scholarly journals Understanding Long-Term Outcomes of Public Health Strategy in Palliative Care at Micro Level: Impact of Home-Based Palliative Care Services under Local Self-Government Institutions in Kerala, India

2022 ◽  
Vol 0 ◽  
pp. 1-6
Author(s):  
Manju Nair ◽  
Anupama Augustine
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Quality Care ◽  
Palliative Care Unit ◽  
Care Policy ◽  
Government Institutions ◽  
Care Services ◽  
Palliative Care Services ◽  
The Government

Objectives: Palliative care units under Local Self-Government Institutions (LSGIs) are increasing in number in the state of Kerala, India, since the announcement of the Pain and Palliative Care Policy, 2008. Whether these units are functioning with a view to materialise the long-term objectives, following the guidelines stipulated by the Government of Kerala and serve the neediest patients with quality care are a matter of debate. Hence, a microlevel study of the palliative care unit is attempted. The aims of the study were to understand the extent to which the structure and nature of functioning of the Pain and Palliative Care Unit under LSGI comply with guidelines set by the Pain and Palliative Care Policy of the Government of Kerala and to check whether the palliative care services are reaching the needy and, if so, are they provided to patients in good quality. Materials and Methods: The award winning Pain and Palliative Care Unit attached to LSGI is selected for analysis and a hybrid research design is followed. Data are collected from 25 patients and their caregivers selected randomly. Mean score of satisfaction level on the basis of Quality care questionnaire -Palliative care is used. Results: Sample unit complies with the revised guidelines of 2015, Pain and Palliative Care Policy. It serves the neediest patients and the quality of care is satisfactory. Conclusion: The study reaffirms the strength of the public health model in palliative care which can provide quality care to the neediest patients.

Facing Dementia: Integrating Palliation Into All Aspects of Care

2013 ◽  
Vol 19 (1) ◽  
pp. 12-15
Author(s):  
Allison S. Kostrzewa
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Paradigm Shift ◽  
Early Initiation ◽  
Health Concern ◽  
Aggressive Treatment ◽  
Public Health Concern ◽  
Care Services ◽  
Palliative Care Services ◽  
End Stage

Dementia is fast becoming a serious public health concern. The lack of understanding of the terminal nature of dementia frequently results in overly aggressive treatment during the end stage of the disease. Nurses need to recognize and encourage a paradigm shift in the way dementia is perceived and treated, including promoting early initiation of palliative care services.

scholarly journals Palliative care services: Issues and public health challenges

2013 ◽  
Vol 2 (2) ◽  
pp. 5-15
Author(s):  
Riawati Jahja
Keyword(s):  
Public Health ◽  
Quality Of Life ◽  
Systematic Review ◽  
Health Care ◽  
Palliative Care ◽  
Observational Studies ◽  
Care Services ◽  
Review Articles ◽  
Palliative Care Services

Trials have demonstrated improvement in patients’ quality of life through palliative care services (PCS). However, many of these trials are limited by their research methodologies. PubMed, Cumulative Index to Nursing and Allied Health Literature (CINAHL) were searched to conduct a systematic review of review articles related to PCS from January 2001 to December 2011. The paper examined evidence from studies on PCS that aimed to improve elderly patients’ end-of-life outcomes by i) systematically reviewing literature on models of palliative care (PC) delivery patients received; ii) exploring methodological issues surrounding recruitment of the patients, implementation of the studies and comparison of health care services; and iii) addressing the costs of care with/without a palliative program. Seventeen trials and three observational studies were selected from nine systematic review articles. Overall, early introduction of PC to patients following identification of their life-limiting conditions and needs re-quires an organized and coordinated care approach to ensure accessibility of these services. The ideal system that offers the potential of improving patients’ quality of life is one that is integrated, interdisciplinary and holistic. Dying is commonly institutionalized; however, providing outreach programs that allow patients to die at their place of wish, such as domiciliary care, offers the potential of addressing the issue of ever-increasing health-care expenditure for the aged. However, further investigation is needed to evaluate the cost effectiveness of these programs. Methodological problems and ethical issues surrounding the study of terminally-ill patients necessitate that researchers use a combination of observational studies and surveillance system over time. DOI: http://dx.doi.org/10.3329/seajph.v2i2.15937 South East Asia J Public Health | Jul-Dec 2012 | Vol 2 Issue 2 | 5-15

scholarly journals Family carer support in home and hospital: a cross-sectional survey of specialised palliative care

2019 ◽  
Vol 10 (4) ◽  
pp. e33-e33
Author(s):  
Maarten Vermorgen ◽  
Aline De Vleminck ◽  
Kathleen Leemans ◽  
Lieve Van den Block ◽  
Chantal Van Audenhove ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Service ◽  
Palliative Care Service ◽  
Palliative Care Unit ◽  
Information Support ◽  
Family Carers ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Care Services ◽  
Palliative Care Services

