scholarly journals Factors Associated with Burden in Caregivers of Patients with End-Stage Kidney Disease (A Systematic Review)

Healthcare ◽  
2021 ◽  
Vol 9 (9) ◽  
pp. 1212
Author(s):  
Bushra Alshammari ◽  
Helen Noble ◽  
Helen McAneney ◽  
Farhan Alshammari ◽  
Peter O’Halloran

Background: Caring for a patient with end-stage kidney disease (ESKD) is highly stressful and can impact negatively on the physical and psychological well-being of caregivers. To accurately assess caregiver burden (CB), health care providers (HCPs) need to identify characteristics associated with an increase in CB. Aim: The aim of this review is to explore CB in caregivers of adult patients with ESKD and to identify characteristics associated with any increase in CB. Method: A comprehensive literature search was completed using five electronic databases. Medline, Embase, CINHAL, PsycINFO, and Scopus. The Joanna Briggs Institute checklist (JBI) was used to quality appraise full text papers included in the review. No time limit for the date of publication of studies was employed, to enable the inclusion of more extensive literature. Results: A total of 38 relevant studies from 18 countries were identified and included in the review. A variety of patient and caregiver factors can impact positively or negatively on CB, including socio-demographic factors of patients and caregivers, disease-related factors, situational and relational factors, environmental factors, and psychological factors. Conclusion: This review provides awareness to HCPs of the important factors associated with CB, when assessing or targeting interventions for caregivers experiencing burden.

2009 ◽  
Vol 21 (12) ◽  
pp. 1395-1399 ◽  
Author(s):  
Vitória R. Becker ◽  
Rosilene G. Badiani ◽  
Lara B. Lemos ◽  
Renata M. Perez ◽  
José O. Medina-Pestana ◽  
...  

Author(s):  
Yu Shi ◽  
Wang Li ◽  
Fangjian Duan ◽  
Shi Pu ◽  
Hongmei Peng ◽  
...  

Abstract Purpose Shared decision-making (SDM) about the type of renal replacement therapy to use is a matter of great importance involving patients, their families, and health treatment teams. This review aims to synthesize the volume of qualitative work explaining the factors influencing SDM regarding renal replacement therapy. Methods A systematic review and qualitative meta-synthesis approach recommended by JBI was used, six databases were searched. Studies were qualitative or mixed research published since 2000, with a primary focus on patient experiences, perceptions and practices regarding which method to choose for renal replacement therapy in End-Stage Kidney Disease (ESKD) patients. All themes were analyzed and compared to the established connectedness. Results A total of 1313 patients were enrolled in 32 studies focusing on factors associated with SDM regarding renal replacement therapy were included. All quality evaluations of the literature were medium to high. Four common themes were identified in our synthesis: (1) patient personal reasons, (2) family-related factors, (3) health care professional-related factors, and (4) social factors influence. Conclusion The model proposes pathways that could be explored further in future qualitative and quantitative studies and suggests that patients’ beliefs, emotions, and awareness should be targeted alongside patients’ decision-making practices to increase the efficacy of interventions. The majority of studies included in this review focus on older patients, and all report patients’ perspectives. Further research is required to understand the family member perspectives on SMD of renal replacement therapy.


2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Michael Matthews ◽  
Joanne Reid ◽  
Clare McKeaveney ◽  
Robert Mullan ◽  
Stephanie Bolton ◽  
...  

Abstract Background Patients with end-stage kidney disease, receiving haemodialysis rely increasingly on informal carers to help manage their debilitating chronic disease. Informal carers may experience a negative impact on their quality of life exacting a toll on their physical, social and emotional well-being. Informal carers of patients with end-stage kidney disease receiving haemodialysis have significant unmet needs which may include physical and psychological issues, financial disadvantage and social isolation. Poor experiences of informal carers may also impact the experience of the patients for whom they care. The needs of this group of informal caregivers have been largely neglected, with little emphasis placed on supportive interventions that might assist and support them in their caring role. The aim of this study is therefore to explore the experiences and unmet needs of informal carers of people with end-stage kidney disease receiving haemodialysis and develop a psychosocial intervention to support them in their caring role. Methods This qualitative study will include a systematic review, semi-structured interviews with 30 informal carers and focus groups with renal health care professionals. Perceptions of care provision, caregiving experiences as well as contextual factors impacting the design and delivery of a psychosocial intervention for informal carers of patients with end-stage kidney disease, will be explored and will inform the development of a supportive intervention. Discussion The needs of informal carers of patients with end-stage kidney disease have been neglected with little emphasis placed on supportive interventions that might assist and support this group in their care giving role. This is in contrast to other chronic disease groups such as stroke, cancer and dementia. In these conditions well developed supportive interventions have significantly improved outcomes in regard to informal caregivers’ preparedness, competence, positive emotions and psychological well-being in terms of informal care provision. Support interventions could potentially improve the quality of life of those informal carers who provide care to patients with end-stage kidney disease receiving haemodialysis.


