scholarly journals Digit-all: Rare Diseases

2020 ◽  
Keyword(s):  
Public Health ◽  
Health System ◽  
Rare Disease ◽  
Rare Diseases ◽  
Care Coordination ◽  
Digital Health ◽  
Global Public Health ◽  
Public Health Priority ◽  
Health Initiatives ◽  
Public Health Challenges

Rare diseases are increasingly recognised as a global public health priority and contribute to significant and disproportionately high health system impacts. Accordingly, they present clinical and public health challenges, as well as opportunities for digital health solutions across the lifespan, including improved diagnosis, treatment, navigation and care coordination, and integration and coordination for broader societal and patient wellbeing. People living with rare diseases, individually and cumulatively, are digital disruptors. In this manuscript the authors describe some of the unique dynamics of the rare disease domain as they currently, or have the potential to in the future, apply to digital health; highlight some recent international rare diseases digital health initiatives; and touch upon implications for those with more common disorders.

scholarly journals Digit-all: Rare Diseases

2020 ◽  
pp. 11-16
Author(s):  
Gareth Baynam ◽  
Lynsey Chediak ◽  
Gemma Bilkey ◽  
Dylan Gration ◽  
Samuel Agyei Wiafe
Keyword(s):  
Public Health ◽  
Health System ◽  
Rare Disease ◽  
Rare Diseases ◽  
Care Coordination ◽  
Digital Health ◽  
Global Public Health ◽  
Public Health Priority ◽  
Health Initiatives ◽  
Public Health Challenges

Rare diseases are increasingly recognised as a global public health priority and contribute to significant and disproportionately high health system impacts. Accordingly, they present clinical and public health challenges, as well as opportunities for digital health solutions across the lifespan, including improved diagnosis, treatment, navigation and care coordination, and integration and coordination for broader societal and patient wellbeing. People living with rare diseases, individually and cumulatively, are digital disruptors. In this manuscript the authors describe some of the unique dynamics of the rare disease domain as they currently, or have the potential to in the future, apply to digital health; highlight some recent international rare diseases digital health initiatives; and touch upon implications for those with more common disorders.

scholarly journals Proposal for the Development and Addition of a Cybersecurity Assessment Section into Technology Involving Global Public Health

2020 ◽  
pp. 48-61
Author(s):  
Stanley Mierzwa ◽  
◽  
Saumya RamaRao ◽  
Jung Ah Yun ◽  
Bok Gyo Jeong ◽  
...  
Keyword(s):  
Public Health ◽  
Information Technologies ◽  
Digital Health ◽  
Public Health Research ◽  
Global Public Health ◽  
Security Risk ◽  
Healthcare Organizations ◽  
Non Profit ◽  
Health Initiatives ◽  
Security Risk Assessment

This paper discusses and proposes the inclusion of a cyber or security risk assessment section during the course of public health initiatives involving the use of information and communication computer technology. Over the last decade, many public health research efforts have included information technologies such as Mobile Health (mHealth), Electronic Health (eHealth), Telehealth, and Digital Health to assist with unmet global development health needs. This paper provides a background on the lack of documentation on cybersecurity risks or vulnerability assessments in global public health areas. This study suggests existing frameworks and policies be adopted for public health. We also propose to incorporate a simple assessment toolbox and a research paper section intended to help minimize cybersecurity and information security risks for public, non-profit, and healthcare organizations.

scholarly journals Contradictions in the promotion of publishing academic and scientific journal articles, and the inability to cope with the new coronavirus (COVID-19)

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Rostam Jalali ◽  
Amin Hosseinian-Far ◽  
Masoud Mohammadi
Keyword(s):  
Public Health ◽  
Health Care ◽  
Scientific Journal ◽  
Emerging Infectious Diseases ◽  
National Institutes Of Health ◽  
Global Public Health ◽  
Journal Articles ◽  
Public Health Challenges ◽  
Knowledge And Practice ◽  
Nih Roadmap

Abstract Background Translating research into practice is a central priority within the National Institutes of Health (NIH) Roadmap. The underlying aim of the NIH Roadmap is to accelerate the movement of scientific findings into practical health care provisions through translational research. Main text Despite the advances in health sciences, emerging infectious diseases have become more frequent in recent decades. Furthermore, emerging and reemerging pathogens have led to several global public health challenges. A question, and to an extent a concern, arises from this: Why our health care system is experiencing several challenges in encountering the coronavirus outbreak, despite the ever-growing advances in sciences, and the exponential rise in the number of published articles in the first quartile journals and even the ones among the top 1%? Conclusion Two responses could be potentially provided to the above question: First, there seems to be a significant gap between our theoretical knowledge and practice. And second that many scholars and scientists publish papers only to have a longer list of publications, and therefore publishing is viewed as a personal objective, rather than for improving communities’ public health.

