High Notes In Hard Times: The Impact Of Ensemble Participation On The Well-Being Of 2SLGBTQ+ Musicians

Queer Space ◽

Music Ensembles ◽

Music Ensemble ◽

Hard Times ◽

Perceived Impacts ◽

This study examines the impact of participation in music ensembles such as band and choir on the well-being of two-spirit, lesbian, gay, bisexual, transgender, queer, and other nonheterosexual and cisgender (2SLGBTQ+) identified musicians. 2SLGBTQ+ musicians with ensemble experience were asked to fill out a questionnaire on their experiences and perceived impacts of their participation. Conclusions were drawn from this data using constructivist grounded theory informed by queer anti-capitalism after responses were coded and grouped into themes for thematic analysis. This study propositions music ensemble as an informal queer space as well as differing effects as result of participation over different 2SLGBTQ+ demographics. This study concludes that music ensemble functions as a means to provide relief from capitalism as it is a place where queerness can be normalized instead of commodified.

High Notes In Hard Times: The Impact Of Ensemble Participation On The Well-Being Of 2SLGBTQ+ Musicians

10.32920/ryerson.14647332.v1 ◽

2021 ◽

Author(s):

Miranda Vivian Clayton

Keyword(s):

Grounded Theory ◽

Thematic Analysis ◽

Well Being ◽

Queer Space ◽

Music Ensembles ◽

Music Ensemble ◽

Hard Times ◽

Perceived Impacts ◽

Engaging Aging Individuals in the Design of Technologies and Services to Support Health and Well-Being: Constructivist Grounded Theory Study (Preprint)

10.2196/preprints.12393 ◽

2018 ◽

Author(s):

Vikki Du Preez ◽

Retha De La Harpe

Keyword(s):

Grounded Theory ◽

Social Services ◽

Design Theory ◽

Research Participant ◽

Aging Population ◽

Well Being ◽

Scientific Software ◽

Web Based ◽

Health And Well Being

BACKGROUND Changes noted within the aging population are physical, cognitive, as well as emotional. Social isolation and loneliness are also serious problems that the aging population may encounter. As technology and apps become more accessible, many basic services, such as those offered by social services, well-being organizations, and health care institutions, have invested in the development of supportive devices, services, and Web-based interactions. Despite the perceived benefits that these devices and services offer, many aging individuals choose not to engage, or engage in a limited manner. To explore this phenomenon, we developed a theory to describe the condition for engagement. OBJECTIVE The main objective of this study was to understand the perceptions of an aging South African population regarding Web-based services and technologies that could support aging in place (AiP). Although the concept of AiP speaks to a great number of everyday activities, this paper explores aspects of health and well-being as being central to AiP. METHODS The study used a grounded theory (GT) methodology, relying on an iterative and simultaneous process of data collection, coding, category development, and data comparisons. Data were collected through qualitative methods, including interviews (13 participants aged between 64 and 85 years), 2 participatory workshops (15 participants), and observations. The study focused on Charmaz’s approach to constructivist GT, which puts forward the premise that theory or knowledge cannot take shape in a purely objective manner. Instead, theory is constructed through the interaction of the researcher and research participant. Coding and data analysis were supported with ATLAS.ti (ATLAS.ti Scientific Software Development GmbH). RESULTS The study resulted in a substantive theory exploring the process of interaction and engaging factors through user insights and experiences. The emerging design theory, Ageing User Decision-Driven Engagement (AUDDE), explored the elements that support engagement with technology and supportive apps, which could offer access to required health and wellness services. CONCLUSIONS In AUDDE, the perceived value of the interaction is a crucial catalyst for engagement. Aging users continuously make meaning of their experiences, which affects their current and future actions.

