Spotlight on Siblings: Considering Social Context in Home Modification Practice

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) recognizes the role of Assistive Technologies (AT) in enabling independent living and inclusion of people with disabilities. Research into the provision of AT and disability services in general has highlighted the importance of social context and its influence on individual outcomes. However, there is little recognition of sibling roles, relationships and rights in the guidance available for practitioners. This paper explores the socio-technical context of home modification practice and the importance of involving siblings. The international context and concepts behind AT provision, including home modifications, and issues emerging from practice in Australia’s new National Disability Insurance Scheme (NDIS) are discussed. Based on extensive practical experience and peer review, the “5 S’s for Siblings” is presented as a practice approach for involving siblings in the home modification process. Policy and practice implications are presented, including communication strategies for working in partnership with individuals and their families, and alignment with national standards and human rights principles. Involving siblings in the home modification process recognizes the important role they play in the lives of people with disabilities, both now and in the future.

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Chronic Illness

Foundations of Global Health & Human Rights ◽

10.1093/oso/9780197528297.003.0014 ◽

2020 ◽

pp. 285-306

Author(s):

Oliver Lewis ◽

Soumitra Pathare

Keyword(s):

Mental Health ◽

Human Rights ◽

Independent Living ◽

People With Disabilities ◽

Well Being ◽

Persons With Disabilities ◽

Implementation Challenges ◽

National Implementation ◽

The Right ◽

Models Of Service Delivery

This chapter sets out the connection between disability and human rights, examining how persons with disabilities (including those with physical disabilities, sensory disabilities, psychosocial or mental health disabilities, and intellectual disabilities) are particularly vulnerable to exclusion and discrimination, leading to human rights violations across the world. It has been a long global struggle to recognize the rights of people with disabilities and realize the highest attainable standard of physical, mental, and social well-being, a struggle evolving across countries and culminating in the 2006 adoption of the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The provisions of the CRPD relate to three specific rights that are of particular importance to people with disabilities: legal capacity, the right to health, and the right to independent living. Yet, national implementation challenges remain, including finding space for mental health and disability in policymaking and developing models of service delivery that advance human rights.

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Evaluation of Treatment in the Smart Home IRIS in terms of Functional Independence and Occupational Performance and Satisfaction

Computational and Mathematical Methods in Medicine ◽

10.1155/2013/926858 ◽

2013 ◽

Vol 2013 ◽

pp. 1-10 ◽

Cited By ~ 5

Author(s):

Julija Ocepek ◽

Anne E. K. Roberts ◽

Gaj Vidmar

Keyword(s):

Elderly People ◽

Independent Living ◽

Smart Home ◽

Functional Independence Measure ◽

Functional Independence ◽

Performance Measure ◽

Assistive Technologies ◽

Occupational Performance ◽

Convenience Sample ◽

Persons With Disabilities

The development of assistive technologies, home modifications, and smart homes has rapidly advanced in the last two decades. Health professionals have recognised the benefits of these technologies in improving individual’s quality of life. The Smart Home IRIS was established in 2008 within the University Rehabilitation Institute in Ljubljana with the aim to enable persons with disabilities and elderly people to test various assistive technologies and technical solutions for their independent living. We investigated the effect of treatments in the Smart Home IRIS. A convenience sample of 59 persons with disabilities and elderly people (aged 24–81 years) who were treated in the Smart Home IRIS from April to December 2011 participated. Standardised instruments—the Canadian Occupational Performance Measure (COPM) and the Functional Independence Measure (FIM)—were administered at the first assessment in the Smart Home IRIS and at a second assessment at the participant’s home after 6–12 months. All the outcomes statistically significantly improved from the first to the second assessment. The treatments in the Smart Home IRIS appeared to contribute to higher occupational performance and satisfaction with performance and higher functional independence of persons with disabilities and elderly people.

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Tiếp cận dịch vụ hành chính công đối với người khuyết tật - Hướng đến sự thiết kế dung hợp

10.31219/osf.io/a4jw7 ◽

2021 ◽

Author(s):

Phan Luan

Keyword(s):

Public Administration ◽

Independent Living ◽

People With Disabilities ◽

Research Process ◽

Field Trials ◽

Public Servants ◽

Persons With Disabilities ◽

The Right ◽

The Voice ◽

Quantitative And Qualitative Methods

The research applied quantitative and qualitative methods to measure satisfaction and analyze possible barriers in accessing public administration services for people with disabilities. By using field trials, the study involves people with disabilities throughout the entire research process to ensure the voice from insiders has been brought out. The results presented that the levels of satisfaction of people with disabilities can be influenced by their perceptions of their rights, local culture, or the urbanization pressure. Notably, the higher the awareness of the right to independent living of people with disabilities is, the lower their satisfaction level is, regardless of receiving support from their relatives or public servants. In surveyed sites, the accessibility of people living with disabilities depends heavily on the political leaders' awareness of the rights of persons with disabilities. Several recommendations for people with disabilities, caregivers, organizations working on disability, and government agencies have been proposed to ensure a favorable environment for people with disabilities to actively exercise their right to access public administration services.