Healthcare ◽  
2021 ◽  
Vol 10 (1) ◽  
pp. 57
Author(s):  
Michael Matthews ◽  
Joanne Reid ◽  
Clare McKeaveney ◽  
Helen Noble

Background: Patients with end-stage kidney disease receiving haemodialysis rely heavily on informal caregivers to support them living at home. Informal caregiving may exact a toll on caregivers’ physical, emotional, and social well-being, impacting negatively on their overall quality of life. The aim of this narrative review is to report knowledge requirements and needs of informal caregivers of patients with end stage kidney disease (ESKD) receiving haemodialysis. Methods: The review followed the Preferred Reporting Items for Reporting Systematic Reviews and Meta-analyses (PRISMA). Five electronic databases were searched: Web of Science, PsycINFO, Embase, Medline, and CINAHL to identify the experiences and unmet needs of informal caregivers of patients with end stage kidney disease (ESKD) receiving haemodialysis. Results: Eighteen papers were included in the review and incorporated a range of methodological approaches. There are several gaps in the current literature around knowledge and informational needs and skills required by informal caregivers, such as signs and symptoms of potential complications, dietary requirements, and medication management. Although most research studies in this review illustrate the difficulties and challenges faced by informal caregivers, there is a paucity of information as to which support mechanisms would benefit caregivers. Conclusion: Informal caregivers provide invaluable assistance in supporting people with ESKD undergoing haemodialysis. These informal caregivers however experience multiple unmet needs which has a detrimental effect on their health and negatively influences the extent to which they can adequately care for patients. The development of supportive interventions is essential to ensure that informal caregivers have the requisite knowledge and skills to allow them to carry out their vital role.


2018 ◽  
Vol 37 (3) ◽  
pp. 475-483 ◽  
Author(s):  
Hye Eun Yoon ◽  
Yaeni Kim ◽  
Seok Joon Shin ◽  
Yeon Sik Hong ◽  
Kwi Young Kang

2021 ◽  
pp. 112972982110258
Author(s):  
Bharvi P Oza-Gajera ◽  
James A Davis ◽  
Crystal Farrington ◽  
Edgar V Lerma ◽  
Shahriar Moossavi ◽  
...  

More than 1 million peripherally inserted central catheters (PICC) are placed annually in the US and are used to provide convenient vascular access for a variety of reasons including long term antibiotic treatment, chemotherapy, parenteral nutrition, and blood draws. Although they are relatively easy to place and inexpensive, PICC line use is associated with many complications such as phlebitis/thrombophlebitis, venous thrombosis, catheter-related infection, wound infection, and central vein stenosis. These complications are far more deleterious for patients with chronic kidney disease (CKD) whose lives depend on a functioning hemodialysis access once they reach end stage kidney disease (ESKD). Despite recent guidelines to avoid PICC lines in CKD and ESKD patients, clinical use remains high. There is an ongoing urgency to educate and inform health care providers and the CKD patients themselves in preserving their venous real estate. In this article, we review AV access and PICC line background, complications associated with PICC lines in the CKD population, and recommendations for alternatives to placing a PICC line in this vulnerable patient population.


