Quality of Life in Preschoolers with Perinatal Hypoxic-Ischemic Encephalopathy

2016 ◽  
Author(s):  
Joana OLIVEIRA
Keyword(s):  
Quality Of Life ◽  
Hypoxic Ischemic Encephalopathy ◽  
Ischemic Encephalopathy

scholarly journals The Quest for Neuroprotection for Injuries in the Developing Brain

2017 ◽  
Author(s):  
Fatima Yousif Ismail ◽  
Ali Fatemi ◽  
Michael Johnston
Keyword(s):  
Quality Of Life ◽  
Clinical Trials ◽  
Animal Models ◽  
Medical Knowledge ◽  
Ischemic Insult ◽  
Clinical Observations ◽  
Testing Potential ◽  
Ischemic Encephalopathy ◽  
Neuroprotective Therapies

The advancement in medical knowledge could have not been possible without interlocking and reinforcing the bedside-lab continuum. In the field of pediatric neurology, one of the best illustrative examples is our quest for finding neuroprotective therapies in the setting of neonatal hypoxic-ischemic encephalopathy. In this review, we discuss the careful clinical observations driven from the bedside dating back to the work of Frank Ford. We trace the relentless efforts to emulate the pathogenesis in animal models to testing potential therapies in clinical trials that made the transfer of this knowledge back to the bedside possible in order to save and improve the quality of life for hundred of thousands of newborns who suffered hypoxic ischemic insult.

scholarly journals Palliative Care in Pediatrics: Perception of the Multi-Professional Team

2020 ◽  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pediatric Patients ◽  
Public University ◽  
University Hospital ◽  
Chronic Pulmonary Disease ◽  
The Family ◽  
Pain And Suffering ◽  
Ischemic Encephalopathy

Introduction: Palliative care with the Cicely Saunders, in the 20th century and consists of the care and assistance to the patient and their families, ensuring better quality of life, aiming at controlling pain and suffering, with attention to physical aspects, spiritual, social and psychic. Objectives: To approach the respiratory and motor care of a pediatric patient in palliative care by nursing and physiotherapy, restricted to the bed, with non-progressive Hypoxic-Ischemic Encephalopathy, with metabolic syndrome under investigation, chronic pulmonary disease dependent on oxygen, alternating macronebulization and ventilatory prosthesis (PSV) for nocturnal breathing comfort. Methodology: This is an experience report lived by residents in a public university hospital in Rio de Janeiro, during the month of June 2018 in the pediatric ward. Through multidisciplinary action, interventions were carried out to improve the patient’s condition and minimize pain aspects through the care of the patient’s respiratory and motor functions and maternal guidance. Results and Discussion: Bearing in mind that palliative care focuses on minimizing pain and suffering, the actions presented above are in line with most of the published studies relating palliative care and improving quality of life with reducing the suffering of child and family members, guided by the bioethical principles of beneficence and non-maleficence. Conclusion: Through the applied procedures, greater independence of the ventilatory prosthesis was found, enabling the strengthening of the family bond, concomitant to the learning of the professionals involved related to palliative care in pediatric patients.

scholarly journals Palliative Care in Pediatrics: Perception of the Multiprofessional Team

2020 ◽  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pediatric Patients ◽  
Public University ◽  
University Hospital ◽  
Multiprofessional Team ◽  
The Family ◽  
Pain And Suffering ◽  
Ischemic Encephalopathy

Introduction: Palliative care with the Cicely Saunders, in the 20th century and consists of the care and assistance to the patient and their families, ensuring better quality of life, aiming at controlling pain and suffering, with attention to physical aspects, spiritual, social and psychic.Objectives: To approach the respiratory and motor care of a pediatric patient in palliative care by nursing and physiotherapy, restricted to the bed, with non-progressive Hypoxic-Ischemic Encephalopathy, with metabolic syndrome under investigation, chronic pulmonary disease dependent on oxygen, alternating macronebulization and ventilatory prosthesis (PSV) for nocturnal breathing comfort. Methodology: This is an experience report lived by residents in a public university hospital in Rio de Janeiro, during the month of June 2018 in the pediatric ward. Through multidisciplinary action, interventions were carried out to improve the patient’s condition and minimize pain aspects through the care of the patient’s respiratory and motor functions and maternal guidance.Results and Discussion: Bearing in mind that palliative care focuses on minimizing pain and suffering, the actions presented above are in line with most of the published studies relating palliative care and improving quality of life with reducing the suffering of child and family members, guided by the bioethical principles of beneficence and non-maleficence.Conclusion: Through the applied procedures, greater independence of the ventilatory prosthesis was found, enabling the strengthening of the family bond, concomitant to the learning of the professionals involved related to palliative care in pediatric patients.

