scholarly journals Governing through community-based research: Lessons from the Canadian HIV research sector

2021 ◽  
Author(s):  
Adrian Guta ◽  
Carol Strike ◽  
Sarah Flicker ◽  
Stuart J Murray ◽  
Ross Upshur ◽  
...  
Keyword(s):  
Decision Making ◽  
Collaborative Research ◽  
State Funding ◽  
Community Based ◽  
Community Based Research ◽  
Marginalized Communities ◽  
Research Sector ◽  
Hiv Research ◽  
Funding Mechanisms ◽  
Scientific Decision

The “general public” and specific “communities” are increasingly being integrated into scientific decision-making. This shift emphasizes “scientific citizenship” and collaboration between interdisciplinary scientists, lay people, and multi-sector stakeholders (universities, healthcare, and government). The objective of this paper is to problematize these developments through a theoretically informed reading of empirical data that describes the consequences of bringing together actors in the Canadian HIV community-based research (CBR) movement. Drawing on Foucauldian “governmentality” the complex inner workings of the impetus to conduct collaborative research are explored. The analysis offered surfaces the ways in which a formalized approach to CBR, as promoted through state funding mechanisms, determines the structure and limits of engagement while simultaneously reinforcing the need for finer grained knowledge about marginalized communities. Here, discourses about risk merge with notions of “scientific citizenship” to implicate both researchers and communities in a process of governance.

scholarly journals Governing through community-based research: Lessons from the Canadian HIV research sector

2021 ◽  
Author(s):  
Adrian Guta ◽  
Carol Strike ◽  
Sarah Flicker ◽  
Stuart J Murray ◽  
Ross Upshur ◽  
...  
Keyword(s):  
Decision Making ◽  
Collaborative Research ◽  
State Funding ◽  
Community Based ◽  
Community Based Research ◽  
Marginalized Communities ◽  
Research Sector ◽  
Hiv Research ◽  
Funding Mechanisms ◽  
Scientific Decision

The “general public” and specific “communities” are increasingly being integrated into scientific decision-making. This shift emphasizes “scientific citizenship” and collaboration between interdisciplinary scientists, lay people, and multi-sector stakeholders (universities, healthcare, and government). The objective of this paper is to problematize these developments through a theoretically informed reading of empirical data that describes the consequences of bringing together actors in the Canadian HIV community-based research (CBR) movement. Drawing on Foucauldian “governmentality” the complex inner workings of the impetus to conduct collaborative research are explored. The analysis offered surfaces the ways in which a formalized approach to CBR, as promoted through state funding mechanisms, determines the structure and limits of engagement while simultaneously reinforcing the need for finer grained knowledge about marginalized communities. Here, discourses about risk merge with notions of “scientific citizenship” to implicate both researchers and communities in a process of governance.

scholarly journals Governing through community-based research: Lessons from the Canadian HIV research sector

2021 ◽  
Author(s):  
Ted Myersb
Keyword(s):  
Decision Making ◽  
Collaborative Research ◽  
State Funding ◽  
Community Based ◽  
Community Based Research ◽  
Marginalized Communities ◽  
Research Sector ◽  
Hiv Research ◽  
Funding Mechanisms ◽  
Scientific Decision

The “general public” and specific “communities” are increasingly being integrated into scientific decision-making. This shift emphasizes “scientific citizenship” and collaboration between interdisciplinary scientists, lay people, and multi-sector stakeholders (universities, healthcare, and government). The objective of this paper is to problematize these developments through a theoretically informed reading of empirical data that describes the consequences of bringing together actors in the Canadian HIV community-based research (CBR) movement. Drawing on Foucauldian “governmentality” the complex inner workings of the impetus to conduct collaborative research are explored. The analysis offered surfaces the ways in which a formalized approach to CBR, as promoted through state funding mechanisms, determines the structure and limits of engagement while simultaneously reinforcing the need for finer grained knowledge about marginalized communities. Here, discourses about risk merge with notions of “scientific citizenship” to implicate both researchers and communities in a process of governance.

scholarly journals Governing through community-based research: Lessons from the Canadian HIV research sector

2014 ◽  
Vol 123 ◽  
pp. 250-261 ◽  
Author(s):  
Adrian Guta ◽  
Carol Strike ◽  
Sarah Flicker ◽  
Stuart J. Murray ◽  
Ross Upshur ◽  
...  
Keyword(s):  
Community Based ◽  
Community Based Research ◽  
Research Sector ◽  
Hiv Research

scholarly journals GoverningWellin Community-Based Research: Lessons from Canada’s HIV Research Sector on Ethics, Publics and the Care of the Self: Table 1.

2016 ◽  
pp. phw024
Author(s):  
Adrian Guta ◽  
Stuart J. Murray ◽  
Carol Strike ◽  
Sarah Flicker ◽  
Ross Upshur ◽  
...  
Keyword(s):  
The Self ◽  
Care Of The Self ◽  
Community Based ◽  
Community Based Research ◽  
Research Sector ◽  
Hiv Research

Collecting Folk Histories

2015 ◽  
Vol 37 (3) ◽  
pp. 45-75
Author(s):  
William S. Walker
Keyword(s):  
New York ◽  
Collaborative Research ◽  
Public History ◽  
New York State ◽  
Field Research ◽  
Community Based ◽  
Community Based Research ◽  
Student Community ◽  
History Of

This article explores the shared intellectual tradition in folklore, public history, and oral history of involving students in community-based field research. This case study of the collaborative research New York State folklorist Harold W. Thompson and his students undertook in the 1930s contributes to ongoing efforts to enrich our understanding of public history’s genealogy. It also demonstrates that a counter-tradition to the “lone genius” model of humanities research emerged through faculty-student community-based research projects in history and folklore.

