scholarly journals Experiences and Attitudes of People with HIV/AIDS: A Systematic Review of Qualitative Studies

Author(s):  
Tomás Arias-Colmenero ◽  
Mª Ángeles Pérez-Morente ◽  
Antonio Jesús Ramos-Morcillo ◽  
Concepción Capilla-Díaz ◽  
María Ruzafa-Martínez ◽  
...  

The aim of this article was to explore the experiences and attitudes of people with HIV/AIDS. A systematic review of qualitative studies was carried out. Twenty-seven articles were included, with sample sizes ranging from 3 to 78. Articles from North America, South America, Central America, Europe, and Africa were included. Five topics emerged from the synthesis: feelings about the diagnosis of HIV/AIDS; stigma and HIV/AIDS; changes in sexual behavior after becoming infected; living with the virus; and pregnancy and motherhood in seropositive women. The moment of diagnosis is of vital importance for these people due to feelings such as disappointment, sadness, fear, despair, lack of awareness, and pain. Social support is highly valued among these people and is linked to an improvement in these peoples’ quality of life. Different kinds of stigma accompany people with HIV/AIDS throughout their life, like social stigma, self-stigma, and health professionals’ stigma. Seropositive women who decide to become mothers can feel frustration because they cannot breastfeed. Spirituality helps some people to deal with the fact of being a virus or disease carrier.

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Emma Farrell ◽  
Marta Bustillo ◽  
Carel W. le Roux ◽  
Joe Nadglowski ◽  
Eva Hollmann ◽  
...  

Abstract Background Obesity is a prevalent, complex, progressive and relapsing chronic disease characterised by abnormal or excessive body fat that impairs health and quality of life. It affects more than 650 million adults worldwide and is associated with a range of health complications. Qualitative research plays a key role in understanding patient experiences and the factors that facilitate or hinder the effectiveness of health interventions. This review aims to systematically locate, assess and synthesise qualitative studies in order to develop a more comprehensive understanding of the lived experience of people with obesity. Methods This is a protocol for a qualitative evidence synthesis of the lived experience of people with obesity. A defined search strategy will be employed in conducting a comprehensive literature search of the following databases: PubMed, Embase, PsycInfo, PsycArticles and Dimensions (from 2011 onwards). Qualitative studies focusing on the lived experience of adults with obesity (BMI >30) will be included. Two reviewers will independently screen all citations, abstracts and full-text articles and abstract data. The quality of included studies will be appraised using the critical appraisal skills programme (CASP) criteria. Thematic synthesis will be conducted on all of the included studies. Confidence in the review findings will be assessed using GRADE CERQual. Discussion The findings from this synthesis will be used to inform the EU Innovative Medicines Initiative (IMI)-funded SOPHIA (Stratification of Obesity Phenotypes to Optimize Future Obesity Therapy) study. The objective of SOPHIA is to optimise future obesity treatment and stimulate a new narrative, understanding and vocabulary around obesity as a set of complex and chronic diseases. The findings will also be useful to health care providers and policy makers who seek to understand the experience of those with obesity. Systematic review registration PROSPERO CRD42020214560.


2016 ◽  
Vol 19 (1) ◽  
pp. 21204 ◽  
Author(s):  
Carole Ian McAteer ◽  
Nhan-Ai Thi Truong ◽  
Josephine Aluoch ◽  
Andrew Roland Deathe ◽  
Winstone M Nyandiko ◽  
...  

2021 ◽  
pp. BJGP.2021.0345
Author(s):  
Hassan Awan ◽  
Faraz Mughal ◽  
Tom Kingstone ◽  
Carolyn A Chew-Graham ◽  
Nadia Corp

