scholarly journals The Structure of Emotional Support Networks in Families Affected by Lynch Syndrome

2018 ◽  
Author(s):  
Christopher Steven Marcum ◽  
Dawn Lea ◽  
Dina Eliezer ◽  
Donald Hadley ◽  
Laura Koehly
Keyword(s):  
At Risk ◽  
Social Network ◽  
Lynch Syndrome ◽  
Emotional Support ◽  
Family System ◽  
Cancer Susceptibility ◽  
Family Members ◽  
Communal Coping ◽  
Support Resources ◽  
The Family

Genetic risk is particularly salient for families, and testing for genetic conditions is necessarily a family level process. Thus, risk for genetic disease represents a collective stressor shared by family members. According to communal coping theory, families may adapt to such risk vis-a-vis interpersonal exchange of support resources. We propose that communal coping is operationalized through the pattern of supportive relationships observed between family members. While past research has examined support exchange of family members who received genetic testing, the roles of family members who declined testing, or were not otherwise at risk for disease, have not been fully examined. In this study, we take a social network perspective to map communal coping mechanisms to their underlying social interactions and include those who declined testing or were not at risk for Lynch Syndrome. Specifically, we examine the exchange of emotional support resources in families at risk of Lynch Syndrome, a dominantly inherited cancer susceptibility syndrome. Our results show that emotional support resources depend on the testing-status of individual family members and are not limited to the bounds of the family. Network members from within and outside the family system are an important coping resource in this patient population. This work illustrates how social network approaches can be used to test structural hypotheses related to communal coping within a broader system and identifies structural features that characterize coping processes in families affected by Lynch Syndrome.

scholarly journals The structure of emotional support networks in families affected by Lynch syndrome

2020 ◽  
Vol 8 (4) ◽  
pp. 492-507
Author(s):  
Christopher Steven Marcum ◽  
Dawn Lea ◽  
Dina Eliezer ◽  
Donald W. Hadley ◽  
Laura M. Koehly
Keyword(s):  
At Risk ◽  
Social Network ◽  
Lynch Syndrome ◽  
Emotional Support ◽  
Family System ◽  
Cancer Susceptibility ◽  
Family Members ◽  
Communal Coping ◽  
Support Resources ◽  
The Family

AbstractGenetic risk is particularly salient for families and testing for genetic conditions is necessarily a family-level process. Thus, risk for genetic disease represents a collective stressor shared by family members. According to communal coping theory, families may adapt to such risk vis-a-vis interpersonal exchange of support resources. We propose that communal coping is operationalized through the pattern of supportive relationships observed between family members. In this study, we take a social network perspective to map communal coping mechanisms to their underlying social interactions and include those who declined testing or were not at risk for Lynch Syndrome. Specifically, we examine the exchange of emotional support resources in families at risk of Lynch Syndrome, a dominantly inherited cancer susceptibility syndrome. Our results show that emotional support resources depend on the testing-status of individual family members and are not limited to the bounds of the family. Network members from within and outside the family system are an important coping resource in this patient population. This work illustrates how social network approaches can be used to test structural hypotheses related to communal coping within a broader system and identifies structural features that characterize coping processes in families affected by Lynch Syndrome.

scholarly journals Father-child discourse in Family Guy: a corpus-based analysis

2020 ◽  
Vol 26 (2) ◽  
pp. 61-65
Author(s):  
Anhelina Sliepushova
Keyword(s):  
Family Communication ◽  
Gender Stereotypes ◽  
Emotional Support ◽  
Family Members ◽  
Family Roles ◽  
American Family ◽  
The Family ◽  
Word Lists ◽  
The Future ◽  
Family Guy

