scholarly journals The Art of Chronic Pain: Creating an Exhibition Proposal on Chronic Pain for a New Zealand Gallery

2021 ◽  
Author(s):  
◽  
Melissa Wells

<p>The original idea for this research came from a combination of the work that Richard Sandell has done on social inclusion in the United Kingdom, and my personal experiences with chronic pain. The aim of this research is to make known the experiences of chronic pain survivors in New Zealand and also to bring understanding about a range of invisible illnesses where chronic pain is a major symptom. Research methods used include surveys using quota sampling and content analysis, case studies, and an exhibition proposal.  People living with chronic pain make up one in five New Zealanders, meaning just over 900,000 people have this condition/disability/illness. Yet, have you heard anyone talk about it? Cancer is often spoken about, but it only effects around 20,000 New Zealanders. Mental health problems are contemporaneous but only effect approximately 582,000 people in New Zealand. However chronic pain cannot kill, or can it? Many people who have chronic pain have other co-morbid disorders such as depression. Chronic pain needs more publicity, it yearns to be spoken about and understood. People with chronic pain have said that they feel misunderstood and unheard not only by family, friends and colleagues but also by their medical professionals as well.  This research looks at whether there would be support from both the chronic pain community and healthy New Zealanders for an art exhibition about chronic pain. The exhibition would contain art produced by people with chronic pain and depict their daily lives with their condition(s). It also offers a contribution to museum studies and current practice by attending to a gap in the New Zealand literature, not even well covered by overseas literature, on this subject. It is the first dissertation to focus on pain in a museum/gallery setting in New Zealand and opens up public interaction and discussion about a taboo topic.  New Zealand museums and galleries have to have the ability to challenge preconceived opinions and ideas about chronic pain, as well as the opportunity to engage with a large and often invisible community.</p>

2021 ◽  
Author(s):  
◽  
Melissa Wells

<p>The original idea for this research came from a combination of the work that Richard Sandell has done on social inclusion in the United Kingdom, and my personal experiences with chronic pain. The aim of this research is to make known the experiences of chronic pain survivors in New Zealand and also to bring understanding about a range of invisible illnesses where chronic pain is a major symptom. Research methods used include surveys using quota sampling and content analysis, case studies, and an exhibition proposal.  People living with chronic pain make up one in five New Zealanders, meaning just over 900,000 people have this condition/disability/illness. Yet, have you heard anyone talk about it? Cancer is often spoken about, but it only effects around 20,000 New Zealanders. Mental health problems are contemporaneous but only effect approximately 582,000 people in New Zealand. However chronic pain cannot kill, or can it? Many people who have chronic pain have other co-morbid disorders such as depression. Chronic pain needs more publicity, it yearns to be spoken about and understood. People with chronic pain have said that they feel misunderstood and unheard not only by family, friends and colleagues but also by their medical professionals as well.  This research looks at whether there would be support from both the chronic pain community and healthy New Zealanders for an art exhibition about chronic pain. The exhibition would contain art produced by people with chronic pain and depict their daily lives with their condition(s). It also offers a contribution to museum studies and current practice by attending to a gap in the New Zealand literature, not even well covered by overseas literature, on this subject. It is the first dissertation to focus on pain in a museum/gallery setting in New Zealand and opens up public interaction and discussion about a taboo topic.  New Zealand museums and galleries have to have the ability to challenge preconceived opinions and ideas about chronic pain, as well as the opportunity to engage with a large and often invisible community.</p>


2019 ◽  
Author(s):  
Edgar Pacheco ◽  
Neil Melhuish ◽  
Jandy Fiske

This report presents findings from a larger quantitative study about New Zealand adults’ experiences of harmful digital communications. The report focuses on the prevalence of image-based sexual abuse (IBSA), and people’s attitudes regarding different aspects of it. The findings described in this report are based on data collected from a nationally representative sample. We conducted a survey-based study with 1,001 adult New Zealanders. Fieldwork took place between 30 May and 1 July 2018. The objectives of the IBSA questionnaire were to gauge prevalence among adult New Zealanders: both self-reported personal experiences and involvement with this behaviour. It also sought to explore participants’ level of agreement with IBSA related issues. The margin of error for this study was +/- 3.1% at a 95% confidence level on total results. This study is the first of its kind conducted in New Zealand.


