scholarly journals People Centeredness, Chronic Conditions and Diversity Sensitive eHealth: Exploring Emancipation of the ‘Health Care System’ and the ‘Patient’ in Health Informatics

Life ◽  
2020 ◽  
Vol 10 (12) ◽  
pp. 329
Author(s):  
Lars Botin ◽  
Pernille S. Bertelsen ◽  
Lars Kayser ◽  
Paul Turner ◽  
Sidsel Villumsen ◽  
...  

Health care systems struggle to consistently deliver integrated high-quality, safe, and patient-centered care to all in an economically sustainable manner. Inequity of access to health care services and variation in diagnostic and treatment outcomes are common. Further, as health care systems become ever more complex, iatrogenesis and counter productivity have emerged as real dangers. In exploring this paradox, this paper considers a subset of those in society living with chronic conditions. Their attributes and circumstances have led to them being marginalized or excluded from ‘end-user’ engagement and/or from their requirements being incorporated into technology supported chronic disease management initiatives. Significantly, these citizens are often the most vulnerable and socially disadvantaged and tend to achieve poorer results and cost more per capita than the ‘average patient’ in their interactions with the health care system. Critically, this paper argues that a truly people-centered technology supported chronic care system can only be designed by understanding and responding to the needs, attributes and capabilities of the most vulnerable in society. This paper suggests innovative ways of supporting interactions with these ‘end-users’ and highlights how reflection on these approaches can contribute to emancipating the health system to move towards more socially inclusive eHealth solutions.

2018 ◽  
Vol 13 (3-4) ◽  
pp. 280-298 ◽  
Author(s):  
Josée G. Lavoie

AbstractThe Canada Health Act 1984 (CHA) is considered foundational to Canada’s publicly funded health care system (known as Medicare). The CHA provides for the federal transfer of funding to the provinces/territories, in exchange for provincial/territorial adherence to Medicare’s key principles of universality; comprehensiveness; portability; accessibility; and, public administration. Medicare is a decentralized health care system, managed independently by Canada’s 10 provincial and three territorial governments, allowing for regional adaptations to fit varying degrees of urbanity, remoteness and needs. The Act is silent on its relationship to the Indigenous health care system – what some have described as Canada’s 14th health care system. The CHA has not kept pace with Indigenous self-government activities that have since spread across Canada. It has unfortunately crystallized the federal/provincial/territorial/Indigenous jurisdictional fragmentation that perpetuates health inequities and has failed to clarify these jurisdictions’ obligations towards Indigenous peoples. As a result of these omissions, access to health services remains a concern for many Indigenous Canadians, resulting in poorer outcomes and premature mortality. In this paper, I argue that Medicare renewal must: make an explicit commitment to Indigenous health equity; clarify jurisdictional obligations; establish effective mechanisms for addressing areas of jurisdictional dispute and/or confusion; and explicitly recognize First Nations and Inuit health care services as integral yet distinct systems, that nevertheless must be welcomed to seamlessly work with provincial health care systems to ensure continuity of care.


2014 ◽  
Vol 23 (01) ◽  
pp. 170-176 ◽  
Author(s):  
J. S. Wald ◽  
D. Z. Sands

Summary Objective: Address current topics in consumer health informatics. Methods: Literature review. Results: Current health care delivery systems need to be more effective in the management of chronic conditions as the population turns older and experiences escalating chronic illness that threatens to consume more health care resources than countries can afford. Most health care systems are positioned poorly to accommodate this. Meanwhile, the availability of ever more powerful and cheaper information and communication technology, both for professionals and consumers, has raised the capacity to gather and process information, communicate more effectively, and monitor the quality of care processes. Conclusion: Adapting health care systems to serve current and future needs requires new streams of data to enable better self-management, improve shared decision making, and provide more virtual care. Changes in reimbursement for health care services, increased adoption of relevant technologies, patient engagement, and calls for data transparency raise the importance of patient-generated health information, remote monitoring, non-visit based care, and other innovative care approaches that foster more frequent contact with patients and better management of chronic conditions.


2021 ◽  
pp. 1-10 ◽  
Author(s):  
Iris Wallenburg ◽  
Jan-Kees Helderman ◽  
Patrick Jeurissen ◽  
Roland Bal

Abstract The Covid-19 pandemic has put policy systems to the test. In this paper, we unmask the institutionalized resilience of the Dutch health care system to pandemic crisis. Building on logics of crisis decision-making and on the notion of ‘tact’, we reveal how the Dutch government initially succeeded in orchestrating collective action through aligning public health purposes and installing socio-economic policies to soften societal impact. However, when the crisis evolved into a more enduring one, a more contested policy arena emerged in which decision-makers had a hard time composing and defending a united decision-making strategy. Measures have become increasingly debated on all policy levels as well as among experts, and conflicts are widely covered in the Dutch media. With the 2021 elections ahead, this means an additional test of the resilience of the Dutch socio-political and health care systems.


