scholarly journals Previvors’ Perceptions of Hereditary Breast and Ovarian Cancer Health-related Information

2017 ◽  
Vol 14 (2) ◽  
Author(s):  
Rachel Koruo ◽  
Marleah Dean ◽  
Courtney Scherr ◽  
Meredith Clements ◽  
Amy Ross

The purpose of this study is to identify female previvors’ perceptions of hereditary breast and ovarian cancer (HBOC) health-related information. Previvors are individuals who have tested positive for a harmful BRCA genetic mutation, which increases their lifetime risk for HBOC, but who have never been diagnosed with cancer. As a part of a larger research project where 25 qualitative interviews were conducted, this manuscript reports on the analysis of ten interviews which are most relevant to the research focus. Using the constant comparative method, themes were created and developed from the interview data. The results indicate previvors view information as a source of power. These women reported feeling personally responsible for seeking and sharing information, while also relying on medical professionals to provide credible sources of information. Furthermore, previvors emphasized a desire for medical professionals to be more informed about BRCA in order to assist them in making personal health decisions. This study presents the perceptions regarding HBOC information as reported by this population of previvors. The findings indicate that information is not provided in an organized way relative to their specific needs. Therefore, the authors recommend an educational intervention tool for previvors and their medical professionals. KEYWORDS: BRCA; Communication; Qualitative; Hereditary Cancer; Health Experiences; Previvors; Medicine; Patient Perspectives; Health Information

2017 ◽  
Vol 47 (1) ◽  
pp. 78-85 ◽  
Author(s):  
Tom Sanders ◽  
Gwenllian Wynne-Jones ◽  
Bie Nio Ong ◽  
Majid Artus ◽  
Nadine Foster

Aims: Using qualitative interviews, this study explored the experiences of GPs, vocational advisers and patients towards a new vocational advice (VA) service in primary care. Methods: This study was nested within the Study of Work and Pain (SWAP) cluster randomised controlled trial. The SWAP trial located a VA service within three general practices in Staffordshire. Interviews took place with 10 GPs 12 months after the introduction of the VA service, four vocational advisers whilst the VA service was running and 20 patients on discharge from the VA service. The data were analysed using the constant comparative method, which is a variation of grounded theory. Results: The key factors determining the acceptability and perceived effectiveness of the VA service from the perspective of the three groups of stakeholders were (1) the timing of referrals to the VA, (2) the perceived lack of patient demand for the service and (3) role uncertainty experienced by VAs. Conclusions: Early vocational intervention may not be appropriate for all musculoskeletal patients with work difficulties. Indeed, many patients felt they did not require the support of a VA, either because they had self-limiting work difficulties and/or already had support mechanisms in place to return to work. Future VA interventions may be better implemented in a targeted way so that appropriate patients are identified with characteristics which can best be addressed by the VA service.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. A431-A432
Author(s):  
Cheong M Yu ◽  
Alice Lu ◽  
Emilie Touma ◽  
Pamela Wax ◽  
Amador Rosales ◽  
...  

Abstract Patients, newly prescribed insulin, being discharged from the hospital are at high risk of adverse outcomes. An electronic enterprise data warehouse (EDW) algorithm was created and validated to identify these inpatients electronically. Qualitative interviews were also conducted to assess barriers in the discharge process. The EDW algorithm to identify inpatients (09/01/18-08/31/19), newly prescribed insulin at discharge, was created by identifying screening indicators (e.g., admission/discharge medication lists, discharge summary). Iterative adjustments to the algorithm were made after chart review and included review of medication reconciliation (med rec), admission/discharge orders, and insulin orders (types/delivery). The EDW list was compared to the list of patients who received insulin teaching from the Certified Diabetes Care and Education Specialist (CDCES), during the same period. Providers (N=8, 3 endocrine attending MDs, 2 fellow MDs, 3 resident MDs) were interviewed in key informant interviews (N=3) and focus groups (N=2); transcripts were independently coded by 2 coders, utilizing a constant comparative method to generate key themes. The EDW list (N=554) was audited by EHR review (n = 42, 8%); 83% (35/42) were correctly identified as newly discharged on insulin. Of the 7 incorrectly identified, 4 likely had incomplete med rec. The EDW algorithm was unable to correctly identify patients with inaccurate/incomplete med rec, patients transferring from outside hospitals or those without e-Rx at discharge (vouchers, call-in). The CDCES list (N=257) was audited (n=25, 10%), and of patients not meeting criteria (n=15), some had prior insulin prescribed (n=5), and most ended up not discharged on insulin after CDCES insulin teaching (n=9). Comparison of the EDW and CDCES lists had 177 patients (32% of EDW list) in common, with 377 on the EDW list with no CDCES consultation. An audit (n=21/377, 5%) of these EDW patients, who did not have CDCES or endocrinology consultation, revealed patients across service lines, with minimal formal documentation of insulin training/education. Key identified themes from interviews identified barriers including lack of availability of a CDCES after-hours and on weekends, low health literacy/numeracy, and lack of time during stay. In training MDs noted variability in discharge prescribing by supervising MDs and the need to assess “chart lore,” given cut and paste documentation in EHR. This study suggests that an EDW algorithm can be used to identify patients newly being discharged on insulin, for whom teaching by a CDCES is recommended. The data suggest the need for more targeted and increased CDCES capacity as only a portion of those eligible for insulin teaching were seen while others were seen but then not discharged on insulin. Additional resources for insulin teaching are needed and standardized training and documentation need to be developed.


