From Personal Experiences to Classroom Teaching: A Socio- Psychological Study of Social Inclusion and Exclusion

<p>The original idea for this research came from a combination of the work that Richard Sandell has done on social inclusion in the United Kingdom, and my personal experiences with chronic pain. The aim of this research is to make known the experiences of chronic pain survivors in New Zealand and also to bring understanding about a range of invisible illnesses where chronic pain is a major symptom. Research methods used include surveys using quota sampling and content analysis, case studies, and an exhibition proposal. People living with chronic pain make up one in five New Zealanders, meaning just over 900,000 people have this condition/disability/illness. Yet, have you heard anyone talk about it? Cancer is often spoken about, but it only effects around 20,000 New Zealanders. Mental health problems are contemporaneous but only effect approximately 582,000 people in New Zealand. However chronic pain cannot kill, or can it? Many people who have chronic pain have other co-morbid disorders such as depression. Chronic pain needs more publicity, it yearns to be spoken about and understood. People with chronic pain have said that they feel misunderstood and unheard not only by family, friends and colleagues but also by their medical professionals as well. This research looks at whether there would be support from both the chronic pain community and healthy New Zealanders for an art exhibition about chronic pain. The exhibition would contain art produced by people with chronic pain and depict their daily lives with their condition(s). It also offers a contribution to museum studies and current practice by attending to a gap in the New Zealand literature, not even well covered by overseas literature, on this subject. It is the first dissertation to focus on pain in a museum/gallery setting in New Zealand and opens up public interaction and discussion about a taboo topic. New Zealand museums and galleries have to have the ability to challenge preconceived opinions and ideas about chronic pain, as well as the opportunity to engage with a large and often invisible community.</p>

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The Art of Chronic Pain: Creating an Exhibition Proposal on Chronic Pain for a New Zealand Gallery

10.26686/wgtn.17060474 ◽

2021 ◽

Author(s):

◽

Melissa Wells

Keyword(s):

Chronic Pain ◽

New Zealand ◽

Social Inclusion ◽

Mental Health Problems ◽

Art Exhibition ◽

Daily Lives ◽

The United Kingdom ◽

Personal Experiences ◽

Quota Sampling ◽

New Zealanders

<p>The original idea for this research came from a combination of the work that Richard Sandell has done on social inclusion in the United Kingdom, and my personal experiences with chronic pain. The aim of this research is to make known the experiences of chronic pain survivors in New Zealand and also to bring understanding about a range of invisible illnesses where chronic pain is a major symptom. Research methods used include surveys using quota sampling and content analysis, case studies, and an exhibition proposal. People living with chronic pain make up one in five New Zealanders, meaning just over 900,000 people have this condition/disability/illness. Yet, have you heard anyone talk about it? Cancer is often spoken about, but it only effects around 20,000 New Zealanders. Mental health problems are contemporaneous but only effect approximately 582,000 people in New Zealand. However chronic pain cannot kill, or can it? Many people who have chronic pain have other co-morbid disorders such as depression. Chronic pain needs more publicity, it yearns to be spoken about and understood. People with chronic pain have said that they feel misunderstood and unheard not only by family, friends and colleagues but also by their medical professionals as well. This research looks at whether there would be support from both the chronic pain community and healthy New Zealanders for an art exhibition about chronic pain. The exhibition would contain art produced by people with chronic pain and depict their daily lives with their condition(s). It also offers a contribution to museum studies and current practice by attending to a gap in the New Zealand literature, not even well covered by overseas literature, on this subject. It is the first dissertation to focus on pain in a museum/gallery setting in New Zealand and opens up public interaction and discussion about a taboo topic. New Zealand museums and galleries have to have the ability to challenge preconceived opinions and ideas about chronic pain, as well as the opportunity to engage with a large and often invisible community.</p>

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Twitter Usage Using Common Reference to Tinnitus

American Journal of Audiology ◽

10.1044/2020_aja-19-00055 ◽

2020 ◽

Vol 29 (2) ◽

pp. 206-217

Author(s):