People with physical-mental comorbidity have a poorer quality of life, worse clinical outcomes and increased mortality compared to people with physical conditions alone. South Asians (SAs) are the largest minority group in the UK and are more likely to have long-term conditions (LTCs) such as diabetes and heart disease. SAs are less likely to recognise symptoms which may represent mental health problems. To explore how people of SA origin with LTCs understand, experience and seek help for emotional distress, depression and anxiety. Systematic review of qualitative studies exploring emotional distress in SAs with diabetes or coronary heart disease, within primary and community care settings worldwide. Comprehensive searches of eight electronic databases from inception to 1st September 2021. Data extracted included study characteristics, and understanding, experience and help-seeking behaviour for emotional distress. Thematic synthesis was undertaken. The CASP checklist for qualitative studies was used to assess quality of papers, and GRADE-CERQual used to determine the overall strength of evidence. Twenty one studies from 3,165 unique citations were included. Three main themes were identified. Understanding of emotional distress: non-medical terminology used, such as ‘tension,’ and a complex relationship between emotional and physical illness. Experiences of emotional distress: multiple forms of inequality, distress at diagnosis of their LTC, cultural factors, and gender differences. Help-seeking behaviour: self-management, seeking help from family, friends, and faith, and inadequate clinical support. This review provides a greater understanding of SAs’ conceptualisation of emotional distress in the context of LTCs, to support improvement in its recognition and management.


2021 ◽  
Author(s):  
Neil Stewart Coulson ◽  
Heather Buchanan

BACKGROUND Online support groups provide opportunities for individuals affected by HIV/AIDS to seek information, advice and support from peers. However, if and how engagement with online support groups helps individuals affected by HIV/AIDS remains unclear. OBJECTIVE To systematically review the evidence (both quantitative and qualitative) around the benefits of online support groups for individuals affected by HIV/AIDS in terms of psychosocial wellbeing and/or illness management. In addition, the review sought to identify and describe any negative aspects experienced by individuals as well as the types of social support exchanged within such online groups. METHODS A systematic review of English language articles was undertaken using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Databases searched included Medline, PubMed, EMBASE, CINAHL, PsycINFO, CENTRAL (Cochrane Register of Controlled Trials) and SCOPUS. Key findings were critically synthesized using a narrative and thematic approach. RESULTS 22 papers met the inclusion criteria from an initial pool of 4501 abstracts. These papers included 5 quantitative, 2 mixed-methods and 15 qualitative studies published between 2007 and 2019. CONCLUSIONS Some cross-sectional and qualitative studies suggest there may be an association between engagement and a range of psychosocial processes and outcomes. However, studies with robust methodological designs are needed to definitively establish whether HIV/AIDS-related online support groups improve psychosocial well-being and/or illness management. Qualitative data highlights users can have negative experiences in terms of interpersonal conflict and the challenges of encountering negative content. In addition, there may be aspects of the internet-mediated nature of the online communication which compromise member experiences. Finally, HIV/AIDS-related online support groups are venues through which individuals can solicit support, most commonly informational or emotional support. Future research should seek to examine the impact of engagement with online support groups over time including appropriate control or comparison groups. CLINICALTRIAL N/A


BMJ Open ◽  
2019 ◽  
Vol 9 (2) ◽  
pp. e022259 ◽  
Author(s):  
Rachel Cohen ◽  
Rachael Gooberman-Hill

ObjectivesTo conduct a systematic review of qualitative studies which explore health professionals’ experiences of and perspectives on the enhanced recovery after surgery (ERAS) pathway.DesignSystematic review of qualitative literature using a qualitative content analysis. Literature includes the experiences and views of a wide range of multidisciplinary team and allied health professional staff, to incorporate a diverse range of clinical and professional perspectives.Data sourcesPsycINFO, Medline, CINAHL and PubMed were searched in May 2017.Eligibility criteria for selecting studiesThe searches included relevant qualitative studies across a range of healthcare contexts. We included studies published from 2000 to 2017, as an appropriate time frame to capture evidence about ERAS after implementation in the late 1990s. Only studies published in the English language were included, and we included studies that explicitly stated that they used qualitative approaches.Data extraction and synthesisLiterature searches were conducted by the first author and checked by the second author: both contributed to the extraction and analysis of data. Studies identified as relevant were assessed for eligibility using the Critical Appraisal Skills Programme guidance.ResultsEight studies were included in the review, including studies in six countries and in four surgical specialties. Included studies focus on health professionals’ experiences of ERAS before, during and after implementation in colorectal surgery, gastrointestinal surgery, abdominal hysterectomy and orthopaedics. Five main themes emerged in the analysis: communication and collaboration, resistance to change, role and significance of protocol-based care, and knowledge and expectations. Professionals described the importance of effective multidisciplinary team collaboration and communication, providing thorough education to staff and patients, and appointing a dedicated champion as means to implement and integrate ERAS pathways successfully. Evidence-based guidelines were thought to be useful for improvements to patient care by standardising practices and reducing treatment variations, but were thought to be too open to interpretation at local levels. Setting and managing ‘realistic’ expectations of staff was seen as a priority. Staff attitudes towards ERAS tend to become more favourable over time, as practices become successfully ‘normalised’. Strengths of the review are that it includes a wide range of different studies, a variety of clinical populations, diversity of methodological approaches and local contexts. Its limitation is the inclusion of a small number of studies, although these represent six countries and four surgical specialties, and so our findings are likely to be transferable.ConclusionsStaff feel positive about the implementation of ERAS, but find the process is complex and challenging. Challenges can be addressed by ensuring that multidisciplinary teams understand ERAS principles and guidelines, and communicate well with one another and with patients. Provision of comprehensive, coherent and locally relevant information to health professionals is helpful. Identifying and recruiting local ERAS champions is likely to improve the implementation and delivery of ERAS pathways.PROSPERO registration numberCRD42017059952


