victoria

2002 ◽  
Vol 8 (3) ◽  
pp. 30
Author(s):  
Maria Teresa Dawson ◽  
Paul Grech ◽  
Brendan Hyland ◽  
Fiona Judd ◽  
John Lloyd ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Services ◽  
Health Services ◽  
Service Providers ◽  
People Living With Hiv ◽  
Health Care Needs ◽  
Care Needs ◽  
Living With Hiv ◽  
Hiv Aids

This article reports on the findings of the qualitative stage of a larger project on the mental care needs of people with HIV/AIDS and mental illness (Tender T1176 Department of Human Services, Mental Health Branch, Victoria - Research on the Mental Health Care Needs of People with HIV/AIDS and Mental Illness). The purpose of the larger research was to evaluate the needs and treatment requirements of persons with HIV/AIDS, who also suffer from mental health problems, with a view to developing proposals for improving existing service delivery in Victoria, Australia. The qualitative stage was designed to complement and elucidate data obtained through the quantitative stages of the project. Thirty in-depth open-ended interviews were carried out with service providers including HIV physicians, general practitioners, psychiatrists, clinical and managerial staff of Area Mental Health Services, Contact Tracers and forensic mental health services staff, as well as representatives of community groups such as People Living with HIV/AIDS and Positive Women and carers. The interviews explored the perspective of both service providers and users of such services with respect to needs for psychiatric care and service delivery, ease of access or barriers to mental health services, and the perceived strengths and weaknesses in current service provision. This paper presents the main findings and recommendations submitted to the funding body.

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