Jianyuan Ni ◽

Monica L. Bellon-Harn ◽

Jiang Zhang ◽

Yueqing Li ◽

Vinaya Manchaiah

Keyword(s):

Nonprofit Organizations ◽

Temporal Trends ◽

Temporal Analysis ◽

Cross Sectional ◽

For Profit ◽

Common Reference ◽

Personal Experiences ◽

Twitter Users ◽

Sectional Analysis ◽

Share Information

Objective The objective of the study was to examine specific patterns of Twitter usage using common reference to tinnitus. Method The study used cross-sectional analysis of data generated from Twitter data. Twitter content, language, reach, users, accounts, temporal trends, and social networks were examined. Results Around 70,000 tweets were identified and analyzed from May to October 2018. Of the 100 most active Twitter accounts, organizations owned 52%, individuals owned 44%, and 4% of the accounts were unknown. Commercial/for-profit and nonprofit organizations were the most common organization account owners (i.e., 26% and 16%, respectively). Seven unique tweets were identified with a reach of over 400 Twitter users. The greatest reach exceeded 2,000 users. Temporal analysis identified retweet outliers (> 200 retweets per hour) that corresponded to a widely publicized event involving the response of a Twitter user to another user's joke. Content analysis indicated that Twitter is a platform that primarily functions to advocate, share personal experiences, or share information about management of tinnitus rather than to provide social support and build relationships. Conclusions Twitter accounts owned by organizations outnumbered individual accounts, and commercial/for-profit user accounts were the most frequently active organization account type. Analyses of social media use can be helpful in discovering issues of interest to the tinnitus community as well as determining which users and organizations are dominating social network conversations.

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What Does a Doctoral Degree in Rehabilitation Counseling Bring to Speech-Language Pathology Programs?

Perspectives on Issues in Higher Education ◽

10.1044/ihe15.2.63 ◽

2012 ◽

Vol 15 (2) ◽

pp. 63-69

Author(s):

Joseph P. Agan

Keyword(s):

Rehabilitation Counseling ◽

Doctoral Degree ◽

Interdisciplinary Studies ◽

Master's Level ◽

Speech Language Pathology ◽

Research And Teaching ◽

Personal Experiences ◽

Language Pathology ◽

Interdisciplinary Study ◽

The Impact

In this paper, I will describe the potential contributions of interdisciplinary studies combining speech-language pathology and rehabilitation counseling in the preparation of future speech-language pathologists (SLPs). I will provide a brief introduction to the field of rehabilitation counseling and consider it from an SLP’s perspective. Next, I will describe some of my own personal experiences as they pertain to the intersecting cultures of work and disability and how these experiences influenced my practice as a master’s level SLP eventually leading to my decision to pursue a doctoral degree in rehabilitation counseling. I will describe the impact of this line of interdisciplinary study on my research and teaching. Finally, I will present some arguments about why concepts relevant to rehabilitation counseling are important to the mindset of SLPs.

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Social Inclusion of People with Mental Illness

10.1017/cbo9780511543937 ◽

2006 ◽

Cited By ~ 82

Author(s):

Julian Leff ◽

Richard Warner

Keyword(s):

Mental Illness ◽

Social Inclusion ◽

People With Mental Illness

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Stakeholder Perspectives on the Stigma of Suicide Attempt Survivors

Crisis ◽

10.1027/0227-5910/a000413 ◽

2017 ◽

Vol 38 (2) ◽

pp. 73-81 ◽

Cited By ~ 31

Author(s):

Lindsay L. Sheehan ◽

Patrick W. Corrigan ◽

Maya A. Al-Khouja ◽

Keyword(s):