Self-Compassion and Quality of Life in Adults Who Stutter

2020 ◽  
Vol 29 (4) ◽  
pp. 2097-2108
Author(s):  
Robyn L. Croft ◽  
Courtney T. Byrd
Keyword(s):  
Quality Of Life ◽  
Social Connectedness ◽  
The Self ◽  
Future Research ◽  
Self Compassion ◽  
Adults Who Stutter ◽  
And Gender ◽  
Relationship Of ◽  
The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

Misophonia: An Evidence-Based Case Report

2020 ◽  
Vol 29 (4) ◽  
pp. 685-690
Author(s):  
C. S. Vanaja ◽  
Miriam Soni Abigail
Keyword(s):  
Quality Of Life ◽  
Case Report ◽  
Case History ◽  
Pure Tone ◽  
Physiological Responses ◽  
Evidence Based ◽  
Management Option ◽  
Pure Tone Audiogram

Purpose Misophonia is a sound tolerance disorder condition in certain sounds that trigger intense emotional or physiological responses. While some persons may experience misophonia, a few patients suffer from misophonia. However, there is a dearth of literature on audiological assessment and management of persons with misophonia. The purpose of this report is to discuss the assessment of misophonia and highlight the management option that helped a patient with misophonia. Method A case study of a 26-year-old woman with the complaint of decreased tolerance to specific sounds affecting quality of life is reported. Audiological assessment differentiated misophonia from hyperacusis. Management included retraining counseling as well as desensitization and habituation therapy based on the principles described by P. J. Jastreboff and Jastreboff (2014). A misophonia questionnaire was administered at regular intervals to monitor the effectiveness of therapy. Results A detailed case history and audiological evaluations including pure-tone audiogram and Johnson Hyperacusis Index revealed the presence of misophonia. The patient benefitted from intervention, and the scores of the misophonia questionnaire indicated a decrease in the severity of the problem. Conclusions It is important to differentially diagnose misophonia and hyperacusis in persons with sound tolerance disorders. Retraining counseling as well as desensitization and habituation therapy can help patients who suffer from misophonia.

Quality of Life of Youth With Hearing Loss

ASHA Leader ◽  
2010 ◽  
Vol 15 (15) ◽  
pp. 5-6
Author(s):  
Anne Skalicky ◽  
Brenda Schick ◽  
Donald Patrick
Keyword(s):  
Quality Of Life ◽  
Hearing Loss

Thinking Beyond Language: Intervention for Severe Aphasia

2009 ◽  
Vol 19 (1) ◽  
pp. 15-22 ◽  
Author(s):  
Nina Simmons-Mackie
Keyword(s):  
Quality Of Life ◽  
Communication Training ◽  
Language Intervention ◽  
Specific Training ◽  
Environmental Support ◽  
Total Communication ◽  
Communication Partners

Abstract Purpose: This article addresses several intervention approaches that aim to improve life for individuals with severe aphasia. Because severe aphasia significantly compromises language, often for the long term, recommended approaches focus on additional domains that affect quality of life. Treatments are discussed that involve increasing participation in personally relevant life situations, enhancing environmental support for communication and participation, and improving communicative confidence. Methods: Interventions that have been suggested in the aphasia literature as particularly appropriate for people with severe aphasia include training in total communication, training of communication partners, and activity specific training. Conclusion: Several intervention approaches can be implemented to enhance life with severe aphasia.

Chronic Refractory Cough: A Case Study

2017 ◽  
Vol 2 (3) ◽  
pp. 57-62
Author(s):  
Anna Maria Siciliano
Keyword(s):  
Quality Of Life ◽  
Adult Female ◽  
Chronic Cough ◽  
Treatment Regime ◽  
Speech Language Pathology ◽  
Old Adult ◽  
Language Pathology

This paper presents a successful behavioral case study in treatment of chronic refractory cough in a 60-year-old adult female. The efficacy for speech-language pathology treating chronic cough is discussed along with description of treatment regime. Discussion focuses on therapy approaches used and the patient's report of changes in quality of life and frequency, duration, and severity reduction of her cough after treatment.

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