2019 ◽  
Author(s):  
Edgar Pacheco ◽  
Neil Melhuish

Government agencies in New Zealand are not required to systematically collect data on online hate speech, thus, there is a lack of longitudinal evidence regarding this phenomenon. This report presents trends in personal experiences of and exposure to online hate speech among adult New Zealanders based on nationally representative data. The findings from this study are also compared with results from a similar research study conducted in 2018. In addition, this report explores people’s perceptions about other issues related to hate speech. The goal of this study is to fill some knowledge gaps regarding the extent and nature of hate speech in New Zealand. It also seeks to provide reliable and robust evidence to inform public conversation on the topic and the implementation of strategies and activities to ensure all New Zealanders, no matter what their characteristics, are safe online to benefit from the multiple opportunities of the digital environment.


2020 ◽  
Vol 4 (1) ◽  
pp. 11-12
Author(s):  
Alison McIntosh ◽  
Cheryl Cockburn-Wooten

Following the tragic events of the Christchurch shooting on 15th March 2019, New Zealanders projected a national image of hospitality towards Muslim New Zealanders, involving an Islamic call to prayer in Parliament, and women wearing hijab in solidarity – unique public demonstrations of compassion and inclusion. In 2020, the New Zealand government will raise its refugee quota to 1,500 refugees per year as part of its United Nations obligations and remove its race-based aspects [1]. Globally, there are vast displacements of people fleeing persecution and economic oppression [2]. Arguably, despite its small refugee resettlement quota, New Zealand appears hospitable. Yet our study reveals a context within which negative economic, social and political factors dominate policy and practices. It similarly highlights ways in which New Zealand’s hospitality towards refugees is paternalistic and interventionist, even if not deliberately [3]. ‘Being hospitable’ is typically defined as a social relation that accompanies the ideologies and unconditional practices of ‘welcome’ [4]. As an act of welcome, hospitality gives ethical recognition to the stranger. This practice of hospitality enables and resonates a feeling of belonging and inclusion. However, the intrinsic nature of hospitality may foster exclusion as well as inclusion. The Christchurch incident arose from an act of unwelcome and a false sense of security from authorities as previous discrimination reported by the local refugee Muslim community was ignored. As such, key questions remain about how hospitable New Zealand is to refugees. When refugees are resettled into a destination, refugee-focused service providers (including not-for-profits, community groups and NGOs) offer frontline services to ease refugees’ experiences of trauma and marginalisation. They provide advocacy and welcome through reception processes, translation services and multicultural centres. We facilitated a national think tank attended by 34 refugee-focused service providers to examine how they practice a hospitable welcome through their advocacy and frontline services and how the welcome could be improved. Participants identified the need for greater collaboration and communication between refugee-focused service providers to enhance trust, relationships, to enable former refugees to feel safe in voicing their concerns and access services, and to reduce the competition and duplication of service provision in the face of scarce funding. They also recognised the need to increase attention to the notion of welcome and advocacy by adopting practices from non-interventionist actions that draw on the notion of welcome as empathetic, warm and connecting, with minimum rules, and to centre refugee voices with their active participation in policy development, service delivery and social inclusion activities. Participants also advocated continued efforts by the media and wider community to reduce discrimination and negative social dialogue around refugees and to encourage their social inclusion. To achieve these outcomes, participants raised the need to address the important issues of underfunding and strategy underpinning the delivery of refugee-focused service provision. Overall, our findings suggest that beneath the initial welcoming surface, an alternative perspective may be concealed that restricts us from providing a broader inclusive hospitality and welcome into Aotearoa New Zealand. To bridge this potential impasse, a more humanistic approach is potentially required, where refugees actively co-create the critical framing of hospitality [5, 6] to better support their resettlement. The original research on which this article is based is available here https://doi.org/10.1080/02642069.2018.1472243 Corresponding author Alison McIntosh can be contacted at: [email protected] References (1) Graham-McLay, C. Under Pressure, New Zealand Ends Policy Branded Racist. The New York Times, Oct 4, 2019. https://www.nytimes.com/2019/10/04/world/asia/jacinda-ardern-refugees-new-zealand.html?fbclid=IwAR0JYwr7Fl31gtQ9qXS0XTTLXyNkTXSC9DBWot0Mf0UtQLp9EXTBKTmqcBk (accessed Oct 20, 2019). (2) Goldin, I.; Cameron, G.; Balarajan, M. Exceptional People: How Migration Shaped our World and will Define our Future; Princeton University Press: Princeton, NJ, 2012. (3) McIntosh, A.; Cockburn-Wootten, C. Refugee-Focused Service Providers: Improving the Welcome in New Zealand. The Service Industries Journal 2018. https://doi.org/10.1080/02642069.2018.1472243. (4). Lynch, P.; Germann Molz, J.; McIntosh, A.; Lugosi, P.; Lashley, C. Theorizing Hospitality. Hospitality & Society 2011, 1 (1), 3–24. https://doi.org/10.1386/hosp.1.1.3_2  (5) Still, J. Derrida and Hospitality: Theory and Practice; Edinburgh University Press: Edinburgh, 2010. (6) Brebner, L.; McIntosh, A.; Ewazi, S.; van Veen, M. Eds. Tastes of Home; Auckland University of Technology: Auckland, 2018.