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Smart home modification design strategies for ageing in place: a systematic review

Journal of Housing and the Built Environment ◽

10.1007/s10901-021-09888-z ◽

2021 ◽

Author(s):

Chuan Ma ◽

Olivia Guerra-Santin ◽

Masi Mohammadi

Keyword(s):

Systematic Review ◽

Older Adults ◽

Independent Living ◽

Smart Home ◽

Universal Design ◽

Design Strategies ◽

Ageing In Place ◽

Home Modification ◽

Hand Search ◽

Modification Process

AbstractThis research explores current strategies and approaches directed to integrate innovative technologies in the home modification process to support independent living and ageing in place. The systematic review considered studies conducted from the perspective of architecture, smart technology, and gerontology. Scientific databases of related disciplines (e.g. Scopus, Web of Science, Engineer village, Google Scholar, Crossref) were searched and supplemented by hand search method. Thirty-three out of 2594 articles were analysed from three perspectives: the framework of the smart home environment for ageing in place, the smart home modification process, and problems and countermeasures of independent living. The result shows that both home modification and smart technologies can support older adults’ independent living, especially with fall prevention and indoor accessibility. Technologies deployed in older adults’ homes are transiting from manual assistive technology to more intelligent devices, and the notion of the robotic home has emerged. According to existing practices, universal design is an extensively adopted strategy for smart home design and modification. However, in most cases, universal design is used as a retrofitting guideline for general home settings rather than specifically for smart homes. The fundamental requirements in smart home modification phases are customisation, minimum life interference, and extensible technologies to cope with the ageing process.

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Assistive Technologies, Tools and Resources for the Access and Use of Information and Communication Technologies by People with Disabilities

Assistive Technologies ◽

10.4018/978-1-4666-4422-9.ch013 ◽

2013 ◽

pp. 246-260

Author(s):

Betania Groba ◽

Thais Pousada ◽

Laura Nieto

Keyword(s):

Assistive Technology ◽

Information And Communication Technologies ◽

New Technologies ◽

People With Disabilities ◽

Communication Technologies ◽

Assistive Technologies ◽

Technology Support ◽

Occupational Performance ◽

Persons With Disabilities ◽

Information And Communication

A person with disabilities can present difficulties in occupational performance. It is necessary to develop a set of resources, technological or otherwise, to offset these difficulties, and contribute to the integration of people with functional diversity in society. These resources are called support products or technology support, but do not eliminate the deficits, they can eliminate the limitation of the performance of persons with disabilities. Moreover, the Information Technology and Communications (ICT) were formed as an alternative to personal empowerment of people with disabilities. To access and use of these new technologies are used to support specific products. In the market there is a diversity and variety of assistive technology, so it is necessary the classification and analysis of various products before the person can use it. The purpose of this chapter is to provide information about assistive technology, and specifically those directly related to ICT.

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s.Three Contemporary Applications, 13 Chronic Illness: Disability and Mental Health

Foundations of Global Health & Human Rights ◽

10.1093/law/9780197528297.003.0014 ◽

2020 ◽

Author(s):

Lewis Oliver ◽

Pathare Soumitra

Keyword(s):

Mental Health ◽

Human Rights ◽

Independent Living ◽

People With Disabilities ◽

Well Being ◽

Persons With Disabilities ◽

Implementation Challenges ◽

National Implementation ◽

The Right ◽

Models Of Service Delivery

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Affirmative Action, Cultural Diversity, and Disability Policy Reform: Foundations to the Civil Rights of Persons with Disability

Journal of Applied Rehabilitation Counseling ◽

10.1891/0047-2220.29.3.9 ◽

1998 ◽

Vol 29 (3) ◽

pp. 9-18 ◽

Cited By ~ 2

Author(s):

Renée A. Middleton ◽

Debra A. Harley ◽

Carolyn W. Rollins ◽

Tamala Solomon

Keyword(s):

Affirmative Action ◽

Civil Rights ◽

Cultural Diversity ◽

Civil Rights Movement ◽

Independent Living ◽

Disability Services ◽

Rehabilitation Act Of 1973 ◽

Policy And Practice ◽

Persons With Disabilities ◽

The 1960S

The authors discuss how the impetus for rehabilitation reform historically received momentum from civil rights activities in the 1960s. The origins of the Civil Rights Act of 1964, the American with Disabilities Act, and the Rehabilitation Act of 1973, are discussed from the political context at the time of passage. Thus, the reader comes to understand how persons with disabilities, through the independent living movement; a civil rights movement within a movement for equality, were empowered to become a major force in prompting the signing of the ADA. The paper is based on the belief that current disability legislation must be inclusive of all persons with disabilities. To that end, connections are made between affirmative action, a major vanguard of equality, cultural diversity and multiculturalism. A rational is provided for the assertion that elimination of affirmative action will have serious repercussions for the long-term effectiveness and survival of other civil rights legislation. Finally, recommendations for achieving multiculturalism are made and concluding remarks predict the outlook for the future with respect to disability services, policy and practice.

