scholarly journals Preferences and Experiences of People with Chronic Illness in Using Different Sources of Health Information: Results of a Mixed-Methods Study

Author(s):  
Svea Gille ◽  
Lennert Griese ◽  
Doris Schaeffer

Background: People with chronic illness are particularly dependent on adequate health literacy (HL), but often report difficulties in accessing, understanding, appraising, and applying health information. To strengthen the HL of people with chronic illness, in-depth knowledge about how they deal with health information is crucial. Methods: To this end, quantitative data from the Second Health Literacy Survey Germany (HLS-GER 2) and qualitative data from seven focus group discussions were used to examine the interest in health information, preferred sources of information as well as experiences and challenges with information management among people with chronic illness. Results: The results show that people with chronic illness have a great interest in health information and use very different sources of health information, preferring personal information from physicians most. The results also point to several challenges in health information management that seem to be influenced by the illness duration as well as by the experiences made with the respective sources. Conclusions: Overall, the study provides important starting points for intervention development for the provision and communication of health-related information, but also to research on health information behavior and HL.

1995 ◽  
Vol 4 (1) ◽  
pp. 17-29 ◽  
Author(s):  
Fiona Chew ◽  
Sushma Palmer ◽  
Soohong Kim

This three-stage national longitudinal survey of 300 respondents evaluated the impact on levels of nutrition knowledge of a specially designed television programme. These levels were assessed among subgroups using different sources of health information. The study was fielded before programme viewing, within three days of programme viewing and about six months after programme viewing. Up to five sources per respondent were obtained. Health information sources analysed included magazines, television, newspapers and doctor/clinic/hospital. Results showed that knowledge levels consistently increased among all groups after programme viewing and also across time ( p<0.001). In general, media users showed higher levels of knowledge than their non-user counterparts; however, only magazine users showed higher and significant differences in knowledge. Programme viewing led to an increased selection of television and newspapers as sources of health information. Magazine use and the use of doctors as health information sources remained the same after programme viewing.


Author(s):  
Inese Stars ◽  
Zanda Rubene

Adolescent health literacy is a promising innovation in health education. This article reports the findings of research in the experience of adolescents in the methods they used in obtaining health information. A phenomenographic research approach was used to understand how adolescents conceptualized health information obtaining. The study examined data provided by 24 adolescents aged 13 to 16 living in Latvia. The data was collected through qualitative interviews. Phenomenographic data analysis uncovered five categories of description by adolescents in the way they perceived health information obtaining: 1. An opportunity to find out “things” regarding health; 2. The use of different sources of information to obtain health information; 3. The use of multimodal texts to obtain health information; 4. A passive method of obtaining information; and 5. An active method of obtaining information. It is important to integrate the experience of adolescents into health education research to develop a deeper understanding of the pedagogical phenomenon and to enhance health education programmes.


2012 ◽  
Vol 26 (2) ◽  
pp. 142-160 ◽  
Author(s):  
Tracie Harrison ◽  
Sarah Guy ◽  
Michael Mackert ◽  
Janiece Walker ◽  
Pat Pound

The purpose of this mixed methods study was to understand preferences surrounding health literacy for 18 men and women with permanent and severe visual impairment (VI). Participants completed demographic questions—the National Eye Institute Visual Function Questionnaire (NEI-VFQ)—and 1 semi-structured interview to ascertain views on obtaining, processing, and understanding health information. Overall, the sample had low total eye health scores on the NEI-VFQ—indicating that the sample represented a group with severe visual impairments. The sample mentioned multiple health promotion topics of interest and types of devices used to gain information. They also described multiple barriers to health information, which could be eliminated. Implications for intervention development and technology use are provided.


2018 ◽  
Author(s):  
Amani S Alqahtani ◽  
Mohamed Tashani ◽  
Anita E Heywood ◽  
Robert Booy ◽  
Harunor Rashid ◽  
...  

BACKGROUND Travel agents are known to be one of the main sources of health information for pilgrims, and their advice is associated with positive health behaviors. OBJECTIVE This study aimed to investigate travel agents’ health knowledge, what health advice they provide to the pilgrims, and their sources of health information. METHODS In-depth interviews were conducted among specialist Hajj travel agents in Sydney, Australia. Thematic analysis was undertaken. RESULTS Of the 13 accredited Hajj travel agents, 9 (69%) were interviewed. A high level of awareness regarding gastrointestinal infections, standard hygiene methods, and the risk of injury was noted among the participants and was included in advice provided to pilgrims. However, very limited knowledge and provision of advice about the risk of respiratory infections was identified. Knowledge of the compulsory meningococcal vaccine was high, and all participated travel agents reported influenza vaccine (a recommended vaccine) as a second “compulsory” vaccine for Hajj visas. Conversely, participants reported very limited knowledge about other recommended vaccines for Hajj. The Ministry of Hajj website and personal Hajj experience were the main sources of information. CONCLUSIONS This study identifies a potential path for novel health promotion strategies to improve health knowledge among Hajj travel agents and subsequently among Hajj pilgrims.


2021 ◽  
Author(s):  
Ramona Kyabaggu ◽  
Deneice Marshall ◽  
Patience Ebuwei ◽  
Uche Ikenyei

UNSTRUCTURED The Health Information Management (HIM) field’s contribution to health care delivery is invaluable, especially in a pandemic context where the need for accurate diagnosis will hasten responsive evidence-based decision making. The COVID-19 pandemic offers a unique opportunity to transform the practice of HIM and bring more awareness to the role the frontline workers play behind the scenes safeguarding reliable, comprehensive, accurate and timely health information. This transformation will support future research, utilization management, public health surveillance and forecasting and enable key stakeholders to plan and ensure equitable health care resource allocation, especially for the most vulnerable populations. In this paper, we juxtapose critical health literacy, public policy, and health information management perspectives to understand the COVID-19 infodemic and new opportunities for health information management in infodemiology.


2020 ◽  
Vol 10 (11) ◽  
pp. 2543-2550
Author(s):  
Hyun-A Park

Because health information has some different properties from other general data, it is important to understand 'information subject,' 'subject of information generation,' 'subject of information management' according to the characteristics of each medical information. It makes it possible to develop the appropriate security technology under the current legal regulations. In this paper, we identify some incorrect uses in existing papers, we show that "Patient-Participated on Electronic Health Record Systems" is more appropriate expression rather than "Patient-Controlled on Electronic Health Record Systems." We discuss three key factors (information subject, subject of information generation, subject of information management) of medical information and 'personal information self-determination.' As a solution for privacy, we suggest the 'Secure and dynamic consent system' and 'Personally-controlled health record on PHR (Personal Health Records)' should be developed under the current law and the current (or future) integrated medical information system.


2019 ◽  
Vol 10 (4) ◽  
pp. 55-69
Author(s):  
Inese Stars ◽  
Zanda Rubene

Adolescent health literacy is a promising innovation in health education. This article reports the findings of research in the experience of adolescents in the methods they used in obtaining health information. A phenomenographic research approach was used to understand how adolescents conceptualized health information obtaining. The study examined data provided by 24 adolescents aged 13 to 16 living in Latvia. The data was collected through qualitative interviews. Phenomenographic data analysis uncovered five categories of description by adolescents in the way they perceived health information obtaining: 1. An opportunity to find out “things” regarding health; 2. The use of different sources of information to obtain health information; 3. The use of multimodal texts to obtain health information; 4. A passive method of obtaining information; and 5. An active method of obtaining information. It is important to integrate the experience of adolescents into health education research to develop a deeper understanding of the pedagogical phenomenon and to enhance health education programmes.


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