The article aims at analysis of gender and family stereotypes in father-child communication in an animated series Family Guy, featuring a typical American family. The study focuses on Peter Griffin's discourse, the father of the family, containing his communication with two of his teenage children, a son and a daughter, unveiling gender peculiarities in father-son and father-daughter discourses. The attempt is made to disclose how gender and family roles are verbalized in communication between family members. The conversation, discourse and corpus-based analyses have been used to analyze the main character's discourse in order to single out the father's specific vocabulary — through word lists, keyword lists, clusters and collocations — he uses while communicating with his son and daughter. The findings show that Peter Griffin chooses different language means while talking to his son and daughter. Thus, his discourse addressing his adolescent son Chris is rich in direct addresses, mainly commands when the father tries to discipline his son. Offering his son emotional support or encouragement the father stays forthright with him creating an image of “real men” stereotypical conversations. On the contrary, while communicating with his daughter Peter modifies her name Meg addressing her as honey, sweetheart, one-of-a-kind in father-daughter discourse. However, using diminutives he humiliates his daughter and makes her feel an abandoned child. In this way, he makes her feel special but in a negative way. Family communication created in the animated series reflects gender stereotypes in father's attitude to his children belonging to two different sexes. Nevertheless, this verbal tendency does not affect relationships within the family. For the future, it is worthwhile to compile a larger corpus including mother-child, child-father, and child-mother discourses to get more representative results

scholarly journals The function of the social networks of families of hospitalized children

2019 ◽  
Vol 23 (4) ◽  
Author(s):  
Rita de Cássia Melão de Morais ◽  
Tania Vignuda de Souza ◽  
Isabel Cristina dos Santos Oliveira ◽  
Juliana Rezende Montenegro Medeiros de Moraes ◽  
Elena Araújo Martinez ◽  
...  
Keyword(s):  
Social Networks ◽  
Social Network ◽  
Family Members ◽  
Main Role ◽  
Hospitalized Children ◽  
Pediatric Hospitalization ◽  
The Social ◽  
The Family ◽  
Main Components

ABSTRACT Objective: To analyze the role of the social network configured by the family/companion and their implications for their stay during the hospitalization of the child in the pediatric hospitalization unit. Method: Qualitative study with ten family members/companions of hospitalized children. Data collection was done through the technique of individual interview, which occurred in the period from February to December 2015. The analysis was thematic, in light of the theoretical reference of "Social Networks" described by Lia Sanicola. Results and discussion: The main role of the social network was emotional and material support, and the main components of this network were: companion, mother, aunt and daughter, as well as nursing team, physician and other family members/companions. Final considerations and implications for the practice: It was verified that the totality of the interviewees was female, however, the husband was the most important member of the social network for the family members involved, since they perform the material/financial and emotional function. In addition, the participants consider that they are responsible for all care to the family and, in the condition in that they are, they understand it as a favor provided by the other members of the network. Identifying the composition of the social networks of family members/companions provides a better targeting of care in order to strengthen the social support received.

This Seed Will Bear No Fruit

2019 ◽  
pp. 262-283
Author(s):  
Friday A. Eboiyehi
Keyword(s):  
Older People ◽  
Family System ◽  
Extended Family ◽  
Family Members ◽  
Developed Countries ◽  
Western World ◽  
Continuous Increase ◽  
The Family ◽  
The Developed Countries ◽  
Old People's Homes

The continuous increase in the number of older people and the gradual erosion of the extended family system which used to cater to them are alarming. While older people in much of the developed countries have embraced old people's homes as an alternative, the same cannot be said of older people in Nigeria who still believed that it is the duty of the family to accommodate them. The chapter examined the perception of older people about living in old people's home in some selected local government areas in Osun State, Nigeria. The study showed that their perception about living in old people's home was poor as many of them still held on to the belief that it was the responsibility of their family members to house them as it was done in the olden days. Although a few of the interviewees (particularly those who are exposed to what is obtained in the Western world and those with some level of education) had accepted the idea, many preferred to live with their family rather than being dumped in “an isolated environment,” where they would not have access to their family members. Pragmatic policy options aimed at addressing this emerging social problem were highlighted.