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The Right to Independent Living and being included in the Community: Lessons from the United Nations

International Journal of Mental Health and Capacity Law ◽

10.19164/ijmhcl.v2018i24.747 ◽

2018 ◽

Vol 2018 (24) ◽

pp. 32 ◽

Cited By ~ 1

Author(s):

Piers Gooding

Keyword(s):

Mental Health ◽

United Nations ◽

Independent Living ◽

Disability Services ◽

Policy And Practice ◽

Middle Income ◽

Persons With Disabilities ◽

Middle Income Countries ◽

Key Issues ◽

The Right

<p align="LEFT">This review will consider recent United Nations activity on article 19 of the Convention on the Rights of Persons with Disabilities (CRPD) concerning the right to live independently and be included in the community. The Committee on the Rights of Persons with Disabilities adopted its ‘General Comment’ No. 5 in August 2017, which offers guidance to governments on art 19 implementation. This review critically examines content relevant to mental health and capacity law, policy and practice. It considers the strengths and potential limitations of the General Comment with reference to key issues in the field. Gaps include commentary on the rising marketisation of disability services globally and a focus on low and middle-income countries. Yet overall, the General Comment offers useful guidance on implementing this unusual right, including concepts that may help resolve controversies about the role of coercion in mental health and capacity law.</p>

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INSTITUTIONALIZED CHAOS INSTEAD OF INDEPENDENT LIVING. FORCED MODERNIZATION AND ASSISTANT SERVICES IN POLAND

Studia Humanistyczne AGH ◽

10.7494/human.2020.19.3.73 ◽

2020 ◽

Vol 19 (3) ◽

pp. 73-92

Author(s):

Ewa Giermanowska ◽

Mariola Racław ◽

Dorota Szawarska

Keyword(s):

Social Life ◽

Independent Living ◽

Public Discourse ◽

People With Disabilities ◽

Social Consequences ◽

Persons With Disabilities ◽

Personal Assistance ◽

Governmental Organizations ◽

Non Governmental Organizations ◽

State Of Affairs

Personal assistance for people with disabilities in Poland is not available as part of a comprehensive state policy; it is instead a dispersed, fragmented service based on projects. There is a lack of both a national strategy for independent living (including solutions for personal assistance as a key tool) and a plan for deinstitutionalisation of support services. A disabled person as an independent entity seems to be invisible to legislators, despite the postulates regarding “tailor-made” services or “profiling of help” present in public discourse. At the same time, uncoordinated changes are taking place regarding support for people with disabilities, including assistance services. They are partly forced by Poland’s ratification (2012) of the Convention on the Rights of Persons with Disabilities, and partly due to grassroots social innovations of non-governmental organizations. In the article, the authors analyse the factors responsible for the current state of affairs in the context of the theory of imposed modernization, emphasizing the superficiality of institutional changes. They will refer to critical research of public policies (so-called street level bureaucracies) analysing the daily practices of public officials and the social consequences for their recipients. The limitations of the model of personal assistance services as services including disabled people in the mainstream of social life will also be discussed.

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Accessibility of Library Services to Patrons With Disabilities at Bindura University of Science Education Library

Advances in Library and Information Science - Handbook of Research on Information and Records Management in the Fourth Industrial Revolution ◽

10.4018/978-1-7998-7740-0.ch011 ◽

2021 ◽

pp. 159-182

Author(s):

Prosper Josiah Machuve

Keyword(s):

Science Education ◽

People With Disabilities ◽

Theoretical Framework ◽

International Federation ◽

Assistive Technologies ◽

Institutional Policy ◽

Library Services ◽

Persons With Disabilities ◽

Staff Members ◽

Physical Accessibility

The study investigated the accessibility of library services to patrons with disabilities at Bindura University of Science Education (BUSE). The study was carried out because, since the commissioning and the movement of all BUSE library services to the new library, there has not been any study to determine how accommodative the library is to patrons with disabilities. The study made use of International Federation of Libraries and Associations (IFLA) access to libraries for persons with disabilities checklist as its theoretical framework. The study recommended that for BUSE library to improve the accessibility of library services to patrons with disabilities it must craft an institutional policy for people with disabilities at BUSE, provide more resources in alternative formats, as well as provide assistive technologies through establishing a disability centre for patrons with disabilities, training of library staff members to better equip them to serve patrons with disabilities, and physical accessibility of the library by patrons with disability must be improved.

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