Grounded Theory as an Approach for Exploring the Effect of Cultural Memory on Psychosocial Well-Being in Historic Urban Landscapes

Social Sciences ◽

10.3390/socsci9120219 ◽

2020 ◽

Vol 9 (12) ◽

pp. 219

Author(s):

Fatmaelzahraa Hussein ◽

John Stephens ◽

Reena Tiwari

Keyword(s):

Quality Of Life ◽

Grounded Theory ◽

Cultural Memory ◽

Well Being ◽

Research Approach ◽

Urban Landscapes ◽

Urban Planning And Design ◽

Nuanced Understanding ◽

Although grounded theory (GT) has emerged as a popular research approach across multiple areas of social science, it has been less widely taken up by researchers working in the fields of urban planning and design. The application of GT enables uniquely innovative insights to be gained from qualitative data, but it has attracted criticism and brings its own challenges. This paper proposes a methodology that could be applied by other researchers in the field of urban research. Utilising constructivist GT as a qualitative approach, this research investigates how cultural memory impacts the psychosocial well-being and quality of life (QoL) of users of, and visitors to, historic urban landscapes (HULs). Based on the findings, it can be posited that the application of GT yields a rich and nuanced understanding of how users of HULs experience the settings in which they live, and the impact and significance on human psychosocial well-being of the cultural memories incarnated within such settings. The current paper also contends that GT enables researchers studying the built environment to construct inductively based theories. Lastly, the practical implications of developing GT for application to HUL management are discussed, both in regard to how users experience the contexts in which they live and the impact of such contexts on well-being and quality of life.

‘Physical appearance and well-being in adults with incurable cancer: a thematic analysis’

BMJ Supportive & Palliative Care ◽

10.1136/bmjspcare-2020-002632 ◽

2020 ◽

pp. bmjspcare-2020-002632

Author(s):

Philippa Tollow ◽

Jane Ogden ◽

Candida S McCabe ◽

Diana Harcourt

Keyword(s):

Thematic Analysis ◽

Psychosocial Support ◽

Positive Impact ◽

Well Being ◽

Emotional Impact ◽

Structured Interviews ◽

Incurable Cancer ◽

The Impact ◽

Appearance Changes

ObjectivesExisting research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. No research, however, has explored in depth the role of appearance in the experiences of individuals who have incurable cancer. This research aims to explore patients’ experiences and perspectives in relation to the role of appearance issues in adults with incurable cancer.MethodsSemi-structured interviews were conducted with 24 adults with incurable cancer (20 women, 4 men; mean age 54.5, SD 11.32).ResultsThematic analysis generated three themes: ‘Identity: Embodying Cancer’, ‘Communication: Wearing your illness’ and ‘Support: Holistic Care’. Appearance was felt to be an important element of identity, which was often dominated by cancer, leading to feelings of separation from the participant’s previous self. Appearance changes also influenced the way in which individuals communicated with their external world, forcing discussion of their diagnosis, and increasing focus on their cancer, with participants having to manage the emotional impact of this on loved ones, as well as the impact on their legacy. Finally, participants highlighted the positive impact of appearance-related support in their well-being and identified peer connections and refocusing on the self as key elements of such support.ConclusionsAppearance changes play an important role in the experiences of individuals with incurable cancer with regards to both identity and communication and challenged participants’ ability to maintain normalcy. Further psychosocial support relating to appearance concerns was considered necessary to promote dignity and provide truly holistic patient care.

Becoming Resilient: Promoting the Mental Health and Well-Being of Immigrant Women in a Canadian Context

Nursing Research and Practice ◽

10.1155/2012/576586 ◽

2012 ◽

Vol 2012 ◽

pp. 1-10 ◽

Cited By ~ 6

Author(s):

Judith A. MacDonnell ◽

Mahdieh Dastjerdi ◽

Nimo Bokore ◽

Nazilla Khanlou

Keyword(s):

