scholarly journals More than feeling ‘a bit rocky’. Mal de Debarquement Syndrome (MdDS) Australia, quality of life survey 2016.

2017 ◽  
Author(s):  
Alan Pearce ◽  
Chris Daws
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
General Health ◽  
Online Survey ◽  
Working Environment ◽  
Future Research ◽  
The Future ◽  
Mal De Debarquement Syndrome ◽  
Multiple Variables

This report is the first study to investigate quality of life for those suffering with Mal de Debarquement Syndrome (MdDS). In June 2016, members of MdDS Australia were invited to participate in an anonymous online survey investigating their quality of life in regards to general health status; work and social activities; depression and fatigue; life enjoyment; and MdDS inference in daily activities.Sixty-three members (73% response rate) completed the survey over the four-week period. Average age of the respondents was 41 years, with 96% of the respondents being female. Time of onset to official MdDS diagnosis was 2 years. The general health of respondents was fair to good but there was noticeable response regarding the future of their health status in the future. MdDS has a notable effect on activities of daily living, and also the work environment (including housework), where many respondents noted that they have modified their working hours/load to accommodate MdDS. There was almost unanimous agreement that there is significant ignorance or misunderstanding of MdDS by clinicians and allied health workers. Also, the lack of understanding of MdDS in the wider community may also play an effect on the working environment for respondents.Overall, this preliminary survey has found that the multiple variables of ignorance/misunderstanding, modification of the working environment (including housework), and being unsure of the future, collectively contribute to constant anxiety and worry about MdDS which is likely to have an affect on cognitive abilities and the mental health of a majority of respondents. Future research should look at creating an individual quality of life score to understand how MdDS affects each person specifically.

Quality of life along the diabetes continuum: a cross-sectional view of health-related quality of life and general health status in middle-aged and older Finns

2014 ◽  
Vol 23 (7) ◽  
pp. 1935-1944 ◽  
Author(s):  
Saku Väätäinen ◽  
Sirkka Keinänen-Kiukaanniemi ◽  
Jouko Saramies ◽  
Hannu Uusitalo ◽  
Jaakko Tuomilehto ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
General Health ◽  
Health Related Quality ◽  
General Health Status ◽  
Middle Aged ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

O-168 Chronic pelvic pain is the most troublesome endometriosis pain symptom for women’s quality of life

2021 ◽  
Vol 36 (Supplement_1) ◽  
Author(s):  
P Pijpops ◽  
S Apers ◽  
C Meuleman ◽  
C Tomassetti ◽  
E Dancet
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Pelvic Pain ◽  
General Health ◽  
Chronic Pelvic Pain ◽  
Pain Symptom ◽  
General Health Status ◽  
Pain Symptoms ◽  
Specific Health

