Session 8: Family Roles, Communication, and Support

Author(s):  
Bryan D. Carter ◽  
William G. Kronenberger ◽  
Eric L. Scott ◽  
Christine E. Brady

Session 8 is again focused primarily on family communication and dynamics for the purposes of identifying and addressing parenting behaviors and parent–teen dynamics that may unwittingly undermining teen confidence in becoming more independent in managing their illness and lifestyle. The clinician engages the family in a discussion of parental and teen roles within the family system and an examination of the impact of the teen’s illness on family members’ roles. Behavioral family systems concepts of “misguided support” and “strong beliefs” that family members hold, but that inadvertently may be serving to maintain a dependent or even overprotective/enmeshed family dynamic, are introduced and applied to the family situation, along with strategies for moving these dynamics in a more independence-engendering direction.

2020 ◽  
Vol 26 (2) ◽  
pp. 61-65
Author(s):  
Anhelina Sliepushova

The article aims at analysis of gender and family stereotypes in father-child communication in an animated series Family Guy, featuring a typical American family. The study focuses on Peter Griffin's discourse, the father of the family, containing his communication with two of his teenage children, a son and a daughter, unveiling gender peculiarities in father-son and father-daughter discourses. The attempt is made to disclose how gender and family roles are verbalized in communication between family members. The conversation, discourse and corpus-based analyses have been used to analyze the main character's discourse in order to single out the father's specific vocabulary — through word lists, keyword lists, clusters and collocations — he uses while communicating with his son and daughter. The findings show that Peter Griffin chooses different language means while talking to his son and daughter. Thus, his discourse addressing his adolescent son Chris is rich in direct addresses, mainly commands when the father tries to discipline his son. Offering his son emotional support or encouragement the father stays forthright with him creating an image of “real men” stereotypical conversations. On the contrary, while communicating with his daughter Peter modifies her name Meg addressing her as honey, sweetheart, one-of-a-kind in father-daughter discourse. However, using diminutives he humiliates his daughter and makes her feel an abandoned child. In this way, he makes her feel special but in a negative way. Family communication created in the animated series reflects gender stereotypes in father's attitude to his children belonging to two different sexes. Nevertheless, this verbal tendency does not affect relationships within the family. For the future, it is worthwhile to compile a larger corpus including mother-child, child-father, and child-mother discourses to get more representative results


Author(s):  
Darby Morhardt ◽  
Marcia Spira

When a member of a family is diagnosed with Alzheimer's disease, the impact of the disease reverberates throughout the relationships within the family. This paper explores the challenges and strengths within one family as members manage and cope with Alzheimer's disease. The person with dementia and his family members are individually interviewed and each person explores the consequences of the disease on personal well-being as well as the relationships within the family. The family demonstrates how dementia in one family member demands flexibility in family roles as they navigate life through the challenges of living with dementia.


2020 ◽  
Vol 7 (8) ◽  
pp. 707-722
Author(s):  
Ana Kuswanti ◽  
Munadhil Abdul Muqsith ◽  
Anna Gustina Zainal ◽  
Selly Oktarina

AbstractThis article wants to explain that the Coronavirus Disease or COVID-19 pandemic disrupts the structure of family life. Since the government suppressed physical distancing, it indirectly allowed almost 24 hours to be at home. The COVID-19 pandemic greatly tested family resilience. Positively, the impact of independent quarantine gives time to get to know each other deeply among family members. On the other hand, the more often family members meet increases boredom, which then causes friction to occur. This paper writes how the family communication management strategy when Pandemic COVID-19 to create a harmonious and prosperous family, conduct interpersonal communication, responsibility for the environment and family, intensity and direction of communication with a harmonious atmosphere, healthy parenting even in a physical atmosphere distancing or guarding the distance according to government recommendations. Keywords: family communication management, COVID-19 pandemic, family resilience AbstrakArtikel ini ingin menjelaskan bahwa pandemik Coronavirus Disease atau COVID-19 mendistrupsi tatanan kehidupan keluarga. Sejak pemerintah menekannya physical distancing atau penjagaan jarak secara tidak langsung memberikan waktu nyaris 24 jam berada di rumah. Pandemi COVID-19 sangat menguji ketahanan keluarga. Secara positif, dampak karantina mandiri memberi waktu untuk saling mengenal secara mendalam antar anggota keluarga. Disisi lain, semakin sering anggota keluarga bertemu meningkatkan rasa jenuh yang kemudian menimbulkan gesekan terjadi. Tulisan ini menulis bagaimana strategi manajemen komunikasi keluarga saat Pandemi COVID-19 sehingga tercipta keluarga yang harmonis dan sejahtera, melakukan komunikasi antar pribadi, tanggung jawab pada lingkungan dan keluarga, intensitas dan arah komunikasi dengan atmosfir yang harmonis, pola asuh hidup sehat walaupun dalam suasana physical distancing atau penjagaan jarak sesuai anjuran pemerintah. Kata kunci: manajemen komunikasi keluarga, pandemik COVID-19, ketahanan keluarga