The greater involvement of people living with AIDS principle: theory versus practice in Ontario's HIV/AIDS community-based research sector

AIDS Care ◽  
2008 ◽  
Vol 20 (6) ◽  
pp. 615-624 ◽  
Author(s):  
R. Travers ◽  
M.G. Wilson ◽  
S. Flicker ◽  
A. Guta ◽  
T. Bereket ◽  
...  
Keyword(s):  
Community Based ◽  
Community Based Research ◽  
Research Sector ◽  
Theory Versus ◽  
Principle Theory ◽  
Hiv Aids

scholarly journals Creating space for negotiating the nature and outcomes of collaborative research projects with Aboriginal communities

2012 ◽  
Vol 35 (1-2) ◽  
pp. 83-105 ◽  
Author(s):  
Natasha Lyons
Keyword(s):  
Collaborative Research ◽  
Ethical Issues ◽  
Smithsonian Institution ◽  
Research Projects ◽  
Community Based ◽  
Aboriginal Communities ◽  
Community Based Research ◽  
Comprehensive Collection ◽  
Western Arctic ◽  
Communicative Space

This article investigates intellectual property and ethical issues involved in negotiating research processes and outcomes in collaborative projects with Aboriginal communities. A series of ideas are outlined to lay a foundation for thinking about ways to create a conceptual space for open and constructive discussions between research partners. Habermas’s notion of “communicative space” is applied to a partnership between southern-based anthropologists and members of the Inuvialuit community of the Canadian Western Arctic. This partnership is focused on documenting knowledge about a large and comprehensive collection of ancestral ethnographic objects housed at the Smithsonian Institution in Washington, D.C., and on disseminating this knowledge in meaningful ways to the Inuvialuit, anthropological, and museum communities. This article presents a suite of methods generated by the research group that lay some useful parameters for designing research and fostering trust and investment among partners. It also discusses the dynamics of community-based research practices and, specifically, methods for conceiving, constructing, and sustaining research projects.

scholarly journals Community-based research decision-making: Experiences and factors affecting participation

2013 ◽  
Vol 6 ◽  
Author(s):  
Vivien Runnels ◽  
Caroline Andrew
Keyword(s):  
Decision Making ◽  
World War Ii ◽  
Public Participation ◽  
Lived Experience ◽  
Theoretical Orientation ◽  
Theory And Practice ◽  
Community Members ◽  
Community Based ◽  
Community Based Research ◽  
Research Decision

From the post World War II period through to the present, scientific research and policy has increasingly reflected acceptance and implementation of a view that public interests are better served through public participation. Built on principles of democratic participation, community-based research (CBR) can produce new knowledge through the integration of knowledge of community members’ lived experience with the scientific and technical knowledge of academics. Although community-based research has experienced considerable recent attention as an approach to knowledge production, a specific focus on the participation of community members in decision-making or governance of CBR is sparse. To assist in understanding governance of CBR in Canada and the nature and extent of public participation, we conducted an interview-based qualitative study with 54 respondents. Arnstein’s (1969) theory of participation was used as the theoretical orientation. Respondents’ experiences showed their participation in governance was generally organised through four groups of factors that modified participation: pre-existing conditions, arrangements of governance, actions of academic actors, and actions of community actors. Although community members’ participation in governance was largely contingent on the arrangements, structures and actions controlled or formulated by academics, and despite their relatively limited access to and engagement with real decision-making power, in general community members’ participation was satisfactory to them. However, the highest level of participation that Arnstein envisaged was rarely attained. Awareness of theory and practice of participation in research decision-making can help research decision-makers put in place the conditions and means for realising democratic goals and knowledge co-production. Keywords: governance, decision-making, community-based research, public participation, Arnstein

scholarly journals Doing Indigenous Community-University Research Partnerships: A Cautionary Tale

2018 ◽  
Vol 3 (2) ◽  
pp. 81-98
Author(s):  
Kathleen Absolon ◽  
Susan Dion
Keyword(s):  
Decision Making ◽  
Large Scale ◽  
Indigenous Communities ◽  
Critical Discussion ◽  
University Research ◽  
Cautionary Tale ◽  
Community Based ◽  
Research Partnerships ◽  
Community Based Research ◽  
Research Relationships

With the intention of generating critical discussion, in this paper the authors examine the complexities of doing decolonizing research within colonial institutions. Drawing on their experiences as co-investigators on a large scale partnership grant involving Indigenous and non-Indigenous partners doing community-based research in Indigenous communities, they tell a cautionary tale about confronting and working through the challenges. Specifically addressing communication, decision-making, internalized colonialism and research relationships, the authors conclude that while these kinds of partnership grants involve struggle, in the end the effort is necessary.

scholarly journals Inquiry in Place: Collaborative Research as Strategy for Resistance to Displacement

2021 ◽  
Vol 3 (1) ◽  
Author(s):  
Antwan Jefferson ◽  
Ben Kirshner
Keyword(s):  
Public Education ◽  
Collaborative Research ◽  
Local Communities ◽  
Special Issue ◽  
Community Members ◽  
Community Based ◽  
Community Based Education ◽  
Community Based Research ◽  
Collaborative Community ◽  
The Face

This special issue of The Assembly contains a collection of scholarly articles focused on the phenomena of place and displacement as they occur in and near public education. These articles contribute to the growing field of community-based education research by instigating thought, discourse, and action that deepens the relationships between community members and researchers in the face of social, political, and economic disruption. Each of the articles published in this special issue demonstrates some of what is possible when researchers situate their inquiry in local communities, focus on outcomes and implications of community displacement, and take on community experiences and questions in order to collaborate on the development and design of collaborative, community-based research.

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