2017 ◽  
Vol 53 (2) ◽  
pp. 107-112
Author(s):  
Daniel Ślęzak ◽  
Przemysław Żuratyński ◽  
Klaudiusz Nadolny ◽  
Marlena Robakowska ◽  
Alicja Kalis

Health care systems face challenges related to the technological advances in medicine, demographic changes and limited opportunities for growth funding for health, necessitating greater involvement in the search for more efficient systems. The authors present the functioning of the Polish health care system based on social, historical outline of the healthcare system in Poland and the functioning of the National Health Fund (NFZ). Poland has undergone many reforms of the health care system, the Bismarck model, the model Siemaszko, and finally to a model of universal health insurance. So everyone has the same right to health care services financed by the NFZ or directly from the state budget (eg. The system of state emergency medical services). The National Health Fund allows anyone insured to free healthcare and reimbursement of medicines. Introduced information about information programs.


2021 ◽  
Vol 10 (2) ◽  
pp. 1064-1082
Author(s):  
Claudia I. Henschke ◽  
David F. Yankelevitz ◽  
Artit Jirapatnakul ◽  
Rowena Yip ◽  
Vivian Reccoppa ◽  
...  

2012 ◽  
Vol 1 (2) ◽  
pp. 41-54 ◽  
Author(s):  
Krzysztof Landa ◽  
Karolina Skóra

Restrictions to health services in Poland have been an inspiration to establish Watch Health Care Foundation (WHC). The fundamental disease of the system is namely the disproportion between the amount of the funds and the contents of the package. It causes everywhere the same ’symptoms’ and leads to the same pathological phenomena: queues and other forms of rationing (’guaranteed’) health benefits, corruption, making use of privileges. Foundation uses the potential of information society and available infrastructure (web portal http://www.watchealthcare.eu) and all activities are presented on the website with the aim of influencing the health care system. On the basis of reports of limited access to health services, a ranking is created at WHC web portal, which aims to show what the biggest gaps in access to health services are - this is the way of showing the patient and health care system needs and also one possible approach of continuous education of the health care services consumers targeted at health care systems improvement.


2020 ◽  
Vol 110 (S2) ◽  
pp. S215-S218 ◽  
Author(s):  
Elizabeth A. Howell ◽  
Amy Balbierz ◽  
Susan Beane ◽  
Rashi Kumar ◽  
Tom Wang ◽  
...  

A health care system and a Medicaid payer partnered to develop an educational intervention and payment redesign program to improve timely postpartum visits for low-income, high-risk mothers in New York City between April 2015 and October 2016. The timely postpartum visit rate was higher for 363 mothers continuously enrolled in the program than for a control group matched by propensity score (67% [243/363] and 56% [407/726], respectively; P < .001). An innovative partnership between a health care system and Medicaid payer improved access to health care services and community resources for high-risk mothers.


2018 ◽  
Vol 40 ◽  
pp. 02003
Author(s):  
A. Kokarevica ◽  
A. Villerusa ◽  
D. Behmane ◽  
U. Berkis ◽  
V. Cauce

Resources are one of the essential indicators for the functioning of the health care system. Better health care provision is an essential prerequisite for the export of services. Traditionally a competitive health care system is linked to a number of factors (price, quality, reliability, products and services) largely determined by the new technologies, innovations and implementation the new methods. The authors of this article analyzed and collected data from the European Commission Eurostat and OECD data. Current situation in health care in Latvia is characterized by populations’ restricted access to health care services, high out-of-pocket payments and poor health outcomes of the population. More than 10% of Latvian population can’t afford medical care. The ratio of public funding for healthcare in Latvia is among the lowest in EU countries. Latvia spends 5.3% (USD PPP 1217) of GDP on health, lower than the OCED country average of 8.9% (USD PPP 3453). Latvia is facing a dramatic gap between the availability of hospital beds and long term care beds and the lowest prevalence of general medical practitioners among all Baltic States 321.6 per 100 000. These mentioned factors may hinder the development of health care in Latvia and reduce the ability to participate in international health service market.


2004 ◽  
Vol 5 (1) ◽  
pp. 59-70 ◽  
Author(s):  
Stefan Greß ◽  
Ralf Kocher ◽  
Jürgen Wasem

Abstract Recent reforms of the Swiss health care system to introduce regulated competition have raised expectations about the possible combination of more efficient services, while at same time maintaining or even increasing the level of solidarity in health care systems. In this article we examine expected behavioral changes of the market actors, the way incentives for market actors have been changed and analyze the way market actors in fact changed their behavior. We conclude that so far only some of the targets of the reforms have been met. For a reasonable assessment of the Swiss experience in regulating competition in health care it is paramount to distinguish expected effects from actual effects.


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