Mental Health ◽

Health Promotion ◽

Grounded Theory ◽

Immigrant Women ◽

Well Being ◽

Educational Backgrounds ◽

Theoretical Sampling ◽

Study Process ◽

Health And Well Being

This paper reports on grounded theory findings that are relevant to promoting the mental health and well-being of immigrant women in Canada. The findings illustrate how relationships among settlement factors and dynamics of empowerment had implications for “becoming resilient” as immigrant women and how various health promotion approaches enhanced their well-being. Dimensions of empowerment were embedded in the content and process of the feminist health promotion approach used in this study. Four focus groups were completed in Toronto, Ontario, Canada with 35 racialized immigrant women who represented diverse countries of origin: 25 were from Africa; others were equally represented from South Asia (5), Asia (5), and Central or South America and the Caribbean (5). Participants represented diverse languages, family dynamics, and educational backgrounds. One focus group was conducted in Somali; three were conducted in English. Constructivist grounded theory, theoretical sampling, and a critical feminist approach were chosen to be congruent with health promotion research that fostered women’s empowerment. Findings foreground women’s agency in the study process, the ways that immigrant women name and frame issues relevant to their lives, and the interplay among individual, family, community, and structural dynamics shaping their well-being. Implications for mental health promotion are discussed.

The impact of inequality on mental illness: thematic analysis on clinical notes

Journal of Forensic Practice ◽

10.1108/jfp-06-2021-0037 ◽

2021 ◽

Vol ahead-of-print (ahead-of-print) ◽

Author(s):

Kristina Brenisin ◽

Elizabeth Akinwande ◽

Aile Trumm ◽

Kieran Breen

Keyword(s):

Mental Health ◽

Mental Illness ◽

Thematic Analysis ◽

Well Being ◽

Qualitative Approach ◽

Living Environment ◽

Early Years ◽

Content Type ◽

Clinical Notes ◽

Purpose The concept of inequality can be described as not being treated equally to everyone else in society. While previous studies have explored the concept of inequality and its impact on mental illness, these have been primarily quantitative. The details of experiences and potential impacts of inequalities by patients prior to admission into secure care have not been investigated comprehensively using a qualitative approach, which will identify individualised factors that may contribute to the development of mental ill-health. This study aims to explore whether those with multiple disadvantages are at greater risk of developing mental illness. Design/methodology/approach A qualitative study of patients’ clinical notes upon admission to a secure in-patient facility was conducted using a thematic analytical approach to investigate the key inequalities reported by patients with mental health problems. The topic of inequality was examined by assessing the clinical notes of 21 patients who were under treatment at the time of the study. Findings The majority of patients experienced multiple inequalities which impacted negatively on their mental health status. Three main themes that were identified were – a disrupted living environment, disturbed childhood and the importance of support. The thematic analysis has shown that the majority of the patients were exposed to numerous societal disadvantages in association with challenging life events in their early years and these have impacted significantly on their subsequent well-being. Practical implications When assessing the background to mental illness, it is important to gain a deep understanding of many inequalities that patients have faced prior to them developing their condition and, in particular, how these have combined to initiate the clinical manifestation. The study highlights the importance of raising awareness of how being treated unfairly, whether based on protected or non-protected characteristics, can contribute towards people becoming disadvantaged in society and ultimately making them more vulnerable to the development of mental health difficulties. Results of the study may inform the future use of inequalities as an integral component in the development of trauma-informed care. Originality/value This is the first study, to the authors’ knowledge, to consider intersectionality and admission to mental health units by adopting qualitative approach, specifically by reviewing patients’ clinical notes.

Factors Affecting the Impact of a Library and Information Service on the International Baccalaureate Diploma Programme in an International School: A Constructivist Grounded Theory Approach

Journal of Research in International Education ◽

10.1177/1475240910370818 ◽

2010 ◽

Vol 9 (2) ◽

pp. 192-193

Author(s):

Anthony Tilke

Keyword(s):

Grounded Theory ◽

International Baccalaureate ◽

Information Service ◽

International School ◽

International Baccalaureate Diploma

Theory Approach ◽

Factors Affecting ◽

The Impact ◽

Grounded Theory Approach ◽

Carer needs on an organic inpatient unit

Quality in Ageing and Older Adults ◽

10.1108/qaoa-08-2019-0048 ◽

2019 ◽

Vol 21 (1) ◽

pp. 53-64

Author(s):

Jennifer Clegg ◽

Sarah Craven-Staines

Keyword(s):

