scholarly journals Vivência de cuidados paliativos durante atenção domiciliar de paciente com Coreia de Huntington na residência de medicina de família e comunidade / Experience of palliative care during home care of a patient with Huntington’s Korea at the family and comunity medicine residency

2021 ◽  
Vol 7 (12) ◽  
pp. 113737-113753
Author(s):  
Sávio Leles ◽  
George Oliveira Silva ◽  
Jéssika Martins Siqueira
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
The Family ◽  
De Medicina

O Estudo da Morte e dos Cuidados Paliativos: Ausências no Currículo de Medicina./ The Study of Death and Palliative Care: Curriculum in the Absence of Medicine.

1970 ◽  
Vol 3 (3) ◽  
pp. 74-86
Author(s):  
Maria das Graças Mota Cruz de Assis Figueiredo ◽  
Rita de Cassia M. T. Stano
Keyword(s):  
Palliative Care ◽  
Medical Education ◽  
Professional Practice ◽  
Medical Schools ◽  
The Body ◽  
The Family ◽  
Current Scenario ◽  
History Of ◽  
Education In Brazil ◽  
De Medicina

O presente artigo acompanha a história da formação médica no Brasil e levanta algumas das origens do cenário atual da prática da medicina no país, considerada como bastante resolutiva na busca da cura do corpo, mas despreparada para a abordagem do sofrimento global que acompanha o processo de adoecimento e da morte. As autoras enfatizam a necessidade de reavaliação crítica dos currículos das escolas de formação médica, buscando-se aliar à excelência técnica da prática profissional, valores como o cuidado integral ao doente por detrás da doença, e a atenção às necessidades deste e da família quando se avizinha a morte. Com base na sua experiência no ensino da Disciplina de Tanatologia e Cuidados Paliativos em duas Faculdades de Medicina, o artigo aponta como um dos caminhos para a construção de uma nova base curricular, mais responsivo à necessidade de profissionais e doentes, o ensino desta Disciplina nas diversas escolas médicas do país.  Palavras-chave: Tanatologia, Cuidados Paliativos, Currículo.       ABSTRACT This article outlines the history of medical education in Brazil and raises some of the origins of the current scenario of medical practice in the country, considered as quite resolute in the pursuit of healing the body, but unprepared for addressing global suffering that accompanies the process of illness and death. The author emphasizes the need for critical reappraisal of curricula of medical education, seeking to combine technical excellence in professional practice, values ​​as comprehensive care for the patient behind the disease, and attention to the needs of the family and when approaching death. Based on his experience in teaching discipline Thanatology and Palliative Care in two medical schools, the article points out how one of the ways to build a new base curriculum more responsive to the needs of professionals and patients, the teaching of this discipline in several medical schools in the country.  Keywords: Thanatology, Palliative Care, Curriculum.   

scholarly journals IT POSSIBLE TO DIE AT HOME? ANALYSIS OF THE BRAZILIAN AND FRENCH SCENARIOS

2019 ◽  
Vol 28 ◽  
Author(s):  
Franciele Roberta Cordeiro ◽  
Maria Henriqueta Luce Kruse
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
End Of Life ◽  
Hospital Discharge ◽  
Health Systems ◽  
Health Professionals ◽  
Ethnographic Study ◽  
The Family ◽  
Palliative Care Units ◽  
Return Home

ABSTRACT Objective: to describe and analyze the challenges and the possibilities of the return to the home in palliative care in the Brazilian and French scenarios. Method: ethnographic study conducted in two hospitals, homes and medical-social establishments. Six people in palliative care, four family members and eight health professionals participated in the study. The data were organized through discursive mapping and analyzed from a cultural and Foucaultian perspective. Results: to present the results, two categories were elaborated: Strategies for hospital discharge in palliative care and between the family, the state and justice: barriers to return home. It is evident that, in Brazil and in France, the return to the home is an event that faces resistance from the families. This fact is mainly related to the cultural conceptions that hospital palliative care units are places capable of providing comfort at the end of life, and difficult access to home care programs and services. In both countries, due to the complexity of hospital discharge, families and managers judicialize this process. Conclusion: the return to the home in palliative care depends on the way death is signified in a culture, the family settings and the existence or not of a network of palliative care in the health systems of each country.