2016 ◽  
Vol 15 (1) ◽  
pp. 3-11 ◽  
Author(s):  
Elaine Wittenberg ◽  
Kate Kravits ◽  
Joy Goldsmith ◽  
Betty Ferrell ◽  
Rebecca Fujinami

AbstractObjective:Caring for the family is included as one of the eight domains of quality palliative care, calling attention to the importance of the family system and family communications about cancer during care and treatment of the disease. Previously, a model of family caregiver communication defined four caregiver communication types—Manager, Carrier, Partner, Lone—each with a unique communication pattern. The purpose of the present study was to extend the model of family caregiver communication in cancer care to further understand the impact of family communication burden on caregiving outcomes.Method:This mixed-method study employed fieldnotes from a family caregiver intervention focused on quality of life and self-reported caregiver communication items to identify a specific family caregiver type. Caregiver types were then analyzed using outcome measures on psychological distress, skills preparedness, family inventory of needs, and quality-of-life domains.Results:Corroboration between fieldnotes and self-reported communication for caregivers (n = 21, 16 women, mean age of 53 years) revealed a definitive classification of the four caregiver types (Manager = 6, Carrier = 5, Partner = 6, Lone = 4). Mean scores on self-reported communication items documented different communication patterns congruent with the theoretical framework of the model. Variation in caregiver outcomes measures confirmed the model of family caregiver communication types. Partner and Lone caregivers reported the lowest psychological distress, with Carrier caregivers feeling least prepared and Manager caregivers reporting the lowest physical quality of life.Significance of results:This study illustrates the impact of family communication on caregiving and increases our knowledge and understanding about the role of communication in caregiver burden. The research provides the first evidence-based validation for a family caregiver communication typology and its relationship to caregiver outcomes. Future research is needed to develop and test interventions that target specific caregiver types.


2011 ◽  
Vol 23 (1) ◽  
pp. 57-76
Author(s):  
Johannes Jungbauer ◽  
Jutta Kinzel-Senkbeil ◽  
Juliane Kuhn ◽  
Albert Lenz

Objective: This study aims at investigating the impact of a parental schizophrenia on the family members, their everyday life and their relations. For this purpose, we conduct qualitative interviews with mothers and fathers suffering from schizophrenia, their spouses and children. Methods: Interview data is analyzed using casereconstructive as well as content analysis methods. Results: Although results illustrate a great variety of family constellations and burdening circumstances, there are a number of typical patterns: Having children is perceived by affected parents in an ambiguous manner, i.e. as a resource as well as a distress. Relationships of couples and families are often impaired, resulting in a high risk of abandonment of relationships. At the same time, family members strive for normality in everyday life. Normalisation and avoidance strategies can bring about that the schizophrenia becomes a taboo issue within the family. Thus, with regard to their parent’s illness, many of the children are insufficiently informed. Often, the children are overstrained by this situation and, in turn, may develop behaviour disorders, anxiety, or depression. Discussion: In sum, schizophrenia can be considered as a “family disease” as it strongly affects the whole family system. Hence, it is necessary to provide preventive help offers for affected parents, their spouses and children. For delivering support, youth welfare and public health services should cooperate closely. Zusammenfassung Fragestellung: In diesem Beitrag werden Ergebnisse einer fallrekonstruktiven Studie vorgestellt, bei der Familien mit einem schizophren erkrankten Elternteil befragt wurden. Dabei sollte untersucht wurden, wie sich die Schizophrenie auf die Familienmitglieder, ihren Alltag und ihre Beziehungen auswirkt. Methodik: Die Auswertung erfolgte sowohl fall- als auch themenbezogen, wobei inhaltsanalytische und fallrekonstruktive Verfahren eingesetzt wurden. Ergebnisse: Trotz der Vielfalt der familiären Konstellationen und Belastungslagen zeigte sich eine Reihe charakteristischer Muster. Kinder zu haben bedeutet für erkrankte Eltern, sowohl Ressourcen als auch Belastungen zu haben. Paar- und Familienbeziehungen sind oft stark beeinträchtigt und weisen ein hohes Risiko für Beziehungsabbrüche auf. Zugleich wird im Familienalltag eine Normalität jenseits der Erkrankung angestrebt und erlebt. Normalisierungs- und Vermeidungsstrategien können dazu beitragen, dass die Erkrankung zu einem Tabuthema wird. Viele Kinder sind daher unzureichend über die elterliche Schizophrenie informiert. Sie sind in dieser Situation oft überfordert und entwickeln ihrerseits Verhaltensauffälligkeiten, Ängste und Depressionen. Diskussion: Die Schizophrenie kann insofern als „Familienerkrankung“ gedeutet werden, als sie das gesamte Familiensystem beeinflusst, belastet und gefährdet. Aus diesem Grund sollten verstärkt familienorientierte Präventionsangebote bereitgestellt werden, wobei Gesundheitswesen und Jugendhilfe eng miteinander kooperieren sollten.