Abstract Study question Which pre-operative endometriosis pain symptom is most troublesome for the quality-of-life of women assessed at different meta-levels? Summary answer Of five pain symptoms chronic pelvic pain is most troublesome or has the strongest correlation to women’s overall quality-of-life and overall and endometriosis-specific health status. What is known already Endometriosis affects women’s quality of life negatively, and its impact seems to depend more on women’s symptoms than on their degree of endometriosis. Experts proposed to include ‘the most troublesome symptom’ and ‘overall pain’ as core outcomes but did not define how to assess these outcomes. It would be interesting to find out which pain symptom (i.e. assessed for presence and intensity) has most impact on women’s quality-of-life assessed at different meta-levels, including: overall quality-of-life (depending on amongst others one’s professional and relational life besides health), general health status and endometriosis-specific health status. Study design, size, duration A prospective survey addressed 277 adult women scheduled for diagnostic and/or therapeutic surgery in a University endometriosis clinic between October 2016 and November 2019. Women were reminded twice of our request to fill out the coded but anonymous questionnaire package assessing five pain symptoms (i.e. chronic pelvic pain, dysmenorrhea, dyspareunia, dysuria and dyschezia) and assessing quality-of-life at three different meta-levels. Participants/materials, setting, methods Women scored five endometriosis symptoms between 0 (no pain) and 10 (worst imaginable pain), combined into ‘overall pain’ (0-50). ‘Overall quality-of-life’ was assessed with the Linear Analogue Scale (LAS; the higher, the better). General and endometriosis-specific health status were assessed with the overall scores of the EuroQol-5D and the Endometriosis-Health-Profile-30 (the higher, the better). Pearson correlation coefficients between the six pain scores and three measures of quality-of-life were computed (p = 0.003; 0.05/18 as Bonferroni correction). Main results and the role of chance A total of 227 women took part (participation rate=82%) and the data of 202 women (mean age 31±5 years old) with surgically confirmed endometriosis were analysed. In the previous six months, the majority of women reported chronic pelvic pain (56%), dyspareunia (55%), dysmenorrhea (56%) and/or dyschezia (58.4%), while only some reported dysuria (25%). Women’s mean overall pain score was 20 (±12). Women’s mean overall quality-of-life was 65 (±16). On average women rated their general health status to be 62 (±18) and their mean endometriosis-specific health status was 53 (±18). Only the pain symptom chronic pelvic pain was correlated (p < 0.001) to assessments of quality-of-Life at all three meta-levels. The correlation for endometriosis-specific health status was large (r= -0.574), while the others were medium (r= -0.343 & r= -0.324). After taking account of the Bonferroni correction for multiple testing the remaining four pain symptoms only had a medium correlation (p < 0.001) to endometriosis-specific health status (r= -0.356 – -0.265; p < 0.001) and they were not correlated to overall quality-of-Life or general health status. Overall pain had a medium correlation (p < 0.001) to Overall quality-of-Life (r= -0.270) and general health status (r= -0.259) and a strong correlation (p < 0.001) to endometriosis-specific health status (r= -0.529). Limitations, reasons for caution The majority of patients (60%) of the recruiting University endometriosis clinic had severe endometriosis (AFS-IV) and this study could be repeated in another setting. Directly asking women which pain symptom is most troublesome to them would be interesting besides exploring correlations between pain symptoms and quality of life. Wider implications of the findings Nurses, midwives and other health care professionals should devote attention to chronic pelvic pain during the anamnesis and women-centred care as this pain symptom is most troublesome for women’s quality of life. Whether surgery decreases chronic pelvic pain and overall pain is currently followed-up in the studied prospective cohort. Trial registration number Not applicable

Abstract 13633: Predictors of Mental and Physical Health Outcomes of Patients Undergoing an Appointment-based Cardiac Rehabilitation Program

Circulation ◽  
2020 ◽  
Vol 142 (Suppl_3) ◽  
Author(s):  
Catherine Xie ◽  
Sean Fournier ◽  
Susan Hiller ◽  
Joyce Oen Hsiao ◽  
Rachel P Dreyer
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Cardiac Rehabilitation ◽  
General Health ◽  
Health Related Quality ◽  
Sf 36 ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Introduction: Cardiac rehabilitation (CR) is an evidence-based program to improve secondary prevention outcomes for patients with cardiovascular disease (CVD). Lower health-related quality of life is a known risk factor for worse CVD outcomes. We examined the effects of a patient-driven appointment-based CR program on health-related quality of life. Methods: We utilized data from the Yale New-Haven Health (YNHH) CR program over a 6-year period (2012-2017). Data was collected on patient demographics, clinical characteristics and socioeconomic status. The Medical Outcome Short-Form General Health Survey (SF-36) was used to measure general health status. We evaluated SF-36 score changes pre and post CR with paired T-tests and conducted logistic regression analysis to examine predictors of improvements in health-related quality of life. Results: Over the 6-year study period, a total of 2,135 patients (27.9% women, mean age 65±12 years) were enrolled in the CR program. Patients demonstrated significant improvements in both the SF-36 physical, mental and health transition components (P<0.001) (Table) . In particular, patients had significant improvement in the social functioning domain (measures limitations patients see in their ability to participate in social activities due to physical/emotional issues), with an increase of 23.3 points out of 100. Physician-reported patient stress and/or depression on intake medical exam were significant negative predictors for improvement in the total SF-36 score (OR 0.23, 95% CI 0.08-0.80, P=0.021), with the effect driven largely by its impact on the physical component of SF-36 (OR 0.27, 95% CI 0.09-0.83, P=0.022). Conclusion: We demonstrated that a novel appointment-based CR program produced improvements in patient-reported health-related quality of life. Appointment-based CR could be a viable alternative for patients who prefer more scheduling flexibility, to optimize health status improvement and CVD outcomes.