2017 ◽  
Vol 4 (3) ◽  
pp. e29 ◽  
Author(s):  
Julie Prescott ◽  
Terry Hanley ◽  
Katalin Ujhelyi

Background The Internet has the potential to help young people by reducing the stigma associated with mental health and enabling young people to access services and professionals which they may not otherwise access. Online support can empower young people, help them develop new online friendships, share personal experiences, communicate with others who understand, provide information and emotional support, and most importantly help them feel less alone and normalize their experiences in the world. Objective The aim of the research was to gain an understanding of how young people use an online forum for emotional and mental health issues. Specifically, the project examined what young people discuss and how they seek support on the forum (objective 1). Furthermore, it looked at how the young service users responded to posts to gain an understanding of how young people provided each other with peer-to-peer support (objective 2). Methods Kooth is an online counseling service for young people aged 11-25 years and experiencing emotional and mental health problems. It is based in the United Kingdom and provides support that is anonymous, confidential, and free at the point of delivery. Kooth provided the researchers with all the online forum posts between a 2-year period, which resulted in a dataset of 622 initial posts and 3657 initial posts with responses. Thematic analysis was employed to elicit key themes from the dataset. Results The findings support the literature that online forums provide young people with both informational and emotional support around a wide array of topics. The findings from this large dataset also reveal that this informational or emotional support can be viewed as directive or nondirective. The nondirective approach refers to when young people provide others with support by sharing their own experiences. These posts do not include explicit advice to act in a particular way, but the sharing process is hoped to be of use to the poster. The directive approach, in contrast, involves individuals making an explicit suggestion of what they believe the poster should do. Conclusions This study adds to the research exploring what young people discuss within online forums and provides insights into how these communications take place. Furthermore, it highlights the challenge that organizations may encounter in mediating support that is multidimensional in nature (informational-emotional, directive-nondirective).


2020 ◽  
Vol 25 (1) ◽  
pp. 1-15 ◽  
Author(s):  
Amaia Del Campo ◽  
Marisalva Fávero

Abstract. During the last decades, several studies have been conducted on the effectiveness of sexual abuse prevention programs implemented in different countries. In this article, we present a review of 70 studies (1981–2017) evaluating prevention programs, conducted mostly in the United States and Canada, although with a considerable presence also in other countries, such as New Zealand and the United Kingdom. The results of these studies, in general, are very promising and encourage us to continue this type of intervention, almost unanimously confirming its effectiveness. Prevention programs encourage children and adolescents to report the abuse experienced and they may help to reduce the trauma of sexual abuse if there are victims among the participants. We also found that some evaluations have not considered the possible negative effects of this type of programs in the event that they are applied inappropriately. Finally, we present some methodological considerations as critical analysis to this type of evaluations.


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