ObjectivesTo evaluate: (1) to what extent family carers of people supported by specialised palliative care services felt they had been provided with information, support and aftercare and (2) how this varied by type of palliative care service, length of enrolment and characteristics of deceased.MethodsA cross-sectional postal survey was conducted using a structured questionnaire with nine items on information, support and aftercare provided by specialised palliative care services to family carers. Flemish family carers of people who had made use of specialised palliative care services at home or in hospital were contacted.ResultsOf all primary family carers (response rate of 53.5% resulting in n=1504), 77.7% indicated they were asked frequently by professionals how they were feeling. Around 75% indicated they had been informed about specific end-of-life topics and around 90% felt sufficiently supported before and immediately after the death. Family carers of people who had died in a palliative care unit, compared with other types of specialised palliative care services, indicated having received more information, support and aftercare.ConclusionsFamily carers evaluate the professional assistance provided more positively when death occurred in a palliative care unit. Policy changes might be needed to reach the same level of care across all specialised palliative care services.

Palliative Care in Burn and Thermal Injury

2019 ◽  
pp. 119-134
Author(s):  
Alisa Savetamal ◽  
Kristin Edwards
Keyword(s):  
Substance Abuse ◽  
Palliative Care ◽  
Burn Injury ◽  
Burn Injuries ◽  
The Other ◽  
Psychosocial Needs ◽  
Care Services ◽  
Valuable Adjunct ◽  
Palliative Care Services

Burn injury can be a life-changing event for many patients, requiring prolonged hospitalization, multiple operative procedures, and extensive physical rehabilitation after hospital discharge. For the burn team, the challenges of caring for burn injuries are compounded by the psychosocial needs of the patients, many of whom have underlying medical, psychiatric, or substance abuse problems or some combination of all of these. Integrating palliative care services into the burn team is a valuable adjunct for the patients, families, and care teams involved in burn injury. Palliative care provides a framework for considering not only the acute needs of the burn patient but also the other underlying issues that may affect the patient’s hospital course, recovery, and long-term goals.

scholarly journals Analytical study of short- and long-term results of home-based palliative care services to cancer patients

2017 ◽  
Vol 23 (3) ◽  
pp. 331
Author(s):  
Dhritiman Datta ◽  
Gautam Majumdar ◽  
Shiromani Debbarma ◽  
Badan Janapati ◽  
AmitKumar Datta
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Analytical Study ◽  
Long Term Results ◽  
Care Services ◽  
Home Based ◽  
Palliative Care Services ◽  
Short And Long Term

Promoting palliative care access to persons with cancer: A model for mapping statewide services.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 127-127
Author(s):  
Constance Dahlin ◽  
Joshua Nyambose ◽  
Gail Merriam ◽  
Cherline Gene
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Long Term Care ◽  
Home Health ◽  
Term Care ◽  
Care Access ◽  
Care Services ◽  
Health Agencies ◽  
Palliative Care Services

127 Background: The CDC comprehensive cancer initiatives value comprehensive quality care within its mission and program development. Currently, over 75% of hospitals in the United States have palliative care services for cancer patients (CAPC 2011). In order to promote access to quality palliative care in the community outside the hospital, an evaluation is essential. The CDC model of comprehensive cancer care and prevention control structure is an appropriate mechanism to perform such an evaluation. From 2014-2015, the Massachusetts Comprehensive Cancer and Prevention Control Network Palliative Care Workgroup performed a survey to hospitals, home health agencies, hospices, long term care facilities, and community providers to determine palliative care services available to cancer patients across the state. Methods: Using the National Consensus Project for Quality Palliative Care Clinical Practice Guidelines, a robust palliative survey tool was created by the Massachusetts Comprehensive Cancer and Prevention Control Palliative Care Workgroup. It was individualized to each of the following settings - hospitals, home health organizations, hospices, skilled nursing facilities, and community health agencies. Follow-up telephonic key informant interviews regarding palliative care services were conducted within the various settings, service organizations, and insurers. Results: The results of qualitative and quantitative data will be concluded in August. Initial results reveal significant disparities in access to palliative care across by geography and setting of care. Hospices and hospitals had the most access to palliative care services. Long term care settings and community health settings had the least access. Conclusions: Data reveals disparities in palliative care access within Massachusetts by geography, race, and setting of cancer care. This data will serve as the basis of regional networks to promote better access to palliative care for cancer patients across all settings. It is hoped this evaluation process will serve as a model for other states to perform a similar evaluation.

scholarly journals Specialized palliative care services are associated with improved short- and long-term caregiver outcomes

2007 ◽  
Vol 16 (6) ◽  
pp. 585-597 ◽  
Author(s):  
Amy P. Abernethy ◽  
David C. Currow ◽  
Belinda S. Fazekas ◽  
Mary A. Luszcz ◽  
Jane L. Wheeler ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Services ◽  
Palliative Care Services ◽  
Specialized Palliative Care ◽  
Short And Long Term
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