The Manager Caregiver

2020 ◽  
pp. 103-125
Author(s):  
Elaine Wittenberg ◽  
Joy V. Goldsmith ◽  
Sandra L. Ragan ◽  
Terri Ann Parnell
Keyword(s):  
Health Information ◽  
Family System ◽  
Family Members ◽  
Role Expectations ◽  
Care Recipient ◽  
Social Psychological ◽  
Communication Climate ◽  
Professional Help ◽  
The Family

As the Manager emerges from a communication climate of HIGH/WARM conformity (strong pull to share in similar values, attitudes, beliefs, and familial role expectations) and HIGH/COLD conversation (frequent and restricted communication contacts within the family system), the priority and commitment to family is prioritized. This priority can subvert the needs of this caregiver, and the Manager can find themselves protecting the care recipient and, at times, other family members from the challenges associated with understanding a diagnosis and its treatment. The Manager is drawn to professional help and support as well as health information, but this does not mean the Manager is sure about either—and they are strongly reliant on opinions of providers and professionals in their midst. The Manager employs similar approaches to all manner of pain (physical, emotional, social, psychological, spiritual) and because of the vigilance of the Manager, serving as the expert on the patient is a key-defining trait that is communicated via interactions with providers, family, patient, and other players. This trait positions the Manager to plan and activate care and advance the dynamics of the family system in which they live.

scholarly journals Depression profiles among adolescents and their parents: A group-based multi-trajectory modeling

2020 ◽  
Author(s):  
Xiang Zhou ◽  
Xiaoning Sun
Keyword(s):  
At Risk ◽  
Health Outcomes ◽  
Family System ◽  
Panel Study ◽  
Family Members ◽  
Chinese Family ◽  
Depression Symptoms ◽  
System Perspective ◽  
Trajectory Modeling ◽  
Risk For Depression

Background: Early onset of depression predicts unfavorable psychosocial and health outcomes, and depression often co-occurs for children and their parents, yet family profiles of depression trajectories are not fully examined. Methods: This population-based longitudinal prospective cohort study included 2,111 families drawn from the Chinese Family Panel Study (CFPS) with biannual assessments from 2010 to 2018. Group-based multi-trajectory modeling was used to identify depression trajectories of children, fathers, and mothers. Results: Six distinct profiles of depression symptoms were identified: 1) low stable among all family members (35.6%); (2) low increasing in child and moderate stable in parents (13.1%); (3) low increasing in child, father resurging, and mother high increasing (3.2%); (4) low/moderate stable in child and father, and moderate increasing in mother (26.8%); (5) low/moderate stable in child and mother, and moderate increasing in father (12.5%); (6) moderate/high symptoms in all family members (8.8%). Conclusions: Based upon multi-trajectory findings of family depression profiles, when adolescents are at risk for depression, there is likely at least one parent concurrently at risk for depression, but not vice versa. Families with social disadvantages and children of delayed developmental milestones are at elevated risk for depression. Even when children are at low risk for depression, depression in parents can spill over to impact other psychosocial and health outcomes. These findings suggest examining depression and its associating psychosocial factors could help identify trajectories of varying onset and continuity, which can inform early prevention and intervention from a family system perspective.

The Family Relationships of Older Australians at Risk of Homelessness

2020 ◽  
Vol 50 (5) ◽  
pp. 1440-1456
Author(s):  
Maree Petersen ◽  
Cameron Parsell
Keyword(s):  
Data Mining ◽  
At Risk ◽  
Social Work ◽  
Family Relationships ◽  
Elder Abuse ◽  
Family Members ◽  
Work Practice ◽  
Social Work Practice ◽  
Aged Care ◽  
The Family

Abstract This article explores the links between older people’s homelessness and family relationships and aims to inform social work practice frameworks. Whilst breakdown in family relationships is widely recognised as linked to being at risk of homelessness, there is less understanding of the interplay of family, both positive and negative, with older people’s homelessness. Drawing on a study incorporating data mining of service records, this article aims to provide clarity on supportive and troubled family relationships and their links to housing crises as experienced by older Australians. The findings highlight a number of domains for social work practice including undertaking skilled assessments to understand the strengths and constraints experienced by families. Assessments will then inform intervention to support and provide resources to some families to prevent their older family members’ homelessness and to intervene in both a preventative and empowering way to address elder abuse. The implications for policy, in particular, the need for sectors of housing, aged care and health to intersect, are discussed.