Effects of Panax Ginseng on Quality of Life

2002 ◽  
Vol 36 (3) ◽  
pp. 375-379 ◽  
Author(s):  
Jennifer M Ellis ◽  
Prabashni Reddy
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Health Status ◽  
Social Functioning ◽  
Panax Ginseng ◽  
General Health ◽  
Analysis Of Covariance ◽  
General Health Status ◽  
Health Status Questionnaire

OBJECTIVE: To assess the time-dependent effects of Panax ginseng on health-related quality of life (HRQOL) by use of a general health status questionnaire. METHODS: Subjects were randomized in a double-blind manner to P. ginseng 200 mg/d (n = 15) or placebo (n = 15) for 8 weeks. The Short Form-36 Health Survey version 2 (SF-36v2), a validated general health status questionnaire, was used to assess HRQOL at baseline and at 4 and 8 weeks. HRQOL between the groups was compared by use of repeated-measures analysis of covariance. A p value <0.05 was considered statistically significant. RESULTS: There were no significant differences in baseline demographics and SF-36v2 scores between the groups. After 4 weeks of therapy, higher scores in social functioning ( P. ginseng 54.9 ± 4.6 vs. placebo 49.2 ± 6.5; p = 0.014), mental health ( P. ginseng 52.2 ± 7.7 vs. placebo 47.2 ± 7.3; p = 0.075), and the mental component summary ( P. ginseng 51.3 ± 7.4 vs. placebo 44.3 ± 8.3; p = 0.019) scales were observed in patients randomized to P. ginseng; these differences did not persist to the 8-week time point. The incidence of adverse effects was 33% in the P. ginseng group compared with 17% in the placebo group (p = 0.40). Subjects given P. ginseng (58%) were more likely to state that they received active therapy than subjects given placebo (17%; p < 0.05). CONCLUSIONS: P. ginseng improves aspects of mental health and social functioning after 4 weeks of therapy, although these differences attenuate with continued use.

Simultaneous measurement of cancer specific quality of life and general health status in gynecologic malignancies

2004 ◽  
Vol 22 (14_suppl) ◽  
pp. 8253-8253
Author(s):  
K. M. Gil ◽  
V. E. Von Gruenigen ◽  
H. E. Frasure ◽  
M. Grandon ◽  
M. P. Hopkins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Simultaneous Measurement ◽  
General Health ◽  
Gynecologic Malignancies ◽  
General Health Status

scholarly journals Does Hallux Rigidus produce worse functional disability than Hallux Valgus?

2018 ◽  
Vol 3 (3) ◽  
pp. 2473011418S0044
Author(s):  
Malik Siddique ◽  
Jayasree Ramaskandhan ◽  
Sultan Qasim
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Hallux Valgus ◽  
General Health ◽  
Functional Disability ◽  
Hallux Rigidus ◽  
Foot And Ankle ◽  
General Health Status ◽  
The Impact

Category: Midfoot/Forefoot Introduction/Purpose: There is paucity of literature comparing foot and general health status including quality of life between patients presenting with Hallux Valgus and Hallux Rigidus. We aimed to compare foot specific patient reported disability and general health status including higher functional activities and quality of life reported between patients presenting with Hallux Valgus and Hallux Rigidus. Methods: All patients who presented at our hospital foot and ankle clinics (between June 2016 and December 2017) with a diagnosis of primary Hallux Valgus or Hallux Rigidus were included in this prospective study. Patients with associated foot problems, bilateral presentations, h/o previous reconstructive surgeries, and underlying neurological conditions were excluded. These patients were grouped based on diagnosis into Group A (Hallux Valgus) and Group B (Hallux Rigidus). In these patients, differences were studied between groups for scores of MOX-FQ Manchester-Oxford foot questionnaire (Domains: Pain, Walking/Standing, Social activities), EQ-5D EuroQol (UK) and Foot and Ankle outcomes scores (FAOS) (Domains: Pain, symptoms, ADL, Recreation, Quality of Life). Statistical tests between groups included tests for normality, student t’tests and chi square tabulation tests using SPSS software. Results: MOX-FQ differences: -  Both groups reported similar level of pain (59.6 ± 22.6 vs. 58.2 ± 23.3); p=0.776; Difficulty with walking/ standing (61.6 vs. 61.4 ); p= 0.960; and restriction with social activity because of foot symptoms (61.6 vs. 59.7 ); p=0.683 EQ-5D: -  For mobility, both groups reported no (21.7% vs. 26.8); slight (28.2% vs. 29.2%) or moderate (34.7% vs. 31.7%) problems; p=0.931. For self-care, pain/discomfort, anxiety/ depression levels, there was no differences between groups; p>0.05. Mean overall general health scores was (71.3 ± 22.8) and (69.5 ± 20.8); p=0.663 FAOS: -  There was no difference in mean pain score (59.6 vs. 58.2; p=0.776), symptoms (70.3 vs. 63.8; p=0.104), ADL score (p=0.587), difficulty with sport/ recreation (p=0.907) or Quality of Life (p=0.662) between groups Conclusion: -  There is no difference in foot related quality of life, general health status and higher functional disability levels between patients presenting with Hallux Valgus vs. Hallux Rigidus. -  The impact of these conditions on disability levels remain the same, amidst the difference in pathology