Author(s):  
David Murithi ◽  
Sherry Oluchina ◽  
Dainah Kariuki

Background: Antenatal care (ANC) is the continuous care that is accorded to women in the course of pregnancy. Notably, antenatal care is an efficient health intervention aimed at inhibiting maternal mortality and morbidity majorly in areas where women have poor health. This study therefore assessed the patient related factors that influence utilization of ANC at Saku sub-county, Kenya.Methods: This research applied descriptive cross sectional study design. The study was carried out in Saku Sub County in the following randomly selected health facilities: Marsabit County Referral Hospital, Dakabaricha Dispensary and Jirime Dispensary.  The study population comprised of post-natal mothers aged between 15-49 years seeking services at maternal and child health clinic (MCH) in Saku Sub County. The Cochran's Sample Size Formula was used to calculate a sample size of 154 respondents. The study employed a researcher- administered semi-structured questionnaire and use of focused group discusions. Descriptive statistics, chi-square tests and logistic regression were used in the analysis.Results: Tertially/University education was significantly associated with utilization of ANC Services (OR=0.377, p-value=0.012, 0.177-0.806). There was a significant association between. The age between 15-19 years with the utilization of ANC services (OR =2.470, p-value=0.044, 1.024-5.955).Conclusions: There was a significant association between utilization of Antenatal care and receiving support from family members (p-value=0.035). Mothers are likely to utilize ANC services more often if they receive family support. Therefore, family support exerts a positive impact on a pregnant woman’s psychological well-being, as well as on the health of her newborn. Sensitizing men about antenatal services and their benefits health-care providers is important.


2020 ◽  
Author(s):  
Abdul Hanif Khan Yusof Khan ◽  
Nor Fadhlina Zakaria ◽  
Muhammad Adil Zainal Abidin ◽  
Nor Azmi Kamaruddin

Abstract Introduction: Glycaemic variability (GV) or glycaemic fluctuations carries a significant higher risk of diabetic-related complications, especially cardiovascular. Extensive researches have been reported, but study on the end-stage-kidney-disease (ESKD) patients on chronic haemodialysis are scarce. This study aims to determine the magnitude of GV among ESKD (diabetic vs non-diabetic) patients and its associated factors during haemodialysis day (HDD) and non-haemodialysis day (NHDD). Methods: We recruited 150 patients on haemodialysis, 93 patients had diabetic (DM-ESKD), and 57 non-diabetic (NDM-ESKD). The GV indices (standard deviation [SD] and percentage co-efficient variant [%CV]) were obtained from 11-point and 7-point self-monitoring blood glucose (SMBG) profiles during haemodialysis and non-haemodialysis day. The GV indices and its associated factors were analysed comparing between both groups during the HDD and NHDD. Results: Mean blood glucose during HDD was 9.33 [SD 2.7, %CV 30.6%] mmol/L in DM-ESKD compared to 6.07 [SD 0.85, %CV 21.3%] mmol/L in NDM-ESKD (p =<0.01). The DM-ESKD group experienced significantly higher GV indices compared to NDM-ESKD; both during haemodialysis and non-haemodialysis day, particularly in the group with HbA1c 8-10% (p= <0.01). Presence of diabetes, older age group, hyperlipidaemia, HbA1c, ferritin levels, and albumin were recognised as factors associated with GV. Conclusion: DM-ESKD patients has high glycaemic variability, especially during the haemodialysis day, therefore increasing their chance to develop future devastating complications. We identified high HbA1c, older age group, presence of hyperlipidaemia, ferritin levels, and albumin as factors associated with GV. Since these groups of patients are vulnerable to CVD mortality, urgent attention is needed to rectify it.


Medicine ◽  
2021 ◽  
Vol 100 (30) ◽  
pp. e26729
Author(s):  
Abdul Hanif Khan Yusof Khan ◽  
Nor Fadhlina Zakaria ◽  
Muhammad Adil Zainal Abidin ◽  
Nor Azmi Kamaruddin

2015 ◽  
Vol 40 (4) ◽  
pp. 332-336 ◽  
Author(s):  
Yuri Tanaka ◽  
Nobuhiko Joki ◽  
Hiroki Hase

Background: It was recently reported that the severity of coronary and carotid atherosclerosis in patients with end-stage kidney disease (ESKD) has improved over the last two decades. However, the frequency of coronary artery events observed at the initiation of dialysis remains high. Summary: Recently, 5 different clinical types of acute myocardial infarction (MI) were introduced in the third universal definition of MI. Type 2 MI, known as secondary MI, is a more heterogeneous entity, where a condition other than coronary artery narrowing contributes to an acute imbalance in oxygen supply and demand. In patients with chronic kidney disease, it has been demonstrated that type 2 MI is more common than type 1 MI, which is associated with coronary occlusive disease. It is suspected that patients with ESKD also often have type 2 MI. Factors associated with incremental increases in oxygen demand may cause myocardial ischemia in ESKD. Key Messages: Significant epicardial coronary narrowing might not be a necessary precursor of myocardial ischemia in ESKD. To prevent ischemic heart disease and improve prognosis in patients with ESKD, we need to pay attention not only to coronary stenotic lesions, but also to the factors associated with the induction of an imbalance in myocardial oxygen supply and demand.


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