Superficial and systemic diagnosis of family

2010 ◽  
Vol 41 (3) ◽  
pp. 113-121 ◽  
Author(s):  
Waldemar Świętochowski
Keyword(s):  
Factor Analysis ◽  
Theoretical Model ◽  
Personality Traits ◽  
Family System ◽  
Family Members ◽  
Family Assessment ◽  
Assessment Measure ◽  
The Family ◽  
Systemic Model ◽  
Psychological Questionnaires

Superficial and systemic diagnosis of family The distinction between two types of diagnosis of family was inspired by the concept of surface and source features of personality by R.B. Cattell. By means of existing psychological questionnaires we can only know the surface of consciously available mental phenomena. The same is true in the diagnosis of family. The McMaster model of family, systemic in its assumptions, developed research tools giving access only to the surface of the phenomena. Although they are divided into certain thematic categories they do not reveal what is really important in the family system. In this article, the author, after a detailed discussion of one of the tests based on the McMaster theoretical model, is attempting to identify the source features (here: unavailable for conscious cognition) of the family, hereinafter called systemic traits. In this research the exploration factor analysis was used. Three perspectives of the opinion of the family were maintained (like in the Family Assessment Measure). Factor analysis allowed identification of three factors for each perspective of the family assessment. Confirmative analysis proved a satisfactory match (using RMSEA, GFI and AGFI statistics). The accuracy of the identified systemic model was then tested by a confirmation study (confirmative factor analysis using Amos from SPSS). The authors also prepared a provisional questionnaire for measuring these systemic traits of the family. The tool proved to be promising and the work worth continuing. Incidentally, it turned out that the characteristics of the family system are relatively independent of personality traits of family members.

Family Members as Caregivers of Individuals with Intellectual Disabilities

2016 ◽  
pp. 118-138
Author(s):  
Krishna Shailesh Vora
Keyword(s):  
Intellectual Disabilities ◽  
Emotional Support ◽  
Family Members ◽  
Support Staff ◽  
The Family ◽  
Individual Family ◽  
The Individual ◽  
Individuals With Intellectual Disabilities

Whenever you have an individual suffering from any disorder, whether emotional, behavioural or intellectual; the prime focus is almost always the individual experiencing it first hand. Often we tend to neglect the sacrifices or adjustments made by the family members. Caregiver stress is one of the phenomena explored here along with experiences of individual family members and the resources available to make it easier for them. Resources could be in terms of finances, emotional support, personality strengths or the society they live in. Another unlikely term explored over here is that of Caregiver Gain which is recently being given attention due to it. This chapter explores the unique experiences of parents, siblings, grandparents as well as support staff as caregivers of individuals with Intellectual Disabilites. We also have a look at traits that help cope with the caregiving process.

Session 8: Family Roles, Communication, and Support

2020 ◽  
pp. 95-102
Author(s):  
Bryan D. Carter ◽  
William G. Kronenberger ◽  
Eric L. Scott ◽  
Christine E. Brady
Keyword(s):  
Family Communication ◽  
Family Systems ◽  
Family System ◽  
Family Members ◽  
Parenting Behaviors ◽  
Family Roles ◽  
Family Dynamic ◽  
Family Situation ◽  
The Family ◽  
The Impact

Session 8 is again focused primarily on family communication and dynamics for the purposes of identifying and addressing parenting behaviors and parent–teen dynamics that may unwittingly undermining teen confidence in becoming more independent in managing their illness and lifestyle. The clinician engages the family in a discussion of parental and teen roles within the family system and an examination of the impact of the teen’s illness on family members’ roles. Behavioral family systems concepts of “misguided support” and “strong beliefs” that family members hold, but that inadvertently may be serving to maintain a dependent or even overprotective/enmeshed family dynamic, are introduced and applied to the family situation, along with strategies for moving these dynamics in a more independence-engendering direction.

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