Grounded Theory ◽

Design Methodology ◽

Comparative Methods ◽

Theory Approach ◽

Substantive Theory ◽

Content Type ◽

Theoretical Sampling ◽

The Impact ◽

Grounded Theory Approach

Purpose The purpose of this paper is to further understand the needs of carers when a relative with dementia is admitted to an organic impatient ward. Design/methodology/approach A constructivist grounded theory approach was employed to generate a substantive theory to understand the needs of carers and how staff perceive carer needs when a relative is admitted to a dementia ward. Five relatives and six members of staff were interviewed using purposive and theoretical sampling. Interview transcripts were analysed using initial, focused and theoretical coding using constant comparative methods to develop the end theory. Findings The grounded theory concluded that carers have three categories of needs: “The Safe and Cared for Relative”, “The Informed Carer and “The Understanding, Responsive and Available Service”. Underpinning the needs are the relationships between carers, their relative and staff. Three barriers were identified which can impact on these needs being effectively met. These identified barriers were: Loss, Time and Ineffective Communication. Originality/value The grounded theory demonstrates that carers needs fundamentally relate to their relatives being safe and cared for and being included and informed during the admission. Relationships can be ruptured when a barrier prevents the needs from being effectively met. Recommendations are made to aim to reduce the impact of the barriers and to aid staff in developing their understanding of the carer experience.

Older Users of a Befriending Service in Ireland and the Maintenance of Personal Autonomy during the COVID-19 Pandemic

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18062788 ◽

2021 ◽

Vol 18 (6) ◽

pp. 2788

Author(s):

Eimile Holton ◽

Rachel Fitzpatrick ◽

Rebecca Maguire ◽

Seán Commins ◽

Thomas Scharf ◽

...

Keyword(s):

Public Health ◽

Grounded Theory ◽

Personal Autonomy ◽

Theory Approach ◽

Structured Interviews ◽

Social And Emotional ◽

Older Users ◽

The Republic ◽

In the Republic of Ireland (RoI), COVID-19 public health guidelines have been most restrictive for people aged 70 and over. Such individuals are most likely to avail of befriending services offered by a network of Irish organisations. The aim of this study was to explore the impact of COVID-19 guidelines on befriending service users, and to develop recommended adaptations to befriending services compatible with such guidelines. A qualitative constructivist grounded theory approach was taken to the study design and analysis, using semi-structured interviews to collect data from 11 participants by telephone between May 2020 and January 2021. Results show a grounded theory describing how older users of a befriending service maintained their personal autonomy in the face of strict government guidelines. Participants described living life as usual, often contravening guidelines, and how they chose to adapt to the situation, yielding both positive and negative outcomes. Some potential adaptations were discussed to the befriending service (including a preserved focus on the social and emotional functions of the befriending relationship, and the accommodation of collaborative decision making about communicative alternatives), but ultimately it was made clear that participants would tailor the services to their own preferences. Results have implications for befriending service design and delivery, and for public health officials who wish to support the health of older adults during the COVID-19 pandemic.

Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families

Autism ◽

10.1177/13623613211033757 ◽

2021 ◽

pp. 136236132110337

Author(s):

Jane Goodwin ◽

Priyanka Rob ◽

Mark Freeston ◽

Deborah Garland ◽

Victoria Grahame ◽

...

Keyword(s):

Quality Of Life ◽

Thematic Analysis ◽

Intolerance Of Uncertainty ◽

Well Being ◽

Anxiety Reduction ◽

Autistic Children ◽

Structured Interviews ◽

Daily Lives ◽

Approximately 50% of autistic children experience high anxiety. Intolerance of uncertainty (tendency to react negatively to uncertain situations) is a key mechanism in the development and maintenance of anxiety. This study aimed to provide a descriptive, thematic analysis of the impact on uncertainty on the daily lives of autistic children and their families. Semi-structured interviews were conducted with parents and caregivers of 53 autistic children (including 3 dyads) aged 6–16 years to elicit examples of uncertain situations that the children found challenging and to explore the impact of these situations on family life. Thematic analysis revealed five overarching themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. These findings provide a crucial understanding into the range of uncertain situations autistic children with anxiety experience. Anxiety-reduction approaches based on increasing tolerance to everyday uncertain situations could help improve well-being, quality of life and participation for autistic children and their families. Lay abstract Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children’s ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families.