scholarly journals Alfabetización genética y adaptación psicológica en adolescentes con enfermedades genéticas

Author(s):  
Javiera Ortega ◽  
Natalia Vázquez ◽  
Claudia Arberas

Introducción: La convivencia con una condición genética es compleja y puede resultar limitante para el adolescente. Esta situación constituye un estresor y un factor de riesgo para la salud mental tanto del paciente como de su familia. Objetivo: Estudiar los niveles de adaptación psicológica y alfabetización genética en adolescentes con enfermedades genéticas, residentes en Argentina. Métodos: Alcance descriptivo correlacional, de diseño cuantitativo y corte transversal. El protocolo administrado consistió en un consentimiento informado, un cuestionario de datos socio-demográficos, y los instrumentos Genetic Health Literacy Screening Tool (REAL G) y  Psychological Adaptation Scale (PAS). El muestreo fue intencional y la muestra fue de 68 casos. Resultados: El REAL G indicó bajos niveles de de alfabetización genética en todos sus componentes (decodificación, familiaridad, comprensión, aritmética). En cuanto a la adaptación psicológica, se encontró una M=4,02 (DE= 0.8) para la escala general y puntuaciones elevadas para todas las dimensiones. Conclusión: Los adolescentes diagnosticados con enfermedades genéticas en Argentina poseen un buen nivel de adaptación psicológica a su enfermedad, a pesar de tener bajos niveles de alfabetización genética.

2015 ◽  
Author(s):  
Min-Huey Chung ◽  
Liang-Kung Chen ◽  
Li-Ning Peng ◽  
Mei-Ju Chi

Author(s):  
Veronica Irvin ◽  
Diana Rohlman ◽  
Amelia Vaughan ◽  
Rebecca Amantia ◽  
Claire Berlin ◽  
...  

In the U.S., privately owned wells are not subject to any regulatory testing requirements. Well owners must have sufficient environmental health literacy (EHL) to understand and interpret information that contain complex terms and labels to manage their water quality. The objective of this paper is to assess the performance and validity of a new EHL screening tool. The Water Environmental Literacy Level Scale (WELLS) is based on the Newest Vital Sign (NVS) and contains six questions on comprehension, calculations and application of information. Content validity was assessed from expert review. Criterion-related and construct validity were evaluated using an online, convenience sample of adults (n = 869). Percent of correct responses for items ranged from 53% to 96% for NVS and from 41% to 97% for WELLS. Completion time, mean scores, distributions, and internal consistency were equivalent between both scales. Higher scores suggest higher EHL. The scales were moderately correlated (ρ = 0.47, p < 0.001). Kappa agreement was 74%. Bland-Altman plots depicted little mean difference between the scales. Education and income level were positively associated with EHL. WELLS showed criterion-validity with NVS and construct validity with education and income. In practice or research, WELLS could quickly screen individuals for low EHL.


2008 ◽  
Vol 30 (4) ◽  
pp. 449-455 ◽  
Author(s):  
S. Y. Ibrahim ◽  
F. Reid ◽  
A. Shaw ◽  
G. Rowlands ◽  
G. B. Gomez ◽  
...  

2017 ◽  
Vol 35 (6_suppl) ◽  
pp. 127-127
Author(s):  
Ashwin A. Kotwal ◽  
Viraj A. Master ◽  
Ashesh B. Jani ◽  
Gertrude Fraser ◽  
Andrew M Wolf ◽  
...  