Suicide Attempt ◽

Health Professionals ◽

Attempted Suicide ◽

Community Based Participatory Research ◽

Public Stigma ◽

Suicide Method ◽

Community Based ◽

Stakeholder Perspectives ◽

Personal Experiences ◽

Prejudice And Discrimination

Abstract. Background: Past scholarly efforts to describe and measure the stigma surrounding suicide have largely viewed suicide stigma from the perspective of the general public. Aims: In the spirit of community-based participatory research (CBPR), the current study brought together a diverse stakeholder team to qualitatively investigate the suicide stigma as experienced by those most intimately affected by suicide. Method: Seven focus groups (n = 62) were conducted with suicide attempt survivors, family members of those who died by suicide, and suicide loss therapists. Results: Themes were derived for stereotypes (n = 30), prejudice (n = 3), and discrimination (n = 4). People who attempted suicide were seen as attention-seeking, selfish, incompetent, emotionally weak, and immoral. Participants described personal experiences of prejudice and discrimination, including those with health professionals. Conclusion: Participants experienced public stigma, self-stigma, and label avoidance. Analyses reveal that the stigma of suicide shares similarities with stereotypes of mental illness, but also includes some important differences. Attempt survivors may be subject to double stigma, which impedes recovery and access to care.

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Mutuality in Acculturation

Zeitschrift für Psychologie ◽

10.1027/2151-2604/a000150 ◽

2013 ◽

Vol 221 (4) ◽

pp. 205-213 ◽

Cited By ~ 27

Author(s):

Gabriel Horenczyk ◽

Inga Jasinskaja-Lahti ◽

David L. Sam ◽

Paul Vedder

Keyword(s):

Intergroup Relations ◽

Extended Model ◽

Psychological Study ◽

Intergroup Interactions ◽

Mutual Contact ◽

Acculturation Model ◽

Plural Societies ◽

Perceptions And Expectations

This paper focuses on processes and consequences of intergroup interactions in plural societies, focusing primarily on majority-minority mutuality in acculturation orientations. We examine commonalities and differences among conceptualizations and models addressing issues of mutuality. Our review includes the mutual acculturation model ( Berry, 1997 ), the Interactive Acculturation Model (IAM – Bourhis et al., 1997 ), the Concordance Model of Acculturation (CMA – Piontkowski et al., 2002 ); the Relative Acculturation Extended Model (RAEM – Navas et al., 2005 ), and the work on acculturation discrepancies conducted by Horenczyk (1996 , 2000 ). We also describe a trend toward convergence of acculturation research and the socio-psychological study of intergroup relations addressing issues of mutuality in attitudes, perceptions, and expectations. Our review has the potential to enrich the conceptual and methodological toolbox needed for understanding and investigating acculturation in complex modern societies, where majorities and minorities, immigrants and nationals, are engaged in continuous mutual contact and interaction, affecting each other’s acculturative choices and acculturative expectations.

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Modeling Intraindividual Variability in Three-Level Multilevel Models

Methodology ◽

10.1027/1614-2241/a000150 ◽

2018 ◽

Vol 14 (3) ◽

pp. 95-108 ◽

Cited By ~ 4

Author(s):

Steffen Nestler ◽

Katharina Geukes ◽

Mitja D. Back

Keyword(s):

Multilevel Model ◽

Multilevel Models ◽

Mixed Effects ◽

Repeated Measurements ◽

Scale Model ◽

Suggested Approach ◽

Psychological Study ◽

Level Data ◽

Ecological Momentary ◽

Momentary Assessment

Abstract. The mixed-effects location scale model is an extension of a multilevel model for longitudinal data. It allows covariates to affect both the within-subject variance and the between-subject variance (i.e., the intercept variance) beyond their influence on the means. Typically, the model is applied to two-level data (e.g., the repeated measurements of persons), although researchers are often faced with three-level data (e.g., the repeated measurements of persons within specific situations). Here, we describe an extension of the two-level mixed-effects location scale model to such three-level data. Furthermore, we show how the suggested model can be estimated with Bayesian software, and we present the results of a small simulation study that was conducted to investigate the statistical properties of the suggested approach. Finally, we illustrate the approach by presenting an example from a psychological study that employed ecological momentary assessment.

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