Tinjauan sistematis: Efektifitas Palliative Home Care untuk Pasien dengan HIV/AIDS

1970 ◽  
Vol 5 (1) ◽  
Author(s):  
Linlin Lindayani ◽  
Nenden Nur Asriyani Maryam
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
Palliative Medicine ◽  
Cochrane Library ◽  
Palliative Home Care ◽  
Hiv Aids

Asuhan palitif untuk pasien dengan HIV/AIDS merupakan elemen inti dari asuhan pasien dengan HIV/AIDS. Asuhan paliatif yang berbasis home care saat ini menjadi elemen penting yang digunakan di berbagainegara. Akan tetapi, tidak ada studi atau tinjauan sebelumnya yang menganalisis efektifitas dari asuhanpaliatif yang berbasis home care pada pasien dengan HIV/AIDS. Tujuan dari tinjauan sistematik ini adalahuntuk mengevaluasi efektivitas Palliative Home Care untuk pasien dengan HIV/AIDS terhadap nyeri,pengendalian gejala, meningkatkan kualitas hidup, meningkatkan kepuasan asuhan, dan efektivitas biaya.Pencarian awal terbatas dilakukan di MEDLINE dan CINAHL. Kedua database tersebut dipilih denganpertimbangan bahwa keduanya merupakan database terbesar di bidang kesehatan dan kedokteran. Kemudiastrategi pencarian lainnya dilakukan pada database lain meliputi: Cochrane Library, UpToDate, Ovid, AIDSCare, Journal of Palliative Care, dan Journal of Palliative Medicine. Studi yang diterbitkan dalam Bahasa Inggrisdan tahun 2000-2016 dipertimbangkan untuk dimasukkan dalam tinjauan ini. Data diekstrak oleh penulis dandiringkas menggunakan alat ekstraksi data dari JBI (Joanna Briggs Institute). Kami menemukan 4 studi yangmasuk kedalam kriteria tinjauan kami, satu studi randomizes control trial dan tiga studi prospectively control.Hasil dari tinjauan ini menunjukkan bahwa Palliative Home Care terbukti efektif dalam mengontol nyeridan gejala-gelaja lain, mempertahankan dan meningkatkan kualitas hidup pasien, tingginya kepuasan daripasien dan kelurga terhadap asuhan Palliative Home Care berkisar 93% - 96% dan lebih cost-effectivenessdibandingkan dengan Hospital-Based Palliative Care. Dengan demikian, penting untuk mengembangkanPalliative Home Care untuk pasien dengan HIV/AIDS terutama untuk negara dengan sumber daya yang terbatas.

HOPE. Home Care Outreach for Palliative Care Education.

1998 ◽  
Vol 6 (2) ◽  
pp. 79-85 ◽  
Author(s):  
BR Ferrell ◽  
R Virani ◽  
M Grant
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
Care Education ◽  
Palliative Care Education

scholarly journals “It’s Always Been a Second Class Cancer”: An Exploration of the Experiences and Journeys of Bereaved Family Carers of People with Sarcoma

Cancers ◽  
2021 ◽  
Vol 13 (11) ◽  
pp. 2670
Author(s):  
Moira O’Connor ◽  
Greta Smith ◽  
Ashleigh Pantaleo ◽  
Darren Haywood ◽  
Rhys Weaver ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Member ◽  
The Body ◽  
Social Constructionist ◽  
Family Carers ◽  
Writing Therapy ◽  
The Family ◽  
Qualitative Descriptive ◽  
Bereaved Family ◽  
Delays In Diagnosis