127 Background: Poor comprehension of prostate cancer (PCa) related terms can create barriers to informed discussions on screening, treatment, and measuring outcomes, and contribute to disparities in African American (AA) men. We developed a screening tool to assess for low PCa-related health literacy. Methods: We assessed PCa-related literacy in a sample of 189 AA men, age >40 years from diverse socioeconomic status (SES) using a 27-item scale derived comprehension of commonly used terms for urinary, bowel and sexual function. Using item-response models we examined differential item functioning by education. We developed rapid screening tools based on understanding of 1 or 2 words to predict overall comprehension. Receiver operating characteristic curves assessed the sensitivity and specificity for individuals understanding less than a pre-specified threshold of 70% on the overall scale, defined as “low literacy.” Results are being tested in an independent sample of 110 AA men. Results: The 27-item scale had good internal reliability (Cronbach alpha = 0.93). 47% of the sample met criteria for low literacy. Lower education groups had relatively poor comprehension of sexual function terms compared to higher education groups. 1-item scales using comprehension of the term “rectal urgency” had a sensitivity of 95% for identifying low literacy, “erection” had a specificity of 98%, and “vaginal intercourse” had a sensitivity of 91% and specificity of 81%. Combining “vaginal intercourse” and “rectal urgency” yielded a 2-item scale with strong characteristics (sensitivity 88%, specificity 89%), as did combining “vaginal intercourse” and “erection” (sensitivity 94%, specificity 81%). Conclusions: Rapid screening tools assessing PCa-related literacy performed well in a community sample of AA men with varied SES. Providers can use these tools to identify those at risk of poor comprehension to tailor outcome measurement and shared decision making. [Table: see text]


2013 ◽  
Vol 29 (1) ◽  
pp. 5-14 ◽  
Author(s):  
D. Apolinario ◽  
L. L. Mansur ◽  
M. T. Carthery-Goulart ◽  
S. M. D. Brucki ◽  
R. Nitrini

2017 ◽  
Vol 3 ◽  
pp. 233372141771309 ◽  
Author(s):  
Nikki Keene Woods ◽  
Amy K. Chesser

Objectives: Health Literacy skills are important for people of all ages. Older adults have the lowest health literacy rates. The purpose of this study was to assess health literacy rates and validate the use of a screening tool with older adults. Methods: Participants included a convenience sample, age 65 years or older, English speaking with corrected vision of 20/100 or better and typical cognitive skills. Participants completed the 36-item Short Test of Functional Health Literacy Assessment (STOFHLA) and a single item screening (SIS) tool. Results of STOFHLA and SIS were compared using nonparametric statistics. Results: Of the 64 participants, 94% had adequate scores on the STOFHLA, while 64% self-reported confidence in filling out medical forms, p = .006, χ2 = 7.606, df(1). Conclusion: Results suggest that use of health literacy screening tools for older adults may be of value. Additional studies are needed to expand the study sample and validate the findings of this study.


2015 ◽  
Vol 34 (2) ◽  
pp. 120-129 ◽  
Author(s):  
Sally Ann Rodríguez ◽  
Debra L. Roter ◽  
Carlos Castillo-Salgado ◽  
Gillian W. Hooker ◽  
Lori H. Erby

2021 ◽  
Author(s):  
Nicola Cogan ◽  
Yvonne Chin-Van Chau ◽  
Xi Liu ◽  
Steve Kelly ◽  
Tony Anderson ◽  
...  

International students often face psychosocial, academic, financial and adaptation challenges within the Higher Education (HE) environment that may impact on their mental health. The current study explored the understandings and experiences of Asian international students (AISs) in terms of mental health, disclosure, help-seeking and adaptation specific to cultural relocation within Scotland. A sequential multi-method approach was adopted consisting of two studies: (1) a qualitative study using individual semi-structured interviews with AISs (n=10) (Study 1) and (2) a cross-section survey comparing AISs and non-AISs (n=172) in terms of mental health literacy and psychological adaptation within the Scottish context (Study 2). Qualitative data were audio-recorded, transcribed, and analysed using a thematic approach. Quantitative data were analysed using regression and mediation analysis. Study 1 revealed three themes: (1) Negative beliefs, stigma and fear of judgment impacting on understandings and disclosure of mental health issues, (2) Adaptation and acculturation difficulties (lack of sense of belonging), and (3) Barriers in communication and social disconnection. Study 2 showed that AISs reported lower levels of mental health literacy, which in turn resulted in poorer psychological adaption compared to non-AISs. Supporting AISs in HE institutions involves challenging negative judgements surrounding mental health, increasing mental health literacy and addressing barriers in overcoming adaptation, acculturation and communication difficulties that may inhibit disclosure and help-seeking behaviour. The importance of mental health policies, supports and services in embracing culturally diverse understandings of mental health, challenging stigma and having culturally competent staff supporting student mental health within a multicultural learning environment is emphasised.


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