2019 ◽  
Vol 8 (1) ◽  
Author(s):  
Emmanuel Kimera ◽  
Sofie Vindevogel ◽  
Jessica De Maeyer ◽  
Didier Reynaert ◽  
Anne-Mie Engelen ◽  
...  

2021 ◽  
Vol 4 (1) ◽  
pp. 23-38
Author(s):  
Carolina Lombó Fragueiro ◽  

Introducción: Este trabajo se llevó a cabo con la finalidad de averiguar si existía un agravamiento de las consecuencias del VIH tras la percepción de estigma. Metodología: Se realizó una revisión sistemáticacuyoscriterios de inclusión fueron(1) que los trabajos versaran sobre VIH/SIDA; (2) que se tratara de artículos científicos; (3) que el idioma de publicación fuera español o inglés. Los criterios de exclusión aplicados fueron (1) que los artículos incluyeran población infantojuvenil; (2) que se trataran de artículos de caso único.Resultados: La muestra total estuvo compuesta por 18267 participantes, la mayoría de ellos mujeres (65%), con una media de edad de 39’3 años, procedentes de Áfricay Asia, casados o con pareja estable y con un nivel educativo y socioeconómico bajo. El estigma se analizó a través de administración de pruebas en el 55% de los artículos y la calidad de vida, en el 44%. Se encontraron repercusiones psicológicas y sociales (53%) entre las que destacó el trastorno depresivo y la reducción de la red de apoyo;laborales y económicas (21%);físicas (18%) y sexuales (15%). Discusión:La mayoría de los resultados mostraron que el estigma sí que generaba repercusiones, las cualesafectaban, sobre todo, a la salud mental y a la red social de esta población, lo que reflejó la necesidad de fomentar el apoyo y el tratamiento psicológico. De igual manera, se encontró una posible relación entre el sexo, la región y el nivel de educaciónyel riesgo de contraer VIH.