scholarly journals QOLP-06. PHENOMENOLOGICAL EXPLORATION OF THE LIVED EXPERIENCE OF QUALITY OF LIFE FOR PATIENTS WITH GLIOBLASTOMA AND THEIR PRIMARY CARE PARTNERS

2020 ◽  
Vol 22 (Supplement_2) ◽  
pp. ii175-ii176
Author(s):  
Meghan Tierney ◽  
Cynthia Peden-McAlpine
Keyword(s):  
Quality Of Life ◽  
Primary Care ◽  
Lived Experience ◽  
Family Care ◽  
Phenomenological Approach ◽  
Future Research ◽  
Role Changes ◽  
Care Partners ◽  
The Future

Abstract INTRODUCTION Quality of life (QOL) should be included among the important outcomes of brain tumor treatment. QOL is often reduced to a measure of treatment tolerability, resulting in a lack of understanding of how patients experience this phenomenon. There is also limited knowledge surrounding the meaning of QOL for family care partners. The research (in progress) aims to explore the meaning of lived experience of QOL during treatment for glioblastoma (GBM) for both patients and their primary care partners. It will also examine similarities and differences in QOL perceptions within patient-care partner dyads. METHODS Using a phenomenological approach, this study is recruiting patients receiving treatment for GBM and their care partners. Participants complete a timeline depicting significant events impacting QOL from the time of the patient’s diagnosis to the present. They then complete an individual, unstructured interview describing their experience of QOL. Interviews are recorded and transcribed. The research team reviews and completes a thematic analysis on transcripts. RESULTS Numerous themes are emerging from the data. One theme among patients is: Feeling Uncertain About the Future. Patients discussed feeling uncertain about their prognosis during their course of treatment. They talked about the need to adjust to multiple changes in their lives over time. This uncertainty extended to concern for their QOL in the future. One theme among care partners is: Challenges in Relationship with Spouse. Care partners reported relationship conflict stemming from both personality changes in their spouse and role changes resulting in increased responsibilities for the care partner. CONCLUSION This study is providing insight into the meaning and experience of QOL for patients undergoing treatment for GBM, along with meaning and experience of QOL for their care partners. The findings will have implications for clinical practice and generate insights for future research.

scholarly journals The effect of general health status, oral health behavior and status on quality of life in Korea adults

2020 ◽  
Vol 44 (3) ◽  
pp. 158-165
Author(s):  
Ho Jin Jeong ◽  
Ye Hwang Kim ◽  
Jung Won Yun ◽  
Sang Hwan Oh ◽  
Hyun Seo Yoon ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Oral Health ◽  
Health Behavior ◽  
General Health ◽  
General Health Status ◽  
Oral Health Behavior

scholarly journals Socio-urban aspects of the pandemic crisis in Serbia

2020 ◽  
Vol 54 (3) ◽  
pp. 837-863
Author(s):  
Jelena Božilović ◽  
Jelena Petković
Keyword(s):  
Quality Of Life ◽  
Empirical Research ◽  
Statistical Methods ◽  
Social Theory ◽  
Online Survey ◽  
Current Situation ◽  
Ecological Perspective ◽  
The Future ◽  
The City

The paper deals with the discussion of cities from a socio-ecological perspective, from the standpoint of health and quality of life from the time of the first industrialisation to the current social crisis. Rethinking the connection between health and life in the city in modern social theory has resulted in new constructive concepts of the city, and some ideas of such concepts in the current situation may be guidelines for the development of cities of the future. The second segment of the paper is based on the analysis of selected results of the broader empirical research conducted in 2020 by anonymous online survey and applying comparative-analytical and statistical methods. The respondents' views on the quality of life in the city and countryside at the time of the pandemic generally show that, despite the fact that the respondents evaluate the countryside more positively than the city, their attitude is such that minority of them agree with the fact that the experience with the pandemic will direct people to life outside cities in the future.

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