Sarcomas are a group of rare and aggressive cancers, which develop in bones and connective tissue throughout the body. Sarcomas account for only 1–2% of all cancers worldwide; however, mortality rates for sarcoma are high with approximately two in four sarcoma patients dying following a diagnosis. Delays in diagnosis, poor management of symptoms, patients’ high symptom loads and high carer burden are all associated with carer distress, which may lead to complications after bereavement. The experience of having a family member referred for palliative care is also distressing for carers, with the realisation that their family member is dying. This study aimed to explore the experiences of bereaved family carers of people diagnosed with sarcoma. A qualitative descriptive design using a social constructionist framework was adopted. Interviews were conducted with sixteen participants, and thematic analysis was used to identify patterns in the data. Four overarching themes emerged: beginning the journey; moving through treatment; transitioning to palliative care; and experiencing bereavement. The narratives were coherent and potent, and people reflected on their journeys. Interventions and supports for bereaved carers could include opportunities for counselling to support reflections, supports for developing a narrative such as writing therapy, and preparation for the death of the family member.

scholarly journals Quality of life of caregivers of cancer patients in home palliative care: a non-interventional study

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
E Faggian ◽  
S Favero ◽  
D Gregori ◽  
M Martinato
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patient ◽  
Home Care ◽  
Continuity Of Care ◽  
Physical Stress ◽  
Private Life ◽  
Phone Call ◽  
Average Score

Abstract Background caregivers of home-cared cancer patient during palliative phase are often under psychological and physical pressure. This can lead to a low level quality of life (QoL). This study assesses the QoL of this type of caregiver, more specifically it aims to outline which factors (age, type of palliative care, amount of time spent daily with the patient) affect positively or negatively the QoL score. Methods The AC-QoL questionnaire has been completed by 25 caregivers of oncological patients in home care in north-eastern Italy. The questionnaire is made of 40 items divided into 8 subjects: support in care, choice of care, stress, economic issues, personal growth, sense of value, care skills and personal satisfaction. It has been administered during a home visit or during a follow-up phone call. Results The average score obtained is 71/120, which means a medium level of QoL. The factors which worsen the QoL are the psychological and physical stress (average score 5/15) and restrictions on caregivers' private life (average score 6/15). No significant differences in the QoL of the caregivers are related to social and personal variables (such as age, working condition, relationship with the patient, type of palliative care, amount of time spent daily with the patient). Conclusions These caregivers play a fundamental role in the management of an appropriate continuity of care and their health and QoL are important. Stress and restrictions on private life are the factors which worsen QoL, that's why nurses should evaluate the caregivers' wellbeing during home-visits. Caregivers usually feel able to offer adequate assistance if they have been adequately trained to by healthcare professionals: nurses should provide every useful tool to aloud the caregiver to feel able of and comfortable providing assistance to his/her relative trough an “empowerment process”. Key messages Caregiver of cancer patient in charge of home palliative care is fundamental for an appropriate continuity of care and his health and quality of life (QoL) are important to provide good assistance. Psycho-physical stress and restrictions on private life worsen QoL. Caregiver’s wellbeing should be assessed and useful tools should be provided by home care nurses to ease caregivers’ job.

Prevalence of delirium in advanced cancer patients in home care and hospice and outcomes after 1 week of palliative care

2017 ◽  
Vol 26 (3) ◽  
pp. 913-919 ◽  
Author(s):  
Sebastiano Mercadante ◽  
Francesco Masedu ◽  
Isabella Balzani ◽  
Daniela De Giovanni ◽  
Luigi Montanari ◽  
...  
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Advanced Cancer Patients

scholarly journals Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

2015 ◽  
Vol 36 (2) ◽  
pp. 56-62 ◽  
Author(s):  
Adriana Ferreira da Silva ◽  
Helena Becker Issi ◽  
Maria da Graça Corso da Motta ◽  
Daisy Zanchi de Abreu Botene
Keyword(s):  
Palliative Care ◽  
Multidisciplinary Team ◽  
Structured Interview ◽  
Paediatric Oncology ◽  
Lessons Learned ◽  
Team Members ◽  
Descriptive Research ◽  
The Family ◽  
Research Questions ◽  
Oncology Unit

OBJECTIVE: To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD: Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS: The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS: The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the child's care.

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