2020 ◽  
Vol 41 (Supplement_1) ◽  
pp. S131-S131
Author(s):  
Dana R Dillard ◽  
Stacey R Kolomer

Abstract Introduction Interventions for burn-injured children (BIC) largely focus on the child with the physical injury while consideration for family systems appears incidental. This study aimed to gain insight into the perspectives and needs of parents/caregivers of pediatric burn patients (PPBP). When considering BIC within the context of a family system, it is reasonable to expect the injury to engulf everyone. The literature emphasizes the acute and lasting physical and emotional impact of burns. Moreover, research suggests PPBP experience an emotional response to the incident that is often complicated by physical absence from their other uninjured children. Thus, this exploratory study fills a gap by engaging the unique perspective of the PPBP and posits direct implications for essential program enhancement/development. Methods PPBP attending a family program participated in semi-structured interviews (N=11) guided by the research question: What are the experiences of PPBP? Participants’ self-identified as African American (n=4), Caucasian (n=5), and Latino (n=2). Age ranged from 29 to 48 (M=38.36, SD=6.14). Interviews involved queries regarding the burn incident, from injury to present (M=7.12 years, SD=4.61), including support received, what they wish people understood about the experience, and ideas for programming. Interviews were recorded and transcribed. Data were analyzed using van Manen’s hermeneutic phenomenological approach. Results Findings supported PPBP’s unique experience coalescing into one theme—the never-ending trip from hell—conceptualized as, “I didn’t mean to get here—none of this is familiar and I can’t find anyone I know. What’s going on and when will it be over?” Mutual painful insights were parental guilt, sensory experiences related to the acute incident and aftercare, unknown prognosis and medical treatment expectations, physical/emotional health problems, family members insensitivity, managing the cruelty of others, isolation, marital strains, and sibling tensions. Families also reported positive outcomes: strength of informal support networks, empowerment through educating others, and creating new allies. PPBP emphasized the benefits associated with meeting other families who also endured a burn injury and the importance of mutual support. Conclusions Programs should address the needs of all family members, not just BIC. In order to mitigate the impact of burn trauma, the family system impact remains a critical primary consideration for research and interventions. Applicability of Research to Practice Findings can contribute to program planning with increased consideration of the family system. As a result of findings from this study, siblings are now included in a summer camp program historically serving only BIC.


2021 ◽  
Vol 129 (s1) ◽  
pp. 44-55
Author(s):  
Lorena Cudris-Torres ◽  
Marly Johana Bahamón ◽  
José Julián Javela ◽  
Giselle Olivella-López ◽  
Raúl A. Gutiérrez-García ◽  
...  

Family communication establishes a vehicle for the transmission of information between family members and completely marks the nature and quality of family life. Family communication can be understood as an index of the climate and quality of the family system. La comunicación familiar establece un vehículo para la transmisión de información entre los miembros dela familia y marca por completo la naturaleza y la calidad de la vida familiar. La comunicación familiar puede entenderse como un índice del clima y la calidaddel sistema familiar.


2020 ◽  
pp. 1-7
Author(s):  
Tara Sims

BACKGROUND: The impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences. METHODS: Nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview. RESULTS: Analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’. CONCLUSIONS: Parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.


2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Susanne A. Elsner ◽  
Sam S. Salek ◽  
Andrew Y. Finlay ◽  
Anna Hagemeier ◽  
Catherine J. Bottomley ◽  
...  

Abstract Background The Family Reported Outcome Measure (FROM-16) assesses the impact of a patient’s chronic illness on the quality of life (QoL) of the patient’s partner or family members. The aim of the study was to translate, explore the structure of and validate the FROM-16. Methods The questionnaire was translated from English into German (forward, backward, four independent translators). Six interviews with family members were conducted to confirm the questionnaire for linguistic, conceptual, semantic and experiential equivalence and its practicability. The final German translation was tested for internal consistency, reproducibility and test validity. Criterion validity was tested by correlating the scores of the FROM-16 and the Global Health Scale (GHS). Principal component analysis, factor analysis, and confirmatory factor analysis was used to assess the questionnaire’s structure and its domains. Reliability and reproducibility were tested computing the intraclass correlation coefficient (ICC) using one sample t-test for testing the hypothesis that the difference between the scores was not different from zero. Results Overall, 83 family members (61% female, median age: 61 years) completed the questionnaire at two different times (mean interval: 22 days). Internal consistency was good for the FROM-16 scores (Cronbach’s α for total score = 0.86). In those with stable GHS, the ICC for the total score was 0.87 and the difference was not different from zero (p = 0.262) indicating reproducible results. A bi-factor model with a general factor including all items, and two sub-factors comprising the items from the original 2-factor construct had the best fit. Conclusions The German FROM-16 has good reliability, test validity and practicability. It can be considered as an appropriate and generic tool to measure QoL of a patient’s partner or family member. Due to the presence of several cross-loadings we do not recommend the reporting of the scores of the two domains proposed for the original version of FROM-16 when using the German version. Thus, in reporting the results emphasis should be put on the total score. Trial registration: Retrospectively registered: DRKS00021070.


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