2017 ◽  
Vol 3 (1) ◽  
pp. 1
Author(s):  
Angga Wilandika

ABSTRAKStigma dan diskriminasi terhadap orang dengan HIV/AIDS (ODHA), terutama pada kalangan perawat merupakan permasalahan yang dapat memengaruhi perawatan dan kualitas hidup ODHA. Ketidaktahuan mengenai penyakit HIV/AIDS sejak perawat masih dalam masa pendidikan merupakan permasalahan yang dapat mengarahkan kepada stigma dan diskriminasi dalam perawatan ODHA. Upaya untuk mereduksi stigma negatif terhadap ODHA yang dilakukan oleh mahasiswa keperawatan dapat dilakukan melalui pemberian pengetahuan dengan metode case-based learning. Tujuan penelitian ini adalah teridentifikasinya pengaruh metode case-based learning terhadap pengetahuan mahasiswa keperawatan tentang HIV/AIDS, stigma dan penerimaan pada ODHA. Metode penelitian ini menggunakan quasi-experimental dengan rancangan penelitian single group pretest-posttest. Sebanyak 49 mahasiswa yang mengikuti pembelajaran pada mata kuliah Keperawatan Medikal Bedah dilibatkan secara total sampling. Analisis deskriptif menggunakan mean, standar deviasi, persentase dan distribusi frekuensi. Sementara, analisis inferensial menggunakan Uji T. Hasil penelitian membuktikan adanya perbedaan dari pengetahuan mahasiswa tentang HIV/AIDS, stigma terhadap ODHA dan penerimaan mahasiswa pada ODHA sebelum dan sesudah case-based learning. Analisis lebih lanjut menemukan pengaruh signifikan (p < 0,005) dari metode case-based learning terhadap pengetahuan, stigma dan penerimaan mahasiswa keperawatan.Hasil temuan ini dapat digunakan oleh kalangan akademisi dan praktisi kesehatan dalam pengembangan program pendidikan yang dapat meningkatkan pengetahuan, mereduksi stigma negatif terhadap ODHA dan meningkatkan kemauan untuk menerima ODHA dilingkungan mereka. Lebih lanjut dapat dikembangkan penelitian mengenai pengembangan strategi metode case-based learning dalam intervensi untuk menurunkan stigma yang lebih luas dan tidak terbatas hanya pada kalangan mahasiswa, melainkan pada petugas kesehatan yang langsung berhubungan dengan pasien terinfeksi HIV/AIDS ABSTRACTStigma and discrimination against people living with HIV/AIDS (PLWHA), especially came from nurses was a problem that can affect the quality of care and quality of life of PLWHA. Ignorance about HIV/AIDS since the nurses are still in education is a problem that can lead to stigma and discrimination in treatment for PLWHA. The efforts to reduce the negative stigma against PLWHA performed by nursing students can be done through the provision of knowledge with case-based learning methods. The purpose of this study is the identification of the influence of methods of case-based learning to the knowledge of nursing students about HIV/AIDS, stigma and acceptance of people living with HIV. The study employed a quasi-experimental study with single group pretest-posttest. The sample size comprised 94 nursing college students who was attended Medical-Surgical Nursing Course with total sampling. Descriptive analysis using mean, standard deviation, percentage and frequency distribution. Meanwhile, inferential analysis using T-test. The result was found the differences in nursing college student knowledge about HIV/AIDS, stigma against PLWHA and the acceptance to PLWHA, before and after case-based learning. Further analysis revealed a significant effect (p <0.005) of methods of case-based learning toward a knowledge of HIV/AIDS, stigma and acceptance of nursing students for PLWHA in neighborhood. These findings can be used by academic and health professionals, to develop education program strategic to increase the knowlegde of nursing college student about HIV/AIDS, to reduction thenegative stigma againts PLWHA, and to raise the acceptance toward PLWHA in neighborhood. The further research can be focus on the development strategry of case-based learning methode in interventions to reduce stigma broader, not limited to the nursing student, meanwhile for health care workers that directly work with HIV/AIDS infected patient. 


2020 ◽  
Author(s):  
Laura-Maude Houle ◽  
Jo-Anne Gilbert ◽  
Karine Paiement ◽  
Alexandra Ayotte ◽  
Marie-Eve Mathieu

AbstractIntroductionMost adolescents do not meet physical activity (PA) recommendations, especially girls. Physical inactivity has major physical and psychosocial deleterious effects on adolescents. Little is known about the effect of girl-only, extra-curricular PA programs designed for adolescents on physical and psychosocial outcomes. Hence, this systematic review assessed quantitative and qualitative studies evaluating the effects of such interventions. It also aimed at identifying recommendations to improve their implementation and efficacy.MethodsLiterature published until June 4, 2018, was searched in three electronic databases. Two reviewers independently assessed the methodological quality of studies presenting results on physical and psychosocial outcomes, not those presenting solely implementation recommendations.ResultsSeventeen quantitative and qualitative studies describing 10 different PA programs were included. Six of these studies provided recommendations for implementation only. The overall quality of the studies assessing the effects on physical and psychosocial outcomes was moderate, with an average score of 58%. The PA programs assessed did not lead to clear improvements in PA levels or other physical outcomes. Concerning psychosocial results, there is some evidence that the programs could improve dimensions of the self-esteem construct.ConclusionFuture studies should assess the effect of girl-only, extra-curricular PA programs on the health-related habits, such as reduction of sedentary time among adolescents and sleep duration. More studies evaluating the psychosocial effects as a primary outcome are recommended to obtain a clearer understanding of the benefits. This review gathers recommendations to improve the efficacy of future extra-curricular PA programs designed to increase PA levels in girls.


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