Author(s):  
Rachit Pinnarong ◽  
Sorawit Siangpipop ◽  
Atichart Harncharnchai ◽  
Acrapol Nimmolrat ◽  
Orawit Thinnukool

<p class="0abstractCxSpFirst">Since health-related information for pregnant women is extremely complex and sensitive, end-users of any application are required to have the same level of knowledge as the information providers to help them to navigate between various sources of information to ascertain the reliability of contents that are often confusing. However, although there are several such applications for Thai pregnant women in the market, few were developed based on research evidence.</p><p class="0abstractCxSpMiddle"> This study is focused on the design of a health application specifically for Thai pregnant women by extracting the explicit problems of existing applications and providing solutions to them. A design thinking methodology comprised of empathise, define, ideate, prototype and test was used as a guideline to develop a prototype app. IT experts, physical therapists and pregnant women were recruited as participants to address the problem taxonomy and obtain a solution.</p><p class="0abstractCxSpLast">The new application produced in this study with the aim of encouraging pregnant women especially for Thai women to engage in physical activity was based on research, and the input of physical therapists, IT experts and pregnant women users was able to feasibly inform the development of an acceptable and usable mobile health application for pregnant women.</p>


10.2196/18200 ◽  
2020 ◽  
Vol 22 (10) ◽  
pp. e18200 ◽  
Author(s):  
Regina Poss-Doering ◽  
Lukas Kuehn ◽  
Martina Kamradt ◽  
Katharina Glassen ◽  
Michel Wensing

Background Antimicrobial resistance is an important global health issue. In Germany, the national agenda supports various interventions to convert habits of antibiotic use. In the CHANGE-3 (Converting Habits of Antibiotic Use for Respiratory Tract Infections in German Primary Care) study, digital tools were applied for information delivery: tablet computers in primary care practices, e-learning platforms for medical professionals, and a public website to promote awareness and health literacy among primary care physicians, their teams, and their patients. Objective This study is embedded in the process evaluation of the CHANGE-3 study. The aim of this study was to evaluate the acceptance and uptake of digital devices for the delivery of health-related information to enhance awareness and change habits of antibiotic use in primary care in Germany. Methods This study used a convergent-parallel mixed-methods design. Audio-recorded semistructured telephone interviews were conducted with physicians, nonphysician health professionals, and patients in the CHANGE-3 program. Pseudonymized verbatim transcripts were coded using thematic analysis. In-depth analysis was performed based on the inductive category of information provision via digital information tools. Identified themes were related to the main postulates of Diffusion of Innovations theory (DIT) to provide an explanatory frame. In addition, data generated through a structured survey with physicians and nonphysician health professionals in the program were analyzed descriptively and integrated with the qualitative data to explore the complementarity of the findings. Results Findings regarding the acceptance and uptake of digital devices were related to three postulates of DIT: innovation characteristics, communication channels, and unanticipated consequences. Participants considered the provided digital educative solutions to be supportive for promoting health literacy regarding conversion of habits of antibiotic use. However, health care professionals found it challenging to integrate these solutions into existing routines in primary care and to align them with their professional values. Low technology affinity was a major barrier to the use of digital information in primary care. Patients welcomed the general idea of introducing health-related information in digital formats; however, they expressed concerns about device-related hygiene and the appropriateness of the digital tools for older patients. Conclusions Patients and medical professionals in German primary care are reluctant to use digital devices for information and education. Using a Diffusion of Innovations approach can support assessment of existing barriers and provide information about setting-specific preconditions that are necessary for future tailoring of implementation strategies. Trial Registration International Standard Randomized Controlled Trial Number (ISRCTN) 15061174; http://www.isrctn.com/ISRCTN15061174.


2018 ◽  
Vol 33 (4) ◽  
pp. 372-382 ◽  
Author(s):  
Andrea L. Benin ◽  
Gina Lockwood ◽  
Tracy Creatore ◽  
Donna Donovan ◽  
Maggi Predmore ◽  
...  

The objective was to describe qualitatively the attitudes among employees toward mandatory vaccination against influenza to ultimately improve such programs and prevent hospital-acquired influenza. Qualitative interviews were conducted with 21 employees at a freestanding children’s hospital. Analysis of interview transcripts used grounded theory and the constant comparative method; codes were iteratively revised and refined as themes emerged. Themes emerged elucidating promoters and concerns. Promoters included a desire to protect self, family, and patients; perception of vaccination as part of professional responsibility; and free vaccination as a benefit from the organization. Concerns included negative feelings surrounding the forced nature and substantial anxiety about the physical injection. Participants expressed a strong desire for a private, compassionate, unhurried environment for the injection. Managing personal anxiety and a desire for privacy emerged as strong concerns among health care workers getting vaccinated at work. This information enabled future improvements in the mandatory vaccination campaign.


Author(s):  
Noramay McGruer

Social media have created new ways for non-professionals to access, share, and even create health related information. While these new resources have been noted to destabilize the authority held by medical professionals, they also highlight the potential utility in the medical field of non-professinoal peer collaboration and support. In light of this evolution, the roles of health information professionals have expanded to assisting users in evaluating information from an ever-increasing variety of sources, as well as providing information themselves. The conclusion calls for further research into the opportunities afforded by peer-generated and -communicated contributions to health information.


2020 ◽  
Vol 42 (3) ◽  
pp. 395-418
Author(s):  
Vaughan James

Informal science communication efforts play a large role in individuals’ science learning. The present study sought to examine a nontraditional science communication environment: popular culture conventions. Utilizing the communication theory of identity, identity was examined to determine how participants expressed their identities when interacting with science in the convention environment. Qualitative interviews were held with audience members ( n = 14) and science communicators ( n = 13). Interviews were thematically analyzed using the constant comparative method. Results suggest that audience members could experience changes in their identity, shifting their views so they thought of themselves as users, learners, and consumers of science.


Sign in / Sign up

Export Citation Format

Share Document