scholarly journals Mechanisms of Antimicrobial Resistance in ESKAPE Pathogens

2016 ◽  
Vol 2016 ◽  
pp. 1-8 ◽  
Author(s):  
Sirijan Santajit ◽  
Nitaya Indrawattana
Keyword(s):  
Public Health ◽  
Antimicrobial Resistance ◽  
Antimicrobial Agents ◽  
Multidrug Resistant ◽  
Resistance Mechanisms ◽  
Global Public Health ◽  
Drug Usage ◽  
Inappropriate Use ◽  
Public Health Challenges ◽  
Eskape Pathogens

The ESKAPE pathogens (Enterococcus faecium,Staphylococcus aureus,Klebsiella pneumoniae,Acinetobacter baumannii,Pseudomonas aeruginosa, andEnterobacterspecies) are the leading cause of nosocomial infections throughout the world. Most of them are multidrug resistant isolates, which is one of the greatest challenges in clinical practice. Multidrug resistance is amongst the top three threats to global public health and is usually caused by excessive drug usage or prescription, inappropriate use of antimicrobials, and substandard pharmaceuticals. Understanding the resistance mechanisms of these bacteria is crucial for the development of novel antimicrobial agents or other alternative tools to combat these public health challenges. Greater mechanistic understanding would also aid in the prediction of underlying or even unknown mechanisms of resistance, which could be applied to other emerging multidrug resistant pathogens. In this review, we summarize the known antimicrobial resistance mechanisms of ESKAPE pathogens.

scholarly journals A MOOC to disseminate key concepts related to the future challenges of the French health system

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
C You ◽  
V Lissillour ◽  
A Lefébure
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health System ◽  
Health Care Professionals ◽  
Decision Makers ◽  
Teaching Staff ◽  
New Public Health ◽  
New Public ◽  
Wide Range ◽  
Public Health Challenges

Abstract Background The increase of life expectancy creates critical health needs that developed countries health systems have to deal with. They are also confronted to persistent health inequalities. A common vision of these issues may not be shared by the health care professionals, decision-makers and citizens. In the context of the launch of new public health laws in France, the French School of Public Health (EHESP) decided to offer a MOOC entitled “Public Health and Health System: transition and transformation” (2019). Objectives The MOOC intends to raise awareness and increase understanding of public health challenges. It is designed for a wide audience of professionals, decision-makers and citizens in the French speaking world. The content was designed by a multidisciplinary team of academics from the EHESP (N = 50) and a network of health professionals (N = 21). The 6 modules address major themes of the recent health policies, e.g. social and territorial inequalities in health, health care security, health pathways, innovation or health democracy. Results Over the course of 6 consecutive weeks, almost 7800 people have enrolled in this e-learning. They are provided with short teaching videos (109 capsules of 4-5’) and webinars, have access to a number of supplementary reading material and a variety of self-assessment. Active learning is enhanced via forum involving peers and teaching staff. The full course represents around 20 hours of teaching. So far, completion rate has attained 13% which compares well with usual rate for MOOCs. Participants include a wide range of professionals, students and citizens from 87 different countries (72% from France) and 50% had a master or higher degree. The overall satisfaction rate is 98%. Conclusions This MOOC attracted the attention of a wide and diverse audience regarding the major public health issues. Some public health agencies have expressed interest in implementing the MOOC into their professional development program of their staff. Key messages Health system reforms are constantly implemented to face new public health challenges. A multidisciplinary MOOC can help raise awareness and understanding of the issue being addressed by new policies.

scholarly journals The Use of Open Source Software to Enhance Public Health Initiatives

2014 ◽  
Vol 6 (1) ◽  
Author(s):  
Erin Hahn ◽  
Sheri Lewis ◽  
David Blazes
Keyword(s):  
Public Health ◽  
Open Source ◽  
Open Source Software ◽  
Global Public Health ◽  
Health Initiatives ◽  
Public Health Initiatives ◽  
Health Applications

Open Source Software (OSS) is rapidly becoming part of public health applications. The adoption more broadly of OSS has the potential to improve global public health initiatives in general, because it provides a free, modifiable software option which can be altered to meet specific requirements.

scholarly journals Harmful use of alcohol: A global public health priority

2019 ◽  
Vol 12 (4) ◽  
pp. 234
Author(s):  
SaurabhRamBihariLal Shrivastava ◽  
PrateekSaurabh Shrivastava
Keyword(s):  
Public Health ◽  
Global Public Health ◽  
Public Health Priority ◽  
Health Priority ◽  
Harmful Use ◽  
Harmful Use Of Alcohol
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